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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Weight Loss After Accidental Ingestion
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3 posts in this topic

The last time I accidentally ingested gluten, I had accidentally licked my finger after touching a twizzler (realized almost too late it had gluten in it). Within 20 minutes I was showing typical "glutened" symptoms for me - comparable to food poisoning. About 24 hours later I caught my reflection in the bathroom mirror as I was getting ready to bathe. I was shocked to say the least. You could see all my ribs, my hip bones were clearly visible. I looked like I was anorexic. Stepped on the scale and yup - I was down 10lbs (125 to 115) overnight. I went down another 5lbs before recovering from my symptoms, but the weight hasn't quite returned yet (sticking around 120 when normal is between 125 and 130 - but it's only been about 3 weeks).

Has anyone else experienced this when being glutened? It's terrifying, to say the least. I just want to know I'm not alone... :(

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Excuse me, but WHAT? :blink:

10 lbs in 24 hours?

Ok, moving on...

Usually one day or two after I am glutened, I lose weight. My clothes get too large, my hip bones stick out more and so forth. I recover the weight, but I haven't recovered the weight of the big boom (as I call the month I've spent undereating because I didn't know I had GI, I had 97 pounds). So I'm 94 pounds now. Or so I hope, because a few days ago I accidentaly ingested gluten and I might be down to 92.

Anyhow, no, you are not alone. I do lose weight, and it's scary because I've been constantly underweight and people always have mistaken for anorexic. Lies, I love to eat :P

Just bake to yourself a nice gluten-free treat and make sure you are eating well and everything is going to be alright. Although my doctor suggested I put as much sugar in my diet as possible -- a spoonful of honey at least once a day helped me a lot.

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I think I lost so much weight because EVERYTHING came out in that time period, even water. It was horrible. I pretty much set up camp in the bathroom. I've been glutened twice since writing that post (within 36 hours of each other) and this hasn't been nearly as bad, though I went down another 5 lbs last check. At least I can keep down liquids, but my gosh does my stomach hurt. I never want to see my ribs sticking out like that again either... My bf could wrap his hands around my waist and his fingers touched. O.o

You know it's funny...people always used to comment on how they wished they could eat whatever and as much as I could without gaining weight. Once they found out it was from malnutrition from celiacs they weren't so eager to be like me lol.

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