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Feel Like I'm Just Starting gluten-free
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22 posts in this topic

Okay, I'm having a hard time recovering from that bug we had last week. And yes, I'm sure it was a bug because my son and I got sick together.

The bug itself was mild - cramping, d, nausea. But it will NOT go away.

To make matters worse at my doctors visit I found out my iron and d are still in the toilet. Technically in the "normal" range but still low, especially iron stores and d. So low they are making me produce excess reverse t3, so I am stuck in hypothyroid hell...

Sigh.

So, I started taking my iron and d again. She wants me to do 2 weeks of 20k d, and right now I am sick over doubling my iron to 50 and taking 4k of d.

She also wants me to take 2 digestive enzymes and 1 probiotic per meal...which I think is excessive.

I have spent the day wanting to vomit and rushing to the bathroom. No d but horrid gas/bm issues (sorry, tmi).

My stomach wasn't this upset when I STARTED gluten-free. This is terrible!!!

I think I'm quitting the d and iron for a few days. I sent my doctor a message about d and iron injections. I mean, why keep taking them if they barely work??? I'm ready for a shot of d. I know iron isn't as easy....

Help!!

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I'm sorry to hear this pricklypear. That sounds awful! I wish we could all just get better and stop suffering. Unfortunately, I don't have any words of wisdom. But, I feel for you. Hang in there!

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You know what? I'm still tired from last week but my d and stomach issues finally stopped. I still vote virus. I noticed that in previous years when i would get one it would take a few days but never this long.

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You know what? I'm still tired from last week but my d and stomach issues finally stopped. I still vote virus. I noticed that in previous years when i would get one it would take a few days but never this long.

How long did yours go, overall? My son's seemed to disappear by Saturday - 6 days. I think mine started last Monday, so I'm a week and a half??? Ugh.

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Maybe I'm just old and weak.

I don't feel the same as I did last week, but I do feel like my gi system has been gutted.

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I'm thinking its a more potent bug :( They do change and, dare i say it?, evolve as time goes on.

On a side note, i saw my grandparents today and they said that everyone seems to be getting it.

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I'm thinking its a more potent bug :( They do change and, dare i say it?, evolve as time goes on.

On a side note, i saw my grandparents today and they said that everyone seems to be getting it.

Yeah, I get the mutant stomach bug. Figures.

I hope "everyone" stays away so I don't get it again.

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So, today is better.

Last dose of d and iron and digestive enzyme and probiotic was yesterday around 11 am. Not doing that today.

This morning lots of bathroom visits but no gas like before. No nausea. Seems to be calming down.

So....I wait.

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I had that bug. I never had nausea with it but plenty of D and lots of bloating and gas. That was several weeks ago and I am still having some bloating and gas that comes on later in the day. I was thinking it was food related, but now I'm thinking it's lingering effects of the bug. I haven't been eating anything that should cause it. Maybe this thing likes to stick around in the guts of celiacs.

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I think the nausea was from the pills - primarily iron.

I must admit I think my digestive enzymes were giving me problems, though, which is weird since I've been on them for years and they are definitely gluten-free.

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I'm so sorry Prickly. UGH! A bug!

My iron is okay so I can't speak for those but my D is low so the doc wanted me to take mega doses. I can't do it. Not at that high of a dose. Gives me indigestion like you've never heard of so i had to cut back on it. I am taking a gluten-free liquid & I've experimented & am sure that's what was doing it. So I imagine the combo of iron & D for you is overwhelming.

Thankfully I seem to have missed the bug.

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So I looked it up and I've diagnosed myself with bacterial IBS.

Yeah, that's where I'm at at 10:30 pm in Friday night...

I lead an exciting life.

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So, improving.

Yesterday only 1 bathroom visit after meals.

Today, no visit after breakfast!

I have hope.

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YAY! Hope is good. Sounds like you're on the mend.

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I spoke too soon. Had a bout of it and nausea this afternoon.

One is better than three, I guess.

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Ohhhhhhhhhhhh, I'm so sorry to hear that.sad.gif 1 is better than 3 but none is better than 1. Hoping tomorrow brings better news.

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Well, more progress. No nausea and had a day if something resembling "normal" potty habits. Managed to clean house a bit and run myself ragged trying to do 100 things I haven't done for two weeks.

Tomorrow is the true test - appointment with the personal trainer. Here's to hoping I don't have to rush to the ladies room.

I so wish I knew if this was all the virus or if I now react this badly to taking supplaments. I literally hurt when I think if trying to start them up again.

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Hoping you have good news now. I know, the guessing is a PITA! You don't know if it's this or that or the other or none at all. Makes one nuts!mad.gif

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Yes, getting better. Monday was pretty normal, yesterday better, today I worked out with my trainer and didn't die.

So far no nausea or d.

Still waiting to start back my supplaments.

Big chicken.

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I understand that! When this last big dh outbreak started I had also just begun taking digestive enzymes - gluten-free of course. And I stopped everything when this outbreak happened. I thought I was beginning to heal & no new lesions then I began back on the enzymes yesterday. Last night the back of my upper thigh broke out in about a 6" x 5" area. Soooooo now I wonder & am a big chicken about taking the enzymes again. Or is it all coincidence? That's the trouble --- this stuff screws with your mind so bad.mad.gif

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I understand that! When this last big dh outbreak started I had also just begun taking digestive enzymes - gluten-free of course. And I stopped everything when this outbreak happened. I thought I was beginning to heal & no new lesions then I began back on the enzymes yesterday. Last night the back of my upper thigh broke out in about a 6" x 5" area. Soooooo now I wonder & am a big chicken about taking the enzymes again. Or is it all coincidence? That's the trouble --- this stuff screws with your mind so bad.mad.gif

No kidding. I have a hard time taking anything without thinking "OMGWHATISTHISGONNADOTOME?!?!?". Then my stress goes up, etc....

bad cycle is bad.

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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