Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Neurotransmitter Testing Results
0

6 posts in this topic

My Naturopath completed a neurotransmitter test on me and I just got the results in. Of the 14 neurotransmitters tested only 4 are functioning properly. The ones that are not are serotonin, 5-HIAA, tryptamine, GABA, PEA, tyramine, dopamine, DOPAC, norepinephrine ,epinephrine. He stated that this is very bad and he does not know how I am even functioning. Really. I said only by the grace of God. He also said now that we know I am gluten sensitive, I believe celiac too even though test was negative, that it most likely did attack me neurologically, hence all of my neuro issues. I also have tingling in my face and sometimes numbness on my lip. I questioned that and he said yes from nonfunctioning transmitters. Still daily head pain but not the on fire brain feeling unless I eat anything except soups and 3 fruits. Also he said there is no way I could sleep through the night with these results, I haven't been able to sleep without meds in 1 1/2 years, So the answer is to get on some supplements and I would see results within a month but start having more energy in 1 week. Here's the problem.....I can't tolerate the supplements. I get flu like symptoms along with a migraine. I have been on a soup & veggie diet for 6 weeks and 3 fruits only being able to tolerate just that. He said that is most likely due to the transmitters being all out of whack. I really didn't want to have to go to a medical doctor, but should I bring these results and is there meds that can increase all of these transmitters? Side effects are horrible but I finally have answers now I want to be fixed! I had no idea all the damage that could come from gluten, it's scary. I'm just so confused as to what to do.

0

Share this post


Link to post
Share on other sites


Ads by Google:

1. Eat gluten free.

2. Go to the health food store vitamin section, or even a drugstore or grocery, and read carefully the ingredients on a basic B complex vitamin supplement. You are looking for the words "gluten free." Same for a calcium/D/magnesium supplement. "gluten free."

3. Take the supplements after you have eaten something that agrees with you. Not on an empty stomach. If any supplement bothers you, don't take it anymore. A migraine means this is the wrong supplement for you.

4. Have patience, it takes the neurological damage some time to resolve, but, if you eat clean and supplement carefully, you will heal up. Don't overdo it and start taking a dozen different things all at once.

5. Sleeping. Best way to sleep is to tire yourself out with late afternoon exercise, then eat a decent meal with some fat in it, and don't do caffeine late in the day.

5b. Sleeping. Say, did anyone test your thyroid function ?

6. Search your day's routine for cross contamination sources, such as cosmetic lotions loaded with wheat, or pet foods and licking animals. Or other people's kisses when they haven't brushed their teeth yet. Some of us neuro people are very sensitive, and have to go to more ridiculous lengths to avoid gluten than a regular gluten- avoider. Sometimes, for example, I have to clean my steering wheel off because my husband ate a burger with a bun and he was driving my car as I ate my packed lunch. This is why I keep a spritz bottle of water, and a roll of paper towels in the back, it's not just for the mirrors. I try to keep exposure to a minimum, because I believe it has a cumulative effect over the day.

0

Share this post


Link to post
Share on other sites

I have tried so many vitamins and have reacted to all except liquid geritol. There is always corn, soy, or lactose or something else in them that I react to. I haven't found any that do not have those somewheres in the ingredients. The last one I bought was Country Life vitamin B comlpex and had achy flu like symptoms/migraine for the 4 days that I took them. It's really crazy when I think about it. I did find a magnesium that I could tolerate and I drink a protein shake with lots of vitamins by Natures Sunshine. I've been on that 6 months. Should the neuro transmitters levels increase being gluten free? I am SO praying for a miracle :)

0

Share this post


Link to post
Share on other sites

Your body can not produce neurotransmitters without amino acids that you acquire from your food. Celiac Disease disrupts this process because your digestive system is not properly breaking down nor absorbing food.

As your digestive system heals from removing gluten you should begin to absorb nutrients better which will allow your body to breakdown food into the amino acids needed to produce neurotransmitters.

You mention eating soup and fruit. Do you have a sufficient amount of protein in your diet. It is difficult to get all the essential amino acids without meat - especially if you are having trouble with grains and legumes.

Were the supplements you were trying to take amino acids? I take amino acid supplements to help produce nor-epinephrine - the lack of nor-epinephrine is one part of the fibromyalgia pain puzzle. I've had good luck with "Source Naturals" brand as far as being Gluten, Dairy and Soy free -- if you can't tolerate the supplements you were given, perhaps you can find out which amino acids were in them and purchase a different brand that you'd be able to tolerate. There are also supplements that have a combo of the essential amino acids - I don't take those anymore, but I think I used "Country Life" - any brand that doesn't contain your intolerances should be fine.

Good Luck :)

0

Share this post


Link to post
Share on other sites

Your body can not produce neurotransmitters without amino acids that you acquire from your food. Celiac Disease disrupts this process because your digestive system is not properly breaking down nor absorbing food.

As your digestive system heals from removing gluten you should begin to absorb nutrients better which will allow your body to breakdown food into the amino acids needed to produce neurotransmitters.

You mention eating soup and fruit. Do you have a sufficient amount of protein in your diet. It is difficult to get all the essential amino acids without meat - especially if you are having trouble with grains and legumes.

Were the supplements you were trying to take amino acids? I take amino acid supplements to help produce nor-epinephrine - the lack of nor-epinephrine is one part of the fibromyalgia pain puzzle. I've had good luck with "Source Naturals" brand as far as being Gluten, Dairy and Soy free -- if you can't tolerate the supplements you were given,

perhaps you can find out which amino acids were in them and purchase a different brand that you'd be able to tolerate. There are also supplements that have a combo of the essential amino acids - I don't take those anymore, but I think I used "Country Life" - any brand that doesn't contain your intolerances should be fine.

Good Luck :)

Yes I eat chicken with every serving or fish depending on what kind of soup I made. Plus the protein shake, I know that's what has gotten my mornings to be the best part of the day. So glad to know all this info, thank you so much! I'll compare the supplements he gave me to see what amino acids I need. Thanks!
0

Share this post


Link to post
Share on other sites




Yes I eat chicken with every serving or fish depending on what kind of soup I made. Plus the protein shake, I know that's what has gotten my mornings to be the best part of the day. So glad to know all this info, thank you so much! I'll compare the supplements he gave me to see what amino acids I need. Thanks!

Great! Sounds like you should begin improving - unfortunately it can take time - hang in there :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined