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Feel Like I'm Just Starting gluten-free
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22 posts in this topic

Okay, I'm having a hard time recovering from that bug we had last week. And yes, I'm sure it was a bug because my son and I got sick together.

The bug itself was mild - cramping, d, nausea. But it will NOT go away.

To make matters worse at my doctors visit I found out my iron and d are still in the toilet. Technically in the "normal" range but still low, especially iron stores and d. So low they are making me produce excess reverse t3, so I am stuck in hypothyroid hell...

Sigh.

So, I started taking my iron and d again. She wants me to do 2 weeks of 20k d, and right now I am sick over doubling my iron to 50 and taking 4k of d.

She also wants me to take 2 digestive enzymes and 1 probiotic per meal...which I think is excessive.

I have spent the day wanting to vomit and rushing to the bathroom. No d but horrid gas/bm issues (sorry, tmi).

My stomach wasn't this upset when I STARTED gluten-free. This is terrible!!!

I think I'm quitting the d and iron for a few days. I sent my doctor a message about d and iron injections. I mean, why keep taking them if they barely work??? I'm ready for a shot of d. I know iron isn't as easy....

Help!!

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I'm sorry to hear this pricklypear. That sounds awful! I wish we could all just get better and stop suffering. Unfortunately, I don't have any words of wisdom. But, I feel for you. Hang in there!

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You know what? I'm still tired from last week but my d and stomach issues finally stopped. I still vote virus. I noticed that in previous years when i would get one it would take a few days but never this long.

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You know what? I'm still tired from last week but my d and stomach issues finally stopped. I still vote virus. I noticed that in previous years when i would get one it would take a few days but never this long.

How long did yours go, overall? My son's seemed to disappear by Saturday - 6 days. I think mine started last Monday, so I'm a week and a half??? Ugh.

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Maybe I'm just old and weak.

I don't feel the same as I did last week, but I do feel like my gi system has been gutted.

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I'm thinking its a more potent bug :( They do change and, dare i say it?, evolve as time goes on.

On a side note, i saw my grandparents today and they said that everyone seems to be getting it.

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I'm thinking its a more potent bug :( They do change and, dare i say it?, evolve as time goes on.

On a side note, i saw my grandparents today and they said that everyone seems to be getting it.

Yeah, I get the mutant stomach bug. Figures.

I hope "everyone" stays away so I don't get it again.

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So, today is better.

Last dose of d and iron and digestive enzyme and probiotic was yesterday around 11 am. Not doing that today.

This morning lots of bathroom visits but no gas like before. No nausea. Seems to be calming down.

So....I wait.

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I had that bug. I never had nausea with it but plenty of D and lots of bloating and gas. That was several weeks ago and I am still having some bloating and gas that comes on later in the day. I was thinking it was food related, but now I'm thinking it's lingering effects of the bug. I haven't been eating anything that should cause it. Maybe this thing likes to stick around in the guts of celiacs.

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I think the nausea was from the pills - primarily iron.

I must admit I think my digestive enzymes were giving me problems, though, which is weird since I've been on them for years and they are definitely gluten-free.

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I'm so sorry Prickly. UGH! A bug!

My iron is okay so I can't speak for those but my D is low so the doc wanted me to take mega doses. I can't do it. Not at that high of a dose. Gives me indigestion like you've never heard of so i had to cut back on it. I am taking a gluten-free liquid & I've experimented & am sure that's what was doing it. So I imagine the combo of iron & D for you is overwhelming.

Thankfully I seem to have missed the bug.

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So I looked it up and I've diagnosed myself with bacterial IBS.

Yeah, that's where I'm at at 10:30 pm in Friday night...

I lead an exciting life.

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So, improving.

Yesterday only 1 bathroom visit after meals.

Today, no visit after breakfast!

I have hope.

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YAY! Hope is good. Sounds like you're on the mend.

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I spoke too soon. Had a bout of it and nausea this afternoon.

One is better than three, I guess.

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Ohhhhhhhhhhhh, I'm so sorry to hear that.sad.gif 1 is better than 3 but none is better than 1. Hoping tomorrow brings better news.

