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Looking For A Doc In Kansas City
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6 posts in this topic

Hi, I need a knowledgeable Celiac Dr. in the kansas city area, anyone know of one?

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Mine was a jerk. He did do a lot of biospies but had no real knowledge of Celiac and was a jerk. I'll Pm you his name. I have heard that Randy Brown or Dr. Buser are good GIs

10200 W 105th St Suite 200

Overland Park, KS 66212

(913) 495-9600 (Office)

If you need a Pediatric doctor, my friends daughter goes to Julia Bracken at the Celiac clinic at Children's Mercy.

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KU Med have specialists. I wonder if they would have celiac doc. I went to a great GI doc too but he didn't have much to offer me in advice with my celiac when I went for my follow-up after being diagnosed in biopsy. His only suggestion was taking Allign for my gut...some follow up. I should've saved my $25 copay for my Primary care Physician which he referred me to for all of my other problems and pains.

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I live in the KC area and was diagnosed with Celiac a few weeks ago. The GI I saw gave me only 10 mins of his time with this diagnosis and all of my problems (anemia, osteopenia, etc...). I left feeling thankful that I have been educating myself because he didn't have much to say. I had to specifically ask whether I needed follow-ups, bloodwork to track iron and such. Have you all been to Dr. Brown or Buser (as recommended above) yet? If so, would you recommend either? Also, since I have Hashimoto's and now Celiac, I think I might need to see a rheumatologist see what else might lurking! Any recommendations?

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I live in the KC area and was diagnosed with Celiac a few weeks ago. The GI I saw gave me only 10 mins of his time with this diagnosis and all of my problems (anemia, osteopenia, etc...). I left feeling thankful that I have been educating myself because he didn't have much to say. I had to specifically ask whether I needed follow-ups, bloodwork to track iron and such. Have you all been to Dr. Brown or Buser (as recommended above) yet? If so, would you recommend either? Also, since I have Hashimoto's and now Celiac, I think I might need to see a rheumatologist see what else might lurking! Any recommendations?

I actually know Randy Brown as our kids were friends. My husband goes to him but I think it would be a little wierd to go to him. I have been told Dr Buser is good, too. I don't have any reason to see a GI right now. My family doc runs my follow-up blood tests and they have been fine. There is no reason for me to have another endo because I don't have any real issues. I doubt any of them would sit and give you good diet & coping info. Your family doc can do blood tests for vitamins, etc.

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      My first thought was how many people that have been labeled as mentally ill or psychotic actually have Celiac Disease and never get diagnosed?  Their whole lives spent battling these conditions, being flooded with various meds and no one looks at their diet or does other testing!  It really is tragic.  I always wondered whether Patty Duke was an un-diagnosed Celiac.  She was finally diagnosed with bi-polar and ended up dying of a perforated intestine, at the young age of 69.  Ya gotta wonder........
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    • Gluten does WHAT to the brain?
      Thanks for posting I was just looking at this a short time ago. Something I found interesting was the last line of the article- " The psychosis that the woman experienced was an extreme condition and very unique, Fasano said. " While not common I am not sure that it is that unique.  There is a fair amount of research that has been done on the effects of gluten on the brains and nervous systems of celiacs.  Doing a search with the words neurological and celiac at places like Lancet, PubMed and the NIH can bring up some really interesting studies. Thankfully this impact is slowly becoming more common knowledge in the medical circles. Many of us have experienced in our families or first hand the way that the antibodies can impact our mood and thinking. It does seem miraculous when the clouds finally lift. I wish more doctors would test for celiac before pulling out the prescription pad, especially with kids.
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      If you are referring to Amaretto Disaronno, then I can tell you that I have had it a couple of times since being diagnosed in 2005 and never had a problem with it. I am very sensitive too and react strongly to cc.  I do not drink much variety in the way of alcohol but red wine and this seem to be perfectly fine!
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