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New To Gluten Free


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#1 bjaded

 
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Posted 11 September 2012 - 06:35 AM

Good morning all! I am 22 years old and 99.9% sure I have a gluten intolerance. I was born with a lactose intolerance and quite honestly I've always had tummy problems. (bloating, constipation, gas, diarrhea etc.) For the past year I've wondered if I had gluten problems but everything came to a head this month. I was sick immediately after eating anything with gluten. I developed stabbing pains in my stomach and headaches. There were times I would have to leave my desk at work 4 times or more do to an upset stomach.

I started doing research and kept a food journal and took pictures of my swollen tummy after eating gluten. I noticed with in 30 mins I would have awful symptoms. This week I have been eating gluten free to the best of my ability (only gluten free foods! hopefully I'm not accidentally digesting it.) But this is the best that I have felt in weeks!

My fiance still wants me to get testing because he is concerned but I know they are not all 100% conclusive. I've thought about just a dietitian. Where do I go from here? I'm not crazy am I? ha!

Thank you for your help!!

Jade
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#2 Celiac Mindwarp

 
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Posted 12 September 2012 - 12:02 AM

Not crazy!!

If you can stand it for a bit longer it is worth carrying on with gluten to get blood work and a biopsy done.

I had been off wheat for years when I realized I had stacks of celiac symptoms, so blood work came back negative, and to be honest I expect my biopsy to be negative too.

I did do a gluten challenge, but only lasted 3 weeks, not the 6 weeks needed. The lab lost my results, so I tried again but lasted 5 days - it seems many people react more once they start gluten free, on the journey to sorting things out.

I think it is harder sometimes without a full diagnosis to get other things like annual blood work. I am struggling to get my kids tested, for example.

So - I would say do the tests, on gluten if possible, if you can.

It is also worth seeing a doctor to rule other conditions out.

That said, you wont be alone if you end up self diagnosed.

Hang in there and good luck
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#3 GFinDC

 
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Posted 12 September 2012 - 01:49 PM

Hi Jade,

I don't know if you are crazy or not, but many people do have celiac. :D It is much easier to get the blood antibody test panel done now, before going gluten-free. It is likely you would need to do a gluten challenge fora while if you do it later, and that could be very painful. Reactions to gluten seem to intensify after going gluten-free.

By the way, did you see which way the big white rabbit went? :)

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.


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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul




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