Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I'm A Grandmother!
0

7 posts in this topic

Hi everyone! I'm a grandmom! My son welcomed his son on August 30! My thoughts beyond loving every minute of it. I'm wondering if the Celiac gene hit him, you know?

My children do not show signs and their DR said to wait for signs or symptoms before they are tested.

How many of you are concerned about passing the gene on? This baby boy is such a blessing and while holding him, I wondered silently...did I pass this on to you?

Anyone relate??

1

Share this post


Link to post
Share on other sites


Ads by Google:

Congratulations to you! And, yes, I share your concerns--the genes, as well as the triggering, of celiac always worry me.

I have to mention, though, that I believe your doctor is wrong not to test your children for celiac. Many celiacs are asymptomatic, but damage could still be occurring to their villi. By the time the damage is done, some of it may be irreversible (such as neurological damage). Your children SHOULD be tested regardless of whether or not they show symptoms. With regard to your new grandbaby, maybe he will escape the legacy. However, with the celiac vaccine on the horizon, he will probably have little to worry about.

1

Share this post


Link to post
Share on other sites

Yes, I can relate, but probably not in the fashion you expect.

Congratulations on having a Grandson! How cool is that?!!? Yay!

I am childless but find genetics fascinating.

I'm the youngest of 5 children with my mother being the gene carrier. I suspect that her father had celiac disease but that's never been confirmed. My maternal grandfather had 9 children and 40 grandchildren. My paternal grandparents had 8 children and 38 grandchildren.

None of my siblings have celiac disease, and neither have my cousins, nieces, nephews, aunts or uncles on the maternal side. I had 1 maternal cousin that died prematurely from MS, and 1 aunt that died in her 70's but she drank like a fish and never treated her breast cancer. (Big hx of breast cancer on the maternal side.)

On the paternal side, I had an aunt die of leukemia in her 30's, but the rest of my father's siblings lived long lives. Dad died at age 58 from lung cancer, but he was a heavy smoker.

I'm in my 50's. My mother lived until she was 87.

If I were in your shoes, I'd understand the worry. Mom felt horrible that I inherited this from her, but it didn't develop until I was in my 50's. I know a dietician that has had celiac disease since she was a child. She's in her 50's.

Anyway, there have been similar life expectancies on both sides of the family tree.

You'll be watching out for him and so will your DS and DIL. Enjoy the little miracle, and don't worry, that never helps. Think about buying him cowboy boots or a shovel, all those things boys love, instead. Congrats! Yippee!

1

Share this post


Link to post
Share on other sites

Thanks! :) I did want my children tested, my daughter is all for it, but my son does not want to. They both saw what I had to go through and how sick I became. I'm pushing for them to go. They will all be living with me and eating some gluten-free because that is all I cook. However, if tested, they eat enough gluten outside the home to count. I lost both my parents and all grandparents, so I won't know which side I recieved this gene. None of my family members from either side has Celiac. I have 4 siblings and they are neg for celiac. I do have a sister with lupus.

I'm loving being a grandmother..he is so beautiful and we are so blessed!

0

Share this post


Link to post
Share on other sites

Hi everyone! I'm a grandmom! My son welcomed his son on August 30! My thoughts beyond loving every minute of it. I'm wondering if the Celiac gene hit him, you know?

My children do not show signs and their DR said to wait for signs or symptoms before they are tested.

How many of you are concerned about passing the gene on? This baby boy is such a blessing and while holding him, I wondered silently...did I pass this on to you?

Anyone relate??

Congratulations on having a Grandson! Feel Bleesed

I can understand your worry, I have two G/Children.

It won't be long soon we will have medicines for Celiac,more over once we know the problem it's easy to tackle, we must feel blessed we know, it took me 18 years of pain to know I am celiac.

Don't worry enjoy the little master, and as "Marilyn R" said Think about buying him cowboy boots or a shovel, all those things boys love, instead.smile.gif

0

Share this post


Link to post
Share on other sites




Congratulations! My mom was shocked how wonderful having grandchildren is. She says she loves them like her own children but has the benefit of having to do less work for them. ;) LOL

Although autoimmune diseseases are more commonly found to run in families, it's not a sure thing. On my mother's side, I have a cousin with celiac and another with RA. On my dad's side, my grandma had thyroid problems, and her sister was celiac. My parents appear to be(have been) fine, and my children tested negative too.

Just remember it's not a sure thing, but if there are problems you'll be there to help recognize them sooner so he can stay healthier.

Congrats again.

0

Share this post


Link to post
Share on other sites

Congratulations! Grandchildren are so special. I have four and what amazes me is that the two oldest (16 & 19) still like to "hang" with us. :) Cuddle up grandma and enjoy!!! :D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,608
    • Total Posts
      918,334
  • Topics

  • Posts

    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
    • Recovery diet, nutrition, leaky gut?
      I am having my endoscopy on Tuesday. I want to begin to heal my gut asap. I spent this morning in the ER with stabbing pain in my right shoulder blade, pain to the left of my belly button and vomiting. It's referred pain from my small intestine. I couldn't move or breathe hardly it hurt so bad. I NEED to get everything together to heal my gut asap. I don't want to ever go through this again. What are your recommendations? I've been reading a bit on leaky gut - anyone have good experience/links Or would the autoimmune diet be better? Are they one in the same? I know I am also reacting to casein and possibly potatoes. 
    • Celiac.com: Celiac Patients Could Get Gluten-free Stipend
      Celiac disease is a sensitivity to the gluten found in wheat, barley, rye, spelt and oats that causes an autoimmune response in which the body attacks ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,707
    • Most Online
      1,763

    Newest Member
    Ree8080
    Joined