Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Migraines
0

13 posts in this topic

I have had terrible migraines, gastrointestinal issues and extreme stomach bloating, for as long as i can remember. I have taken pain pills, multiple doctors, been to the chiropractor, had bio feed back therapy, you name i have done it. After many tests, 2008 they found i had white matter brain lesions. This prompted a spinal tap and then a tentative MS diagnoses. I then lost health insurance and did not go back to the doctor until 2 years ago. My doctor retook brain mri's and with lack of significant change thought the ms diagnosis was wrong. At this time, i was having routine migraines, vision problems, balance issues, extreme bloating, chronic diarrhea. My Dr. found that i was deficient in numerous vitamins, and anemic. My blood pressure was off the charts high also. I was 29 years old. Anyway after all this and many new tests, the ms diagnosis was dropped and i was diagnosed in about a two month span of time with diabetes, celiacs disease, and prolonged q t disorder. I have found that after adhering to the gluten-free diet, taking my medications for my heart and diabetes, all my issues are gone. I have also found that if i accidentally eat something that was contaminated with gluten, with in about two hours I will begin to get a headache, with in 4 hours it will become a migraine. This will usually last for about 2-3 days. No medication for pain helps, just time. If you have any suggestions on what i can do to help when this happens, i am all ears!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi

This sounds rough. My migraines last about 12 to 24 hours, and I have to lie in the dark.

I take paracetamol and dihydrocoedine (UK, not sure what it is there).

I alternate between a hot water bottle and an ice pack (which ever I can stand at that time). I used to use a hot wheat bag, ho ho.

I sometimes use 4head, a rub on stick with levomenthol on my head neck and shoulders, or tiger balm.

Sometimes, once I can stand up I have a shower and go between hot and cold water.

I think each of these work by helping the bloodflow.

I listen to the radio (talk rather than music) as I can't read or watch tv and frankly get bored and lonely. Sometimes I play a relaxation celiac disease. I like ones which do a progressive technique so relax feet, legs, hands, arms etc.

I try to drink water so I dont get dehydrated.

I cover my eyes with a lavender bean bag.

I'm not sure how much all this helps me get rid of the migraines, but it is at least a distraction...

Sorry you have to go through this, hopefully you'll get some good advice (I'll be listening too...)

Good luck

0

Share this post


Link to post
Share on other sites

That's relaxation celiac disease. Think my autocorrect has gone celiac mad...

0

Share this post


Link to post
Share on other sites

No, that must be something the board does. I play a relaxation disc...

0

Share this post


Link to post
Share on other sites

Yes, the board does have some automatic functions. g f is converted to gluten free. I am assuming c d is converted to celiac disease. ;)

0

Share this post


Link to post
Share on other sites




I have had terrible migraines, gastrointestinal issues and extreme stomach bloating, for as long as i can remember. I have taken pain pills, multiple doctors, been to the chiropractor, had bio feed back therapy, you name i have done it. After many tests, 2008 they found i had white matter brain lesions. This prompted a spinal tap and then a tentative MS diagnoses. I then lost health insurance and did not go back to the doctor until 2 years ago. My doctor retook brain mri's and with lack of significant change thought the ms diagnosis was wrong. At this time, i was having routine migraines, vision problems, balance issues, extreme bloating, chronic diarrhea. My Dr. found that i was deficient in numerous vitamins, and anemic. My blood pressure was off the charts high also. I was 29 years old. Anyway after all this and many new tests, the ms diagnosis was dropped and i was diagnosed in about a two month span of time with diabetes, celiacs disease, and prolonged q t disorder. I have found that after adhering to the gluten-free diet, taking my medications for my heart and diabetes, all my issues are gone. I have also found that if i accidentally eat something that was contaminated with gluten, with in about two hours I will begin to get a headache, with in 4 hours it will become a migraine. This will usually last for about 2-3 days. No medication for pain helps, just time. If you have any suggestions on what i can do to help when this happens, i am all ears!

Hi there. I have had migraines thru my life too. The migraine meds never worked for me. I take a benydril go to the darkest room in the house, lay down, and Irish Heart recently had me add an ice pack behind the neck. A very good addition I might add. Eventually when I fall asleep I have to stay asleep at least 5 hours minimum. Any less and it's still there.

It's the only thing that has ever worked for me. Good luck. I hope you find your relief.

0

Share this post


Link to post
Share on other sites

I get gluten migraines too; and have for probably the last 20 years. They usually last a few days to over a week. When they are at their peak, I take Brad Kings Ultimate migraine ... relief/medication... I can't remember the full name. It takes the edge off so I can still see and hear when I stand or make a direction change. It's not gone but the pain is reduced. I've never noticed that it helped with my aura and jumpy vision.

0

Share this post


Link to post
Share on other sites

Yes, the board does have some automatic functions. g f is converted to gluten free. I am assuming c d is converted to celiac disease. ;)

This is true. The letters gf are replaced by gluten-free, and the letters cd are replaced by celiac disease.

You can force them to appear as intended--I just did ;) --by putting something invisible between them:

g[i][/i]f

0

Share this post


Link to post
Share on other sites

For me it's a combo of extra strength Tylenol (used to be ibuprofin but afraid to take it because of DH), to get through the day and antihistimine (Claritin) and then a dark quiet room ASAP and preferably sleep. Sometimes it takes 2 days to go away completely.

