I'm Celiac, Could My Sis Be Gluten Intolerant?
Posted 10 September 2012 - 07:08 PM
Since you are all so incredibly knowledgeable and have helped me out so much thus far, I'd figure I'd throw this one out there...
In May I found out that I was Celiac - I definitely was the atypical kind since I didn't experience GI symptoms before diagnosis. We found out that my mother has the DQ2 gene and my younger sister had the Celiac panel done and tested negative. I started the Primal diet (I posted about it in another section) and after seeing my success with it, my sister decided to go along with me to help her lose weight. She had been on the Primal diet for about two weeks and decided to have a cheat day last Friday and had croutons in her salad. She became sick with abdominal pains and constipation for three days.
Could she have had a masked gluten intolerance that we didn't know about? Just like I never suspected Celiac disease for me? Is it possible for one sibling to be full blown Celiac and the other one gluten intolerant? I figured that with intolerance, it would have popped out and reared its ugly head before now. Clearly her body doesn't "appreciate" gluten now and she should just go gluten-free, but she keeps asking me if her reaction could just be attributed to the fact that her body hasn't had gluten in two weeks. She's willing to go gluten free but just wants some feedback regarding if this could be an actual intolerance or her body just re-adjusting to something just added back into her diet. Any thoughts?
I've also suggested to her to create a profile on here and start asking some questions since you guys are amazing!!!
"Dark and difficult times lie ahead ahead - soon we must all face the choice, to do what is right, or what is easy..." - Albus Dumbledore (Harry Potter)
Diagnosed Celiac in May 2012 by TTG level and endoscopy
Acid reflux/GERD (stopped since eating gluten-free)
Posted 10 September 2012 - 07:49 PM
It is not possible to become intolerant of gluten by removing it from one's diet. I have seen a several references to this over the past year and it is not true. There are MANY foods we don't eat on a regular basis - if we developed an intolerance every time we didn't eat a particular food for some time - EVERYONE would be intolerant of seasonal fruits and vegies - EVERYONE would be intolerant of certain meats and grains that aren't in their diets on a regular basis.
There are a couple possibilities. One she is Non Celiac Gluten Intolerant. Another would be that she had "silent celiac" trigger at some point and perhaps isn't making enough antibodies yet for detection in blood. I could probably think of a few more scenarios if she needs convincing. Make sure she had a Total IgA in her Celiac Panel - if she is low on Total IgA, all other IgA tests are not valid.
I would guess she might have a few other improvements in her health given more time gluten-free &/or will become even more sensitive to gluten exposure.
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
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