Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Endoscopy


  • Please log in to reply

9 replies to this topic

#1 homemaker

 
homemaker

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 240 posts
 

Posted 29 August 2012 - 10:47 AM

My first endoscopy is tommorow....any suggestions? Do you remember anything? :unsure: Thanx
  • 0
Constipation, Gas, Bloating, Abdominal Pain, Ataxia, Brain Fog, Joint Pain Headaches
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)

Celiac.com Sponsor:

#2 Adalaide

 
Adalaide

    It needs to be about 20% cooler.

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,441 posts
 

Posted 29 August 2012 - 11:05 AM

Have some Chloraseptic sore throat spray at home. :P I didn't have a scheduled endoscopy and it happened with a surgery but I know the sore throat was from that tube pokin around in there. Other than that I think every ill effect I suffered was from other stuff I had going on.

Out of curiosity seeing your other posts, you're already gluten free? That can lead to a false negative. I won't mince words on this. You may be having a completely useless medical test for absolutely no reason at all. No one should be having an endoscopy and biopsy for celiac while already gluten free and if your doctor recommended it, he is a moron. The results, if negative can't be trusted. On top of the medical risks of general anesthesia there is also the co-pays you may have to consider. On top of that, once you've had it done once your insurance may flat out say there is no way they'll pay for a second one and you'll be forever screwed out of what possibly should have been a positive biopsy. Food for thought.
  • 0

"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#3 homemaker

 
homemaker

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 240 posts
 

Posted 29 August 2012 - 11:11 AM

I am having an endoscopy for possible GERD and Esophageal Spasm...he knows I have gone gluten-free and also strongly suspects the dx of celiac even though I have gone gluten-free. (bloodwork was NEG) He said he was going to look for anything related to celiac when he is in there. My sisters also have celiac and continue to have positive biopsies for celiac even though they are rigid about their gluten-free diet....but no....this endoscopy was not scheduled for the purpose of diagnosing celiac disease.....but he is happy he gets a reason to take a peak around to check to see if the villi look ok....Thanks for the tip!
  • 0
Constipation, Gas, Bloating, Abdominal Pain, Ataxia, Brain Fog, Joint Pain Headaches
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)

#4 veronika

 
veronika

    Community Member

  • Advanced Members
  • PipPipPip
  • 36 posts
 

Posted 29 August 2012 - 11:37 AM

I don't remember much of mine, they loaded me up on a lot of drugs (thank god). The only part I remember is a bit of the end when they were taking the scope out, but even that is fuzzy. I was more anxious about the procedure than I needed to be, that's for sure.

Bring some hard candy or throat drops to soothe the sore throat you will undoubtedly have. If you are being sedated, make sure you have someone to take you home and help you get comfortable when you get home. If you have gas pains/cramping afterwards (they inflate certain areas with air to get a better look) lie on your left side to help move the gas along.

The idea of eating solid foods really grossed me out for awhile afterwards, so it wouldn't hurt to have some nourishing drinks or something easy to eat (like applesauce, rice crackers, etc.) just in case you feel the same.
  • 0
chronic fatigue, overall body pain, brain fog, headaches since August 2006
chronic nausea since July, 2011

gluten, casein, soy free since April 19, 2012
potato, corn, oat intolerant

#5 Adalaide

 
Adalaide

    It needs to be about 20% cooler.

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,441 posts
 

Posted 29 August 2012 - 01:24 PM

Oh good, I thought you were going for a celiac biopsy. Hopefully you'll get whatever answers you need. Insurance companies are such a nightmare and there are so many incompetent doctors that I think a lot of us here worry about both taking advantage of unsuspecting patients.
  • 0

"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#6 homemaker

 
homemaker

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 240 posts
 

Posted 31 August 2012 - 02:53 PM

The endoscopy was today it was a piece of cake...easy...didn't remember a thing! He took tons of samples.....preliminary results....gastritis, esophagitis, GERD, and Hiatal Hernia...he did also take a snip of some vili when he was in there just in case. SO I have to continue on prescription strength Prilosec until the biopsies come back. We will see....
  • 0
Constipation, Gas, Bloating, Abdominal Pain, Ataxia, Brain Fog, Joint Pain Headaches
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)

#7 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,741 posts
 

Posted 31 August 2012 - 02:59 PM

The endoscopy was today it was a piece of cake...easy...didn't remember a thing! He took tons of samples.....preliminary results....gastritis, esophagitis, GERD, and Hiatal Hernia...he did also take a snip of some vili when he was in there just in case. SO I have to continue on prescription strength Prilosec until the biopsies come back. We will see....


