Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Brain Issues
0

17 posts in this topic

Hello Peeps,

One of my most noticeable symptoms during my time with undiagnosed celiac was memory loss. It was mostly an issue with remembering faces. I am happy to say that being gluten free has restored my memory, and removed the social anxiety that comes with not remembering people you've know for years. I'm wondering what is the root cause of the neuro issues with celiac...Is it the auto-immune response attacking the brain or is it malnutrition from malabsorption that leads to the brain issues. Anyone know?

0

Share this post


Link to post
Share on other sites


Ads by Google:

At the conferences I've attended, it's been pointed out that the blood flow to the frontal lobes is reduced in celiacs who eat gluten. Also, plaques can form throughout the brain. Take a look in the articles section of this site, because there are some interesting articles on neurological damage to the brain.

0

Share this post


Link to post
Share on other sites

I have been thinking about this a lot lately. I have spent many years working with people with special needs and am continually finding links with gluten sensitivity and/or celiac disease. For example many people with Down Syndrome have Celiac Disease. I also read recently that women with Celiac Disease are more likely to have children with Autism.

I just finished reading a book, "Pretending to be Normal", about a woman who has Asperger's Syndrome but did not find out until she was an adult. It got me thinking about "weird quirks" I've had throughout my life. When I was a kid I hated wearing socks because "the seams hurt my feet" and to this day I literally can not stand the sound of people rubbing their feet on the carpet. These could be linked to Sensory Perception Disorder. My mother told me that when I was young I would throw the worst tantrums for hours over what seemed like absolutely nothing and that she could not get me to stop. It makes me wonder what link is here that we are missing, and if we could figure it out we might really be onto something. Also, a little off subject but what about scoliosis? Could this be due to celiac disease and malnourishment?

I know that is a whole lot of slightly disconnected thoughts, but it's just really been on my mind lately.

0

Share this post


Link to post
Share on other sites

I think that it is auto immune and not malabsorption since the symptoms come on quickly upon accidental ingestion of gluten.

1

Share this post


Link to post
Share on other sites

For me gluten ( and soy) has caused "brain" issues. My neurologist stopped short of diagnosing ataxia mainly because she could not believe my issues were caused by soy ( I had only been gluten free for about 8 months at the time) :rolleyes: .

All I know is when I am glutened or ingest soy I have memory/ataxia/ brain issues .

0

Share this post


Link to post
Share on other sites




I think that it is auto immune and not malabsorption since the symptoms come on quickly upon accidental ingestion of gluten.

That is the case for me also. I also have what are called UBO's, or Unidentified Bright Objects which are lesions that are diagnostic of the autoimmune attack on the brain.

0

Share this post


Link to post
Share on other sites

I've been wondering about this too. My son has pretty bad motor delays and I've always been very clumsy, in addition to forgetful and flaky before my diagnosis. I know in young children fat is essential to the developing brain. So I do think the malabsorption of fats could play into it. I think the brain needs fats on an ongoing basis, so it might just shut some wings off, the way you would close rooms in a big house if you only had so much wood to burn.

0

Share this post


Link to post
Share on other sites

My son has ADHD and scored "lower" on long term memory 92 even though his full scale IQ is 118. The doctor believes that his celiac was triggered two to three years ago which was exactly when we noticed a huge drop in reading scores and reading comprehension. Math no problems at all. All other scores at or above grade level. Reading/ memory in the second to early third grade range. He is in the fourth grade. So I definitely think celiac plays a huge role in all of this( oh and I must say that the testing was done 2 weeks prior to his official celiac diagnosis.

0

Share this post


Link to post
Share on other sites

Hi

A bit late coming to this, I know, but with gluten I used to have balance issues. Only a little but enough to be a nuisance and make me self conscious - comparable to getting up after a large glass of wine! Also slightly clumsy, knocking myself on things. I also do one morning a week requiring mental arithmatic and with gluten the numbers are in a thick soup in my brain. Happy to say without gluten my balance is fine and my brain agile.

I have taken this as a warning of what could happen in the future without being gluten free - gluten directly affects my brain!

0

Share this post


Link to post
Share on other sites

There are many articles about neurological impairment, gluten ataxia and celiac.

I think it may be both ---autoimmunity and the complications of long term UnDXed celiac disease and malabsorption.

Many vitamin, mineral and amino acid deficiencies can cause memory issues..

