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What Thyroid Tests Should I Ask For?
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My gastro doc was unwilling to diagnose me as Celiac. My blood work was negative (he only did the transglutamnase IgA AB) and my biopsy was "indeterminate." He said the villi was only slightly blunted. I've since found out he only did a couple of biopsies. He told me to go gluten free for 4 months, come back to see him, and if I felt better he'd say I have Celiac.

I've been gluten free for about 3.5 months. I really can't say I feel better. The first couple of weeks I felt better and then it went down hill from there. I've given up dairy. I'm avoiding soy, but it seems to creep in. I'm afraid to have to give up corn, just because of how much stuff it's in. I'm still on PPI's which probably aren't helping anything either. I've started to slowly taper them to avoid the acid rebound problems.

Anyway, I'm not complaining about my digestive issues. I actually want to know what thyroid tests I should ask for. I'm seeing my family doctor for my yearly physical on Wed. I'm thinking I should get my thyroid checked. Gastro doc did a TSH test, which was in range. So if someone could let me know which tests to ask for that would be great. Thanks.

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I would try to get an EMA test out of him (or someone else) since that one is pretty definitive. And if your intestines are "only slightly blunted", what does he think caused that? The evil intestine fairy?? Sheesh! I hate it when doctors dismiss a diagnosis but don't look into other causes. That tells me they are either lazy, or pretty sure it's celiac but think a gluten-free diet is "too hard" to follow.

Anyway, I found out I had Hashimoto's just over a month after my celiac diagnosis. I found celiac helped with my GI issues in terms of the pain after eating and bloating. It also helped reduce the frequency of my migraines and I had a bit of new hair growth. On the other hand, it has done nothing to help my fatigue, skin, or aches and pains which I attribute to Hashi's or something else (I'm being checked for Lupus). My C only changed when I started synthroid; much better now.

So, you're right. Hashi's and celiac have quite similar symptoms, and hypothyroidism could definitely be the cause.

Thyroid tests:



  • TSH (thyroid stimulating hormone) - if it's high, or even high normal, it means your pituitary gland has to send out extra stimulants to get an underactive Thyroid working
  • T4 - main thyroid hormone, if it's low or normal (with a high TSH) you could be hypo
  • TPOAb (Thyroid Peroxidase Antibody) - If it's high, your body is attcking the thyroid and indicates Hashi's
  • T3 - active thyroid hormone, if low, could indicate a problem converting T4 to usable T3

Good luck. I hope you feel well soon.

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I would try to get an EMA test out of him (or someone else) since that one is pretty definitive. And if your intestines are "only slightly blunted", what does he think caused that? The evil intestine fairy?? Sheesh! I hate it when doctors dismiss a diagnosis but don't look into other causes. That tells me they are either lazy, or pretty sure it's celiac but think a gluten-free diet is "too hard" to follow.

Anyway, I found out I had Hashimoto's just over a month after my celiac diagnosis. I found celiac helped with my GI issues in terms of the pain after eating and bloating. It also helped reduce the frequency of my migraines and I had a bit of new hair growth. On the other hand, it has done nothing to help my fatigue, skin, or aches and pains which I attribute to Hashi's or something else (I'm being checked for Lupus). My C only changed when I started synthroid; much better now.

So, you're right. Hashi's and celiac have quite similar symptoms, and hypothyroidism could definitely be the cause.

Thyroid tests:



  • TSH (thyroid stimulating hormone) - if it's high, or even high normal, it means your pituitary gland has to send out extra stimulants to get an underactive Thyroid working
  • T4 - main thyroid hormone, if it's low or normal (with a high TSH) you could be hypo
  • TPOAb (Thyroid Peroxidase Antibody) - If it's high, your body is attcking the thyroid and indicates Hashi's
  • T3 - active thyroid hormone, if low, could indicate a problem converting T4 to usable T3

Good luck. I hope you feel well soon.

Hi nvsmom,

Thanks for getting back to me.

My gastro doc seems only interested in doing a colonoscopy. I had one done 8 years ago and nothing was found, but he keeps insisting. It's frustrating. Given my family history you'd think he'd be a little more receptive to the idea of Celiac. In his defense he's the one who ordered the antibody test and biopsy in the first place. I went to him because I was having really bad heart burn and trouble swallowing. As for the family history, my grandmother had a section of her digestive tract removed (can't remember where exactly) in her seventies. My mother had a terrible time with D and also had her gallbladder out. My aunt once told me she had to sit on the toilet to eat ice cream. Gross I know, but relevant. In fact, my daughter is the first female in my family to not issues with dairy. Then, of course, there was my ITP.

I've been wondering lately if my issues are with a casein intolerance. That will blunt the villi too. I did tell the gastro doc that when I was young I had issues with dairy (couldn't have a milk based formula) but in my teens I started drinking milk and eating cheese and was fine. Now dairy seems to be a real problem again.

I've been thinking I need to purposely gluten myself to make sure it's Celiac and not a casein intolerance. Except that I'm a little afraid to do that. I have to see the grastro doc on the 27th and I'm not sure what to tell him. I'm not feeling better yet, so I just don't know. I might just let him do his stupid colonoscopy.

