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Something Is Wrong...


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5 replies to this topic

#1 itsnikki

 
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Posted 11 September 2012 - 04:32 PM

Heh. Well, I have no idea what the heck is wrong with me. For over a month, I have been in pain. My stomach is constantly hurting. I don't know where to start. I can eat a big greasy meal and have to go to the bathroom, almost instantly after eating. It puts me in agony for the rest of the day. I figured quickly not to eat that way. But I still slip up and do it from time to time. I'm a southern gal who likes her fried food I guess.

It's always been that way. I took nothing from it, just figured I shouldn't eat it. I've eliminated dairy for the same reasons. It hurts my stomach, gives me very loose stools.

Well, like I said... I'm constantly hurting now. It does not matter what I eat. If I eat a piece of toast, it happens. If I eat meat, it happens. Veggies, same story.

It was suggested that I go gluten free. That it might not solve my issues right away but it could help.

Does any of this sound like it could be helped by a gluten free diet? Do I need to take any kind of tests or something? I just want to be healthy. I know that if my body is attacking me (loose bowels, back pain, fatigue, obesity) then I'm going at it wrong. KWIM?

Thanks for reading all this. I had less than 4 hours of sleep, went to the dr and she wasn't that helpful... I have a UTI, am in pain, and I just want relief. *sigh* I want to feel GOOD for once.
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#2 nmull #newly diagnosed

 
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Posted 11 September 2012 - 06:48 PM

Hey I am so sorry your feeling this way. I know exactly how you feel. I can tell you that I had/have reoccurring UTI infections. Do you still have your gall bladder? Your symptoms also sound like gall bladder issues as well. I recommend going to a Gastroenterologist before you change anything else. You have to be eating gluten for The test to be accurate or at least thats what I was told for my test. I do think It would benefit you to go gluten free even If your test come back negative. That is My personal opinion based on how Its helped me :)
I hope you figure out something soon. I am still learning myself.
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#3 ravenwoodglass

 
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Posted 12 September 2012 - 02:30 AM

Don't go gluten free or gluten light until after you have had celiac testing done. You can call your GP and ask them to run the complete panel. Most doctors will refer you to a GI for an endo if you are positive on the blood panel but some doctors, if the results are highly positive, will diagnose based on that. There are false negatives though so do give the diet a try after all testing is done no matter what the results.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 itsnikki

 
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Posted 12 September 2012 - 08:03 AM

Thank y'all. :) Well, I'll be eating my bread then! ROFL! And my cereal. ;) But I'm definitely willing to go gluten-free after we figure out what's wrong... I know I need a change in diet anyways. KWIM?
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#5 GFinDC

 
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Posted 12 September 2012 - 01:18 PM

Hi Nikki,

I agree, the testing for celiac should come first. It is much easier to do testing now before you go gluten-free. After going gluten-free it may be too painful to go back on gluten for the testing.

Your symptoms do sound like they could be celiac. A celiac blood antibody test panel is the first thing to get. An endoscopy is sometimes done after that but it is not always nessecary depending on the doctor you see. They may diagnose you after a positive blood antibody tests and a positive response to the gluten-free diet.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.


FAQ Celiac com
http://www.celiac.co...celiac-disease/

Newbie Info 101
http://www.celiac.co...ewbie-info-101/

What's For Breakfast Today?
http://www.celiac.co...reakfast-today/

What Did You Have For Lunch Today?
http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?
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Dessert thread
http://www.celiac.co...399#entry802399

Easy yummy bread in minutes
http://www.celiac.co...ead-in-minutes/

How bad is cheating?
http://www.celiac.co...t-periodically/

Short temper thread
http://www.celiac.co...per-depression/

Non celiac wheat sensitivity article
http://www.nature.co...jg2012236a.html
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#6 shadowicewolf

 
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Posted 12 September 2012 - 08:00 PM

Get your gallbladder checked. After i went gluten free, i still had pain in my side that i had for about 6 or so years before that. They kept saying it wasn't it, then i had the HIDA scan done and lo and behold it was working at 5%. By the time i got it out, the assistant surgeon said it looked dead.

I still can't eat greasy foods, however that is due to my GERD.
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