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Adrenal Fatigue & Pancreas Mri


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#1 SleepyBunny

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Posted 05 September 2012 - 08:54 PM

I've been having what I feel are symptoms related to adrenal issues. Feelling like I want to faint after standing or bending down, salty and sweet cravings, fatigue, blood sugar issues and frequent urination. So I go to the dr and showed him some saliva tests that I had done through my chiropractor. It showed I had low morning cortisol and also low in two types of estrogen. He said I would need to go to an endo to have my cortisol addressed and asked if I had an endo. I said yes but it takes forever to get seen. He asked if I wanted him to check me into the hospital :o It freaked me out but at the same time made me feel he was taking me and my on condition seriously. I said I was too scared. He did an EKG (i told him I've been having fluttering feelings in my chest but I think it's anxiety) it was normal. They tested my blood sugar and it was in the 70's and drew blood to check my cortisol. He said he knew it wouldn't be very accurate for the whole day but he just wanted to see where it was. Then he scheduled me to go get an MRI right after my appointment. I thought he said he was going to have the MRI done for my kidneys and adrenals. But on my way I looked and it said to do it for my pancreas and adrenals but then adrenals was scratched out. The MRI was rescheduled for the morning. Does anyone have any idea why he would want my pancreas checked? :( I'm worried about all of this. I want to get better but it just seems like each new problem is more serious than the last :(
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#2 pricklypear1971

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Posted 05 September 2012 - 09:23 PM

I have no idea. Best thing would be to ask your doctor before the procedure.
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#3 Gemini

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Posted 06 September 2012 - 08:37 AM

I've been having what I feel are symptoms related to adrenal issues. Feelling like I want to faint after standing or bending down, salty and sweet cravings, fatigue, blood sugar issues and frequent urination. So I go to the dr and showed him some saliva tests that I had done through my chiropractor. It showed I had low morning cortisol and also low in two types of estrogen. He said I would need to go to an endo to have my cortisol addressed and asked if I had an endo. I said yes but it takes forever to get seen. He asked if I wanted him to check me into the hospital :o It freaked me out but at the same time made me feel he was taking me and my on condition seriously. I said I was too scared. He did an EKG (i told him I've been having fluttering feelings in my chest but I think it's anxiety) it was normal. They tested my blood sugar and it was in the 70's and drew blood to check my cortisol. He said he knew it wouldn't be very accurate for the whole day but he just wanted to see where it was. Then he scheduled me to go get an MRI right after my appointment. I thought he said he was going to have the MRI done for my kidneys and adrenals. But on my way I looked and it said to do it for my pancreas and adrenals but then adrenals was scratched out. The MRI was rescheduled for the morning. Does anyone have any idea why he would want my pancreas checked? :( I'm worried about all of this. I want to get better but it just seems like each new problem is more serious than the last :(


SleepyBunny......I think we have spoken before about this subject and I would be very interested to hear what the final outcome of your testing is.
I would venture to guess that he is looking at the pancreas because you are having blood sugar problems? The pancreas can be damaged by Celiac in a number of ways but please do not worry too much. I know that's a stupid thing for me to say because I am having some issues myself and am doing the saliva cortisol test this week-end. I can totally understand your fear.

Your symptoms fit adrenal insufficiency and it's better for you to find out now. I am not having any feelings of being faint (low blood pressure can be the cause) or some of the other symptoms you have but I am having some muscle weakness, all of a sudden, and had a hard time at the gym last night. Very abnormal for me. I am also fatigued but just moved into my new home and did some V E R Y long days with that so not sure if I am just really tired after a stressful year or I have tripped for another damn AI disease. :( That would be number 5, if it's true, and that just is going to send me over the edge.

Every single one of your symptoms fits adrenal insufficiency to a T. I am the other "non-morning" person and have been tested before showing low cortisol in the morning. I need dynamite under my bum to get going, sometimes. ;)

I would stay out of the hospital but go and get your testing done. I feel hospital stays, unless absolutely necessary during a crisis, will only add to your stress and fear. It would do for me. Take care and let us know what it turns out to be.....I will be thinking of you and sending good energy...that is, what good energy I have left! :lol:
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#4 SleepyBunny

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Posted 06 September 2012 - 03:06 PM

SleepyBunny......I think we have spoken before about this subject and I would be very interested to hear what the final outcome of your testing is.
I would venture to guess that he is looking at the pancreas because you are having blood sugar problems? The pancreas can be damaged by Celiac in a number of ways but please do not worry too much. I know that's a stupid thing for me to say because I am having some issues myself and am doing the saliva cortisol test this week-end. I can totally understand your fear.

