Posted 30 August 2012 - 03:44 PM
I've read that some people get meds specifically made for them or something, but that didn't seem to be an option at all.
I don't know how to approach this in the future; I'm experiencing what I believe are some side effects of the drug but there's a slight possibility it's a gluten reaction instead/as well as.
What do you do for one-time mediaction? What about long-term medicaton? What would you have done in my specific situation, where the pharmacist wasn't giving you specific options or being helpful? She wanted me to tell her if I had any gluten problems to the medication so that I could tell her. I'm not a guinea pig! I'm taking this drug to feel better, not maybe get sicker. Furthermore I still don't think I have any noticeable gluten response, just like a lot of celiacs
June 2012 positive visual of celiac disease from gastroscopy
Posted 30 August 2012 - 04:00 PM
Sure there could be a risk of cc but with a medication, I would think its tiny. Very few meds seem to really have gluten in them. Even if they made a med with gluten on the same machinery as they made this one, they would clean it. I would think that a drug company would have to clean better than a potato chip company. They can't risk any drug residue getting into another medicine.
Some people with an extreme allergy to corn have to get meds made for them. Or maybe if the only versions of this drug have gluten added and there was no other choice, you could get it made for you. Regular chain pharmacies usually don't "make" drugs.
Posted 31 August 2012 - 07:26 AM
That's a CYA statement. I'd take it.
Posted 31 August 2012 - 07:35 AM
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Posted 31 August 2012 - 08:10 AM
Why? Here are a few things that have happened to me.
P: why do you need to know the manufacturer?
Me: I need to know if it's gluten free
P: (looks at bottle) it doesn't say it has gluten in it
Me: I'll call anyway
P: it doesn't LIST wheat as an ingredient, just give me your prescription so I can fill it
P: none of these ingredients look like the sort of thing that would have gluten in it so it's probably safe to take
Me: well I can't risk my health and life on probably so I'll just take the name of the manufacturer and their number please
Many of these experiences have been met with much eyerolling and glaring as if I'm just some random fad follower who saw some celebrity go gluten free. As if I'd even think to check my prescriptions if that were me.... It's been my experiences that pharmacists while part of the "medical community" (and I include them very very loosely) don't take our disease at all seriously and don't have the time to worry about you. We aren't people, we're pill bottles to fill and insurance to bill. It is our responsibility to call and make sure our pills our safe.
"You don't look sick or anything"
"Well you don't look stupid, looks can be deceiving."
Celiac DX Dec 2012
CRPS DX March 2014
Posted 31 August 2012 - 08:31 AM
gluten-free since June, 2011
Can't eat soy, corn, or foods high in salicylates.
Nightshades now seem to bother me too.
BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!
Posted 31 August 2012 - 02:32 PM
Tell the pharmacist that you have an allergy and that he/she needs to check for the allergen, by either contacting the manufacturer themselves, or giving you the phone number, (you will likely get the number of the distributor, at first, who will want to know the batch number) if they do not cooperate, you will take your business elsewhere and file a complaint with the state licensing board.
While not technically correct, the word allergy will get their attention.
Don't let these rude *****s try to not do their jobs. THIS IS THEIR JOB, checking for drug interactions and other possible side effects from the scripts they dispense. I don't know about your state, but here, they must offer a patient "consult" when dispensing a script, and I take it. There has been one place so far that tried to weasel out of it, they don't get my business anymore. At another (former) HMO which dispenses their own scripts at their own pharmacy in- house, this behavior of not wanting to check things and making one stand in line for hours while desperately ill, then having to make sure the next script wasn't going to kill me right on site, ( I have other allergies) has earned them my permanent scorn. I have slightly above average communication skills, I can't imagine what the regular person goes through, having experienced trying to get it through their thick skulls that I am telling them don't give me certain chemicals and proteins, which is supposed to be in their computerized records anyway. I am not doing this to ruin their day, I am doing this so the idiots don't kill me just because they were in some big da**ed frantic hurry.
I also like to try to scout the drug's gluten free status out on the internet before approaching the pharmacy, if this is possible, because then I can find out who the manufacturer is, and there are blogs on the internet that discuss gluten free drug lists, while their lists may not be up to date, at least it is a starting point and you can see if gluten would be a possible ingredient with the last version.
With long-term medication, the gluten free status would be crucial.
Posted 01 September 2012 - 06:01 AM
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