Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Feel Like I'm Just Starting gluten-free


pricklypear1971

Recommended Posts

pricklypear1971 Community Regular

Okay, I'm having a hard time recovering from that bug we had last week. And yes, I'm sure it was a bug because my son and I got sick together.

The bug itself was mild - cramping, d, nausea. But it will NOT go away.

To make matters worse at my doctors visit I found out my iron and d are still in the toilet. Technically in the "normal" range but still low, especially iron stores and d. So low they are making me produce excess reverse t3, so I am stuck in hypothyroid hell...

Sigh.

So, I started taking my iron and d again. She wants me to do 2 weeks of 20k d, and right now I am sick over doubling my iron to 50 and taking 4k of d.

She also wants me to take 2 digestive enzymes and 1 probiotic per meal...which I think is excessive.

I have spent the day wanting to vomit and rushing to the bathroom. No d but horrid gas/bm issues (sorry, tmi).

My stomach wasn't this upset when I STARTED gluten-free. This is terrible!!!

I think I'm quitting the d and iron for a few days. I sent my doctor a message about d and iron injections. I mean, why keep taking them if they barely work??? I'm ready for a shot of d. I know iron isn't as easy....

Help!!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Newbee Contributor

I'm sorry to hear this pricklypear. That sounds awful! I wish we could all just get better and stop suffering. Unfortunately, I don't have any words of wisdom. But, I feel for you. Hang in there!

Link to comment
Share on other sites
shadowicewolf Proficient

You know what? I'm still tired from last week but my d and stomach issues finally stopped. I still vote virus. I noticed that in previous years when i would get one it would take a few days but never this long.

Link to comment
Share on other sites
pricklypear1971 Community Regular

You know what? I'm still tired from last week but my d and stomach issues finally stopped. I still vote virus. I noticed that in previous years when i would get one it would take a few days but never this long.

How long did yours go, overall? My son's seemed to disappear by Saturday - 6 days. I think mine started last Monday, so I'm a week and a half??? Ugh.

Link to comment
Share on other sites
shadowicewolf Proficient

about 8 days :( Not fun, not fun.

Link to comment
Share on other sites
pricklypear1971 Community Regular

Maybe I'm just old and weak.

I don't feel the same as I did last week, but I do feel like my gi system has been gutted.

Link to comment
Share on other sites
shadowicewolf Proficient

I'm thinking its a more potent bug :( They do change and, dare i say it?, evolve as time goes on.

On a side note, i saw my grandparents today and they said that everyone seems to be getting it.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I'm thinking its a more potent bug :( They do change and, dare i say it?, evolve as time goes on.

On a side note, i saw my grandparents today and they said that everyone seems to be getting it.

Yeah, I get the mutant stomach bug. Figures.

I hope "everyone" stays away so I don't get it again.

Link to comment
Share on other sites
pricklypear1971 Community Regular

So, today is better.

Last dose of d and iron and digestive enzyme and probiotic was yesterday around 11 am. Not doing that today.

This morning lots of bathroom visits but no gas like before. No nausea. Seems to be calming down.

So....I wait.

Link to comment
Share on other sites
bartfull Rising Star

I had that bug. I never had nausea with it but plenty of D and lots of bloating and gas. That was several weeks ago and I am still having some bloating and gas that comes on later in the day. I was thinking it was food related, but now I'm thinking it's lingering effects of the bug. I haven't been eating anything that should cause it. Maybe this thing likes to stick around in the guts of celiacs.

Link to comment
Share on other sites
pricklypear1971 Community Regular

I think the nausea was from the pills - primarily iron.

I must admit I think my digestive enzymes were giving me problems, though, which is weird since I've been on them for years and they are definitely gluten-free.

Link to comment
Share on other sites
squirmingitch Veteran

I'm so sorry Prickly. UGH! A bug!

My iron is okay so I can't speak for those but my D is low so the doc wanted me to take mega doses. I can't do it. Not at that high of a dose. Gives me indigestion like you've never heard of so i had to cut back on it. I am taking a gluten-free liquid & I've experimented & am sure that's what was doing it. So I imagine the combo of iron & D for you is overwhelming.

Thankfully I seem to have missed the bug.

Link to comment
Share on other sites
pricklypear1971 Community Regular

So I looked it up and I've diagnosed myself with bacterial IBS.

Yeah, that's where I'm at at 10:30 pm in Friday night...

I lead an exciting life.

Link to comment
Share on other sites
pricklypear1971 Community Regular

So, improving.

Yesterday only 1 bathroom visit after meals.

Today, no visit after breakfast!

I have hope.

Link to comment
Share on other sites
squirmingitch Veteran

YAY! Hope is good. Sounds like you're on the mend.

Link to comment
Share on other sites
pricklypear1971 Community Regular

I spoke too soon. Had a bout of it and nausea this afternoon.

One is better than three, I guess.