Your symptoms fit adrenal insufficiency and it's better for you to find out now. I am not having any feelings of being faint (low blood pressure can be the cause) or some of the other symptoms you have but I am having some muscle weakness, all of a sudden, and had a hard time at the gym last night. Very abnormal for me. I am also fatigued but just moved into my new home and did some V E R Y long days with that so not sure if I am just really tired after a stressful year or I have tripped for another damn AI disease. :( That would be number 5, if it's true, and that just is going to send me over the edge.

Every single one of your symptoms fits adrenal insufficiency to a T. I am the other "non-morning" person and have been tested before showing low cortisol in the morning. I need dynamite under my bum to get going, sometimes. ;)

I would stay out of the hospital but go and get your testing done. I feel hospital stays, unless absolutely necessary during a crisis, will only add to your stress and fear. It would do for me. Take care and let us know what it turns out to be.....I will be thinking of you and sending good energy...that is, what good energy I have left! :lol:



I'm trying not to worry but the anxiety seems to be on autopilot :( If my adrenals are ticked off I know being anxious isn't helping so I'm trying my best to calm down. I should be getting the results by no later than Monday. I'm at that point where you want them to find something not right so you don't look like a hypochondriac but then again I don't want something to add to the list lol I'm starting to get quite a collection!

I haven't been exercising just because one I'm tired and two I don't want to pass out on a machine :( I told my chiro this and he said not to go crazy just even some light walking. Easier said than done buddy lol He had a trainer training me for a while and sometimes I was so afraid to do some of the leg exercises cause I just kept feeling my legs were going to give out from under me. People always say you feel better after you exercise. Nuh uh! Lol

I started thinking he was checking my pancreas cos of the bs also. I just want to feel "normal" already. Don't be scared either. I know all of this is a pain but we need to take care of ourselves now. People like us are probably going to have extra maintenance when we're older so we might as well get started now :lol: Some of this is just so confusing because you want to do things naturally but then again you may need actual medicine and it's hard to tell what is best for which situation. Even though we seem to need rest a lot I think in both of our situations it's probably for the best. I'm finding I physically react to stress more than I used to. I've also had a stressful year so it's very likely your stress has wiped you out. Moving into a new house is very stressful! Especially when your husbands idea of packing is throwing everything into garbage bags lol :lol:

Let me know how your test goes also and what they tell you! :) I will be keeping you in my thoughts as well. Maybe with the little energy we put together something good will happen lol
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#5 SleepyBunny

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Posted 06 September 2012 - 03:13 PM

I am the other "non-morning" person and have been tested before showing low cortisol in the morning. I need dynamite under my bum to get going, sometimes. ;)



My husband thinks I'm crazy cos I will sometimes get these weird urges to clean like at 9 o'clock at night lol
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#6 Gemini

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Posted 10 September 2012 - 07:37 AM

I'm trying not to worry but the anxiety seems to be on autopilot :( If my adrenals are ticked off I know being anxious isn't helping so I'm trying my best to calm down. I should be getting the results by no later than Monday. I'm at that point where you want them to find something not right so you don't look like a hypochondriac but then again I don't want something to add to the list lol I'm starting to get quite a collection!

I haven't been exercising just because one I'm tired and two I don't want to pass out on a machine :( I told my chiro this and he said not to go crazy just even some light walking. Easier said than done buddy lol He had a trainer training me for a while and sometimes I was so afraid to do some of the leg exercises cause I just kept feeling my legs were going to give out from under me. People always say you feel better after you exercise. Nuh uh! Lol

I started thinking he was checking my pancreas cos of the bs also. I just want to feel "normal" already. Don't be scared either. I know all of this is a pain but we need to take care of ourselves now. People like us are probably going to have extra maintenance when we're older so we might as well get started now :lol: Some of this is just so confusing because you want to do things naturally but then again you may need actual medicine and it's hard to tell what is best for which situation. Even though we seem to need rest a lot I think in both of our situations it's probably for the best. I'm finding I physically react to stress more than I used to. I've also had a stressful year so it's very likely your stress has wiped you out. Moving into a new house is very stressful! Especially when your husbands idea of packing is throwing everything into garbage bags lol :lol:

