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I"ve About Had Enough Of This !


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39 replies to this topic

#1 ncdave

 
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Posted 17 September 2012 - 04:37 PM

Why can"t i eat anything but these foods?

baked chicken wings
baked potatoes, white an sweet
delmonte garden peas
baked fish
country crock original butter
enjoy life chocklate chips
bananas
cooked apples
creamed coconut
honey

anything else makes me just as sick as bread, today i tried hunts ketchup. 1 teaspoon with a plate of hashbrowns. 10 hours later i"m so sick again. I have stuck with my diet above an been doing good for the last couple weeks. I"ve been trying my best to be gluten free for the last 9 months, why do i get so sick from things that do not contain gluten? Is it leaky gut? Will it ever be over? I know i was in very bad shape, but its been 9 months. I"m so tired of this, sorry for the rant. I"LL keep my head up at least it will be over again in 4-6 days. Or at least most of it will.
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gluten free 12/11
dairy free 2/12
soy free 10/12
corn free 10/12
nightshade free 10/12

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#2 mamaw

 
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Posted 17 September 2012 - 06:03 PM

Take another look at everything for CC issues. Plus nine moonths even tho it seems long is not for healing the intestinal tract..Yes, some heal faster than others.And, you may be having issues with other foods that don't contain gluten ie: nightshades, soy, dairy,corn & ect. As we heal I think many for the first time may become more aware of their own body & with this process find out other items also have caused problems but they just never paid alot of attention before the celiac dx's...

Your list of foods you can have would seem like heaven for some who can only eat three things...A suggestion would be go as plain & simple as you can ...

Also do you have pets? Feed them gluten feed?.. Lots of places to find gluten in the home...
Gluten can be hidden in many things....

Don't give up , remember celiac didn't happen overnight & healing will not either....



feel better soon..
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#3 rosetapper23

 
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Posted 17 September 2012 - 10:05 PM

I would suggest taking L-Glutamine--it helps heal the gut...and you may begin to feel better sooner.
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#4 ncdave

 
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Posted 18 September 2012 - 07:19 AM

I am very fortuite to have a list like i do, i"ve been sick many, many times in the last 9 months to build that list. I rembember when my 3 items were baked potatoes, garden peas and water. Fun times those were!!! I"m pretty good with the cc, food wise the home is gluten-free. My latest findings were wild bird seed and hair spray both of which contain wheat!
I posted right before going to bed, i should have just gone to bed. I was frustrated, was hoping to use a tomato product for C an get off miralax.
Today i will try an research L-glutamine, and N-acetyl glucosamine to see which i need to start taking, they may be the same thing i"ll have to check them out. I"ll get one or the other sounds like they may help an i need all the help i can get!
The support this forum offers helps me more than anything, thanks

If anyone needs a migrain, i have one i"m trying to get rid of this morning!!
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gluten free 12/11
dairy free 2/12
soy free 10/12
corn free 10/12
nightshade free 10/12

#5 cap6

 
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Posted 18 September 2012 - 08:43 AM

Think of your gut as still raw and healing. It can take a long time to heal. Try to stick with very basic foods. When eating a processed food (canned item, snack food etc) the more ingredients listed on the package the more trouble for your still sick gut.

A good probiotic, pure aloe (liquid not gel), L-glutamine as suggested as some good things to help heal.

As mamaw mentioned, as we heal we become aware of other food items that bother us that we weren't previously aware of. Soy became a big issue for me. Now at 2+ years i can eat it again in small amounts. Your limited diet is not forever, it just seems like it. As you heal you may be able to add items (not gluen!) back in like the soy, corn etc.
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#6 ncdave

 
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Posted 18 September 2012 - 10:08 AM

I know i can"t have dairy, so lets look at my list cause thats all i eat.

