After after having blood work done a couple of weeks ago, and coming back negative for celiac (because I've been off gluten for months before the test was done), I'm wondering what else I should explore with my doctor. I have a follow up appointment in two weeks. She has already said that she considers me gluten intolerant because of the evidence of switching to a gluten-free diet. But should I ask for more tests to see if I'm low on some nutrient levels? Is there a specific test or panel of tests I should ask for?
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#2
GottaSki
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"Migratory flight complete."
Posted 06 September 2012 - 08:54 AM
Hi Kitty-
These are the tests my Celiac Doc recommended in additional to Full Celiac Panel - at Dx, at 6 months then annually thereafter:
Bs, D, K, Iron, Ferritin, Copper and Zinc
I've seen others suggest adding vitamin A to the list.
Good luck to you!
These are the tests my Celiac Doc recommended in additional to Full Celiac Panel - at Dx, at 6 months then annually thereafter:
Bs, D, K, Iron, Ferritin, Copper and Zinc
I've seen others suggest adding vitamin A to the list.
Good luck to you!
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe 
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#3
kittty
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Posted 06 September 2012 - 09:01 AM
Hi Kitty-
These are the tests my Celiac Doc recommended in additional to Full Celiac Panel - at Dx, at 6 months then annually thereafter:
Bs, D, K, Iron, Ferritin, Copper and Zinc
I've seen others suggest adding vitamin A to the list.
Good luck to you!
Thanks a lot!
I had blood tests done a few years ago that pointed towards possible iron, magnesium, and B6 deficiency. I'm interested to see how different things are now.
#4
heather806
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Posted 06 September 2012 - 09:48 AM
Along with the others GottaSki mentioned, have them check calcium and magnesium too. I've had major calcium problems. (hopefully soon to be resolved since I was diagnosed in June and have been gluten-free since then!) Good luck! Let us know how your tests come out.
#5
nvsmom
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Posted 09 September 2012 - 11:27 AM
A thyroid check might be a good idea; TSH (thyroid stimulating hormone), T4 and TPOAb (thyroid peroxidase anibodies) will give you an idea if you have Hashimoto's hypothyroidism, which can show up in celiacs and has many of the same symptoms. A hypo result would be high TSH, low/normal T4 and high TPOAb.
Best wishes.
Best wishes.
Nicole 
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012
CANADIAN
#6
kittty
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Posted 10 September 2012 - 05:42 AM
A thyroid check might be a good idea; TSH (thyroid stimulating hormone), T4 and TPOAb (thyroid peroxidase anibodies) will give you an idea if you have Hashimoto's hypothyroidism, which can show up in celiacs and has many of the same symptoms. A hypo result would be high TSH, low/normal T4 and high TPOAb.
Best wishes.
My mom had thyroid problems (hyperthyroid) so they check me for thyroid pretty much every time I have bloodwork done, whether I ask for it or not. It always comes back normal, thankfully!
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