Let me know how your test goes also and what they tell you! :) I will be keeping you in my thoughts as well. Maybe with the little energy we put together something good will happen lol


All of your anxiety may be from stressed adrenals, so it's a vicious circle. You make an effort not to be stressed and anxious yet....it happens anyway. I know that feeling and I am about as far from being an anxious person as they come. Yet, lately, I am anxious about a number of things. Never happened to me before. So, when you notice these things happening that are totally out of the norm for you, then you have to investigate. Except for the non-morning person thing, which I have had my whole life. I also get the exercise problem because that happened to me last week and I never ditch exercise class either. I will take it slower because I believe that a wimpy work-out is better than no work-out! ;)

I mail my test kit off tomorrow so it will be about 2 weeks before my appointment and results. I hope it is just a bit of adrenal inefficiency because I really don't want to involve my PCP. We always seem to butt heads lately and that makes me anxious. :P

I laughed out loud about the late night cleaning mode....that's me! I could vacuum at midnight but it would wake others up.....if we could only channel that energy in the morning!
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#7 SleepyBunny

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Posted 10 September 2012 - 09:28 PM

All of your anxiety may be from stressed adrenals, so it's a vicious circle. You make an effort not to be stressed and anxious yet....it happens anyway. I know that feeling and I am about as far from being an anxious person as they come. Yet, lately, I am anxious about a number of things. Never happened to me before. So, when you notice these things happening that are totally out of the norm for you, then you have to investigate. Except for the non-morning person thing, which I have had my whole life. I also get the exercise problem because that happened to me last week and I never ditch exercise class either. I will take it slower because I believe that a wimpy work-out is better than no work-out! ;)

I mail my test kit off tomorrow so it will be about 2 weeks before my appointment and results. I hope it is just a bit of adrenal inefficiency because I really don't want to involve my PCP. We always seem to butt heads lately and that makes me anxious. :P

I laughed out loud about the late night cleaning mode....that's me! I could vacuum at midnight but it would wake others up.....if we could only channel that energy in the morning!


I showed my dr my saliva tests. It showed my low morning cortisol and low estrogen and he said he wasn't sure how accurate saliva tests were but he did take a good look at them. This past weekend I got sick and I'm going tomorrow to make sure it's not strep and find out my MRI results. I'm nervous. I don't want there to be something horribly wrong :( But then at the same time I don't want him to say you're fine go home. I don't know if I can wait for an endo to figure this out. I don't want to get fired from this :( The chiropractor kept saying everything was my adrenals the last time I saw him but just said to keep calm. <_<
Every time he says don't stress something bad happens. He keeps wanting me to fast and detox. When your adrenals are telling your brain SALT, SUGAR, CARBS! You really have no choice in the matter lol

Do you find that you want to pig out more later in the evening? During the day I've been snacking and such but in the evening I make a nice carb filled meal wether I'm "hungry" or not.

Good luck with your tests! Let me know what they tell you. I'll post on here sometime tomorrow and let you know what he tells me. Have a good day! :)
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#8 SleepyBunny

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Posted 10 September 2012 - 09:33 PM

I laughed out loud about the late night cleaning mode....that's me! I could vacuum at midnight but it would wake others up.....if we could only channel that energy in the morning!


It's even worse if I have to be at work early the next morning. It's like I'm a gluton for punishment or something lol The only time I'm awake in the early morning (besides for work) is if I've stayed up all night. If I get this fixed it's going to be so weird being a ......morning person :blink:
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#9 Gemini

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Posted 11 September 2012 - 08:33 AM

I showed my dr my saliva tests. It showed my low morning cortisol and low estrogen and he said he wasn't sure how accurate saliva tests were but he did take a good look at them. This past weekend I got sick and I'm going tomorrow to make sure it's not strep and find out my MRI results. I'm nervous. I don't want there to be something horribly wrong :( But then at the same time I don't want him to say you're fine go home. I don't know if I can wait for an endo to figure this out. I don't want to get fired from this :( The chiropractor kept saying everything was my adrenals the last time I saw him but just said to keep calm. <_<
Every time he says don't stress something bad happens. He keeps wanting me to fast and detox. When your adrenals are telling your brain SALT, SUGAR, CARBS! You really have no choice in the matter lol

Do you find that you want to pig out more later in the evening? During the day I've been snacking and such but in the evening I make a nice carb filled meal wether I'm "hungry" or not.

