Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Got An Appointment For Tomorrow! What Do I Ask?
0

5 posts in this topic

I called the BIDMC celiac center back and asked if they had any earlier appointments open up (mine was for October 18th) and they had one for tomorrow morning! So relieved.

Can anyone help with what sorts of things I should ask / request, etc? I'm bringing my husband too if he can make it.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Glad your sappointment was moved up. It's soooo hard to wait for those!

I would right down all of your complaints, give a desciption of how it affects your life and how often (don't just say diahrea, say you must run to the bathroom within 20 minutes of eating and stay close to it for the next 6 hours... for example). Put the largest and most annoying complaints first but make it comprehensive; include non GI related symptoms like hairloss, brittle nails, sore joints, migraines, mouth sores, rashes, etc... It's amazing how it's all linked. Make a copy for yourself and then give the list to your doctor. - If you are at all like me, I get stressed with doctors and forget half of what I want to say.

Request these tests for celiac:



  • Anti-Gliadin (AGA) IgA
  • Anti-Gliadin (AGA) IgG
  • Anti-Endomysial (EMA) IgA
  • Anti-Tissue Transglutaminase (tTG) IgA
  • Deamidated Gliadin Peptide (DGP) IgA and IgG
  • Total Serum IgA

ttg IgA and EMA are the most specific and sensitive to celiac. Make sure you are eating gluten at least 6 weeks prior to the tests.

For the bruising, ask for a platelet count. It could be thrombocytopenia (clotting problems) which can be serious and cause your anemia and fatigue. It can be linked to hypothyroidism (hashimoto's), Lupus and other AI's too.

I would also request a TSH test (T4 and TPOAb if they'll give it) and an ANA test (with C3 and C4 complements if they'll do it). That should show if you have a thyroid problem or if the bruising is auto immune related rather than vitamin deficiency linked (low iron or K).

Ask for vit tests like B12, Calcium, D and iron levels; that could be linked to fatigue. Others around here will know more on those. :)

Good luck!

0

Share this post


Link to post
Share on other sites
:( The docs office just called and said they weren't supposed to put anyone in that appointment time and so I'm back to Oct 18th. arg, I was so looking forward to possibly getting things figured out.
0

Share this post


Link to post
Share on other sites

:( The docs office just called and said they weren't supposed to put anyone in that appointment time and so I'm back to Oct 18th. arg, I was so looking forward to possibly getting things figured out.

Are you close to the office? Some places will have an "on call" list in case someone cancels their appointment.

0

Share this post


Link to post
Share on other sites

Are you close to the office? Some places will have an "on call" list in case someone cancels their appointment.

they did say they would put me on the cancellation list, and I'll keep calling each day to see if an earlier slot opens up.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,090
    • Total Posts
      920,307
  • Topics

  • Posts

    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
    • No!  Once you fill the tub, if you sit in it for 3 minutes or you stay for 10... It doesn't change the amount or cost of the water.  That's only relevant if you have 3 kids to cycle thru that same water.  Is your hub bathing in the same water after you? Lol  And even if you add some more hot and stay longer....well...it's much cheaper than perscription meds, vodka or a substance that is legal in a few states.     Of course this only pertains to those of use with running water.... If you make your hub haul water from the creek or well and heat it over a fire....
    • Whether it is bona fide dermatitis herpetiformis, or severe eczema or hives or what have you, we all want to know how to stop the incessant itching.  Through all my research, the solution comes down to one thing: a good long soak in the tub-- with baking soda or Epsom salts or some kind of herbal tea, followed by a rub down in thick expensive lotion.  I don't know about you, but I was brought up to "get in, get done get out."  A long soak in the bath was a frivolous luxury, and a waste of time and hot water.  So now I'm having this awful breakout from forgetting to read a label and got wheated.  And every night I've been soaking in a baking soda bath to relieve the itching and aid my recovery.  And it's been hard! (But it's been very helpful too)  It has been hard to reconcile this "frivolous luxury and waste of time" as medically necessary!  Fortunately I've had no judging, and only support from my husband, who has had a similar upbringing.  Does anyone else struggle with this?
    • His son, Eli, had been misdiagnosed with celiac disease, so the family tried some gluten-free foods. After adding quinoa (KEEN-wah) to their diet, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • HappyMom623

      I have Tangled problem! I want all the things Rapunzel Related....including Flynn Rider 😂 but seriously. I have like 8 shirts I want.
      · 0 replies
    • AprilBeth2013

      RT @MarkDever: “But the work is God’s and we do not fear the final results. ‘The heathen shall be given to His Son for His inheritance,’ .…
      · 0 replies
    • silk

      I have celiac disease and have been gluten-free for almost 10 years.  I am extremely sensitive to gluten, noting that I react within 15 minutes of contact and in fact the doctor suspects that there may also be an actual wheat allergy at play but have never bothered to be tested since I avoid it like the plague!  I am curious to know if anyone else reacts to flax or inulin?  My symptoms with those two are almost identical to gluten so I have to really watch for that in gluten-free breads and baking and recently discovered after the fact that flax was in the juice I was drinking. I know that people with gluten issues can have other problems as well and in fact I also avoid milk products.  Even after 10 years, and although it has become a way of life, it's still frustrating to have to read every ingredient on every label.😞
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,117
    • Most Online
      1,763

    Newest Member
    cdliac3855
    Joined