baked chicken wings all i add is a little salt,
baked potatoes, white an sweet remove the white potatoes(nightshades)sweet potatoes only
del monte garden peas peas,water,sugar,salt. that should be ok
baked fish cooked on a grill with olive oil an salt
country crock original butter this may be the problem, soy, whey, i need a
replacement for the butter,
I"LL check into the smart squeez butter
enjoy life chocklate chips there dairy,soy,nut,and gluten free.
bananas it"s a banana what could be wrong with a banana
cooked apples i add butter, cinnamon, a touch of sugar
creamed coconut organic, nothing but coconut
honey pure honey

By removing white potatoes an changing butter i would be, gluten,dairy,soy,and nightshade free. Maby soy or nightshades are causing problems, i"ll get rid of both of them an see what happens.
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gluten free 12/11
dairy free 2/12
soy free 10/12
corn free 10/12
nightshade free 10/12

#7 rosetapper23

 
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Posted 18 September 2012 - 11:04 AM

No, the two products are quite different--it's L-Glutamine that you need, not the other.

Regarding the diet, only a couple of things came to mind: Has the grill been completely cleaned of all past gluten? Some marinades include soy sauce and other sources of gluten and can remain on the grill. Also, with regard to the salt, you may be sensitive to iodine as a number of us are. Just check to see if you're using non-iodized or iodized salt.
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#8 ncdave

 
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Posted 18 September 2012 - 11:44 AM

rose,
My grill has never had gluten or any maranade on it, it was purchesed just for gluten free cooking. The salt is morton no iodide. I got lucky on the salt i never knew. mushroom recommended the N-acetyl glusamine in another thread. I found this artical about both. Please have a look, i will pm mushroom an maby they can take a look also.

http://www.woats.co....olutions_07.htm
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gluten free 12/11
dairy free 2/12
soy free 10/12
corn free 10/12
nightshade free 10/12

#9 Takala

 
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Posted 18 September 2012 - 02:39 PM

Using logic, if you introduce a food into your "safe" list and then get sick, it is that food which you should be avoiding.

I've looked online for what the ingredients list is for Hunt's ketchup, and they've been tinkering with their formula a lot, switching from High Fructose Corn Syrup to sugar, back to High Fructose Corn Syrup again. http://www.foodnavig...ckluster-demand As far as I can tell, Hunt's ketchup contains the ambiguous "natural flavors" which can be anything, plus they make no claim to be gluten free, other than they are claiming the distillation process takes the gluten out of any vinegar they would use. I would prefer that the companies claiming their distilled vinegars are gluten free, start with a gluten free item to be making the vinegar out of, such as grapes, apples, or corn. But I'm more suspicious of the "natural flavorings" loophole.

Regular Heinz ketchup does have a gluten free label, and Kraft is better at disclosing ingredients. I've gotten mild reactions from other supposedly "all natural" condiments with a more prominent gluten free label. I don't know, short of actually testing a new bottle or jar of ketchup or mustard, how bad the contamination is, but I can tell that any company that keeps switching ingredients back and forth does not have the gluten free status high on their list of priorities for a sensitive person. I've been disappointed in the past 2 years seeing several condiments prominently labeled gluten free switch from apple vinegar to anonymous "distilled vinegar."

If you want a sort of piquant sour taste on your hash browns, try plain pure apple cider vinegar sprinkled on them. Or slice up a tomato and see if you can eat that, to test for nightshades. But it's no use blaming what was a safe food, like a potato, when it could have been the wrong brand of ketchup.

Can you eat olive oil ? That is a good butter substitute. You can also mix it half and half with coconut oil, and keep it in the refrigerator as a sort of spread.

