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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Free And Weight Loss
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I have recently been diagnosed with celiac disease. Now that I am gluten free, does that meen I will lose weight? Is the reason for weight loss because you are eliminatining some foods and hopefully replacing them with healthier ones? Or is it because of the bloating, and other effects of gluten? I have heard that if you have celiac and eat gluten, it can cause you to gain weight.

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I lost almost 15 lbs in my first two months gluten-free, and that's with eating icecream or popcorn every night. :) I'm guessing that about 5lbs of that was the bloating but I have no way to know for sure.

My appetite has dropped off, so I'm sure I'm eating less but I don't feel like I am going without.

Poeple who weren't absorbing well often find they start to regain lost weight. It's another one of those things that seems to really vary form person to person.

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nvsmom is correct--this varies from person to person. You will definitely NOT lose weight if you replace gluten-containing processed foods with gluten-free processed foods (e.g., baked goods, breads, waffles, etc.). However, if you follow a diet that's primarily comprised of fresh, natural foods, you may see some weight loss. When beginning a gluten-free diet, many of us here on the Forum suggest that a fresh-food diet be followed for at least a few months so that cross-contamination can be avoided and so that the food you eat will be high in nutrients. Also, many people react poorly to the gums or alternative grains that are used in gluten-free cooking/baking, and this can slow your healing.

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Also, many people react poorly to the gums or alternative grains that are used in gluten-free cooking/baking, and this can slow your healing.

Thank you so much for this information! I wondered why some foods listed as 'certified gluten-free' were still making me feel sick. Now I know. I've been more cautious about my diet since discovering this - but I feel a little less crazy knowing I'm not alone. :)

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I was diagnosed in May and originally was replacing gluten foods with gluten free substitutes like gluten free pastas, muffins, cookies, etc. I was having some reactions to them so I decided to go whole foods and follow a primal diet. Since the end of May, I've lost 17 pounds of the stubborn weight that would NOT come off while I was still eating gluten. I've been eating high protein, high fat, and low carb....its really been working for me!!!

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I have the opposite problem...I'm gaining weight, like, overnight! So frustrating. I eat sooooo clean and healthy, it's very frustrating.

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I'm at almost five months gluten free, and the weight loss has been sporadic. The first week I lost about 8lbs, which was probably bloat. Then I started eating lots of those gluten-free substitutes and gained some weight back, so I cut them out again. After a few months of healing my voracious appetite went away, and I lost about 15lbs. The I got glutened and started to feel bad again, and my energy level is still recovering from that.

The 15lb loss was in part to new-found energy and extra trips to the gym.

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I have the opposite problem...I'm gaining weight, like, overnight! So frustrating. I eat sooooo clean and healthy, it's very frustrating.

You've had your tsh levels checked and Hashimotos antibodies checked, right???

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I actually called my doctors office yesterday to see what all they tested for - this started with a colonscopy that found colitis, and led to a blood test - needless to say, I wasn't real educated on anything until they called and said I without a doubt had celiacs. I'm waiting for a call back to see what all was tested. All I know is 2 weeks into being gluten free, not only am I gaining weight, but I'm having hell feeling even the slightest bit better!

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I actually called my doctors office yesterday to see what all they tested for - this started with a colonscopy that found colitis, and led to a blood test - needless to say, I wasn't real educated on anything until they called and said I without a doubt had celiacs. I'm waiting for a call back to see what all was tested. All I know is 2 weeks into being gluten free, not only am I gaining weight, but I'm having hell feeling even the slightest bit better!

Hi, one thing I learned over the years of my "playing" with eating gluten (because I've never been Dx'd) is that there comes a point when one doesn't feel well at all when stopping, to the contrary, the last 2 times I quit gluten (and dairy which makes my chronic nasal congestion worse) I couldn't understand why I was feeling SO ultra-fatigued and depressed. I learned here recently that it's due to "detox" and that can definitely last for several weeks, in my case the last time, probably because I have Adrenal Fatigue, I began going downhill after I stopped (in March), ending with a huge adrenal crash that started on 4/30 and for most of May I felt really bad.

Also, I usually lost weight quickly and rather effortlessly after stopping, but not this last time, it's going slower. In fact, when I went to the doctor at the beginning of May I'd ballooned to 160 lbs., about 15 lbs. more than weighed during the winter. I attribute that to the following: 1) I have Hashimoto's and my last indulgences must've increased my antibodies causing my TSH to go up again, to 9, the highest I've ever had measured, I also had a thyroiditis attack at the beginning of May. 2) My liver was affected, for many months I had not been secreting much bile and sometimes felt an ache on the upper right side of my abdomen, have had to take digestive enzymes w/ox bile (but a liquid liver/galbladder supplement and milk thistle have really helped). The bottom line is that a sluggish liver will prevent weight loss. 3) In July I finally felt well enough to want to exercise more but then I made the mistake of pushing myself harder than my body was ready for and I had a lesser adrenal crash that set me back some.

I began feeling discouraged until I realized that I'd abused my digestive system on/off for way too long and I cannot expect my body to bounce back in just a few months. Now my expectations for more significant improvement have stretched to a full year from when I stopped, and that because about a month ago I realized I'd eating a canned soup that had some wheat in it twice. If I get better and lose weight sooner, great, but if not at least I won't feel let down by expecting more than is realistic and I feel this is the way you need to think right now.

My best wishes to you!

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