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Newbie Here!
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Hi everyone, I just wanted to post a simple intro topic.

I come to this site looking for advice on my rather recently known condition. I'm in my third year of college and was having a great summer until about the middle of August (2 weeks before college starts), which is when my life spiraled downhill fast. I was confined to bed with crippling abdominal pain, nausea, nosebleeds, and extreme exhaustion (I was sleeping 16 or so hours a day). The abdominal pain was so intense that it had me at various doctors getting ultrasounds, a CT scan, I was even in the ER. I was on strong painkillers which only touched the pain. There was a growing list of diagnoses that were being ruled out. Finally, my doctor looked at me and said: "you're constipated, take some Miralax and you're going to be fine".

I was not fine afterwards as the symptoms remained, I had come across celiac disease and gluten intolerance through web searches and said "well, I've got nothing to lose" so I cut out gluten. Within about a week I did a complete turn around of my symptoms. Plus, I felt even better than I did before I got sick. The persistant acne that I fought with everyday, I cursed at because it wouldn't go away not matter what I did, suddenly cleared. The red, bumpy, peeling rash I had on my hands for the last 3 years suddenly turned into baby-soft smooth skin. My brain felt clear. I had boundless energy. The bloating that I had for the past several years, which made me look pregnant and killed my self esteem, started to go away. I no longer felt like I was going to pass out every time I stood up. No more nosebleeds. No more waking up with extreme nausea. Abdominal pain gone as well. It was like a miracle had happened.

According to my doctor, "it [celiac disease/gluten intolerance] does not present itself this way". That combined with starting college, I've never been tested for celiac disease. However, I'm not an idiot and can read what's being put in front of me. I'm going to a different doctor if I go back during break, by the way. That one was just filling in temporarily as mine was on vacation - I just needed to see someone before college started.

Anyways, story over. Now I'm here to find out some ways to cope with the obvious intolerance to gluten. I've also found myself in a tough situation. It seems that xanthan gum causes problems similar to gluten (basically feel like I'm going to pass out when I eat the stuff). I'm also finding re-emerging symptoms (rash, depression, fatigue, cloudy mind, nosebleeds) even though I'm eating "gluten free" foods. So I think I must be intolerant to something in those supposed "gluten free" products. I'll poke around the forums because I definitely have a lot I want to learn. I'm want to learn what other intolerances tag along with gluten (I was actually diagnosed lactose intolerant in 2007, so that's a known one already). I want to learn which tests to get done too, so when I go home on break I might be able to schedule testing.

Okay, I will end this post now. Sorry, this is so long, I always tend to write too much!

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Nope, not too long at all! Welcome. What a beautiful story of figuring it out all on your own! I just want to say that your intolerance to gluten can become more sensitive and what you are experiencing is quite commonly reported here. That feeling wonderful is followed by feeling uggy again. Sometimes it is other intolerances and sometimes it is your body letting you know you have encountered CC, otherwise known as cross-contamination. Traces of gluten are difficult to eliminate but your body will let you know when you don't. Xanthan gum bothers some who are intolerant of corn. It can also just be something you are intolerant to even if you can eat corn. You will learn a lot by reading and your body will tell the rest of the story by trial and error. I'm so happy you didn't have to go to Dr.'s for years with them telling you that this is not how Celiac presents. This is very much how Celiac presents! And you figured it out! I am very happy for you and I hope you can find a way to eat safely at college!

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Kudos to you for removing gluten from your lifestyle! You could try Guar Gum which is not made from corn.. Many of us have allergies to other foods ie: nightshades, soy...

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    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
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