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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Son Has Acid Reflux
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11 posts in this topic

My son was diagnosed with acid reflux when he was 3. He is now 11. Dr had told me that he should outgrow it but never has. Actually it has slowly gotten worse. He is now taking and over the counter once a day acid reducer. He is very active and plays school/city sports always. Sometimes after his games are over he complains of his reflux bothering him to the point of sometimes throwing up and having diarrhea. After that he does feel better. My question here is...Is it possible that maybe all this time he has really had Celiac? I am new to this after coming to the realization that I too may have it. But my symptoms are very different. Has anyone else had a child with reflux and it really be Celiac? And what do I do?

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One of my main symptoms was really bad GERD, so yes, it can be a symptom of Celiac. I think you should get him tested.

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Acid Reflux is what sent my daughter to the doc. The prescription meds did the trick and my daughter went off of them. Reflux came back a little later . . . back on meds . . . off . . . on . . . until she just stayed "on" and then symptoms came back even though she was on meds. It manifested itself by regurgitation . . . she would just vomit/spit-up no more than a mouthful. She'd go to the bathroom and spit it out. This would repeat anywhere between two and twenty times a day. In hindsight, I don't think acid reflux was the problem although she needed the meds to protect her esophagus. I think her digestive system just slowed to a crawl and her body was just trying to get rid of it.

It doesn't hurt to ask for a Celiac panel from your doctor (PCP or Pediatrician can request this.) Please note: DO NOT TRY THE GLUTEN FREE DIET IF YOU ARE GOING TO PURSUE TESTING. Removing gluten, just to see if it helps, will reduce the chances for accurate testing. If testing doesn't turn up anything, you can try the diet to see if it helps. In my opinion, it's worth trying for an official diagnosis in order to get any accommodations from the school system. My daughter is eligible to buy a gluten free hot lunch which is only available to kids with a diagnosis. Also, when she was having gluten issues in the fourth grade, we were able to get all gluten snacks removed from her classroom (at the time, the kids were all allowed to bring whatever they wanted (peanut free) to snack on during the day.)

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It is very possible it could be a sign of celiac. With all of my symptoms, exerice and increased activity only makes the symptoms a million times worse!

Keep in mind thought it could be something else. In addition to the gluten, I have also have a herniated esphogus which causes the valve between your esphogus and stomach to not work making anything and everything to easily come right back up...mostly stomach acid. OTC meds do nothing for me. I have to take a strong precription medication to keep the acid down to a tolerable level.This only got worse as I grew up and whenever I was more active.

Just keep an open mind that it could be more than just celiac. Testing for celiac us a great idea. I actually got my diagnosis through a colonoscopy so if they biospy your son, they might see other signs or issues for the reflux. Celiac might solve your son's problems without meds. But if he still has the acide reflux, remember that stomach acid can do a lot of damage too and is just as important to get taken care of.

Hope all goes well for your son! Neither of these are fun issues!

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Since he was so young when he was diagnosed with reflux there are further concerns for a diagnoses.

you have to add a possible congenital defect to the list of "usual suspects" for these symptoms

hernia

Celiac

Eosinophilic Esophagitus

H. Ploryi.

parasitic infection

the list is quite long discuss it with your doctor.

These are all reasons to work with a pediatric gastroenterologist and have testing done (endoscopy with biopsy ~ camera tube down the throat and biopsies are taken even from "normal" looking tissue)

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I was diagnosed with GERD and put on PPI "for life" . . . two years later, after my son was diagnosed with Celiac, I tested positive for celiac disease too. One week gluten free and I was off all medication.

Read up on the meds - they were never intended to be used long term, especially in children (although doctors routinely prescribe them for months and even years . . . )

My son's celiac symptoms are completely different from mine. I have classic symptoms, he gets cranky and has joint pain. We both have celiac disease.

It certainly wouldn't hurt to get everyone tested. I would much rather find the cause of the problem then just keep treating the symptoms.

Cara

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My main symptom was acid reflux also. My youngest son had reflux since an infant that "seemed" to go away by the time he was 3.5 and before I was diagnosed. Had him tested and was negative, so we thought we were in the clear. Two years later, he started complaining of acid reflux again, fat in his stool and weird behaviors. His blood work was positive for celiac at age 5.5. In hindsite I truely believe he has had celiac since he was a baby and that the testing was just unreliable.

As the other posters suggested, keep an open mind to other possible causes also. It certainly won't hurt to get tested for it though.

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Another person with GERD here.