Good luck with your tests! Let me know what they tell you. I'll post on here sometime tomorrow and let you know what he tells me. Have a good day! :)


I always like to pig out! :P Actually, I eat about every 3-4 hours and most of what I eat during the day is protein and veggies/fruits. I do not eat too many carbs, except at breakfast, to provide some energy along with the protein, and then again later in the evening when I snack a bit. Dinners are usually protein, veggies and a small serving of rice or potatoes. I do not eat pasta that much at all as I don't crave it. I find when you limit your carbs, you feel better and it has more to do with blood sugar than gluten. I like whole grain carbs but try to limit them. However, I tend to crave them at night, much more so than day time at work. I do not crave salt at all because I have Sjogren's Syndrome and salt wreaks havoc with that.

Forget the fasting BS....I think that's crazy. Celiacs have enough trouble absorbing nutrients and fasting slows your metabolism down...way down. Eat clean and healthy, with a little junk thrown in....a little. You just sound like you have all the symptoms of adrenal problems but please don't freak out about it. It can be remedied. Doctors are such gloom and doom..they take themselves too seriously. Most doctors don't think there is much value in saliva testing, either, but it's good that yours is keeping a somewhat open mind. I think it valuable to show cortisol fluctuations during the day you take samples. Mine are always flipped...low in the morning and stellar at night. I have found that weight training and exercise help somewhat with sleeping better but I wonder if I EVER will be a morning person. I feel like a salmon swimming upstream, against everyone else going downstream.

Hormone deficiencies and imbalance can really mess a person up but you rarely die from them. I am post-menopausal so am used to feeling wonky from that but you do improve dramatically after a few years of the change. That was the toughest time for me...your hormones are disappearing and that is tough. So, whatever the test results show, I am on it and will never admit defeat. If I can survive menopause and hot flashes, I can survive this! ;)
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#10 SleepyBunny

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Posted 11 September 2012 - 01:24 PM

I always like to pig out! :P Actually, I eat about every 3-4 hours and most of what I eat during the day is protein and veggies/fruits. I do not eat too many carbs, except at breakfast, to provide some energy along with the protein, and then again later in the evening when I snack a bit. Dinners are usually protein, veggies and a small serving of rice or potatoes. I do not eat pasta that much at all as I don't crave it. I find when you limit your carbs, you feel better and it has more to do with blood sugar than gluten. I like whole grain carbs but try to limit them. However, I tend to crave them at night, much more so than day time at work. I do not crave salt at all because I have Sjogren's Syndrome and salt wreaks havoc with that.

Forget the fasting BS....I think that's crazy. Celiacs have enough trouble absorbing nutrients and fasting slows your metabolism down...way down. Eat clean and healthy, with a little junk thrown in....a little. You just sound like you have all the symptoms of adrenal problems but please don't freak out about it. It can be remedied. Doctors are such gloom and doom..they take themselves too seriously. Most doctors don't think there is much value in saliva testing, either, but it's good that yours is keeping a somewhat open mind. I think it valuable to show cortisol fluctuations during the day you take samples. Mine are always flipped...low in the morning and stellar at night. I have found that weight training and exercise help somewhat with sleeping better but I wonder if I EVER will be a morning person. I feel like a salmon swimming upstream, against everyone else going downstream.

Hormone deficiencies and imbalance can really mess a person up but you rarely die from them. I am post-menopausal so am used to feeling wonky from that but you do improve dramatically after a few years of the change. That was the toughest time for me...your hormones are disappearing and that is tough. So, whatever the test results show, I am on it and will never admit defeat. If I can survive menopause and hot flashes, I can survive this! ;)


I went to my appointment. Since it was a last minute appointment I saw a different dr. When I told her about my anemia and one of my other conditions (don't remember already lol) she said auto immune. Yay she sounds like she knows what she's talking about. :D She said my MRI came back normal but said they did find some cysts on my liver but it was normal. :huh: I told her about my recent symptoms and that was why I had the MRI and I feel it was something to do with my adrenals. Well because of my anemia (low b12 and ferretin) and I have low platelets she wants to send me to a hematologist :blink: She even mentioned a bone marrow biopsy!!!! :o That freaked me out. I've heard they are really painful! :( She asked if I wanted a b12 shot but I passed. (hate needles! Lol) why do these drs not listen? :angry:

