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Hello everyone!

I am 32 years old, and just recently discovered I likely am gluten sensitive. Luckily, my doctor suggested that I might be and to try a gluten free diet. So, at least she should be on board when I tell her what I found out about my reaction.

Some background on myself: I've had migraines for years. I am very easily startled. When I was a child I was in the hospital for respiratory infections. I have anxiety and am easily depressed. My Father has had polyps and his mother died of colon cancer. I swear my Mom has some sort of mental issue, she can get *very* angry in a second. She also has the early signs of arthritis.

A recent stressful situation at my job triggered "the big D". I had it nearly every day. Even after the stress was gone I was having cramps and D and gas after eating. I go scared since it wouldn't go away, so I went to the doctor, thinking I might have IBS. > She told me to try going gluten free. She didn't think I had Celiac (and I don't either) but did recommend me to try gluten free. She also gave me some anti-diarrhea medication.

Well, I was reluctant to try this out to be honest. And at first I didn't think I needed to, as I was OK after just one dose of the medication she gave me. I was OK for maybe 2 weeks, but then got sick again... Then my boyfriend mentioned low carb lifestyle, and I just decided to go ahead and do them both. Lower carbs and no gluten.

It is amazing how fast the "big D" went away! I also was no longer waking up anxious. About 2 weeks in, my Mom made some spaghetti, my favorite! I thought, well I can eat a little and be fine!... Yeah right! I was ill again the next morning, and the morning after woke up anxious again. >> This was my wake-up point. I am 99% sure this is what is wrong with me! I actually was happy to know it. Happy to find all the information and know that maybe this will help me more than with just digestion. It would be wonderful to be rid of at least some of my anxieties!

So, I have a follow-up appointment with my doctor on the 24th. I'm hoping I can talk her into getting me the genetic test. I also want my parents to get tested. I really think they could have it to.

I hope I didn't write too much. I just wanted to share what I have discovered so far!

I'll be here a lot I am sure!

~Christina

PS - I told my Mom I can't have regular pasta anymore, but she is willing to try the rice pasta and keep it just for me. <3

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Without testing, there is no way your doctor could determine whether you are celiac or gluten intolerant. It is a pity she didn't test you for celiac before suggesting you try the gluten free diet. Depending on how long you have not been eating gluten, it is probably too late to get a definitive answer.

I am certainly glad that eating gluten free has had such a dramatic effect on your symptoms. Yes, anxiety is a symptom that many celiacs suffer from and it does generally resolve when they go gluten free, although not necessarily immediately. One of the interesting aspects of eating gluten free for those who are gluten sensitive is that many symptoms that have been accepted as "normal" suddenly resolve, as if by magic. So that those who didn't think they had symptoms find out that, in fact, that did - they just did not recognize them :rolleyes:

The genetic test, as you may know, does not tell you if you have celiac; it can only tell you whether or not you are predisposed to develop it. If your parents have the same predisposing genes as you, it could point to celiac. The better test for your parents would be to have the celiac testing done since you inherited the gene(s) from one or the other (or both).

Stay gluten free and stay well, and post as long and often as you like - there is always someone here who will read and try to help with any questions. Also, read as much as you can about how to keep gluten out of your life. :)

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Without testing, there is no way your doctor could determine whether you are celiac or gluten intolerant. It is a pity she didn't test you for celiac before suggesting you try the gluten free diet. Depending on how long you have not been eating gluten, it is probably too late to get a definitive answer.

...

The genetic test, as you may know, does not tell you if you have celiac; it can only tell you whether or not you are predisposed to develop it. If your parents have the same predisposing genes as you, it could point to celiac. The better test for your parents would be to have the celiac testing done since you inherited the gene(s) from one or the other (or both).

Stay gluten free and stay well, and post as long and often as you like - there is always someone here who will read and try to help with any questions. Also, read as much as you can about how to keep gluten out of your life. :)

Oh, it is a shame about the testing. As I will not be willing to eat gluten again willingly and make myself sick just for a test.

But maybe I can suggest my parents get tested since they are still eating 'normally'.

Thank you so much for the kind reply! I know that this isn't going to be easy and I know it will take time for my body to heal. I just have high hopes, since so much of what I read relates to me perfectly!

Today I am lethargic, but still feeling better on the inside. I'm trying to stay positive. ;)

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Hello.

I am new here as well.

I have had GI symptoms that come and go, and various doctors through the years have suggested food preservative allergies, lactose intolerance, and stress reaction. When I am fine...I am fine. But when my GI symptoms (diarrhea, gas, bloating, cramping, pain under the ribs, nausea) my life is a living hell.

However, as many of you may well know, there is an attitude with doctors that unless they can diagnosis "it", "it" does not exist.

Since doctors have not been able to help me, I have done my own research and I suspect a malabsorption problem, and I wonder if Celiac Disease is the ultimate cause.

I am going to a naturopathic doctor in a couple of weeks (at this point I have nothing left to loose going to alternative medicine). My question is this: have any of you had moments of a few months of feeling well, then, BOOM, 2 -4 weeks of GI distress that makes you just want to stay home near your bathroom?

Thank you.

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Welcome to the site Wysterya and LMB,

@LMB, yes that is something happened to me at time, being better and then worse.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

Easy yummy bread in minutes

How bad is cheating?

Short temper thread

Non celiac wheat sensitivity article

http://www.nature.com/ajg/journal/vaop/ncurrent/full/ajg2012236a.html

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Thank you for the tips and all the links!

Unfortunately it is too late for me to get the test. I am going gluten-free already. The Doctor just suggested it and didn't mention a test. :/ But, I will be seeing her again on the 24th and I will see what she says. Though, I am not willing to become ill again just for a test. :P

I'm definitely cooking more! Plan to dig out the old crock pot and use it! If I can make enough for leftovers it will help. I got used to just cooking for myself, so leftovers were not common here. I'll get there though. I am just thankful it doesn't seem to be anything I can't handle. Not easy, no. But I am trying to not allow it to get me down and just focus on healing and feeling better!

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That's fine to not get tested. If you can stick to the diet without a formal diagnosis there is no need for the test. It's not like the tests get us any better treatment. I hope you feel better soon. :)

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    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
    • Hey guys so question. I still am going through some of the motions to finally be diagnosed. I has a really bad case of acid reflux a few days ago and now i feel soo sick. Im still eating gluten because i got a negative biaopsy test but ive been told thag i more than likely still have it because its really hard to detect. Well i drank beer last night and had a poutine today stupid i know and now i feel soooo sick. And only felt really sick after the poutine. Now my question is can your symptoms get worse all of a sudden??  I have many other symptoms thaat read celiac deisease for most of my life. But since all doctors told me you have anxiety ibs and fibro at 28 years old. I just baiscally gave up and figured this was going to be my life feeling like crap for the rest of my life. Any thoughts??? Thanks guys. Sorry for the novel lol
    • A negative result from a biopsy that is. 
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