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Spouse May Have Celiac
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My significant other has been gluten sensitive most of his life to varying degrees. Somedays he can eat an entire pizza without getting sick, other days the slightest thing can make him sick. His mother and grandfather are also celiacs- she can't even touch it without getting sick for days. He has finally chosen to go gluten free, after a few days of feeling very sick. I am a very picky eater and dearly love my pastas, breads and baked goods. I dearly want to show my support for him. What is the best way to do this? It seems most of those in this forum with spouses with Celiac have chosen to also go gluten-free. Is this the most common choice for spouses of Celiacs? I do understand how it can make cooking much easier, but if I choose to also go gluten free, I do not want to become sensitive to it myself. What is the best way to deal?

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Not eating something will not make you sensitive to it. For example, People usually only eat watermelon 2 months of the year. They aren't sensitive to it when they start eating it again. You could find that you had a sensitivity to something and didn't know it until you deleted it.

You could certainly eat anything when not at home.

For a person starting a gluten-free diet, it can be hard to see others eating things they like in front of them. So, I would think, if you care about him, you would try to keep those foods away from him - at least until he gets used to the diet.

I'm curious why he doesn't want to get an official diagnosis? For many people it helps them to stick to the diet. It also helps thier relatives believe gluten is a real problem and be more supportive.

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Thank You, for the loving support of your family member this way. Your sharing in this will help immensly. You can find substitutes that are good tssting for both of you. I agree that eating the same thing at the same time is the very best for families. Eating together helps to bond us together. Being a willing participant in the diet also helps you to understand what the other is going through.

If you enjoy food now, you can still enjoy it. You may actually increase the variety of what you eat. You may increase the nutrients in what you eat. :P

I got the idea that you do the cooking. There are many recipes for gluten free online. If any allergies arise there are also substitutes available.

Listen to and help through the withdrawl and health effects of the gluten diet. It is simply amazing what the body begins to do.

Diana

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Well, he should stop in here and do some reading. It can be hard to eliminate all the sources of gluten in your diet. It is present in many, many processed foods and not always obvious. If you do go gluten-free it will probalby help him,. Kissing is not a safe activity if you haven't brushed and gargled after eating gluten. Shampoos and vitamins and meds need to be gluten-free also. Sharing pots and pans and condiments like peanut butter and mayo or even a toaster are not ok. It only takes a trace amount of gluten to get the autoimmune process started and it doesn't stop for a couple weeks at least. Baking with regular gluteny flour is not a good idea. There are gluten-free flour mixes available.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

Easy yummy bread in minutes

How bad is cheating?

Short temper thread

Non celiac wheat sensitivity article

http://www.nature.com/ajg/journal/vaop/ncurrent/full/ajg2012236a.html

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My significant other has been gluten sensitive most of his life to varying degrees. Somedays he can eat an entire pizza without getting sick, other days the slightest thing can make him sick. His mother and grandfather are also celiacs- she can't even touch it without getting sick for days. He has finally chosen to go gluten free, after a few days of feeling very sick. I am a very picky eater and dearly love my pastas, breads and baked goods. I dearly want to show my support for him. What is the best way to do this? It seems most of those in this forum with spouses with Celiac have chosen to also go gluten-free. Is this the most common choice for spouses of Celiacs? I do understand how it can make cooking much easier, but if I choose to also go gluten free, I do not want to become sensitive to it myself. What is the best way to deal?

Aside from what was said above, if your favorites all involve wheat flour, and assuming you bake and cook with wheat flour in the house, he can have a big problem.

Flour flies and goes airborne, covers everything. You'll find a lot if people who live in split households (one gluten-free, others not) draw the line at having glutenous flours in the house. It's simply too difficult to control and the Celiac gets glutened by getting into minute particles around the kitchen.

So, how you decide to do it is up to you. But I'd bring glutenous baked goods in, not bake them in your house.

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What my spouse did was go gluten free at home. He eats whatever he wants during business travel, sometimes he will get a burger with a regular bun when dining out, but not usually, as he tends to order off the gluten free menu with me so as to lessen problems with cross contamination and leftovers if we get the leftovers bagged for takeout.

If you are not gluten intolerant or celiac, you will not become more sensitive to it over time after omitting it from the diet for a while.

At home, for carbs, he eats his gluten free cereals, rice cakes, rice pasta, corn tortillas, potatoes, beans, and any thing I bake gluten free. Sometimes we get some kinnickinick bagels to keep in the freezer, once in a while a loaf of Udi's bread for him (I don't eat that because it has something else in it that disagrees with me.) If we want pizza, we either make it at home, using either a tortilla (rice) for ultra thin crust, or a home made crust, like from a Chebe mix. There are also a lot of pre- made, frozen gluten free crusts available in health food stores now, but the home-made is better. We also keep a stash of Lara bars around, some gluten free crackers sometimes, along with some gluten free gelato, and he has pre sweetened yogurts that are gluten free - I eat the plain, to which I add whatever I want, as I am more sensitive and cannot do much sugar or corn syrup in foods.

When we travel, even for short trips during the day, we almost always carry a lunch cooler with emergency snacks, so as to be prepared if we get delayed or hungry.

The main difference between normal and gluten free households is that the latter is likely taking a bit more thought and planning to provide food, as opposed to our modern society's reliance on take out and mass production.

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
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