New To Gluten Free
Posted 11 September 2012 - 06:35 AM
I started doing research and kept a food journal and took pictures of my swollen tummy after eating gluten. I noticed with in 30 mins I would have awful symptoms. This week I have been eating gluten free to the best of my ability (only gluten free foods! hopefully I'm not accidentally digesting it.) But this is the best that I have felt in weeks!
My fiance still wants me to get testing because he is concerned but I know they are not all 100% conclusive. I've thought about just a dietitian. Where do I go from here? I'm not crazy am I? ha!
Thank you for your help!!
Posted 12 September 2012 - 12:02 AM
If you can stand it for a bit longer it is worth carrying on with gluten to get blood work and a biopsy done.
I had been off wheat for years when I realized I had stacks of celiac symptoms, so blood work came back negative, and to be honest I expect my biopsy to be negative too.
I did do a gluten challenge, but only lasted 3 weeks, not the 6 weeks needed. The lab lost my results, so I tried again but lasted 5 days - it seems many people react more once they start gluten free, on the journey to sorting things out.
I think it is harder sometimes without a full diagnosis to get other things like annual blood work. I am struggling to get my kids tested, for example.
So - I would say do the tests, on gluten if possible, if you can.
It is also worth seeing a doctor to rule other conditions out.
That said, you wont be alone if you end up self diagnosed.
Hang in there and good luck
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Posted 12 September 2012 - 01:49 PM
I don't know if you are crazy or not, but many people do have celiac. It is much easier to get the blood antibody test panel done now, before going gluten-free. It is likely you would need to do a gluten challenge fora while if you do it later, and that could be very painful. Reactions to gluten seem to intensify after going gluten-free.
By the way, did you see which way the big white rabbit went?
Some starting the gluten-free diet tips for the first 6 months:
Get tested before starting the gluten-free diet.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid sugars and starchy foods.
FAQ Celiac com
Newbie Info 101
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Short temper thread
Non celiac wheat sensitivity article
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
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