Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Follow Up Tests
0

11 posts in this topic

My daughter's paediatrician said to do a blood test after a year, it's been longer than that so at an appointment with the GP this morning for something else, I asked her about it. She said it's rediculous and she will not put her through the trauma of a blood test when there is nothing to be gained by it.

What's everyone's opinion on that?

0

Share this post


Link to post
Share on other sites


Ads by Google:

My daughter's paediatrician said to do a blood test after a year, it's been longer than that so at an appointment with the GP this morning for something else, I asked her about it. She said it's rediculous and she will not put her through the trauma of a blood test when there is nothing to be gained by it.

What's everyone's opinion on that?

Was she low on any vitamins or minerals (iron, vit d, etc.)? If not, I'd probably skip it unless she's having any remaining issues on the diet.

0

Share this post


Link to post
Share on other sites

I think the blood test the pediatrician suggested might be to check for antibodies to see if the diet is working. Some folks feel better but still have high antibodies and are still damaging their gut. And really, how traumatic is a simple blood test? Would your GP refuse to give her vaccinations because THEY are traumatic? I'd take her to the pediatricain for the tests, and then fire your GP!

0

Share this post


Link to post
Share on other sites

I'd vote for full celiac panel plus Vitamins/Minerals Bs, D, K, Iron, Ferritin, Zinc and Copper because these are the annual tests we all get in my family as suggested by our Celiac Doc.

As Bartfull mentioned it is important to know if the antibodies have been reduced and it is also important to see if she is currently absorbing nutrients.

I'd also vote for a new doctor if they insist it is not necessary to monitor your child.

Good Luck :)

0

Share this post


Link to post
Share on other sites

Just yesterday I got the results of my sons Ttg/Iga test and he was POSITIVE after 2 years of being gluten free! I fully expected the tests to come out negative since we had both been gluten free for two years and we are very strict and only eat out on birthdays at the Outback....that is twice a year. Well, imagine my surprise when the Dr. said he is still producing antibodies and you will have to be more careful! I thought we were careful to the point of paranoia.

Now we have decided to only eat Certified Gluten Free foods because those so called Gluten Free labelled foods must not really be gluten free after all. We do not eat products made on shared lines or in shared facilities, but not all products are labelled for this. I would never have known to make this change if I had not had his blood tested after 2 years. I wish I had done it a year ago. Explain the reason you need it to the Dr. or get a new Dr. who understands that you need to know if your child is producing antibodies or if you are being careful enough.

I am still in shock that after all the precautions and care we have taken with being gluten free that it still is not enough. Wow. Yes, if you can, you should get the follow up tests. Trace gluten is a big issue.

0

Share this post


Link to post
Share on other sites




Blood tests are highly traumatic, and if it isn't necessary like vaccinations then I would opt not to have it.

We eat only certified gluten free things, and home grown fruit, veg and herbs, etc.

She was not low on anything else, despite the paed being certain a vegan child would be low on iron and B12, and the couple of times she has eaten gluten (swapped food with kids at school), she has had a very bad reaction to it that lasted days. I don't see how we could be more careful, my house is totally gluten free, as is my mum's house and my brother's house, and she never goes anywhere else.

Anyway, I rang the Coeliac Society in my state and was told by them that it really is optional, she had one after the first year but hasn't had one again since then, and only because she was an adult at the time and had eaten a lifetime of gluten whereas my daughter hasn't, and even before going gluten free, most of our dishes were veges and rice based, she wasn't ever keen on bread, and the vegan cereal she had was also certified gluten and nut free so she hadn't eaten a lot of gluten through her life. It was only when she hit school age she was having savoury muffins in her lunch box, so she didn't think it was necessary, there's nothing we can change anyway.

0

Share this post


Link to post
Share on other sites

I'm sorry but I don't understand what is so traumatic about blood tests. They just draw a vial of blood, right? Or is it somehow different? The last blood test I had was a CBC and I got a good phlebotomist. I didn't even feel any pressure, let alone a sting. I would think after reading EatMeat4Good's post you would want to have her checked to make sure.

I'm not criticizing you, just don't understand.

0

Share this post


Link to post
Share on other sites

I'm not criticizing you, just don't understand.

Hi Bartfull-

It depends on the child. One of my children is horribly afraid of needles and has a very difficult time with blood tests while his brother has no problem at all. It can also depend on the age of the child along with other factors I suppose.

If the OP's child has a tough time with blood tests, did not have any deficiencies and is already as gluten free as a family can possibly be, I wouldn't push for annual blood test. If the child has little problem with blood tests, it is better to have the data than not have it.

0

Share this post


Link to post
Share on other sites

My child has Autism, and finds it traumatic. I'm sorry you don't understand, but the doctor knows her well enough to have been able to make that call. She's known the family for a lot of years.

0

Share this post


Link to post
Share on other sites

My child has Autism, and finds it traumatic. I'm sorry you don't understand, but the doctor knows her well enough to have been able to make that call. She's known the family for a lot of years.

My original recommendation would have been much different had I known tests were tramatic for your child. For me, your original post sounded like it was only the doctor suggesting it ridiculous and traumatic - my apologies for misunderstanding your question - I certainly would not recommend a new doctor in this case and would carefully consider the need for annual testing with a child that finds it traumatic. Perhaps run them if there is a need for other tests at a later date.

Keep up the great work Mom :)

0

Share this post


Link to post
Share on other sites

I didn't mention it because I wanted to know what people thought about annual testing, but I finally got onto the Coeliac Society and they said it's up to me, personal choice, if we had a mixed house it would be different, but we have a gluten free house, not a mixed house.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,503
  • Topics

  • Posts

    • I already did. Thats how i found the place. Its amazing to actually go to a restraunt again.
    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,417
    • Most Online
      1,763

    Newest Member
    Suzette Porter
    Joined