Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Migraines
0

13 posts in this topic

I have had terrible migraines, gastrointestinal issues and extreme stomach bloating, for as long as i can remember. I have taken pain pills, multiple doctors, been to the chiropractor, had bio feed back therapy, you name i have done it. After many tests, 2008 they found i had white matter brain lesions. This prompted a spinal tap and then a tentative MS diagnoses. I then lost health insurance and did not go back to the doctor until 2 years ago. My doctor retook brain mri's and with lack of significant change thought the ms diagnosis was wrong. At this time, i was having routine migraines, vision problems, balance issues, extreme bloating, chronic diarrhea. My Dr. found that i was deficient in numerous vitamins, and anemic. My blood pressure was off the charts high also. I was 29 years old. Anyway after all this and many new tests, the ms diagnosis was dropped and i was diagnosed in about a two month span of time with diabetes, celiacs disease, and prolonged q t disorder. I have found that after adhering to the gluten-free diet, taking my medications for my heart and diabetes, all my issues are gone. I have also found that if i accidentally eat something that was contaminated with gluten, with in about two hours I will begin to get a headache, with in 4 hours it will become a migraine. This will usually last for about 2-3 days. No medication for pain helps, just time. If you have any suggestions on what i can do to help when this happens, i am all ears!

0

Share this post


Link to post
Share on other sites


Hi

This sounds rough. My migraines last about 12 to 24 hours, and I have to lie in the dark.

I take paracetamol and dihydrocoedine (UK, not sure what it is there).

I alternate between a hot water bottle and an ice pack (which ever I can stand at that time). I used to use a hot wheat bag, ho ho.

I sometimes use 4head, a rub on stick with levomenthol on my head neck and shoulders, or tiger balm.

Sometimes, once I can stand up I have a shower and go between hot and cold water.

I think each of these work by helping the bloodflow.

I listen to the radio (talk rather than music) as I can't read or watch tv and frankly get bored and lonely. Sometimes I play a relaxation celiac disease. I like ones which do a progressive technique so relax feet, legs, hands, arms etc.

I try to drink water so I dont get dehydrated.

I cover my eyes with a lavender bean bag.

I'm not sure how much all this helps me get rid of the migraines, but it is at least a distraction...

Sorry you have to go through this, hopefully you'll get some good advice (I'll be listening too...)

Good luck

0

Share this post


Link to post
Share on other sites

That's relaxation celiac disease. Think my autocorrect has gone celiac mad...

0

Share this post


Link to post
Share on other sites

No, that must be something the board does. I play a relaxation disc...

0

Share this post


Link to post
Share on other sites

Yes, the board does have some automatic functions. g f is converted to gluten free. I am assuming c d is converted to celiac disease. ;)

0

Share this post


Link to post
Share on other sites

I have had terrible migraines, gastrointestinal issues and extreme stomach bloating, for as long as i can remember. I have taken pain pills, multiple doctors, been to the chiropractor, had bio feed back therapy, you name i have done it. After many tests, 2008 they found i had white matter brain lesions. This prompted a spinal tap and then a tentative MS diagnoses. I then lost health insurance and did not go back to the doctor until 2 years ago. My doctor retook brain mri's and with lack of significant change thought the ms diagnosis was wrong. At this time, i was having routine migraines, vision problems, balance issues, extreme bloating, chronic diarrhea. My Dr. found that i was deficient in numerous vitamins, and anemic. My blood pressure was off the charts high also. I was 29 years old. Anyway after all this and many new tests, the ms diagnosis was dropped and i was diagnosed in about a two month span of time with diabetes, celiacs disease, and prolonged q t disorder. I have found that after adhering to the gluten-free diet, taking my medications for my heart and diabetes, all my issues are gone. I have also found that if i accidentally eat something that was contaminated with gluten, with in about two hours I will begin to get a headache, with in 4 hours it will become a migraine. This will usually last for about 2-3 days. No medication for pain helps, just time. If you have any suggestions on what i can do to help when this happens, i am all ears!

Hi there. I have had migraines thru my life too. The migraine meds never worked for me. I take a benydril go to the darkest room in the house, lay down, and Irish Heart recently had me add an ice pack behind the neck. A very good addition I might add. Eventually when I fall asleep I have to stay asleep at least 5 hours minimum. Any less and it's still there.

It's the only thing that has ever worked for me. Good luck. I hope you find your relief.

0

Share this post


Link to post
Share on other sites

I get gluten migraines too; and have for probably the last 20 years. They usually last a few days to over a week. When they are at their peak, I take Brad Kings Ultimate migraine ... relief/medication... I can't remember the full name. It takes the edge off so I can still see and hear when I stand or make a direction change. It's not gone but the pain is reduced. I've never noticed that it helped with my aura and jumpy vision.

0

Share this post


Link to post
Share on other sites

Yes, the board does have some automatic functions. g f is converted to gluten free. I am assuming c d is converted to celiac disease. ;)

This is true. The letters gf are replaced by gluten-free, and the letters cd are replaced by celiac disease.

You can force them to appear as intended--I just did ;) --by putting something invisible between them:

g[i][/i]f

0

Share this post


Link to post
Share on other sites

For me it's a combo of extra strength Tylenol (used to be ibuprofin but afraid to take it because of DH), to get through the day and antihistimine (Claritin) and then a dark quiet room ASAP and preferably sleep. Sometimes it takes 2 days to go away completely.

Mine se to be triggered by light/sound and bad seasonal allergies. They are much much less now gluten-free.

0

Share this post


Link to post
Share on other sites

To return to the original topic, I used to get ugly migraines, but since going gluten-free twelve years ago I have not had one.

In North America, paracetamol is called acetaminophen generically, and is also sold under the brand name Tylenol.

0

Share this post


Link to post
Share on other sites

If there's any way you can tell when a migraine is coming on, take a pain reliever with caffeine in it (gluten-free obviously) before the pain starts and it should lessen the severity quite a bit. Taking anything after the migraine hits usually doesn't have a big affect. Usually I start to see those floating spots and get tunnel vision before my migraines hit - and then I run for the medicine cabinet! Feel better! :)

0

Share this post


Link to post
Share on other sites

I have had terrible migraines, gastrointestinal issues and extreme stomach bloating, for as long as i can remember. I have taken pain pills, multiple doctors, been to the chiropractor, had bio feed back therapy, you name i have done it. After many tests, 2008 they found i had white matter brain lesions. This prompted a spinal tap and then a tentative MS diagnoses. I then lost health insurance and did not go back to the doctor until 2 years ago. My doctor retook brain mri's and with lack of significant change thought the ms diagnosis was wrong. At this time, i was having routine migraines, vision problems, balance issues, extreme bloating, chronic diarrhea. My Dr. found that i was deficient in numerous vitamins, and anemic. My blood pressure was off the charts high also. I was 29 years old. Anyway after all this and many new tests, the ms diagnosis was dropped and i was diagnosed in about a two month span of time with diabetes, celiacs disease, and prolonged q t disorder. I have found that after adhering to the gluten-free diet, taking my medications for my heart and diabetes, all my issues are gone. I have also found that if i accidentally eat something that was contaminated with gluten, with in about two hours I will begin to get a headache, with in 4 hours it will become a migraine. This will usually last for about 2-3 days. No medication for pain helps, just time. If you have any suggestions on what i can do to help when this happens, i am all ears!

I had 10 years of migraines before I went gluten-free. Only Zomig (zolmitriptan) worked - it is specific for that nerve. Ask your doctor for a prescription and take it next time you have a gluten accident and feel a migraine starting.

