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Allergic Reaction To Gluten After Going Gluten Free
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Hello

I was diagnosed Celiac about five months ago and have been Gluten Free since. I had a full on allergic reaction the other day. I need emergency treatment as my throat closed. I traced back everything I ate, drank and did for the last few days. Only one thing was different.

I was jonesing for Hint Of Lime CHips from Tostitos. So, I read the label and looked at thier online. It said the product didn't contain wheat. I assumed it was Gluten Free. I ate them three days in a row. The first two days I noticed mild gastro problems. The third days was the full on reaction: throat closed, bp and heart rate sky rocketed, face turned red and I started vomiting. I went back and check the Hint Of Lime chips as they were the only thing out of the ordinary. I realized they are recognized as Gluten free by the company because they are produced on the same line as wheat products(they wash the line between runs) but even the company can't say for sure they are not cross contaminated.

My question is has anyone experienced a full on allergic reaction when exposed to gluten after being gluten and wheat free for an extended period of time.

Linda

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I'll start by explaining the Lay's thing because I've contacted the company. If you view their website they'll have two types of "gluten free" products. Those they list as having no gluten containing ingredients and those that are gluten free. The ones you ate simply have no gluten containing ingredients. The ones they offer that are gluten free are run on the same lines as everything else, but the difference is that every patch is tested to ensure that they are in fact gluten free. The lines are cleaned between every run, for every product but only the ones listed as gluten free are tested, every batch, every time. Here is a link to a page listing both gluten free and no gluten ingredients foods and it also explains at the beginning of each list on the page very briefly the difference.

So, anyway... on to your issue specifically. The chips you ate don't contain gluten but because they specifically aren't batch tested could have contained some. But, do you know what you had an allergic reaction to? Having celiac and spending any significant amount of time not consuming any food (not just gluten) will not cause you to develop an allergic reaction to it. Is it possible you have developed an actual wheat allergy and that that batch of chips was CC'd? Sure. It's also possible that something else entirely caused your problem. Because you had a life threatening reaction you should consider talking to your doctor about allergy testing.

For many of us, me included, we've been sick a long time. We finally get a celiac diagnosis and see a light at the end of the tunnel. But we need to remember that gluten is not the only evil in the world. We need to not blame every single thing wrong with us on it. It can't and shouldn't be the first and/or only thing we look at to blame. You should examine your entire meal before your reaction, anything you ate could be the culprit. I know you say only one thing was different but even on the ingredient list of that it could be something other than the possible CC. It is also possible, must like developing a new allergy to wheat that this is a new allergy to something you could safely eat 2 weeks ago. The only way to be sure, really is probably allergy testing. It sure beats risking another life threatening reaction to who knows what.

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i don't think it was the gluten dear, it was probably something else.

Before i went gluten free, tomatos would cause me to have stomach problems. Afterwards, it moved into more of an allergic reaction type thing. Now i'm allergic to them.

Removing something major from your diet will cause other things to come out of the woodwork.

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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