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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Problems W/skin
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8 posts in this topic

Hello!!!!

I am broken out very badly on my checks (acne) and I get cyst-like erruptions out of nowhere. A big, red, angry pimple appears from nowhere....for example, the tip of my nose!!!!!!!! :angry:

I see a dermatologist and do get creams--they dont work.

I also break out on my back and a little bit on my chest. Plus, my nails are so short, damaged and brittle that it scares me!! My hair also......went from curly/wavy to terrible, terrible frizz! I do use a flatiron though. Im noticing my hair is also thinning out, more than ever.

What might cause this? Is it celiac disease related? Or DH????

Does anyone else have this problem???

Any feedback would be appreciated!

:)

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I've had some of the skin problem you describe (and I had DH). The skin thing you have does not sound like DH.

The hair and nail thing can be gluten related or something else. Are you gluten-free?

richard

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Hello!!!!

I am broken out very badly on my checks (acne) and I get cyst-like erruptions out of nowhere. A big, red, angry pimple appears from nowhere....for example, the tip of my nose!!!!!!!!  :angry:

I see a dermatologist and do get creams--they dont work.

I also break out on my back and a little bit on my chest. Plus, my nails are so short, damaged and brittle that it scares me!! My hair also......went from curly/wavy to terrible, terrible frizz! I do use a flatiron though. Im noticing my hair is also thinning out, more than ever.

What might cause this? Is it celiac disease related? Or DH????

Does anyone else have this problem???

Any feedback would be appreciated!

:)

<{POST_SNAPBACK}>

I break out a lot when I eat gluten. They get pretty yucky. I went to the dr before celiacs and they said it was rosatia (spelling.. sorry!). My nails were also very brittle.

Now, gluten-free, I have a clear face (except for when I oops) and my nails are hard to cut even with a clippers! I tried to bite them this past weekend at my son's soccer game and I couldn't because they were so hard!!

Are you gluten-free and if so, are you sure you are not slipping up anywhere? Things such as toothpaste, chapstick, soaps, small altoids :unsure: ?

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I've been getting bumps on my face since I went gluten-free and accidently get glutened.

I'm not sure what they are but I got them 3 years ago when I first got sick and then nothing for a couple years until now that I've gone gluten-free. I was also dx'd with Rosacea back then but I don't really have it.

I don't think they are pimples cuz they arent like any pimple I've seen before and they also stay for several weeks. They also usually have a twin on the other side of my face so I don't know if it might be DH. Sometimes they are in small clusters on each side but they hardly itch at all so I don't know if they are weird pimples or DH.

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Yes, as far as I'm aware, I'm completely gluten-free, for 7 years now. However, I suspect I am getting glutened all the time. Maybe Im too risky, because Ive had celiac disease for a while, but I try to "be like everyone else" and eat in restaurants where there may or may not be contamination. I try to be very careful though....even my family/boyfriend. "jumps right in" and go on and on telling the waiter my whole story!!!! I get so embarrased, even though they mean well.

I used to eat such bland, tasteless food for the first few years of having celiac disease. Later on, I was way more lenient. Maybe now Im still too lenient. I had a boyfriend doctor who gave me "permission" to ease up alittle, dont be so paranoid. What this basically meant was: After not having a hot dog from the BBQ in so many years, I followed his advice and tried it. I was fine. (I also checked the label). I never took chances!!!!. Thanks to him, he opened up a whole new world for me and food -----gluten-free food!!!! So now, I'll enjoy bacon or frozen yogurt or tuna from a can, etc....and not just the steamed chicken and broccoli, or salad w/no dressing.

What my point is in saying all this is that:

Can CDrs ever be completely free of Gluten???? Im beginning to think No, its just impossible. You cant take evrey measure, every time to protect yourself. Its just everywhere. <_<

Oh, and by the way, even if you eat gluten-free totally in a diner, for example, how well are the utensils and cookware cleaned in the washing machine? Are YOU back there? #1 and #2 what if it isnt 100% sterilized? Obviously this is a risk when eating food off the grill, counter, same pans, etc.

Getting back to the acne (cystic), I think it could be celiac disease related. If that is the case, and I get this all the time, in the past year, then Im being glutened for sure.

:o:(

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My husband gets these cyst like things as well. They are horribly ichy and he scratches them until they bleed and then they don't itch anymore. Then he has these ugly scabs. The dermetologist said it wasn't DH but I suspected it was. In June he consented to going gluten-free. He did have a blood test that came back negative so we're going this route. He says he doesn't feel any different but I haven't noticed any new cysts.

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[ Plus, my nails are so short, damaged and brittle that it scares me!! My hair also......went from curly/wavy to terrible, terrible frizz! I do use a flatiron though. Im noticing my hair is also thinning out, more than ever.

What might cause this? Is it celiac disease related? Or DH????

Does anyone else have this problem???

Any feedback would be appreciated!

:)

<{POST_SNAPBACK}>

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Seven years for me and I don't think you are ever going to be totally free. Especially if you ever eat out or anywhere other than your house. Always a calculated risk.

Yes, as far as I'm aware, I'm completely gluten-free, for 7 years now. However, I suspect I am getting glutened all the time. Maybe Im too risky, because Ive had celiac disease for a while, but I try to "be like everyone else" and eat in restaurants where there may or may not be contamination. I try to be very careful though....even my family/boyfriend. "jumps right in" and go on and on telling the waiter my whole story!!!! I get so embarrased, even though they mean well.

I used to eat such bland, tasteless food for the first few years of having celiac disease. Later on, I was way more lenient. Maybe now Im still too lenient. I had a boyfriend doctor who gave me "permission" to ease up alittle, dont be so paranoid. What this basically meant was:  After not having a hot dog from the BBQ in so many years, I followed his advice and tried it. I was fine. (I also checked the label). I never took chances!!!!. Thanks to him, he opened up a whole new world for me and food -----gluten-free food!!!!  So now, I'll enjoy bacon or frozen yogurt or tuna from a can, etc....and not just the steamed chicken and broccoli, or salad w/no dressing.

What my point is in saying all this is that:

Can CDrs ever be completely free of Gluten???? Im beginning to think No, its just impossible. You cant take evrey measure, every time to protect yourself. Its just everywhere.  <_<

Oh, and by the way, even if you eat gluten-free totally in a diner, for example, how well are the utensils and cookware cleaned in the washing machine? Are YOU back there? #1 and #2 what if it isnt 100% sterilized?  Obviously this is a risk when eating food off the grill, counter, same pans, etc.

Getting back to the acne (cystic), I think it could be celiac disease related. If that is the case, and I get this all the time, in the past year, then Im being glutened for sure.

:o  :(

<{POST_SNAPBACK}>

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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