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Should I Go To The Doctor To Be Tested (Please Help Me)
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Hi everyone,

I have had problems for almost a year now my most common symptoms are bloating, really bad stomach pains like someone is stabbing me and punching me, headaches and fatigue. For most of this time I just thought I was being silly until I decided to go off wheat to help with my weight loss as it was suggested to me by my aunty because my little cousin has problems with wheat. A few weeks ago I had to visit my grandmother who is not able to eat wheat at all, and that

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Get tested to the best of your ability, and when it is done, try going gluten free anyway to see what happens, it is no use making yourself miserable, when you can feel better. The doctor will need to run a complete celiac blood panel, to start.

Some people test negative no matter what. It happens. But they are healthier off of wheat and gluten anyway.

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Yes it is possible for Celiac disease to be triggered by environmental factors or stressful events.

I think you are dealing with more than gluten intolerance.

I think you should get tested for Celiac.

Tell your Dr. you want a full Celiac Panel done and see what results.

Even if it is negative, you should go gluten free. Your body clearly does not like gluten.

Even the urinary symptoms you are having are consistent with Celiac.

I had the symptoms of bladder infection, painful urination, blood in urine, bladder spasms for most of my life. I was repeatedly tested for bladder infections and it was usually negative but they dosed me with antibiotics anyway. I was even put on a daily antibiotic to prevent the "infections". All the urinary symptoms went away as soon as I went gluten free. No more symptoms at all...ever...unless I get gluten.

It isn't difficult and it doesn't have to be expensive to eat gluten free. You don't have to eat all the gluten free products they make. They are only made to replace the wheaty gluteny products we all grew up on. But you weren't raised on wheat so you just need to go back to eating what you were raised on. What did you eat growing up?

I eat meat, chicken, vegetables, fruits, nuts and good fats...with an occasional dose of chocolate for good measure.

It feels really good not to be sick all the time.

You shouldn't be scared of your Dr. If he doesn't respect you as a partner in your own treatment then you need another Dr. If you can't get one, and you can't get tested, then you should just assume you are Celiac. Your family history screams Celiac and your body is screaming Celiac too. You don't need a Dr. prescription to eat gluten free. It isn't scary or expensive, just a little more time consuming having to do more cooking and being careful of cross contamination which if you are Celiac you will have to learn to pay close attention to.

Sorry you have been feeling so bad. My son is Celiac too. His description of stomach pain from gluten is like having shards of glass in his stomach. Your stomach pain sounds much the same. That, along with all of your other symptoms means that your body really doesn't like gluten at all.

If you don't want to test, you don't have to. You can just go gluten free. The only danger in that is that sometimes when Celiacs heal from going gluten free when they don't know for certain they are Celiac, they can sometimes forget that they thought they were Celiac and they go back to eating gluten because they find it no longer bothers them. This is dangerous for a Celiac. Sometimes the antibodies die down and the body no longer reacts to gluten as quickly as it once did. However, the damage is still being done and you can end up with secondary auto-immune diseases and worse if you truly are Celiac and you don't stay gluten free.

Some people need to know for sure in order to stay gluten free.

I hope your Dr. will listen to you when you ask for the tests, but if not, you know you have the option of finding another Dr. or just going gluten free.

I hope you feel better soon.

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Yes it is possible for Celiac disease to be triggered by environmental factors or stressful events.

I think you are dealing with more than gluten intolerance.

I think you should get tested for Celiac.

Tell your Dr. you want a full Celiac Panel done and see what results.

Even if it is negative, you should go gluten free. Your body clearly does not like gluten.

Even the urinary symptoms you are having are consistent with Celiac.

I had the symptoms of bladder infection, painful urination, blood in urine, bladder spasms for most of my life. I was repeatedly tested for bladder infections and it was usually negative but they dosed me with antibiotics anyway. I was even put on a daily antibiotic to prevent the "infections". All the urinary symptoms went away as soon as I went gluten free. No more symptoms at all...ever...unless I get gluten.

It isn't difficult and it doesn't have to be expensive to eat gluten free. You don't have to eat all the gluten free products they make. They are only made to replace the wheaty gluteny products we all grew up on. But you weren't raised on wheat so you just need to go back to eating what you were raised on. What did you eat growing up?

I eat meat, chicken, vegetables, fruits, nuts and good fats...with an occasional dose of chocolate for good measure.

It feels really good not to be sick all the time.

You shouldn't be scared of your Dr. If he doesn't respect you as a partner in your own treatment then you need another Dr. If you can't get one, and you can't get tested, then you should just assume you are Celiac. Your family history screams Celiac and your body is screaming Celiac too. You don't need a Dr. prescription to eat gluten free. It isn't scary or expensive, just a little more time consuming having to do more cooking and being careful of cross contamination which if you are Celiac you will have to learn to pay close attention to.

Sorry you have been feeling so bad. My son is Celiac too. His description of stomach pain from gluten is like having shards of glass in his stomach. Your stomach pain sounds much the same. That, along with all of your other symptoms means that your body really doesn't like gluten at all.

If you don't want to test, you don't have to. You can just go gluten free. The only danger in that is that sometimes when Celiacs heal from going gluten free when they don't know for certain they are Celiac, they can sometimes forget that they thought they were Celiac and they go back to eating gluten because they find it no longer bothers them. This is dangerous for a Celiac. Sometimes the antibodies die down and the body no longer reacts to gluten as quickly as it once did. However, the damage is still being done and you can end up with secondary auto-immune diseases and worse if you truly are Celiac and you don't stay gluten free.

Some people need to know for sure in order to stay gluten free.

I hope your Dr. will listen to you when you ask for the tests, but if not, you know you have the option of finding another Dr. or just going gluten free.

I hope you feel better soon.

Thank you both so much for your support I will go speak to my doctor soon. When I was younger I wasn't allowed much sugar my diet was pretty much fruit, salads, vegetables, meat of all kinds, mostly school lunches was a sanwhich and when I was able I use to pay for a chocolate brownie. My Nan had me living on natural foods from the health food shops.

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Yes you should be tested but you need to be eating a regular gluten diet. If you are already gluten light or gluten free your tests will be a false negative.

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Yes you should be tested but you need to be eating a regular gluten diet. If you are already gluten light or gluten free your tests will be a false negative.

Well I have not gone completely gluten free as I havn't done the shopping for next week, I will call the doctor tomorrow to get in on monday so I will spend the weekend eating gluten and continue eating it untill I get tested. Not looking forward to it, I look like a pregnant women from the bloating.

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    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
    • Hey guys so question. I still am going through some of the motions to finally be diagnosed. I has a really bad case of acid reflux a few days ago and now i feel soo sick. Im still eating gluten because i got a negative biaopsy test but ive been told thag i more than likely still have it because its really hard to detect. Well i drank beer last night and had a poutine today stupid i know and now i feel soooo sick. And only felt really sick after the poutine. Now my question is can your symptoms get worse all of a sudden??  I have many other symptoms thaat read celiac deisease for most of my life. But since all doctors told me you have anxiety ibs and fibro at 28 years old. I just baiscally gave up and figured this was going to be my life feeling like crap for the rest of my life. Any thoughts??? Thanks guys. Sorry for the novel lol
    • A negative result from a biopsy that is. 
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