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Should I Go To The Doctor To Be Tested (Please Help Me)
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Hi everyone,

I have had problems for almost a year now my most common symptoms are bloating, really bad stomach pains like someone is stabbing me and punching me, headaches and fatigue. For most of this time I just thought I was being silly until I decided to go off wheat to help with my weight loss as it was suggested to me by my aunty because my little cousin has problems with wheat. A few weeks ago I had to visit my grandmother who is not able to eat wheat at all, and that

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Get tested to the best of your ability, and when it is done, try going gluten free anyway to see what happens, it is no use making yourself miserable, when you can feel better. The doctor will need to run a complete celiac blood panel, to start.

Some people test negative no matter what. It happens. But they are healthier off of wheat and gluten anyway.

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Yes it is possible for Celiac disease to be triggered by environmental factors or stressful events.

I think you are dealing with more than gluten intolerance.

I think you should get tested for Celiac.

Tell your Dr. you want a full Celiac Panel done and see what results.

Even if it is negative, you should go gluten free. Your body clearly does not like gluten.

Even the urinary symptoms you are having are consistent with Celiac.

I had the symptoms of bladder infection, painful urination, blood in urine, bladder spasms for most of my life. I was repeatedly tested for bladder infections and it was usually negative but they dosed me with antibiotics anyway. I was even put on a daily antibiotic to prevent the "infections". All the urinary symptoms went away as soon as I went gluten free. No more symptoms at all...ever...unless I get gluten.

It isn't difficult and it doesn't have to be expensive to eat gluten free. You don't have to eat all the gluten free products they make. They are only made to replace the wheaty gluteny products we all grew up on. But you weren't raised on wheat so you just need to go back to eating what you were raised on. What did you eat growing up?

I eat meat, chicken, vegetables, fruits, nuts and good fats...with an occasional dose of chocolate for good measure.

It feels really good not to be sick all the time.

You shouldn't be scared of your Dr. If he doesn't respect you as a partner in your own treatment then you need another Dr. If you can't get one, and you can't get tested, then you should just assume you are Celiac. Your family history screams Celiac and your body is screaming Celiac too. You don't need a Dr. prescription to eat gluten free. It isn't scary or expensive, just a little more time consuming having to do more cooking and being careful of cross contamination which if you are Celiac you will have to learn to pay close attention to.

Sorry you have been feeling so bad. My son is Celiac too. His description of stomach pain from gluten is like having shards of glass in his stomach. Your stomach pain sounds much the same. That, along with all of your other symptoms means that your body really doesn't like gluten at all.

If you don't want to test, you don't have to. You can just go gluten free. The only danger in that is that sometimes when Celiacs heal from going gluten free when they don't know for certain they are Celiac, they can sometimes forget that they thought they were Celiac and they go back to eating gluten because they find it no longer bothers them. This is dangerous for a Celiac. Sometimes the antibodies die down and the body no longer reacts to gluten as quickly as it once did. However, the damage is still being done and you can end up with secondary auto-immune diseases and worse if you truly are Celiac and you don't stay gluten free.

Some people need to know for sure in order to stay gluten free.

I hope your Dr. will listen to you when you ask for the tests, but if not, you know you have the option of finding another Dr. or just going gluten free.

I hope you feel better soon.

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Yes it is possible for Celiac disease to be triggered by environmental factors or stressful events.

I think you are dealing with more than gluten intolerance.

I think you should get tested for Celiac.

Tell your Dr. you want a full Celiac Panel done and see what results.

Even if it is negative, you should go gluten free. Your body clearly does not like gluten.

Even the urinary symptoms you are having are consistent with Celiac.

I had the symptoms of bladder infection, painful urination, blood in urine, bladder spasms for most of my life. I was repeatedly tested for bladder infections and it was usually negative but they dosed me with antibiotics anyway. I was even put on a daily antibiotic to prevent the "infections". All the urinary symptoms went away as soon as I went gluten free. No more symptoms at all...ever...unless I get gluten.

It isn't difficult and it doesn't have to be expensive to eat gluten free. You don't have to eat all the gluten free products they make. They are only made to replace the wheaty gluteny products we all grew up on. But you weren't raised on wheat so you just need to go back to eating what you were raised on. What did you eat growing up?

