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Not Many Symptoms
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Do any of you have celiac without many symptoms? I had positive tgg iga and igg and am awaiting an endoscopy. I have bloating, fatigue, but that's really about it. I'm wondering if my biopsy will even show anything since i don't have many symptoms. Thanks

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You might be lucky and caught it before it flattens you.

Actually the number of symptoms doesn't seem to correlate with positive biopsies. Many people never knew they had Celiac at all due to having no symptoms but their biopsy came up positive. There is something called Silent Celiac where no symptoms are felt subjectively by the person with Celiac, yet they have the damage consistent with Celiac.

Other people have all kinds of symptoms and yet they test negative...go figure.

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Sometimes, after you have been on a gluten free diet for awhile, then accidentally eat the stuff, you have so many symptoms, you wondered how it is that the rest of the world managed to convince you that feeling "this lousy" is "normal."

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Thanks for your input. Maybe i do feel symptoms sometimes and i just don't relate them to gluten. This afternoon i felt like just crap. So tired, headache, foggy. And i did have a bunch of wheat thins with lunch so maybe it was related.

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I never had GI symptoms except for the three days before I went to the doctor. I was waking up in the middle of the night with terrible abdominal pains, but other than that - nothing. Battled with anemia, syncope, and acid reflux for a while, but I never knew it had anything to do with the Celiac until after I was diagnosed. I was able to basically eat anything with no apparent issues and had no idea that my insides were being torn up. HOWEVER, now that I'm gluten free, I've become pretty sensitive to gluten and got terribly sick after eating gluten free gummy bears that were made in a facility that also processed wheat....go figure - NOW I have issues! :)

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Yes, i had "D" and vomitng along with fatige, my GERD, insomnia, and general ickiness.

However, I had no odvious GI damage (outside of a damaged throat due to GERD).

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    • Good luck with all the testing.  You are doing the right thing by telling your son to gluten up!  Buy him one of those gluteny cakes at a bakery...if that doesn't spike his numbers, nothing will. 
    • Thank you for this response! You are right, I'm sure. My sed rate was normal. My c reactive protein was 6, which is high. My platelets were a bit elevated and I was slightly anemic. I am going tomorrow for another endoscopy. I know that these things could be related to other things... but I'm thinking there is a change they are all still related to celiac (I'm hoping). What other autoimmune disease do you have, if you don't mind me asking?
    • HIV doesn't turn off the immune system, it destroys it to the point where most people die from complications that arise from having no immune system.  Some end up with pneumonia or cancer, which takes their life. It is pretty amazing the treatments they have developed for it, to slow it down and give people longer, quality time. I am perfectly content with the gluten free diet as my treatment and honestly, if they developed a pill that they claimed would make it possible for people to eat gluten again, I doubt I would. I could not bring myself to eat a food that I am genetically programmed to not be able to digest and that totally pisses off my immune system.  However, if they succeed with some of the meds they are working on now, one of which I posted about earlier this summer, I would take those.  They are working on things that modulate the immune system down so inflammation can be tamed down further.  Even with a strict gluten-free diet, there will always be more inflammation for us than for those who don't have AI diseases.  I do everything possible to tame it down myself but it isn't in the normal range.....yet. Long term inflammation can kill you so something along those lines would be welcome.  You would still have to eat gluten-free but the disease activity would be calmed down.  This is a drug that targets those with lupus and maybe Sjogren's....which I have.  There are possibilities for other AI diseases from that!
    • Hi Anns and welcome   Do you think that I am on the right course to see if I possibly have Celiac?   Yes, it was smart of you to consider the possibility and its good that you've had the tests. Both the aneamia and bloating are symptoms, although of course they may be unrelated. Best way to find out is to check as you are doing.   Can this develope later in life ( I'm 46)?   Yes, I think its most common discovered later rather than sooner.   I ate a meal last night that was gluten free and did not feel like nearly as bloated after eating, would I notice a change that quickly?  Thanksort for your input.   Yes, I noticed far less of a heavy feeling after eating very soon after diet changes. However you would be better off not trying gluten free just yet. I collected some links and other stuff here, it may be of use: Your best bet is to eat as normal and wait for the test results. If your doctors eliminate celiac there's nothing to stop you excluding gluten at that point to see if it helps. But before then you need to keep eating it to ensure an accurate diagnosis.  All the best  
    • Well HIV undermines the entire immune system as I understand it, so that would be akin to using dynamite to put out a kitchen fire! There is some work going on to try and retrain the immune system to not see gluten as a threat though: http://www.immusant.com/docs/ImmusanT DDW Data Release FINAL 5.24.16.pdf  I'm laughing as I write this imagining the conversations you could have with people as you tell them you'd like to contract HIV so that you can eat a decent sandwich        
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