Since you are done with biopsy you should go ahead and get back on your trial of the diet. Hopefully he took more than one 'snip'of your villi. He should have taken six or so as damage can be patchy and get easily missed.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#8 homemaker

 
homemaker

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 240 posts
 

Posted 01 September 2012 - 03:56 AM

Ravenwood...just a quick response to your post...the reason for my endoscope was not for celiac diagnosis....due to the fact I am already gluten free..although he strongly suspects the diagnosis and encouraged me to continue on my gluten-free diet and not attempt a challenge....I have never had an endoscope before, because I went gluten-free before having one done...my previous MD had minimized my symptoms and had told me I did not need one.....but this new Gastro doc is fantastic!
I had started to have Chest pains and weird GI symptoms so after a full cardiac workup he scheduled me for the endoscpy...to see wht GI stuff might be going on...and he said even though I was gluten-free he would just take some biopsy samples of the villi just because he happened to be in there anyway that he might as well....
Well, as I posted I have some GI issues...he asked me if I had been totally rigid with my gluten-free diet...and honestly this summer I have been lax in my label checking...so we will see what the villi look like, but even if normal I will remain gluten-free. (My sister has celiac and even on a gluten-free diet she has not had a normal biopsy, as hers is VERY severe.) I will post when I know more...
  • 0
Constipation, Gas, Bloating, Abdominal Pain, Ataxia, Brain Fog, Joint Pain Headaches
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)

#9 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,741 posts
 

Posted 01 September 2012 - 06:25 AM

Ravenwood...just a quick response to your post...the reason for my endoscope was not for celiac diagnosis....due to the fact I am already gluten free..although he strongly suspects the diagnosis and encouraged me to continue on my gluten-free diet and not attempt a challenge....I have never had an endoscope before, because I went gluten-free before having one done...my previous MD had minimized my symptoms and had told me I did not need one.....but this new Gastro doc is fantastic!
I had started to have Chest pains and weird GI symptoms so after a full cardiac workup he scheduled me for the endoscpy...to see wht GI stuff might be going on...and he said even though I was gluten-free he would just take some biopsy samples of the villi just because he happened to be in there anyway that he might as well....
Well, as I posted I have some GI issues...he asked me if I had been totally rigid with my gluten-free diet...and honestly this summer I have been lax in my label checking...so we will see what the villi look like, but even if normal I will remain gluten-free. (My sister has celiac and even on a gluten-free diet she has not had a normal biopsy, as hers is VERY severe.) I will post when I know more...


I should have read the whole thread before I replied as I now see you did mention that elsewhere. Sorry you are continueing to have problems and I hope the doc can help you figure things out so that those issues resolve. It sounds like your sister may have refractory celiac (sprue) and I hope they can find some way to help her. I think there may be cases where other intolerances can keep the villi damaged so I hope they have ruled those out. Soy is the one that comes first to my mind since I have issues with that myself.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#10 homemaker

 
homemaker

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 240 posts
 

Posted 01 September 2012 - 06:40 AM

Thanks Revenwoodglass...I think that is the type of celiac my sister has...she has very bad osteoporosis...as well as vitamin deficiencies...she has improved very slowly..but still has positive biopsies..I will mention the soy possibility to her. I just found out my younger sister now has celiac...that makes 3 out of 4 siblings all sisters. Both parents carried the celiac gene and I know for me anyway, I inherited a celiac gene from both. I also have Rheumatoid Arthritis which is just another autoimmune disease...life is a trip! :P. But you just have to keep swimming downstream!
  • 0
Constipation, Gas, Bloating, Abdominal Pain, Ataxia, Brain Fog, Joint Pain Headaches
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: