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Weight Loss After Accidental Ingestion
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The last time I accidentally ingested gluten, I had accidentally licked my finger after touching a twizzler (realized almost too late it had gluten in it). Within 20 minutes I was showing typical "glutened" symptoms for me - comparable to food poisoning. About 24 hours later I caught my reflection in the bathroom mirror as I was getting ready to bathe. I was shocked to say the least. You could see all my ribs, my hip bones were clearly visible. I looked like I was anorexic. Stepped on the scale and yup - I was down 10lbs (125 to 115) overnight. I went down another 5lbs before recovering from my symptoms, but the weight hasn't quite returned yet (sticking around 120 when normal is between 125 and 130 - but it's only been about 3 weeks).

Has anyone else experienced this when being glutened? It's terrifying, to say the least. I just want to know I'm not alone... :(

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Excuse me, but WHAT? :blink:

10 lbs in 24 hours?

Ok, moving on...

Usually one day or two after I am glutened, I lose weight. My clothes get too large, my hip bones stick out more and so forth. I recover the weight, but I haven't recovered the weight of the big boom (as I call the month I've spent undereating because I didn't know I had GI, I had 97 pounds). So I'm 94 pounds now. Or so I hope, because a few days ago I accidentaly ingested gluten and I might be down to 92.

Anyhow, no, you are not alone. I do lose weight, and it's scary because I've been constantly underweight and people always have mistaken for anorexic. Lies, I love to eat :P

Just bake to yourself a nice gluten-free treat and make sure you are eating well and everything is going to be alright. Although my doctor suggested I put as much sugar in my diet as possible -- a spoonful of honey at least once a day helped me a lot.

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I think I lost so much weight because EVERYTHING came out in that time period, even water. It was horrible. I pretty much set up camp in the bathroom. I've been glutened twice since writing that post (within 36 hours of each other) and this hasn't been nearly as bad, though I went down another 5 lbs last check. At least I can keep down liquids, but my gosh does my stomach hurt. I never want to see my ribs sticking out like that again either... My bf could wrap his hands around my waist and his fingers touched. O.o

You know it's funny...people always used to comment on how they wished they could eat whatever and as much as I could without gaining weight. Once they found out it was from malnutrition from celiacs they weren't so eager to be like me lol.

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
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