I had so many of them myself for 3 horrible years and suffered what I call "gluten head" (and they come back if glutened accidentally)

One says:

"patients who develop neurological dysfunction should be carefully screened for these. However, malabsorption does not satisfactorily explain the pathophysiology and clinical course of many of the associated neurological disorders. Other mechanisms proposed include altered autoimmunity, heredity, and gluten toxicity"

That citation is found here:

http://www.ncbi.nlm.nih.gov/pubmed/12151653

Here are some other articles:

http://www.livingwithout.com/issues/4_12/ataxia-2366-1.html

http://www.livingwithout.com/issues/1_11/untreated_gluten_sensitivity-1800-1.html

and

https://sites.google.com/site/jccglutenfree/theneurologicalmanifestationsofgluten

0

Share this post


Link to post
Share on other sites

I have been thinking when my body picks up gluten, or something else it doesn't like, it just shuts off getting nutrients.

Diana

0

Share this post


Link to post
Share on other sites

"Gluten Head" - that's what it is !!! New medical term, I think :P .

0

Share this post


Link to post
Share on other sites

"Gluten Head" - that's what it is !!! New medical term, I think :P .

Copyrighted by IrishHeart 2011

first used in a conversation with EatMeat4Good.

(she'll vouch for me) :D

I call what I lived in Gluten Head Hell

(will probably be the title of my book.)

Cracked up my GI doc with that one. He asked if he "could use it". I said "Go for it dude"

but give me props when you do.

.

(not really funny back then "during it" --not funny at all)

0

Share this post


Link to post
Share on other sites

The Op hasn't been back since "he" posted this. Wonder if the "gluten head" caused him to forget his password? :)

This happened to me. I made a Facebook page and promptly forgot the password. Then realized I had entered the email wrong, too!

0

Share this post


Link to post
Share on other sites

Another aspect of Gluten Head - when glutened on waking in morning I have to go through the days of the week to work out what day it is! Had no idea this was caused by gluten until gluten free!

0

Share this post


Link to post
Share on other sites

I'd have conversations with my colleague, turn to my computer to start working on whatever we'd discussed (literally seconds late), and then have to ask her what we were talking about. Happily, 2 + years gluten free and I am now *much* better at remembering.

Hi

A bit late coming to this, I know, but with gluten I used to have balance issues. Only a little but enough to be a nuisance and make me self conscious - comparable to getting up after a large glass of wine! Also slightly clumsy, knocking myself on things. I also do one morning a week requiring mental arithmatic and with gluten the numbers are in a thick soup in my brain. Happy to say without gluten my balance is fine and my brain agile.

I have taken this as a warning of what could happen in the future without being gluten free - gluten directly affects my brain!

Me too. I used to crash into everything, I couldn't handle walking in crowds because I had so much trouble not walking into people who were walking towards me. It was really scary reading about gluten ataxia and how bad some people had it and it was what made me so dedicated to going strictly gluten free even without a diagnosis. It took about 6 months to resolve. Scary how it can affect the brain.

0

Share this post


Link to post
Share on other sites

My motor issues have improved a lot in just a few weeks. The other day I was wearing shorts and I asked my husband if he noticed anything different. He looked down and immediately said, "There aren't any bruises on your legs"!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,374
    • Total Posts
      920,570
  • Topics

  • Posts

    • https://www.facebook.com/groups/SingaporeCeliacs/
    • Today was the big day when I went to the GI and this is the first time I have felt heard about and well taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a celiac disease to me with the records, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten due to what being He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • I'm new to the forum, so this topic may already have been covered....please forgive me, if that's the case.  I am in the beginning stages of guiding the development of a 504 plan to file for my 6th-grade daughter who was diagnosed with Celiac Disease 2 weeks ago. The diagnosis was made with a biopsy. My first question...A 504 is what's necessary....not just the IHCP, correct or no? I have the Physician's Statement & the Medical Evaluation report from our GI specialist. What else do I need to have at the ready? The team has requested we go ahead and write the IHCP & then include it with the 504.  And my second question...What accommodations have others found relevant to include on the IHCP  & 504? I just watched a 504-Plan webinar I found on this forum & it recommends the following: -access to gluten-free food in classroom & cafeteria - excused absence from activities that use gluten-containing foods or materials -  prevent cross-contamination in school food service - use of microwave to heat personal meals -  bathroom priveleges Is there anything I need to consider adding? My daughter does prefer eating school meals rather than packing a lunch from home & I am concerned about special events, overnight field trips etc. My learning curve is steep. What am I missing? Teach me, please & thanks so much! This forum has already helped me tremendously these past few weeks.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,450
    • Most Online
      1,763

    Newest Member
    Chellygirl
    Joined