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Weight Loss After Accidental Ingestion
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The last time I accidentally ingested gluten, I had accidentally licked my finger after touching a twizzler (realized almost too late it had gluten in it). Within 20 minutes I was showing typical "glutened" symptoms for me - comparable to food poisoning. About 24 hours later I caught my reflection in the bathroom mirror as I was getting ready to bathe. I was shocked to say the least. You could see all my ribs, my hip bones were clearly visible. I looked like I was anorexic. Stepped on the scale and yup - I was down 10lbs (125 to 115) overnight. I went down another 5lbs before recovering from my symptoms, but the weight hasn't quite returned yet (sticking around 120 when normal is between 125 and 130 - but it's only been about 3 weeks).

Has anyone else experienced this when being glutened? It's terrifying, to say the least. I just want to know I'm not alone... :(

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Excuse me, but WHAT? :blink:

10 lbs in 24 hours?

Ok, moving on...

Usually one day or two after I am glutened, I lose weight. My clothes get too large, my hip bones stick out more and so forth. I recover the weight, but I haven't recovered the weight of the big boom (as I call the month I've spent undereating because I didn't know I had GI, I had 97 pounds). So I'm 94 pounds now. Or so I hope, because a few days ago I accidentaly ingested gluten and I might be down to 92.

Anyhow, no, you are not alone. I do lose weight, and it's scary because I've been constantly underweight and people always have mistaken for anorexic. Lies, I love to eat :P

Just bake to yourself a nice gluten-free treat and make sure you are eating well and everything is going to be alright. Although my doctor suggested I put as much sugar in my diet as possible -- a spoonful of honey at least once a day helped me a lot.

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I think I lost so much weight because EVERYTHING came out in that time period, even water. It was horrible. I pretty much set up camp in the bathroom. I've been glutened twice since writing that post (within 36 hours of each other) and this hasn't been nearly as bad, though I went down another 5 lbs last check. At least I can keep down liquids, but my gosh does my stomach hurt. I never want to see my ribs sticking out like that again either... My bf could wrap his hands around my waist and his fingers touched. O.o

You know it's funny...people always used to comment on how they wished they could eat whatever and as much as I could without gaining weight. Once they found out it was from malnutrition from celiacs they weren't so eager to be like me lol.

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    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
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