I went also because I got sick this weekend with a sore throat. She asked if I wanted a steroid shot or pills. Well I picked pills lol I'm wondering if my adrenals are pooped if this will help and maybe they'll start listening to me. I'm going to make an appointment with the endo and the hemo. I don't mind going I just hate having to wait a month or two to get in and having to spend more money and wait longer for a 5 minute visit just to be told to wait longer for results that will more then likely be "normal". Ok I vented lol

My cortisol is like yours. Mine was like 4 in the morning then normal, then slightly elevated then normal again. I like pigging out too lol I haven't really been eating pasta either. My main carb of choice lately is potatoes. I've always loved potatoes :D But carbo loading before bed leaves me feeling all stuffed. But one good thing my morning blood sugar hasn't been in the 60s the last few times I checked. Yeah no more fasting. It just makes me want to pig out more. Lol And it doesn't seem like the best advice for someone having low blood sugar issues.

For going through all that you're going through you really seem to have it together. I hope to get to that point one day. Reading these posts is part of what's keeping me sane :) So thank you :)
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#11 Gemini

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Posted 11 September 2012 - 02:07 PM

I went to my appointment. Since it was a last minute appointment I saw a different dr. When I told her about my anemia and one of my other conditions (don't remember already lol) she said auto immune. Yay she sounds like she knows what she's talking about. :D She said my MRI came back normal but said they did find some cysts on my liver but it was normal. :huh: I told her about my recent symptoms and that was why I had the MRI and I feel it was something to do with my adrenals. Well because of my anemia (low b12 and ferretin) and I have low platelets she wants to send me to a hematologist :blink: She even mentioned a bone marrow biopsy!!!! :o That freaked me out. I've heard they are really painful! :( She asked if I wanted a b12 shot but I passed. (hate needles! Lol) why do these drs not listen? :angry:

I went also because I got sick this weekend with a sore throat. She asked if I wanted a steroid shot or pills. Well I picked pills lol I'm wondering if my adrenals are pooped if this will help and maybe they'll start listening to me. I'm going to make an appointment with the endo and the hemo. I don't mind going I just hate having to wait a month or two to get in and having to spend more money and wait longer for a 5 minute visit just to be told to wait longer for results that will more then likely be "normal". Ok I vented lol

My cortisol is like yours. Mine was like 4 in the morning then normal, then slightly elevated then normal again. I like pigging out too lol I haven't really been eating pasta either. My main carb of choice lately is potatoes. I've always loved potatoes :D But carbo loading before bed leaves me feeling all stuffed. But one good thing my morning blood sugar hasn't been in the 60s the last few times I checked. Yeah no more fasting. It just makes me want to pig out more. Lol And it doesn't seem like the best advice for someone having low blood sugar issues.

For going through all that you're going through you really seem to have it together. I hope to get to that point one day. Reading these posts is part of what's keeping me sane :) So thank you :)


I went to a hematologist too because of wonky blood results in the beginning of being gluten-free. You must learn to expect wonky blood results with celiac...it happens. It does not mean you are dying or anything. Besides, most of my wonkiness disappeared after being gluten-free for 3 years or so. You need to get the low platelet thing checked out because there are AI diseases that affect your platelets. However, with Celiac, you can have weird results, only to have that reverse if you follow a strict gluten-free diet.

The bone marrow biopsy can be done as outpatient in the hospital and they can give you something to make it far less painful. It can hurt but I am a firm believer that no one should suffer undue pain during a procedure so if they want to do this, TELL THEM that you want it done at the hospital and you want something for pain. They can and should accommodate you. I thought they would do that to me at one point and no way would I agree to it unless they gave me the happy juice. Luckily, it was not needed.

Why did they give you steroid pills? For a sore throat? They give those away like candy these days. :blink: I am not sure you should be taking them if you may have adrenal fatigue...that will affect any testing they do for it. Is testing complete for that? I am in no way suggesting that you not take them as I am certainly no doctor but I would question that if you plan on doing any more adrenal testing.

The cysts on your liver....don't fret that. That can happen to any organ under stress and the liver is highly affected by celiac. I had elevated liver enzymes when diagnosed but that is also gone too. Celiac messes up everything but it can be reversed if you work at it. I am a glass half full person and don't let the doctors scare me. Don't be surprised if all this resolves in future because that has been my experience with many symptoms and issues.