I eat meat, chicken, vegetables, fruits, nuts and good fats...with an occasional dose of chocolate for good measure.

It feels really good not to be sick all the time.

You shouldn't be scared of your Dr. If he doesn't respect you as a partner in your own treatment then you need another Dr. If you can't get one, and you can't get tested, then you should just assume you are Celiac. Your family history screams Celiac and your body is screaming Celiac too. You don't need a Dr. prescription to eat gluten free. It isn't scary or expensive, just a little more time consuming having to do more cooking and being careful of cross contamination which if you are Celiac you will have to learn to pay close attention to.

Sorry you have been feeling so bad. My son is Celiac too. His description of stomach pain from gluten is like having shards of glass in his stomach. Your stomach pain sounds much the same. That, along with all of your other symptoms means that your body really doesn't like gluten at all.

If you don't want to test, you don't have to. You can just go gluten free. The only danger in that is that sometimes when Celiacs heal from going gluten free when they don't know for certain they are Celiac, they can sometimes forget that they thought they were Celiac and they go back to eating gluten because they find it no longer bothers them. This is dangerous for a Celiac. Sometimes the antibodies die down and the body no longer reacts to gluten as quickly as it once did. However, the damage is still being done and you can end up with secondary auto-immune diseases and worse if you truly are Celiac and you don't stay gluten free.

Some people need to know for sure in order to stay gluten free.

I hope your Dr. will listen to you when you ask for the tests, but if not, you know you have the option of finding another Dr. or just going gluten free.

I hope you feel better soon.

Thank you both so much for your support I will go speak to my doctor soon. When I was younger I wasn't allowed much sugar my diet was pretty much fruit, salads, vegetables, meat of all kinds, mostly school lunches was a sanwhich and when I was able I use to pay for a chocolate brownie. My Nan had me living on natural foods from the health food shops.

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Yes you should be tested but you need to be eating a regular gluten diet. If you are already gluten light or gluten free your tests will be a false negative.

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Yes you should be tested but you need to be eating a regular gluten diet. If you are already gluten light or gluten free your tests will be a false negative.

Well I have not gone completely gluten free as I havn't done the shopping for next week, I will call the doctor tomorrow to get in on monday so I will spend the weekend eating gluten and continue eating it untill I get tested. Not looking forward to it, I look like a pregnant women from the bloating.

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    • HIV doesn't turn off the immune system, it destroys it to the point where most people die from complications that arise from having no immune system.  Some end up with pneumonia or cancer, which takes their life. It is pretty amazing the treatments they have developed for it, to slow it down and give people longer, quality time. I am perfectly content with the gluten free diet as my treatment and honestly, if they developed a pill that they claimed would make it possible for people to eat gluten again, I doubt I would. I could not bring myself to eat a food that I am genetically programmed to not be able to digest and that totally pisses off my immune system.  However, if they succeed with some of the meds they are working on now, one of which I posted about earlier this summer, I would take those.  They are working on things that modulate the immune system down so inflammation can be tamed down further.  Even with a strict gluten-free diet, there will always be more inflammation for us than for those who don't have AI diseases.  I do everything possible to tame it down myself but it isn't in the normal range.....yet. Long term inflammation can kill you so something along those lines would be welcome.  You would still have to eat gluten-free but the disease activity would be calmed down.  This is a drug that targets those with lupus and maybe Sjogren's....which I have.  There are possibilities for other AI diseases from that!
    • Hi Anns and welcome   Do you think that I am on the right course to see if I possibly have Celiac?   Yes, it was smart of you to consider the possibility and its good that you've had the tests. Both the aneamia and bloating are symptoms, although of course they may be unrelated. Best way to find out is to check as you are doing.   Can this develope later in life ( I'm 46)?   Yes, I think its most common discovered later rather than sooner.   I ate a meal last night that was gluten free and did not feel like nearly as bloated after eating, would I notice a change that quickly?  Thanksort for your input.   Yes, I noticed far less of a heavy feeling after eating very soon after diet changes. However you would be better off not trying gluten free just yet. I collected some links and other stuff here, it may be of use: Your best bet is to eat as normal and wait for the test results. If your doctors eliminate celiac there's nothing to stop you excluding gluten at that point to see if it helps. But before then you need to keep eating it to ensure an accurate diagnosis.  All the best  
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