Did I hear something bad about shell fish? Is it bad? What about shrimp?
|
|
Celiac.com Sponsor: |
16 replies to this topic
#2
kareng
-
- Moderators
-
- 10,185 posts
Let them eat gluten-free cake!
Posted 30 August 2012 - 03:01 PM
Not sure what you are asking.
There are people who are allergic to shellfish, Celiac or not, and that is really bad.
If your asking about gluten, as long as they aren't cooked with a breading or wheaty soy sauce or something with gluten, they are fine. I eat shrimp often.
There are people who are allergic to shellfish, Celiac or not, and that is really bad.
If your asking about gluten, as long as they aren't cooked with a breading or wheaty soy sauce or something with gluten, they are fine. I eat shrimp often.
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
“Life may not be the party that we hoped for…But while we’re here, we should dance.”
#3
GottaSki
-
- Moderators
-
- 3,053 posts
"Migratory flight complete."
Posted 30 August 2012 - 04:33 PM
If you are not allergic or intolerant shellfish are great.
I am fine with shrimp, but have developed a severe intolerance of crab and lobster that causes breathing problems. Crazy -- the skin on my hands had a severe itching reaction to crab and lobster my entire life, but up until very recently I could eat the meat just fine as long as my hubby took care of the shells for me.
If you were eating shellfish before you went gluten-free, I'd say keep it in your diet.
I am fine with shrimp, but have developed a severe intolerance of crab and lobster that causes breathing problems. Crazy -- the skin on my hands had a severe itching reaction to crab and lobster my entire life, but up until very recently I could eat the meat just fine as long as my hubby took care of the shells for me.
If you were eating shellfish before you went gluten-free, I'd say keep it in your diet.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#4
psawyer
-
- Moderator
-
- 6,530 posts
Moderator
Posted 30 August 2012 - 05:24 PM
In addition to celiac disease, I have a serious allergy to shellfish. As far as I know, there is no connection between the two.
Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)
Celiac.com - Celiac Disease Board Moderator
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)
Celiac.com - Celiac Disease Board Moderator
#5
ravenwoodglass
-
- Advanced Members
-
- 13,446 posts
Advanced Community Member
Posted 31 August 2012 - 02:16 AM
Some imitation crab meat is not gluten free. Shell fish that is actual shell fish, as it was pulled from the sea, should be safe but as was mentioned some people are sensitive to shell fish even without a gluten issue.
If you have DH the iodine levels may cause a DH flare until you are well healed.
If you have DH the iodine levels may cause a DH flare until you are well healed.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#6
lovegrov
-
- Advanced Members
-
- 4,532 posts
Advanced Community Member
Posted 31 August 2012 - 07:24 AM
Not sure, but you might be hearing about the iodine level and a concern for people with DH. If you don't have DH, no worries. If you do have DH, it might or might be a worry. I had DH and the iodine never bothered me.
richard
richard
#7
bossley
-
- Advanced Members
-
- 72 posts
Community Member
Posted 31 August 2012 - 08:49 AM
What is DH ?Not sure, but you might be hearing about the iodine level and a concern for people with DH. If you don't have DH, no worries. If you do have DH, it might or might be a worry. I had DH and the iodine never bothered me.
richard
#8
bartfull
-
- Advanced Members
-
- 1,379 posts
Advanced Community Member
Posted 31 August 2012 - 09:00 AM
Bossley, DH is a skin rash that some celiacs get. It is extremely itchy and if you had it you would know it!
Now, I'm going to talk to you like a Dutch Uncle (Aunt?) When I first came to this site I read just about every thread so I could educate myself. While we love to answer questions and help people, I think you could help yourself a lot by spending some time reading as much as you can here. This is absolutely the most informative site on the web when it comes to celiac and you could learn SO much by just reading about other's experiences. THEN you will have more questions no doubt, and we are here to answer them for you. But I suggest you read read read, even if the thread title looks like it doesn't apply to you.
For example, I don't even have kids, but I read the threads about kids anyway and learned about different symptoms, testing, and SOLUTIONS to some of my own problems.
Besides, you'll get to know the people here better like I have, and you will make some life-long friends like I have.
Now, I'm going to talk to you like a Dutch Uncle (Aunt?) When I first came to this site I read just about every thread so I could educate myself. While we love to answer questions and help people, I think you could help yourself a lot by spending some time reading as much as you can here. This is absolutely the most informative site on the web when it comes to celiac and you could learn SO much by just reading about other's experiences. THEN you will have more questions no doubt, and we are here to answer them for you. But I suggest you read read read, even if the thread title looks like it doesn't apply to you.