Mine is now under control without medication, however, it is rather difficult to do so. I cannot eat fatty meats (bacon, sausage, you get the idea), no spicy at all,and no over doing it on the dairy. I also have to eat every so often (2-3 hours) to keep it from coming back up on me. I only drink water.

Another thought outside of Celiac, is the gallbladder. Mine was a MAJOR culprit on this for some strange reason and it seemed to decrease some.

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Hi!

My daughter has been sick a long time. Initially thought it was Celiac, but I have been questioning that and may in fact be but I thought I would share what we learned. The gluten-free diet worked for a while, but became sicker with time including her asthma. About seven months ago we got lucky and an ENT probed her and found she had acid reflux. Over the counter antacids did nothing and she developed awful diaries, so I put her on Prilosec. It helped some but she was vomiting nonstop. Took her to an aero digestive clinic After she had an upper GI series barium that showed severe reflux. They did two impedence ph probes, one on 80 mg Prilosec and one on nothing. In the end we opted for the Nissen. What they found in surgery, had my husband and I speechless. Her stomach was completely fused to her diaphragm, with no esophagus extending down from the diaphagm, the esophagus was not narrowed as it approached the stomach as it should, and so on. It was a mess. Prior to this she was down to eating at most a dozen foods, and prior to surgery eating only three. Everything was regurgitated even water. We are feeling extremely grateful to the doctors who found this after years of illnesses.

Best of luck!

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hi, no children but thought id just comment,

my results came back negative but i know ive got a problem with wheat and dairy. the only thing they found during my tests was reflux. ive been slowly weaning myself off gluten and dairy over the last 2 weeks. didnt get the meds the doc recommended - good job coz i havent had any reflux all week :D

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You can also have non acidic reflux which does not react to medications well.  The only way to really know is to have a 24 hour PH impedence probe.  This is how they differentiate between acid and nonacid and this is fairly new to the medical world.

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    • Weird Reaction
      Hi Richard Glad you are feeling better!   Sorry - DX is an abbreviation for diagnosis.   Thanks so much  for the info about MSG, broccoli and IBS.  Like you say, there is v. little bad press about broccoli. My aunt, who is a farmer's wife, put forward another theory that it might not have been the broccoli itself but rather some insecticide a farmer sprayed on it.   I just can't bring myself to try organic broccoli however...  Thankfully cauliflower is fine.  I just can't figure it out as I thought they were the in the same vegetable family?  So maybe it is MSG. Regarding anemia, there can be a link with iron anemia and anxiety. http://www.livestrong.com/article/471225-iron-anxiety/ And I was definitely breathless before my diagnosis; I remember finding myself  walking up a hill behind a  huge crowd of friends on a church walk, and many of them were at least 20 years older than me, and wondering why I was in last place! My B12 levels were very low at DX and I found B12 supplements helped enormously with anxiety.   I remember drinking Berroca and feeling so much better within hours of drinking it, on more than one occasion, before even understanding the link. I have just been told however that I can't take any more iron because my hemoglobin is on the high side - so it is worth getting your levels monitored if you wish to supplement as one can have too much of a good thing - to much iron is dangerous. I hope you continue to feel well.      
    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
      Okay, I get that you are not going to follow the advice from some stranger on the internet, but please read the links that I gave you.  Your doctor is not following the standard level of care.  I am dead serious.  I have Kaiser.  My own GP doesn't have a clue about celiac disease, but my Kaiser GI does.  Please, I urge you to get properly diagnosed.  All celiac testing requires you to be on a gluten diet.  If you go gluten free even for two weeks (it will take time to get the referral and appointment), it will mess up the tests.  Your GI will put you back on a gluten diet (called a gluten challenge) for 8 to 12 weeks.    Chances are (almost 100%) you will feel more miserable!  That will just delay your diagnosis.   Symptoms not bad you say?  I had pretty severe anemia, but no tummy issues.  Two months after my diagnosis, I fractured my back DOING NOTHING!  Yep, I have osteoporosis from undiagnosed celiac disease and I am an athlete!   Please take this seriously!    
    • Silent Celiac or Non-digestive symptoms
      Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!   Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.   Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  
    • Confused
      Thank you for the information. I've been not sure if I should eat gluten or not right now. Dr. said I should watch what I eat when I emailed him the question. My symptoms aren't very bad (I understand that doesn't matter for celiac disease), so I can definitley tolerate the food. But I have been starving myself the last few days due to not knowing what the heck is going on. Thanks again.
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