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Is This Dermatitis Herpetiformis? (Pics)
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Well, it doesn't look like mine, but I'm sure there are others on this forum who DO experience DH the way that you do. Apparently, it presents differently with different people.

That said, there are other skin conditions that are aggravated by gluten, such as eczema. If you saw improvement--and your photos indicate this--you may wish to avoid gluten for a while to see if the rash disappears. Then you can try eating it again, and if your rash reappears, you at least know that gluten is something your body does not do well with.

However, it would be a good idea to ask a doctor to run a full celiac panel (bloodtest) and even possibly take a biopsy of CLEAR SKIN NEXT TO A LESION to see if it's actually DH. There are very few doctors and dermatologists who understand that the biopsy should NOT be taken of the lesion itself; otherwise, the results are negative. The reason why I'm suggesting that you get tested is that you might, in fact, have celiac disease; and while you are not currently feeling ill, damage is being done to your small intestine. This can have a tragic outcome. If you KNOW you have celiac, you're more likely to be extremely careful about cross-contamination. Otherwise, when people aren't sure whether or not they have it, they occasionally cheat and eat foods containing gluten...and this can be very bad. So....if you'd like to be tested, you'll need to return to eating gluten for a while.

Others will offer their advice and opinions--consider all of the information and make an informed, personal decision.

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Thankyou for your answer. I suspect it can be hives.? It's really puzzling and its a large source of stress for me.

I went to a skin doctor, who said that I don't have any serious skin condition. He said it is just because of hot weather and will heal on its own. I live in a backward state of India and food intolerance is unheard of here.

Although people know about food allergies but not one does about celiac disease. If I tell any doctor that I suspect I have allergy to gluten/wheat- everybody laughs.

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My opinion is the same as rosetapper.

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Doesn't look like mine did.

richard

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This doesn't look like any of my DH breakouts!

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Does not look like my rash. Have you checked online about Keratosis Pilaris? My nephew sometimes has a rash that appears the same as yours. May be due to gluten. . . .but not DH rash?

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I had these little things on my face very often -- they didn't icht or hurt. It seemed like milia, actually. Coincidentally, when I was diagnosed with celiac disease and started a gluten free diet, they disappeared. I don't think they're DH but they may be related to gluten, yes.

As for the second dermatitis, I never had -- but if they improved after removing gluten, good for you! :)

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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