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Migraines


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#1 jenarella

 
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Posted 22 September 2012 - 09:49 AM

I have had terrible migraines, gastrointestinal issues and extreme stomach bloating, for as long as i can remember. I have taken pain pills, multiple doctors, been to the chiropractor, had bio feed back therapy, you name i have done it. After many tests, 2008 they found i had white matter brain lesions. This prompted a spinal tap and then a tentative MS diagnoses. I then lost health insurance and did not go back to the doctor until 2 years ago. My doctor retook brain mri's and with lack of significant change thought the ms diagnosis was wrong. At this time, i was having routine migraines, vision problems, balance issues, extreme bloating, chronic diarrhea. My Dr. found that i was deficient in numerous vitamins, and anemic. My blood pressure was off the charts high also. I was 29 years old. Anyway after all this and many new tests, the ms diagnosis was dropped and i was diagnosed in about a two month span of time with diabetes, celiacs disease, and prolonged q t disorder. I have found that after adhering to the gluten-free diet, taking my medications for my heart and diabetes, all my issues are gone. I have also found that if i accidentally eat something that was contaminated with gluten, with in about two hours I will begin to get a headache, with in 4 hours it will become a migraine. This will usually last for about 2-3 days. No medication for pain helps, just time. If you have any suggestions on what i can do to help when this happens, i am all ears!
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#2 Celiac Mindwarp

 
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Posted 22 September 2012 - 01:12 PM

Hi
This sounds rough. My migraines last about 12 to 24 hours, and I have to lie in the dark.

I take paracetamol and dihydrocoedine (UK, not sure what it is there).

I alternate between a hot water bottle and an ice pack (which ever I can stand at that time). I used to use a hot wheat bag, ho ho.

I sometimes use 4head, a rub on stick with levomenthol on my head neck and shoulders, or tiger balm.

Sometimes, once I can stand up I have a shower and go between hot and cold water.

I think each of these work by helping the bloodflow.

I listen to the radio (talk rather than music) as I can't read or watch tv and frankly get bored and lonely. Sometimes I play a relaxation celiac disease. I like ones which do a progressive technique so relax feet, legs, hands, arms etc.

I try to drink water so I dont get dehydrated.

I cover my eyes with a lavender bean bag.

I'm not sure how much all this helps me get rid of the migraines, but it is at least a distraction...

Sorry you have to go through this, hopefully you'll get some good advice (I'll be listening too...)

Good luck
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#3 Celiac Mindwarp

 
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Posted 22 September 2012 - 01:15 PM

That's relaxation celiac disease. Think my autocorrect has gone celiac mad...
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#4 Celiac Mindwarp

 
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Posted 22 September 2012 - 01:16 PM

No, that must be something the board does. I play a relaxation disc...
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#5 mushroom

 
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Posted 22 September 2012 - 01:24 PM

Yes, the board does have some automatic functions. g f is converted to gluten free. I am assuming c d is converted to celiac disease. ;)
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#6 GF Lover

 
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Posted 22 September 2012 - 02:58 PM

I have had terrible migraines, gastrointestinal issues and extreme stomach bloating, for as long as i can remember. I have taken pain pills, multiple doctors, been to the chiropractor, had bio feed back therapy, you name i have done it. After many tests, 2008 they found i had white matter brain lesions. This prompted a spinal tap and then a tentative MS diagnoses. I then lost health insurance and did not go back to the doctor until 2 years ago. My doctor retook brain mri's and with lack of significant change thought the ms diagnosis was wrong. At this time, i was having routine migraines, vision problems, balance issues, extreme bloating, chronic diarrhea. My Dr. found that i was deficient in numerous vitamins, and anemic. My blood pressure was off the charts high also. I was 29 years old. Anyway after all this and many new tests, the ms diagnosis was dropped and i was diagnosed in about a two month span of time with diabetes, celiacs disease, and prolonged q t disorder. I have found that after adhering to the gluten-free diet, taking my medications for my heart and diabetes, all my issues are gone. I have also found that if i accidentally eat something that was contaminated with gluten, with in about two hours I will begin to get a headache, with in 4 hours it will become a migraine. This will usually last for about 2-3 days. No medication for pain helps, just time. If you have any suggestions on what i can do to help when this happens, i am all ears!



Hi there. I have had migraines thru my life too. The migraine meds never worked for me. I take a benydril go to the darkest room in the house, lay down, and Irish Heart recently had me add an ice pack behind the neck. A very good addition I might add. Eventually when I fall asleep I have to stay asleep at least 5 hours minimum. Any less and it's still there.

It's the only thing that has ever worked for me. Good luck. I hope you find your relief.
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#7 nvsmom

 
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Posted 22 September 2012 - 05:30 PM

I get gluten migraines too; and have for probably the last 20 years. They usually last a few days to over a week. When they are at their peak, I take Brad Kings Ultimate migraine ... relief/medication... I can't remember the full name. It takes the edge off so I can still see and hear when I stand or make a direction change. It's not gone but the pain is reduced. I've never noticed that it helped with my aura and jumpy vision.
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#8 psawyer

 
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Posted 22 September 2012 - 05:38 PM

Yes, the board does have some automatic functions. g f is converted to gluten free. I am assuming c d is converted to celiac disease. ;)

This is true. The letters gf are replaced by gluten-free, and the letters cd are replaced by celiac disease.

You can force them to appear as intended--I just did ;) --by putting something invisible between them:

g[i][/i]f

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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
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#9 pricklypear1971

 
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Posted 22 September 2012 - 05:42 PM

For me it's a combo of extra strength Tylenol (used to be ibuprofin but afraid to take it because of DH), to get through the day and antihistimine (Claritin) and then a dark quiet room ASAP and preferably sleep. Sometimes it takes 2 days to go away completely.

Mine se to be triggered by light/sound and bad seasonal allergies. They are much much less now gluten-free.
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#10 psawyer

 
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Posted 22 September 2012 - 05:49 PM

To return to the original topic, I used to get ugly migraines, but since going gluten-free twelve years ago I have not had one.

In North America, paracetamol is called acetaminophen generically, and is also sold under the brand name Tylenol.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#11 LauraB0927

 
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Posted 28 September 2012 - 09:26 PM

If there's any way you can tell when a migraine is coming on, take a pain reliever with caffeine in it (gluten-free obviously) before the pain starts and it should lessen the severity quite a bit. Taking anything after the migraine hits usually doesn't have a big affect. Usually I start to see those floating spots and get tunnel vision before my migraines hit - and then I run for the medicine cabinet! Feel better! :)
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#12 katie-sbb

 
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Posted 08 November 2012 - 01:42 PM

I have had terrible migraines, gastrointestinal issues and extreme stomach bloating, for as long as i can remember. I have taken pain pills, multiple doctors, been to the chiropractor, had bio feed back therapy, you name i have done it. After many tests, 2008 they found i had white matter brain lesions. This prompted a spinal tap and then a tentative MS diagnoses. I then lost health insurance and did not go back to the doctor until 2 years ago. My doctor retook brain mri's and with lack of significant change thought the ms diagnosis was wrong. At this time, i was having routine migraines, vision problems, balance issues, extreme bloating, chronic diarrhea. My Dr. found that i was deficient in numerous vitamins, and anemic. My blood pressure was off the charts high also. I was 29 years old. Anyway after all this and many new tests, the ms diagnosis was dropped and i was diagnosed in about a two month span of time with diabetes, celiacs disease, and prolonged q t disorder. I have found that after adhering to the gluten-free diet, taking my medications for my heart and diabetes, all my issues are gone. I have also found that if i accidentally eat something that was contaminated with gluten, with in about two hours I will begin to get a headache, with in 4 hours it will become a migraine. This will usually last for about 2-3 days. No medication for pain helps, just time. If you have any suggestions on what i can do to help when this happens, i am all ears!


I had 10 years of migraines before I went gluten-free. Only Zomig (zolmitriptan) worked - it is specific for that nerve. Ask your doctor for a prescription and take it next time you have a gluten accident and feel a migraine starting.
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#13 DavinaRN

 
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Posted 08 November 2012 - 02:16 PM

I take a prescription med-maxalt for mine along with a phenergan for the neausa. Since these both knock me out it works.
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Gluten Free since October 2012
Negative blood work, positive dietary response
Endocrinologist offered referral to GI if I needed formal diagnosis to follow the diet, otherwise just pass on wheat, barley & rye
and save my money




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