That Country Crock margarine might taste good ( I used to love the stuff, having been raised on margarine) but in terms of nutrition, it is horrible. Besides the soybean oil, it has cottonseed oil in it, and cotton seed is not grown as to having the care that regular vegetables do in terms of pesticide application, because it is not classed as a human foodstuff. It is also not dairy free. If you have a problem with all dairy, it might be better to try to avoid it for a while, then, if you feel better, you can try a different type of dairy free margarine, such as the Earth Balance. If you can tolerate small amounts of dairy fat, you might be better off with real butter, which is mostly fat and non lactose.
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#10 ncdave

 
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Posted 19 September 2012 - 04:05 AM

When i"m not sick i really still don"t feel well, if you know what i mean. I allways have heart pounding, dizzyness vertigo, weak musles, joint pain (shoulders,elbows,knees) migrain headaches, toes feel numb an swolen but there not really they just feel like that, i suspect nerve damage. These symptoms get a lot worse after gluten an i get a few other symptoms to go along with those!
I"m not blaming the potato at all, i eat about 10 lbs of them a week !! But why not give the nightshade a break for a month an see if it helps? I don"t have to have ketchup, i haven"t had it in a couple years anyway an it really didn"t taste like it used to.
I just had a sweet potato for breakfast, the olive oil (which i have no problem with) didn"t really do anything for it. I just added a little cinimon an sugar, no butter. speaking of butter i will probally miss that, i eat a lot of butter on my potatoes. I looked for dairy,soy,corn free butter, no luck yet. I got very sick nov of 2010 from hushpuppies so i"m scared of corn.
My number one concern right now is getting well, so i"ll give the butter an nightshade a break for a month an see if it helps.
The way i look at it is, if i can get well, it sure would be a lot more simple to figure out what makes me sick.
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gluten free 12/11
dairy free 2/12
soy free 10/12
corn free 10/12
nightshade free 10/12

#11 1desperateladysaved

 
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Posted 19 September 2012 - 04:17 AM

I think that coconut oil is great with sweet potato.
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#12 GFinDC

 
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Posted 19 September 2012 - 04:42 AM

Hi Dave,

If you can find Hain brand Safflower oil mayo that might be good for your meals. It's the only mayo I know that doesn't have either soy or potato in it. Hellman makes a canola oil mayo but it has potato last I checked.

I like to make soup with sweet potatoes. They get soft and you can stir them up to make a thick soup. Makes for a rich, creamy soup base. An hour in a pressure cooker with some meat and other veggies and stir to make soup. Good stuff!
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#13 pricklypear1971

 
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Posted 19 September 2012 - 05:35 AM

Ghee is casein and lactose free. And since it's butter (without the casein and lactose).it tastes like butter.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
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Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#14 mushroom

 
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Posted 19 September 2012 - 08:30 AM

Also Earth Balance makes a soy-free spread - you have to look for the tub with the red writing on it. :)
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#15 rosetapper23

 
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Posted 19 September 2012 - 10:37 AM

OMG! You're experiencing very obvious nutritional deficiencies! It sounds as though you're low in B vitamins and perhaps iron. Is it possible to have your vitamin and mineral levels tested right away? If not, I would recommend Coenzyme Vitamin B Complex by Country Life as well as a sublingual Vitamin B12 (1,000-3,000 mcg daily). Your doctor should definitely check levels for all the B vitamins, Vitamin D, iron, magnesium, zinc and manganese--at the very least. It sounds as though you may be low in manganese and magnesium, too.

If you have a doctor and insurance, please don't delay in being tested. If you don't have insurance and can't afford to have the testing done, I would suggest the above B Vitamin complex, sublingual Vitamin B, and low doses of the other vitamins and minerals I mentioned. Believe me--you'll start feeling like a new person--no joint or muscle pain, no headaches, etc. As for the zinc and manganese, purchase the chelated forms (important!), and the magnesium brands that are easiest on our digestive systems include Bluebonnet and Nature's Way. Once you start feeling better, you can cut back on the zinc, but if you prefer to continue taking it, add copper to the mix.

I should have mentioned nutritional deficiencies to you in my first reply, since it's obvious from your diet that you are NOT getting the vitamins and minerals you need. This isn't your fault--the diet is a necessity. However, please supplement your diet with the above nutrients (if you can't get tested right away). Your body is screaming for nutrition.
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