Mine se to be triggered by light/sound and bad seasonal allergies. They are much much less now gluten-free.

0

Share this post


Link to post
Share on other sites

To return to the original topic, I used to get ugly migraines, but since going gluten-free twelve years ago I have not had one.

In North America, paracetamol is called acetaminophen generically, and is also sold under the brand name Tylenol.

0

Share this post


Link to post
Share on other sites

If there's any way you can tell when a migraine is coming on, take a pain reliever with caffeine in it (gluten-free obviously) before the pain starts and it should lessen the severity quite a bit. Taking anything after the migraine hits usually doesn't have a big affect. Usually I start to see those floating spots and get tunnel vision before my migraines hit - and then I run for the medicine cabinet! Feel better! :)

0

Share this post


Link to post
Share on other sites

I have had terrible migraines, gastrointestinal issues and extreme stomach bloating, for as long as i can remember. I have taken pain pills, multiple doctors, been to the chiropractor, had bio feed back therapy, you name i have done it. After many tests, 2008 they found i had white matter brain lesions. This prompted a spinal tap and then a tentative MS diagnoses. I then lost health insurance and did not go back to the doctor until 2 years ago. My doctor retook brain mri's and with lack of significant change thought the ms diagnosis was wrong. At this time, i was having routine migraines, vision problems, balance issues, extreme bloating, chronic diarrhea. My Dr. found that i was deficient in numerous vitamins, and anemic. My blood pressure was off the charts high also. I was 29 years old. Anyway after all this and many new tests, the ms diagnosis was dropped and i was diagnosed in about a two month span of time with diabetes, celiacs disease, and prolonged q t disorder. I have found that after adhering to the gluten-free diet, taking my medications for my heart and diabetes, all my issues are gone. I have also found that if i accidentally eat something that was contaminated with gluten, with in about two hours I will begin to get a headache, with in 4 hours it will become a migraine. This will usually last for about 2-3 days. No medication for pain helps, just time. If you have any suggestions on what i can do to help when this happens, i am all ears!

I had 10 years of migraines before I went gluten-free. Only Zomig (zolmitriptan) worked - it is specific for that nerve. Ask your doctor for a prescription and take it next time you have a gluten accident and feel a migraine starting.

0

Share this post


Link to post
Share on other sites

I take a prescription med-maxalt for mine along with a phenergan for the neausa. Since these both knock me out it works.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,348
    • Total Posts
      917,428
  • Topics

  • Posts

    • Newbie Mom - How is my son feeling?
      I know there has been a lot of suggestions to go and talk to you doctor already - so I am on repeat - to get the best / accurate results - gluten should be eaten prior to the scope being done.    I hope that you can get/ or already have been able to get the appointment bumped up  - keep calling the doctors office and keep pressing them to move your appointment closer - I have appointments move up many times! 
    • What do I even do now?
      Hi, Lacey.    Sounds like you have tried  a lot.   I just read the post that you have tried some of Dr. Axe's suggestions - that is great to see that they are helping!   Have you done any specific work before with any of the other practitioners to specifically heal the gut?    Keep us posted on the Dr. Axe protocol and don't hesitate to reach out if you have any Q's! 
    • Silent Celiac or Non-digestive symptoms
      O I feel your Migraine pain!  That was my one and only symptoms for YEARS and YEARS..... until one day finally it all turned into tummy problems and joint issues, (the list goes on and on...)   Often you will notice your "main" symptom/s appear pretty soon after eating gluten (some its minutes, others its a day or so..).  Following the proper diet strictly you should be able to drastically reduce those pains in head.  Vitamin deficiency isn't likely to happen after one episode of being glutened - it is usually accumulative of your body not being able to absorb the nutrients (because of the damage done by gluten over time).  Have you had your vitamin levels currently checked?  (Bringing certain vitamins / minerals back into balance can help alleviate the migraines faster!)     
    • Newbie: mother to coeliac kids
      How scary to watch your child go through what you have seen.  I wish you huge luck with both biopsies.      In urge before you and your daughter go gluten free - celiac can also be "silent" - and it is very common and normal to run in direct relatives- I would HIGHLY RECOMMEND you and your other children (even your spouse) seeking appropriate testing BEFORE going on a gluten free diet in support!   I was 17 when I was diagnosed - and although your son is feeling the way he is, and it will be an adjustment period, he will figure out how to eat with and do normal things with his friends.  Let us know how the biopsies go!     
    • Weird Reaction
      Flowerqueen, I usually tolerate coffee pretty well and my DNA profile said I was a fast metaboliser of coffee but I have to do a fasted blood test on Tuesday morning so I won't be able to have coffee til much later than normal. I'll see if it makes a difference. The shaking isn't actually physically shaking so nobody would be able to tell but it's a shakey type feeling if you know what I mean. And usually when I'm nauseas I look pale but I don't with this type of nausea. I had a few buckwheat pancakes earlier with some maple syrup, gluten-free ice-cream and LSA and felt a bit better straight after that but the nausea returned not long after that with fast heartbeat and anxiety and burping. This thing is terrible. I have no appetite at all. I feel a bit tired and even speaking feels a bit funny.....weird!! All this is still normal though, right??    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,485
    • Most Online
      1,763

    Newest Member
    KKJ
    Joined