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Well, more progress. No nausea and had a day if something resembling "normal" potty habits. Managed to clean house a bit and run myself ragged trying to do 100 things I haven't done for two weeks.

Tomorrow is the true test - appointment with the personal trainer. Here's to hoping I don't have to rush to the ladies room.

I so wish I knew if this was all the virus or if I now react this badly to taking supplaments. I literally hurt when I think if trying to start them up again.

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Hoping you have good news now. I know, the guessing is a PITA! You don't know if it's this or that or the other or none at all. Makes one nuts!mad.gif

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Yes, getting better. Monday was pretty normal, yesterday better, today I worked out with my trainer and didn't die.

So far no nausea or d.

Still waiting to start back my supplaments.

Big chicken.

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I understand that! When this last big dh outbreak started I had also just begun taking digestive enzymes - gluten-free of course. And I stopped everything when this outbreak happened. I thought I was beginning to heal & no new lesions then I began back on the enzymes yesterday. Last night the back of my upper thigh broke out in about a 6" x 5" area. Soooooo now I wonder & am a big chicken about taking the enzymes again. Or is it all coincidence? That's the trouble --- this stuff screws with your mind so bad.mad.gif

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I understand that! When this last big dh outbreak started I had also just begun taking digestive enzymes - gluten-free of course. And I stopped everything when this outbreak happened. I thought I was beginning to heal & no new lesions then I began back on the enzymes yesterday. Last night the back of my upper thigh broke out in about a 6" x 5" area. Soooooo now I wonder & am a big chicken about taking the enzymes again. Or is it all coincidence? That's the trouble --- this stuff screws with your mind so bad.mad.gif

No kidding. I have a hard time taking anything without thinking "OMGWHATISTHISGONNADOTOME?!?!?". Then my stress goes up, etc....

bad cycle is bad.

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    • Hi, Ok good advice and I am sincere when I say how much I appreciate a lot of the responses, advice and encouragement that have been posted here. I'm not sure what a nutrionist is but a dietician (here in the U.K.) is a heavily regulated medical profession and my dietician is based most of her week in a hospital where doctors and MD's as they are known refer patients to her for help. She works every day with celiacs, dh sufferers and people with crohns, ibs etc and seeing my skin, listened to what I was saying (particularly about how my redness and blisters resolved on a gluten free (though not wheat free) diet for several years, and sent a report to my doctor/MD requesting a battery of tests - tests that can indicate dh, celiac and associated complications. I also have a friend with a wheat allergy and two with celiac (all diagnosed) and they are encouraging me to go ahead with getting these particular tests. So that's great but reading the above quote that suggests that situations like sharing an oven used to cook gluten-containing pizza, should not cause a gluten reaction. I thought, my god what's the point of going through these tests if my recent reactions aren't actually to do with gluten. Although my dietician is concerned about possible dh and has been through years of medical school, I also really trust the advice of an advanced member on this site and if they think oven-sharing shouldn't cause any gluten reaction, what hope do I have with an MD? It has taken me years to pluck up the confidence to ask for any medical help because I feared that sort of response along with a focus on psychological issues and hormones etc early on in the thread (even though, I only started feeling depressed since yesterday). Actually, I'm a mental health nurse so it's good to see people are alert to these issues but I am also pretty familiar with depression and I know that many people with physical health problems are fobbed off by doctors with talk of depression, stress, and hormones. I'm sorry that I took the (above) quote to heart and I know that I allowed that to colour my perception of the whole thread, which has been helpful in many ways. Best wishes to you all, even those I didn't agree with! Rhian 
    • I thought maybe doing a trial period to see if he reacts positively to being gluten free and then adding it back to see if symptoms come back would maybe be helpful to the doctor? But I guess that's true, it might skew things regarding any future tests that might be warranted. 
    • If you haven't had her tested yet please do not go gluten free. Get the celiac testing first as if she does feel better gluten free when she has to go back on gluten for testing she may have much worse symptoms.  There will also be a higher risk of false negatives.
    • I did not mean to imply that you should put him on a gluten free diet.    If you suspect a problem with gluten, please get an opinion from a GI who is celiac savvy.  All celiac testing requires a patient to be consuming gluten.  The slightly equivocal TTG?  That warrants a gene test at the very least.   http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf  
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