As far as having it all together, well...thank you! I am stubborn as they come and refuse to think of myself as a sick person
or one with compromised health. I have days where I don't feel energetic as I should but everyone gets tired sometimes. I just get up and go to work and live my life and try not to worry about things too much. I have worked very hard to get healthy again and am not doing badly considering I have a lot of AI problems. They have all calmed down in a big way since following the gluten-free diet. Sure, there may be set-backs but that happens to everyone in life. Just don't give in or up. I have found the biggest thing for me, and not everyone will agree with this, is not to go to the doctors too much. Concentrate on the problems you do have and don't sweat what may or may not happen. Doctors have the habit of thinking you will fall apart so should be monitored constantly. Wait till you get to the 50 year old mark...they will drive you crazy. Just live as healthy a life as you can with diet and exercise and you'll be amazed at what that can do. I just pay attention to what problems I do have and do my best to make them better. There are far worse things to have than Celiac and AI diseases and I always remember that. You are learning a lot of good stuff and will become an informed patient. See the hematologist and don't worry about it...you'll get things squared away. But you will have to get used to needles....hematologists take blood! :o

Just keep us informed with your progress and good luck! :D
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#12 ravenwoodglass

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Posted 12 September 2012 - 02:47 AM

She asked if I wanted a b12 shot but I passed. (hate needles! Lol) why do these drs not listen? :angry:

It's too bad you hate needles since the B12 shot might have really helped you feel a lot better. Do get some sublingual B12, it is important that it be sublingual as that way it will bypass your damaged gut and go right into your bloodstream through the mucous membranes. Pick some up as soon as you can. Low B12 and ferritin are often found in us and eventually when you have healed enough you won't need to supplement.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#13 SleepyBunny

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Posted 12 September 2012 - 11:35 AM

It's too bad you hate needles since the B12 shot might have really helped you feel a lot better. Do get some sublingual B12, it is important that it be sublingual as that way it will bypass your damaged gut and go right into your bloodstream through the mucous membranes. Pick some up as soon as you can. Low B12 and ferritin are often found in us and eventually when you have healed enough you won't need to supplement.


I have been taking sublingual b12 (methylcobalamin) for about a month or so now. When I started taking it and the iron it did help clear almost all of the lingering brain fog I still had. I almost considered the b12 shot but just couldn't do it :(
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Gluteny - the 8th deadly sin

#14 SleepyBunny

SleepyBunny

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Posted 12 September 2012 - 11:52 AM

I went to a hematologist too because of wonky blood results in the beginning of being gluten-free. You must learn to expect wonky blood results with celiac...it happens. It does not mean you are dying or anything. Besides, most of my wonkiness disappeared after being gluten-free for 3 years or so. You need to get the low platelet thing checked out because there are AI diseases that affect your platelets. However, with Celiac, you can have weird results, only to have that reverse if you follow a strict gluten-free diet.

The bone marrow biopsy can be done as outpatient in the hospital and they can give you something to make it far less painful. It can hurt but I am a firm believer that no one should suffer undue pain during a procedure so if they want to do this, TELL THEM that you want it done at the hospital and you want something for pain. They can and should accommodate you. I thought they would do that to me at one point and no way would I agree to it unless they gave me the happy juice. Luckily, it was not needed.

Why did they give you steroid pills? For a sore throat? They give those away like candy these days. :blink: I am not sure you should be taking them if you may have adrenal fatigue...that will affect any testing they do for it. Is testing complete for that? I am in no way suggesting that you not take them as I am certainly no doctor but I would question that if you plan on doing any more adrenal testing.

The cysts on your liver....don't fret that. That can happen to any organ under stress and the liver is highly affected by celiac. I had elevated liver enzymes when diagnosed but that is also gone too. Celiac messes up everything but it can be reversed if you work at it. I am a glass half full person and don't let the doctors scare me. Don't be surprised if all this resolves in future because that has been my experience with many symptoms and issues.