For example, I don't even have kids, but I read the threads about kids anyway and learned about different symptoms, testing, and SOLUTIONS to some of my own problems.
Besides, you'll get to know the people here better like I have, and you will make some life-long friends like I have.
#9
GottaSki
-
- Moderators
-
- 3,053 posts
"Migratory flight complete."
Posted 31 August 2012 - 09:05 AM
The skin rash associated with Celiac Disease is called Dermatitis Herpetiformis (DH).
Here is a section dedicated to DH:
http://www.celiac.co...-herpetiformis/
There are several folks that are very knowledgeable of DH on this forum so if you've had skin issues they'd be able to answer your specific questions better than I.
Here is a section dedicated to DH:
http://www.celiac.co...-herpetiformis/
There are several folks that are very knowledgeable of DH on this forum so if you've had skin issues they'd be able to answer your specific questions better than I.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#10
IrishHeart
-
- Moderators
-
- 7,733 posts
Warrior Princess
Posted 31 August 2012 - 09:18 AM
I cannot tolerate large doses of shellfish, either. High histamine response and burning sensations in my skin.
Oddly, this did not show up on any allergy testing that was done.
I am guessing it's more of an intolerance rather than a true allergy? Who knows.
In any case, it happened AFTER my diagnosis and going gluten-free.
Maybe I'll be able to try it again down the road.
Missing the lobster and shrimp.
Oddly, this did not show up on any allergy testing that was done.
I am guessing it's more of an intolerance rather than a true allergy? Who knows.
In any case, it happened AFTER my diagnosis and going gluten-free.
Maybe I'll be able to try it again down the road.
Missing the lobster and shrimp.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. 
Celiac.com - Celiac Disease Board Moderator
#11
bossley
-
- Advanced Members
-
- 72 posts
Community Member
Posted 31 August 2012 - 08:47 PM
Sorry to have asked a question before doing my reading.Bossley, DH is a skin rash that some celiacs get. It is extremely itchy and if you had it you would know it!
Now, I'm going to talk to you like a Dutch Uncle (Aunt?) When I first came to this site I read just about every thread so I could educate myself. While we love to answer questions and help people, I think you could help yourself a lot by spending some time reading as much as you can here. This is absolutely the most informative site on the web when it comes to celiac and you could learn SO much by just reading about other's experiences. THEN you will have more questions no doubt, and we are here to answer them for you. But I suggest you read read read, even if the thread title looks like it doesn't apply to you.
For example, I don't even have kids, but I read the threads about kids anyway and learned about different symptoms, testing, and SOLUTIONS to some of my own problems.
Besides, you'll get to know the people here better like I have, and you will make some life-long friends like I have.
#12
ravenwoodglass
-
- Advanced Members
-
- 13,446 posts
Advanced Community Member
Posted 01 September 2012 - 06:29 AM
Sorry to have asked a question before doing my reading.
No need to apologize at all. It is a good idea to read as much as you can here but not everyone has the time to do a lot of it. Never be afraid to ask any question you need to.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#13
IrishHeart
-
- Moderators
-
- 7,733 posts
Warrior Princess
Posted 01 September 2012 - 06:37 AM
Sorry to have asked a question before doing my reading.
Nothing to be sorry about, hon!
I am sure Barty just meant IN ADDITION to asking questions, don't forget to read as much as you can.
We have all been in your shoes.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win.
Celiac.com - Celiac Disease Board Moderator
#14
bossley
-
- Advanced Members
-
- 72 posts
Community Member
Posted 01 September 2012 - 07:36 AM
Thank you !!No need to apologize at all. It is a good idea to read as much as you can here but not everyone has the time to do a lot of it. Never be afraid to ask any question you need to.
#15
bartfull
-
- Advanced Members
-
- 1,379 posts
Advanced Community Member
Posted 01 September 2012 - 08:05 AM
Exactly Bossley! I apologize for not expressing myself clearly. It's just that I can see and empathize with your suffering and because I found my answers here, I know that you could find answers to questions you don't even have yet. This site is like the encyclopedia of celiac. All of the answers are right here. We just need to go looking to find them.
PLEASE, don't let what I said ever stop you from asking questions! Lord knows I have asked more than my share and the patient, wonderful folks here have always provided good solid answers.
Forgive me?
PLEASE, don't let what I said ever stop you from asking questions! Lord knows I have asked more than my share and the patient, wonderful folks here have always provided good solid answers.
Forgive me?
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users
