Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Newly Diagnosed 9-9-05. I Have Some Questions...
0

6 posts in this topic

Hi,

I am very new to this board and also to the gluten free thing. I wanted to post my enterolab results and see if you guys have anymore information for me.

Fecal Antigliadin IgA 12 Units (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Microscopic Fecal Fat Score: 301 Units (Normal Range < 300 Units)

HLA-DQ Gene Molecular analysis: HLA-DQB1*0301, 0502

Food Sensitivity Testing

Fecal anti-casein (cow's milk) IgA antibody 7 Units (Normal Range <10)

I think I understand it but I'm not totally sure. Basically I started on the gluten free diet as soon as I got my results back. Before the diet my only symptoms were occasional bloating and constipation and that is all. I was tested because my mom was diagnosed celiac last year. So now after being on the diet for about 5 days I don't really feel any different than I did before I started the diet. (but before the diet I didn't feel bad just had constipation.) I am still having constipation. I know that some of you have said that it can take months of being on the diet to actually start to feel different but from my test results it doesn't look like I had a lot if any damage done. Does that make a difference?

Thank-you for any more information that you might have for me.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Sorry, I really don't know. But, can I just ask why you didn't have blood testing?? It is much more accurate and diagnostice of celiac disease if it is positive.

Sorry you aren't feeling better yet. Hang in there. I've been gluten-free just over 3 weeks, and I just finished rummaging in my pantry and came up with one lousy chocolate for lunch because everything else contains gluten and I am beyond sick of rice cakes already. I need to go grocery shopping today!

((Hugs)) and welcome to the board.

0

Share this post


Link to post
Share on other sites

Hi,

You might need more than just 5 days to see results and are you 100% gluten-free like with skin products, lipstick, toothpaste...stuff like that?

You could also be sensitive to another food...especially dairy.

I had Enterolab tests as well...my malabsorption score was 912 so even though my anti-casein was in the normal range (9) I still have problems with dairy such as bloating and gas and various other symptoms. I think even if you have only mild damage you could still be sensitive to dairy or something else till you heal.

Just a thought.

0

Share this post


Link to post
Share on other sites

Thanks for the reply Rachel--24. I think that I will try eliminating dairy out of my system also. I thought that since it didn't say that I was sensitive to that it would be ok.

0

Share this post


Link to post
Share on other sites

I think what the Enterolab casein test is looking for is an immune response to dairy which is totally seperate from lactose intolerance. Lactose intolerance sort of comes with the territory when there is damage to the intestine. It will get better when you heal. Of course I have no idea if thats the case for you but definately worth a try. I know lactose intolerance can cause diarreah and bloating but I'm not sure about constipation. Maybe someone can answer that cuz I'm not sure. :unsure:

0

Share this post


Link to post
Share on other sites




Fecal Antigliadin IgA 12 Units (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Microscopic Fecal Fat Score: 301 Units (Normal Range < 300 Units)

HLA-DQ Gene Molecular analysis: HLA-DQB1*0301, 0502

Food Sensitivity Testing

Fecal anti-casein (cow's milk) IgA antibody 7 Units (Normal Range <10)

It appears from these results that you are sensitive or intolerant to gluten. And you appear to have the gene. You cannot confirm celiac from enterolab results; however, you can tell if you are sensitive or intolerant to something. Based on these results, I think the gluten-free diet is a very good choice if you are not interested in getting other tests done. Being on the gluten-free diet can give false negative results on blood tests and biopsies.

So now after being on the diet for about 5 days I don't really feel any different than I did before I started the diet.
It may take over a month to notice any improvements. If you do indeed have celiac, your intestines will need lots of time to heal. I started to notice improvement after 6 months and started to feel a lot better after 1 year.
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,142
    • Total Posts
      919,559
  • Topics

  • Posts

    • Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.
    • Yes!  With dairy, celiacs can often have a temorary lactose intolerance due to damaged intestinal villi (where the enzymes normally are released to digest lactose).  Of course you could be naturally lactose intolerant based on race or age.  It is best to stick to a whole foods diet while you are healing.  Really, is ice cream or potato chips going to provide you with nutritional value?  Stick with naturally gluten free foods like meat, fish, fats,  veggies (even those with carbs like sweet potatoes or winter squash) and fruit.  Avoid that processed junk as you may react to the additives right now.  Later, you can add back in dairy (test) and other foods you miss and crave.   Good luck!  
    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
    • Well....one common symptom that most celiacs have when they are diagnosed (or undiagnosed) is anxiety.  So, there is a risk of cancers, but science has demonstrated that that risk goes down on a gluten free diet (if you have celiac disease).  In goes down to the same risk as those without celiac disease.   I kind of was a basket case.  I drive my family a bit crazy because I was anxious.  I felt a bit stupid too.  I guess I had a little brain fog going on too.  All that resolved after I healed. Welcome to the fourum.  Read our Newbie 101 thread under "Coping" (pinned at the top of the page) and learn about hidden sources of gluten and cross contamination.  I think most of us do not worry about cancer. We mourn the freedom to eat anything anywhere!   I did not have swollen lymph nodes, but I am sure others have and they did not have cancer.  Hopefully, they will chime in and set your mind at ease.  If not, you can search for "lymph nodes" at the top of the page (little magnifying glass).  There are lots of members with the same issue!  
    • I was recently diagnosed as having celiac and to be honest the part I'm having the most trouble with isn't the change in food or lifestyle. I'm really upset about what I've read about the risk of cancer increasing with celiac disease. I think this is playing into my fears because I currently have lymph nodes all over my body-my Doctor says they are not considered swollen or concerning, but I don't usually feel nodes. The lymph nodes and horrible diarrhea for the last 3 weeks were what got me into the the doctor for lab work. My blood work came great so I'm wondering if anyone else experienced lymph nodes reacting when they found out they were celiac? Also how do you deal with anxiety surrounding the increased risk of cancer? Thanks!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,173
    • Most Online
      1,763

    Newest Member
    Mnoosh
    Joined