0

Share this post


Link to post
Share on other sites

I take a prescription med-maxalt for mine along with a phenergan for the neausa. Since these both knock me out it works.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,669
    • Total Posts
      914,341
  • Topics

  • Posts

    • Even gluten-free Foods Triggering Reaction After Initial Glutening?
      I was glutened in July.  Badly.  I have NO clue as to what got me.  I suspect two things 1) a gluten free store- brand, product that might have been mis-labeled and 2) a prescription generic medication (contacted the manufacturer to confirm a gluten-free status but got the old liability statement of no guarantees).  Both items were NEVER consumed by my gluten free hubby who acts as my canary.     I probably got glutened again by eating out while on vacation even though I only at at restaurants recommended by other celiacs.  The rest of the time I was at my parent's house and I have a dedicated kitchen there for us.   Who knows?  But I was sick with anxiety, tummy issues, vomiting, the works.  It was strange since anemia was my original symptom and I really did not have tummy issues at the time of my diagnosis.  So, celiac symptoms can evolve at least for me!  Six weeks after my first sign of a glutening, I was tested by my new GI because I was not getting well.  He thought I had SIBO or bile duct issues. I asked for celiac blood testing.    Turns out it was gluten all along!   During my glutening, I became lactose intolerant again, could only eat stewed foods because everything hurt to get through my digestive tract.   I was a basket case for three months.    Did I mention new problems resulting from my glutening?  Hives, itching, vomiting, passing out and tummy aches almost daily.  Anti-histamines helped.    My GP thinks I am her most "allergic" patient.  Except it was more like a histamine intolerance or a mast cell issue not allergies.   Who knows?  The hives eventually resolved as I healed from my glutening.    I refuse to test the two items that were suspect.    No way!    Three months later, I got dairy back.  Six months later I am eating gluten free anything....without any issues.  I also do not take any meds (except for Armour Thyroid) , supplements, eat out and I avoid even processed gluten-free items.  But, I feel great.     I suppose that I will eventually slip up and get glutened again.  But I am working hard not too.  I like feeling well.   So, really look to your diet.  I bet you just keep getting glutened.  Stick to whole foods, follow the FODMAP diet and wait.  Wait.  Wait.    
    • Lower left abdominal, left pelvic & other random pains
      Chiro?  Hubby went to one with a shoulder injury as recommended by our GP. It was a great experience.    I always resisted.  Why?  Just a "gut" feeling.  Good thing.  My bones started fracturing on their own.  I can not imagine anyone manipulating me now.  If you have celiac disease, get a bone scan first.  Just saying.......
    • Gluten or SIBO; Should I gluten challenge to find out?
      Noobette, sure did use gluten-free oats! I even had to test the oats alone before the test as they sometimes give me problems, probably due to fodmap.  As an update, my symptoms became bad enough that we aborted the challenge. My colleague revealed I was eating the gluten! So I skipped the decoy sample to just get this over with. I'm not sure that my symptoms were celiac, but they were bad either way. Headaches, blurpy noisy gut, fatigue, fogginess, bloating, gas, pains. But those are vague, I'll find out for sure in a few more weeks. 
    • Gluten free diet, positive celiac screen...what should I eat now?
      After my blood test (DGP IgA positive), I went crazy eating gluten until my endoscopy.  Because of work issues, I waited for seven weeks.  Seven weeks of saying goodbye to my favorite gluteny foods!  I knew what was coming going gluten free since my hubby has been gluten free for over 14 years.  I was eating a loaf of sourdough a day besides cakes and cookies.  Yum!  But the bad news was that by the time my endoscopy rolled around, I was experiencing tummy issues (just had anemia before).  So, my advice is to take time to say goodbye to gluten, but do not be a glutton (like me!)  
    • Gluten free diet, positive celiac screen...what should I eat now?
      It's okay if you have more than 1 cracker a day; the challenge is saying you must have at least 1 cracker a day so if you want to have more that's absolutely fine. In fact, if you want to gorge on all your favorite gluten goodies from now until the endoscopy then have at it because it looks like you'll be saying goodbye to it all after the endoscopy. You say it's about a month till you see the GI doc..... it will be longer until an endoscopy because the GI will have to order it & it will have to get scheduled.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      59,684
    • Most Online
      1,763

    Newest Member
    Nikkishine
    Joined