Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I'm A Grandmother!
0

7 posts in this topic

Hi everyone! I'm a grandmom! My son welcomed his son on August 30! My thoughts beyond loving every minute of it. I'm wondering if the Celiac gene hit him, you know?

My children do not show signs and their DR said to wait for signs or symptoms before they are tested.

How many of you are concerned about passing the gene on? This baby boy is such a blessing and while holding him, I wondered silently...did I pass this on to you?

Anyone relate??

1

Share this post


Link to post
Share on other sites


Ads by Google:

Congratulations to you! And, yes, I share your concerns--the genes, as well as the triggering, of celiac always worry me.

I have to mention, though, that I believe your doctor is wrong not to test your children for celiac. Many celiacs are asymptomatic, but damage could still be occurring to their villi. By the time the damage is done, some of it may be irreversible (such as neurological damage). Your children SHOULD be tested regardless of whether or not they show symptoms. With regard to your new grandbaby, maybe he will escape the legacy. However, with the celiac vaccine on the horizon, he will probably have little to worry about.

1

Share this post


Link to post
Share on other sites

Yes, I can relate, but probably not in the fashion you expect.

Congratulations on having a Grandson! How cool is that?!!? Yay!

I am childless but find genetics fascinating.

I'm the youngest of 5 children with my mother being the gene carrier. I suspect that her father had celiac disease but that's never been confirmed. My maternal grandfather had 9 children and 40 grandchildren. My paternal grandparents had 8 children and 38 grandchildren.

None of my siblings have celiac disease, and neither have my cousins, nieces, nephews, aunts or uncles on the maternal side. I had 1 maternal cousin that died prematurely from MS, and 1 aunt that died in her 70's but she drank like a fish and never treated her breast cancer. (Big hx of breast cancer on the maternal side.)

On the paternal side, I had an aunt die of leukemia in her 30's, but the rest of my father's siblings lived long lives. Dad died at age 58 from lung cancer, but he was a heavy smoker.

I'm in my 50's. My mother lived until she was 87.

If I were in your shoes, I'd understand the worry. Mom felt horrible that I inherited this from her, but it didn't develop until I was in my 50's. I know a dietician that has had celiac disease since she was a child. She's in her 50's.

Anyway, there have been similar life expectancies on both sides of the family tree.

You'll be watching out for him and so will your DS and DIL. Enjoy the little miracle, and don't worry, that never helps. Think about buying him cowboy boots or a shovel, all those things boys love, instead. Congrats! Yippee!

1

Share this post


Link to post
Share on other sites

Thanks! :) I did want my children tested, my daughter is all for it, but my son does not want to. They both saw what I had to go through and how sick I became. I'm pushing for them to go. They will all be living with me and eating some gluten-free because that is all I cook. However, if tested, they eat enough gluten outside the home to count. I lost both my parents and all grandparents, so I won't know which side I recieved this gene. None of my family members from either side has Celiac. I have 4 siblings and they are neg for celiac. I do have a sister with lupus.

I'm loving being a grandmother..he is so beautiful and we are so blessed!

0

Share this post


Link to post
Share on other sites

Hi everyone! I'm a grandmom! My son welcomed his son on August 30! My thoughts beyond loving every minute of it. I'm wondering if the Celiac gene hit him, you know?

My children do not show signs and their DR said to wait for signs or symptoms before they are tested.

How many of you are concerned about passing the gene on? This baby boy is such a blessing and while holding him, I wondered silently...did I pass this on to you?

Anyone relate??

Congratulations on having a Grandson! Feel Bleesed

I can understand your worry, I have two G/Children.

It won't be long soon we will have medicines for Celiac,more over once we know the problem it's easy to tackle, we must feel blessed we know, it took me 18 years of pain to know I am celiac.

Don't worry enjoy the little master, and as "Marilyn R" said Think about buying him cowboy boots or a shovel, all those things boys love, instead.smile.gif

0

Share this post


Link to post
Share on other sites




Congratulations! My mom was shocked how wonderful having grandchildren is. She says she loves them like her own children but has the benefit of having to do less work for them. ;) LOL

Although autoimmune diseseases are more commonly found to run in families, it's not a sure thing. On my mother's side, I have a cousin with celiac and another with RA. On my dad's side, my grandma had thyroid problems, and her sister was celiac. My parents appear to be(have been) fine, and my children tested negative too.

Just remember it's not a sure thing, but if there are problems you'll be there to help recognize them sooner so he can stay healthier.

Congrats again.

0

Share this post


Link to post
Share on other sites

Congratulations! Grandchildren are so special. I have four and what amazes me is that the two oldest (16 & 19) still like to "hang" with us. :) Cuddle up grandma and enjoy!!! :D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,371
    • Total Posts
      917,537
  • Topics

  • Posts

    • Newbie: mother to coeliac kids
      Are there any foods, like broth, that don't make your son feel sick?
    • Newbie Mom - How is my son feeling?
      I agree. As an adult its a little easier to withstand the rolling of eyes and exaggerated sighs from people who think you are over reacting and being too fussy.  My youngest has anaphylaxis to fish and seafood and people are incredibly understanding and careful - but it seems celiacs has become a "fad" due to gluten intolerant people removing credibility from true celiacs.  Adults can argue but kids are vulnerable. Socially its really isolating for them.    I totally relate to the waiting on endoscopy. For my very sick 12 year old the 8-9 weeks we waited for sheer hell and I felt I was feeding him rat poison. Now my 17 year old is waiting on his, booked for later this week.  Its a total nightmare waiting knowing you can start the healing if only you could stop feeding them gluten.  But I figure for future reference, having a solid diagnosis via biopsy is important. Good luck to you and your son.
    • Newbie Mom - How is my son feeling?
      Hugs to you and your daughter. My son and I are in the same boat, or at least,  paddling alongside your boat.  At their age being scrupulous about their diet is not only incredibly hard but socially isolating. Adults consider celiac people to be a pain so imagine what their young friends think.  Feeling so unwell and having no energy adds to their distress. And the thing is - I don't think at that age that they really understand that even the slightest bit of gluten will set them back badly.  I know my son is convinced one sweet won't matter. It really really sucks.  
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      No one in my wider family gets it, although my sister is certainly trying to understand. She gets that I will bring all food for my coeliac kids when we come for meals and is okay with that.    For other social events, I will suggest the meal is at my place so I can control the gluten.  But my biggest battle is my children's father (my ex husband) who refuses to get it, and thinks I am being stupid and trying to prevent him seeing V.  I have offered that V can visit but not eat nor stay the night.  Ex does not have the means or the brains to manage gluten free meals.    At this point it looks like I may need to go to court to get an order to prevent V from being forced to go and get glutened. I really really hope to avoid this, but its not looking good. 
    • celiac disease is psychosomatic
      I guess it's the "natural flavoring" which throws me off. It could or could not contain gluten and it's in so many products. I haven't been on a gluten-diet for as long as you...6 years. I may have bee undiagnosed and untreated for more than 25 years since i had signs that went back to chidhood. Yes, I have balance/anxiety/neuro issues. I know anxiety is connected to damage in intestines, but I don't know for sure if celiac causes balance/neuro issues. I was already tested for brain ataxia, but I didn't get too far on that. Well, there wasn't an exact test, but the neurologist noted that I was walking straight or something on those grounds so I must not have it. I know studies have shown Transglutaminase 6 antibodies indicate gluten ataxia, butthat test is not yet available to the public.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,516
    • Most Online
      1,763

    Newest Member
    milliew
    Joined