I will ask the family doc for the T3, T4, and TPOAb. I think she'd be willing to do that.

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    • You're welcome! Yes, I too, hate waiting for lab results. Ugh!
    • I understand this is not a doctor's office and that I need proper testing done to rule out Celiac disease, however, I am stuck waiting until November to even see a GI doctor. So I need some suggestions soon on which test to go for first and what to do as I wait. Also do note, I am 28 years old.

      Right now, the most suspecting culprits to my symptoms have been Gallbadder, Celiac disease, and IBS. I have also been recently diagnosed with pre-diabetes and I am obese.  My Ultrasound and CT scan have all come up as normal and no signs of gallstones. However, I was in extreme pain as my upper abdomen was examined during the ultra sound. My white blood cell count also seems to be high at 12,000 but all blood work came back normal for liver and everything else.

      Symptoms included are: diarrhea
      yellow-stools (Sometimes foul smelling but always sink)
      light gnawing pain in area a few inches above belly button
      burning in chest
      sometimes pain below upper right rib cage.
      Tenderness all around the upper abdomen, but more so on the right and center.
      burping frequently after meals
      Gassy
      bloating in abdomen The pains used to come and go for the past few years as something very mild, but then the yellow stools happen at least four months ago and at a constant rate. Everyday it is either yellow or orange.  Sometimes the stools are lose and other times they are not. Two months in, I was finally diagnosed with pre-diabetes and have been having a strict low calorie and non fatty diet.

      So far the upper right pain has subsided but the pain above my belly button would continue. The gassy and bloated feeling would come and go as well. I get severe heart burn after almost every meal. But I felt it especially after eating whole wheat sandwiches or whole wheat pasta. I however don't feel it when I eat a Nature Valley granola bar, or pack of peanut butter crackers. I also had a chicken and vegetable stir fry with soy sauce cooked in that also had little effect on me. A bowl of cereal also made the heart burn act up pretty bad. I sometimes feel numb or light headed after various meals. Especially larger ones. In fact, it seems the more I eat, the worse I feel. But the less in the stomach, the more the pain above my belly button starts to act up.

      It is usually in the morning and afternoon I feel the most with gas and bloating. Especially after any large meals from the previous day. Despite the diet and work outs I have had, nothing has changed the stools. However, taking fish oil pills has greatly reduced the pain in my upper abdomen as well as the pain  in the the area above my belly button. My question now is, is there a very likely chance of this being celiac disease? Should I go on a gluten free diet to test since I Have to wait so long? Also, which test should I ask the doctor for first, as it will take a GREAT deal of time to pay off each one. Colonoscopy, HIDA scan, or endoscopy. 

      Again, I understand this isn't a site to get compete medical advice or to know exactly what my illness is, but I am trying to narrow down the possibility or what is most likely. If this has a chance of being celiac disease, I would rather know sooner than later.
    • Thank you very much for all the info Squirmingitch. The doctor told me as we were talking he was going to order some tests with urine so I don't know why he didn't mark that. Maybe he forgot as we were talking? Duly noted about the bladder Cancer to watch out for too. Doctor said it will take about a week to get the lab results back usually from this lab. The wait will seem like forever I'm sure. Yes I will press to have the other tests done too if this one comes back negative.
    • http://www.cureceliacdisease.org/screening/ Was your hubs tested for total IgA to see if he's IgA deficient? Read this thread: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/83660
    • Yes, bone density problems are all part of the celiac "umbrella" so to speak and yes, osteoporosis tends to happen more rapidly and at earlier ages than normal when malabsorption is happening. At age 43, it's not normal to have osteoporosis as you describe so that's another part of the jigsaw puzzle. Time to receive blood test results back from the doc are entirely dependent on the particular lab they were sent to. Yep, it's time for you to start keeping a very close check on the PSA in light of your father having had prostrate cancer. I would think you should get a PSA every year. I really would have liked to see him do a urinalysis. With the prostrate cancer your father had, it would seem a close watch should be kept on you for bladder cancer as well. The first symptom of that is blood in the urine but it's generally microscopic before you're ever able to actually see it. That happens to be the 8th most common cancer in men & it's moving up in the rankings. I know this because my hubs had it. The good news is that it's also one of the easiest and most successfully treated provided it's caught early. Certainly starting @ age 50, men should see a urologist every year. BTW, in the last year before I found out I was celiac, I turned up with microscopic blood in my urine. I got it checked out thoroughly since I know about bladder cancer & all tests, ultrasounds, cystoscopy, CT scan etc... turned out fine. The docs were stumped & finally said, "apparently that's just what your body does". Guess what? That's not "just" what MY body does. Once I went gluten-free, I have had no more microscopic blood in my urine. Interesting eh? Before now I didn't realize you are in Canada. The doc didn't do the full celiac panel but I understand the initial screening protocols in Canada only order the TTG but if that comes back negative be sure & press for the full panel as cyclinglady said. We have several here who tested like cyclinglady so it's not a rare thing, it's just not the norm. I'm glad he's doing the B-12 & Ferritin -- those can be big clues.
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