As far as having it all together, well...thank you! I am stubborn as they come and refuse to think of myself as a sick person
or one with compromised health. I have days where I don't feel energetic as I should but everyone gets tired sometimes. I just get up and go to work and live my life and try not to worry about things too much. I have worked very hard to get healthy again and am not doing badly considering I have a lot of AI problems. They have all calmed down in a big way since following the gluten-free diet. Sure, there may be set-backs but that happens to everyone in life. Just don't give in or up. I have found the biggest thing for me, and not everyone will agree with this, is not to go to the doctors too much. Concentrate on the problems you do have and don't sweat what may or may not happen. Doctors have the habit of thinking you will fall apart so should be monitored constantly. Wait till you get to the 50 year old mark...they will drive you crazy. Just live as healthy a life as you can with diet and exercise and you'll be amazed at what that can do. I just pay attention to what problems I do have and do my best to make them better. There are far worse things to have than Celiac and AI diseases and I always remember that. You are learning a lot of good stuff and will become an informed patient. See the hematologist and don't worry about it...you'll get things squared away. But you will have to get used to needles....hematologists take blood! :o

Just keep us informed with your progress and good luck! :D



I had a sore throat but also some chest congestion. She also told me the right side of my neck/throat was more swollen than the left. I'm thinking that's why she gave me the medrol. I've had strep lots of times and also cryptic tonsils so it doesn't surprise me. My ears had felt a little tender too cause of the swelling. And hey she gave me a bunch of days off from work so I'll do whatever she says lol :D

All of this is so much to take in. :( Thanks for reminding me that hematologist use tons of needles! Lol This is going to be like when I was younger. I actually hid under a table to keep them from drawning my blood :D

I want to learn as much as I can but sometimes all this conflicting information makes my head hurt. :( I'm pretty stubborn too so I know I'll figure this out it's just going to take a while. I've been dealing with all of this pretty much my whole life and I just want to feel good. I feel like all of this has kept me from accomplishing things. I've only been gluten-free for a year but man it seems longer. Thyroid came in November then all these other things in the past couple of months. So it's just a lot to take in. This forum helps quite a bit and nice people like you help a ton! :) If you ever need to talk or vent too you just let me know! Let me know when you get your results in and I'll let you know when I got to the evil blood suc....I mean hematologist. Lol :D Now time to get my big butt up and attempt to do something :D
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Gluteny - the 8th deadly sin

#15 Gemini

Gemini

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Posted 13 September 2012 - 07:41 AM

I had a sore throat but also some chest congestion. She also told me the right side of my neck/throat was more swollen than the left. I'm thinking that's why she gave me the medrol. I've had strep lots of times and also cryptic tonsils so it doesn't surprise me. My ears had felt a little tender too cause of the swelling. And hey she gave me a bunch of days off from work so I'll do whatever she says lol :D

All of this is so much to take in. :( Thanks for reminding me that hematologist use tons of needles! Lol This is going to be like when I was younger. I actually hid under a table to keep them from drawning my blood :D

I want to learn as much as I can but sometimes all this conflicting information makes my head hurt. :( I'm pretty stubborn too so I know I'll figure this out it's just going to take a while. I've been dealing with all of this pretty much my whole life and I just want to feel good. I feel like all of this has kept me from accomplishing things. I've only been gluten-free for a year but man it seems longer. Thyroid came in November then all these other things in the past couple of months. So it's just a lot to take in. This forum helps quite a bit and nice people like you help a ton! :) If you ever need to talk or vent too you just let me know! Let me know when you get your results in and I'll let you know when I got to the evil blood suc....I mean hematologist. Lol :D Now time to get my big butt up and attempt to do something :D


I gotcha now...Medrol! Some implant dentists like to use that after surgery to help with swelling but my old stand-by for that is Ibuprofin. It works well for me so I always avoid the steroids. But that's an individual choice and if you want to take it to feel better, then do so. I will add one thing to think about and I hope I am not overwhelming you. You say you have strep a lot and you still have your tonsils? I had that also when I was 14 years old....and probably already a Celiac. I used to get strep about 4 times per year for 2 years and that is not good. The doctor I had thought the problem was my tonsils. They looked fine but sometimes, they can harbor bacteria like strep. If you use antibiotics repeatedly for these infections, they never quite knock it down completely and some left-over strep germs can hang out in your tonsils. The tonsils are part of the immune system, like lymph nodes.
Then the cycle starts all over again.

Well....he took out my tonsils at 14 and I never had another strep throat again and I am 53 years old. I know that sounds crazy but it worked and I think he was right. I think all your issues are connected. It's like the domino effect. You have undiagnosed Celiac and get run down. That in turn can run your adrenals down and you get sick a lot. Thyroid issues too. You have only been gluten-free for 1 year but don't despair. I went 3 years before all my symptoms went away but they did. You still might develop issues because eating gluten-free does not guarantee no medical problems but I can guarantee you that in a couple more years, things will change and you'll be healthier. Just give it time because that's the worst part....the time it takes to heal. You'll get there. :)
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