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Looking For A Doc In Kansas City
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6 posts in this topic

Hi, I need a knowledgeable Celiac Dr. in the kansas city area, anyone know of one?

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Mine was a jerk. He did do a lot of biospies but had no real knowledge of Celiac and was a jerk. I'll Pm you his name. I have heard that Randy Brown or Dr. Buser are good GIs

10200 W 105th St Suite 200

Overland Park, KS 66212

(913) 495-9600 (Office)

If you need a Pediatric doctor, my friends daughter goes to Julia Bracken at the Celiac clinic at Children's Mercy.

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KU Med have specialists. I wonder if they would have celiac doc. I went to a great GI doc too but he didn't have much to offer me in advice with my celiac when I went for my follow-up after being diagnosed in biopsy. His only suggestion was taking Allign for my gut...some follow up. I should've saved my $25 copay for my Primary care Physician which he referred me to for all of my other problems and pains.

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I live in the KC area and was diagnosed with Celiac a few weeks ago. The GI I saw gave me only 10 mins of his time with this diagnosis and all of my problems (anemia, osteopenia, etc...). I left feeling thankful that I have been educating myself because he didn't have much to say. I had to specifically ask whether I needed follow-ups, bloodwork to track iron and such. Have you all been to Dr. Brown or Buser (as recommended above) yet? If so, would you recommend either? Also, since I have Hashimoto's and now Celiac, I think I might need to see a rheumatologist see what else might lurking! Any recommendations?

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I live in the KC area and was diagnosed with Celiac a few weeks ago. The GI I saw gave me only 10 mins of his time with this diagnosis and all of my problems (anemia, osteopenia, etc...). I left feeling thankful that I have been educating myself because he didn't have much to say. I had to specifically ask whether I needed follow-ups, bloodwork to track iron and such. Have you all been to Dr. Brown or Buser (as recommended above) yet? If so, would you recommend either? Also, since I have Hashimoto's and now Celiac, I think I might need to see a rheumatologist see what else might lurking! Any recommendations?

I actually know Randy Brown as our kids were friends. My husband goes to him but I think it would be a little wierd to go to him. I have been told Dr Buser is good, too. I don't have any reason to see a GI right now. My family doc runs my follow-up blood tests and they have been fine. There is no reason for me to have another endo because I don't have any real issues. I doubt any of them would sit and give you good diet & coping info. Your family doc can do blood tests for vitamins, etc.

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    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
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      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
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