Link to comment
Share on other sites
squirmingitch Veteran

Ohhhhhhhhhhhh, I'm so sorry to hear that.sad.gif 1 is better than 3 but none is better than 1. Hoping tomorrow brings better news.

Link to comment
Share on other sites
pricklypear1971 Community Regular

Well, more progress. No nausea and had a day if something resembling "normal" potty habits. Managed to clean house a bit and run myself ragged trying to do 100 things I haven't done for two weeks.

Tomorrow is the true test - appointment with the personal trainer. Here's to hoping I don't have to rush to the ladies room.

I so wish I knew if this was all the virus or if I now react this badly to taking supplaments. I literally hurt when I think if trying to start them up again.

Link to comment
Share on other sites
squirmingitch Veteran

Hoping you have good news now. I know, the guessing is a PITA! You don't know if it's this or that or the other or none at all. Makes one nuts!mad.gif

Link to comment
Share on other sites
pricklypear1971 Community Regular

Yes, getting better. Monday was pretty normal, yesterday better, today I worked out with my trainer and didn't die.

So far no nausea or d.

Still waiting to start back my supplaments.

Big chicken.

Link to comment
Share on other sites
squirmingitch Veteran

I understand that! When this last big dh outbreak started I had also just begun taking digestive enzymes - gluten-free of course. And I stopped everything when this outbreak happened. I thought I was beginning to heal & no new lesions then I began back on the enzymes yesterday. Last night the back of my upper thigh broke out in about a 6" x 5" area. Soooooo now I wonder & am a big chicken about taking the enzymes again. Or is it all coincidence? That's the trouble --- this stuff screws with your mind so bad.mad.gif

Link to comment
Share on other sites
shadowicewolf Proficient

I understand that! When this last big dh outbreak started I had also just begun taking digestive enzymes - gluten-free of course. And I stopped everything when this outbreak happened. I thought I was beginning to heal & no new lesions then I began back on the enzymes yesterday. Last night the back of my upper thigh broke out in about a 6" x 5" area. Soooooo now I wonder & am a big chicken about taking the enzymes again. Or is it all coincidence? That's the trouble --- this stuff screws with your mind so bad.mad.gif

No kidding. I have a hard time taking anything without thinking "OMGWHATISTHISGONNADOTOME?!?!?". Then my stress goes up, etc....

bad cycle is bad.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to djmu's topic in Related Issues & Disorders
      9

      Peripheral Neuropathy

    2. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      9

      Peripheral Neuropathy

    3. - trents replied to JustGemi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      SCARED: What Do These Test Results Mean?

    4. - Scott Adams replied to Kaylee G's topic in Gluten-Free Recipes & Cooking Tips
      1

      Learning to cook for myself


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,483
    • Most Online (within 30 mins)
      7,748

    Sher54
    Newest Member
    Sher54
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Do you believe your swallowing is a manifestation of your neuropathy? I'm thinking if you are having trouble getting food down you need to focus on consuming things that have a high nutritional density so that whatever you are able to get down counts for something. Have you looked at Boost and other high protein/high calorie shake products?  They are fortified with vitamins and minerals as well. Do you have any trouble with aspiration of liquids? For celiac testing purposes, the guidelines are calling for daily consumption of about 10gm of gluten - the amount in about 4-6 slices of bread - in order to ensure valid testing. That sounds like it would be a challenger for you.
    • Tlbaked13
      Thank you and I am aware that I should be eating a "normal" diet until tested it's kind of been trial and error for my diet or more like just ERROR! I about 1-3 bites a meal I'm to a point that 99 percent of the time I'm having trouble swallowing just about everything occasionally I find either something or a very small window of time that allows me to get very little of something! I am basically getting zero nutrition what so ever because I take one bite of the meal that I usually just slaved over just to end up tossing it when it's all said and done...did anyone else ever experience anything like this?  I am more then open to suggestions! It is taking a very extreme toll on me and my body forsure 
    • JustGemi
    • trents
      No! Do not start the gluten free diet until you know whether or not you will be having an endoscopy/biopsy to verify the blood antibody test results. Starting gluten free eating ahead of either form of diagnostic testing can invalidate the results. You don't want to allow the villous lining of the small bowel to experience healing ahead of testing by removing gluten.
    • Scott Adams
      We offer a ton of recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/ and have done some articles on fast food places, but keep in mind that eating out is a common source of gluten contamination: https://www.celiac.com/search/?q=fast food&quick=1&type=cms_records2 Many colleges now offer allergen-friendly, and sometimes gluten-free options in their student cafeterias: https://www.celiac.com/search/?&q=colleges&type=cms_records2&quick=1&search_and_or=and&sortby=relevancy PS - Look into GliadinX, which is a sponsor here, but many studies have been done on it which show that it may break down small amounts of gluten in the stomach, before it reaches the intestines.
×
×
  • Create New...