Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What Thyroid Tests Should I Ask For?
0

3 posts in this topic

My gastro doc was unwilling to diagnose me as Celiac. My blood work was negative (he only did the transglutamnase IgA AB) and my biopsy was "indeterminate." He said the villi was only slightly blunted. I've since found out he only did a couple of biopsies. He told me to go gluten free for 4 months, come back to see him, and if I felt better he'd say I have Celiac.

I've been gluten free for about 3.5 months. I really can't say I feel better. The first couple of weeks I felt better and then it went down hill from there. I've given up dairy. I'm avoiding soy, but it seems to creep in. I'm afraid to have to give up corn, just because of how much stuff it's in. I'm still on PPI's which probably aren't helping anything either. I've started to slowly taper them to avoid the acid rebound problems.

Anyway, I'm not complaining about my digestive issues. I actually want to know what thyroid tests I should ask for. I'm seeing my family doctor for my yearly physical on Wed. I'm thinking I should get my thyroid checked. Gastro doc did a TSH test, which was in range. So if someone could let me know which tests to ask for that would be great. Thanks.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I would try to get an EMA test out of him (or someone else) since that one is pretty definitive. And if your intestines are "only slightly blunted", what does he think caused that? The evil intestine fairy?? Sheesh! I hate it when doctors dismiss a diagnosis but don't look into other causes. That tells me they are either lazy, or pretty sure it's celiac but think a gluten-free diet is "too hard" to follow.

Anyway, I found out I had Hashimoto's just over a month after my celiac diagnosis. I found celiac helped with my GI issues in terms of the pain after eating and bloating. It also helped reduce the frequency of my migraines and I had a bit of new hair growth. On the other hand, it has done nothing to help my fatigue, skin, or aches and pains which I attribute to Hashi's or something else (I'm being checked for Lupus). My C only changed when I started synthroid; much better now.

So, you're right. Hashi's and celiac have quite similar symptoms, and hypothyroidism could definitely be the cause.

Thyroid tests:



  • TSH (thyroid stimulating hormone) - if it's high, or even high normal, it means your pituitary gland has to send out extra stimulants to get an underactive Thyroid working
  • T4 - main thyroid hormone, if it's low or normal (with a high TSH) you could be hypo
  • TPOAb (Thyroid Peroxidase Antibody) - If it's high, your body is attcking the thyroid and indicates Hashi's
  • T3 - active thyroid hormone, if low, could indicate a problem converting T4 to usable T3

Good luck. I hope you feel well soon.

0

Share this post


Link to post
Share on other sites

I would try to get an EMA test out of him (or someone else) since that one is pretty definitive. And if your intestines are "only slightly blunted", what does he think caused that? The evil intestine fairy?? Sheesh! I hate it when doctors dismiss a diagnosis but don't look into other causes. That tells me they are either lazy, or pretty sure it's celiac but think a gluten-free diet is "too hard" to follow.

Anyway, I found out I had Hashimoto's just over a month after my celiac diagnosis. I found celiac helped with my GI issues in terms of the pain after eating and bloating. It also helped reduce the frequency of my migraines and I had a bit of new hair growth. On the other hand, it has done nothing to help my fatigue, skin, or aches and pains which I attribute to Hashi's or something else (I'm being checked for Lupus). My C only changed when I started synthroid; much better now.

So, you're right. Hashi's and celiac have quite similar symptoms, and hypothyroidism could definitely be the cause.

Thyroid tests:



  • TSH (thyroid stimulating hormone) - if it's high, or even high normal, it means your pituitary gland has to send out extra stimulants to get an underactive Thyroid working
  • T4 - main thyroid hormone, if it's low or normal (with a high TSH) you could be hypo
  • TPOAb (Thyroid Peroxidase Antibody) - If it's high, your body is attcking the thyroid and indicates Hashi's
  • T3 - active thyroid hormone, if low, could indicate a problem converting T4 to usable T3

Good luck. I hope you feel well soon.

Hi nvsmom,

Thanks for getting back to me.

My gastro doc seems only interested in doing a colonoscopy. I had one done 8 years ago and nothing was found, but he keeps insisting. It's frustrating. Given my family history you'd think he'd be a little more receptive to the idea of Celiac. In his defense he's the one who ordered the antibody test and biopsy in the first place. I went to him because I was having really bad heart burn and trouble swallowing. As for the family history, my grandmother had a section of her digestive tract removed (can't remember where exactly) in her seventies. My mother had a terrible time with D and also had her gallbladder out. My aunt once told me she had to sit on the toilet to eat ice cream. Gross I know, but relevant. In fact, my daughter is the first female in my family to not issues with dairy. Then, of course, there was my ITP.

I've been wondering lately if my issues are with a casein intolerance. That will blunt the villi too. I did tell the gastro doc that when I was young I had issues with dairy (couldn't have a milk based formula) but in my teens I started drinking milk and eating cheese and was fine. Now dairy seems to be a real problem again.

I've been thinking I need to purposely gluten myself to make sure it's Celiac and not a casein intolerance. Except that I'm a little afraid to do that. I have to see the grastro doc on the 27th and I'm not sure what to tell him. I'm not feeling better yet, so I just don't know. I might just let him do his stupid colonoscopy.

I will ask the family doc for the T3, T4, and TPOAb. I think she'd be willing to do that.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,115
    • Total Posts
      919,447
  • Topics

  • Posts

    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
    • Hi Michael, That's quite a spike in blood pressure!  I haven't tested that myself and don't want to if it means I have to eat gluten.  Blood pressure testing to identify food reactions is something that has come up before.  It sounds like it might be possible but I don't know how much study has been done on it.  Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
    • Finally, proof that non-celiac gluten sensitivity is real. ... for the 30 percent of consumers who choose to buy gluten-free products and the 41 percent of ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,154
    • Most Online
      1,763

    Newest Member
    calla84
    Joined