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Not Many Symptoms
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Do any of you have celiac without many symptoms? I had positive tgg iga and igg and am awaiting an endoscopy. I have bloating, fatigue, but that's really about it. I'm wondering if my biopsy will even show anything since i don't have many symptoms. Thanks

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You might be lucky and caught it before it flattens you.

Actually the number of symptoms doesn't seem to correlate with positive biopsies. Many people never knew they had Celiac at all due to having no symptoms but their biopsy came up positive. There is something called Silent Celiac where no symptoms are felt subjectively by the person with Celiac, yet they have the damage consistent with Celiac.

Other people have all kinds of symptoms and yet they test negative...go figure.

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Sometimes, after you have been on a gluten free diet for awhile, then accidentally eat the stuff, you have so many symptoms, you wondered how it is that the rest of the world managed to convince you that feeling "this lousy" is "normal."

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Thanks for your input. Maybe i do feel symptoms sometimes and i just don't relate them to gluten. This afternoon i felt like just crap. So tired, headache, foggy. And i did have a bunch of wheat thins with lunch so maybe it was related.

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I never had GI symptoms except for the three days before I went to the doctor. I was waking up in the middle of the night with terrible abdominal pains, but other than that - nothing. Battled with anemia, syncope, and acid reflux for a while, but I never knew it had anything to do with the Celiac until after I was diagnosed. I was able to basically eat anything with no apparent issues and had no idea that my insides were being torn up. HOWEVER, now that I'm gluten free, I've become pretty sensitive to gluten and got terribly sick after eating gluten free gummy bears that were made in a facility that also processed wheat....go figure - NOW I have issues! :)

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Yes, i had "D" and vomitng along with fatige, my GERD, insomnia, and general ickiness.

However, I had no odvious GI damage (outside of a damaged throat due to GERD).

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    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
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    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
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    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
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