Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Last Ditch Rant.... Con't
0

10 posts in this topic

Continuation of other "last ditch rant" post

So last week I was in the ER for right flank pain again. I thought it was my liver again since I was having so many problems with it and fats. They took a urine sample and said it looked like I had a UTI but they cultured it to be sure. So Monday the 17th they called and said it was definitely a UTI and called in some antibiotics. So I start Keflex Monday and starting Tuesday all my GI problems die down. No more gas, bloating or D/C. Reflux has even died down. So should I assume this is SIBO?

I ended my antibiotics yesterday and all my problems came back 10 fold. Joint pain, malabsorbtion, food/fat intolerances, liver pain, dry mouth, depression, gas, bloating and D/C. My GI wants me to take an HBT test and wait 2 weeks for the results before treating me with new antibiotics. I can't live like this for 2 more weeks. I can barely eat anything!! When I was on Keflex I was able to eat fats again, it was great! Now I can't. I am still waiting my DNA Stool test results that I took with my nutritionist. They come back today, maybe my GI DR will accept those results and put my back on antibiotics based on them. I am already on Theralac probiotics since April but that doesn't help either.

I hear SIBO just keeps coming back every time you kill it. This is a nightmare. What would happen if I checked myself into a hospital for depression and got put on TPN and antibiotics/probiotics? Would this all go away then? I am suffering terribly from malnutrition, my hair is falling out in huge clumps no matter how much vitamin D and others I take. What can I do??

0

Share this post


Link to post
Share on other sites


Ads by Google:

Antibiotics kill the bacteria in your gut, both the good and the bad. You can take probiotics every day to re-establish the good bacteria. Avoiding sugars and carbs for a while would be a good idea also. I suggest you load up on probiotics and drop all sugar for a while. Several weeks at least.

0

Share this post


Link to post
Share on other sites

I had problems with urinary tract infections, including hospitalizations since I was a child, probably due to undiagnosed celiac disease. As a teen I started drinking cranberry juice and it helped enormously to control the infections. I only had problems when I stopped drinking the juice, and I could control them again by resuming it. Here is a reference on a study.

http://women.webmd.com/news/20100823/cranberry-juice-fights-urinary-tract-infection-quickly

0

Share this post


Link to post
Share on other sites

I had problems with urinary tract infections, including hospitalizations since I was a child, probably due to undiagnosed celiac disease. As a teen I started drinking cranberry juice and it helped enormously to control the infections. I only had problems when I stopped drinking the juice, and I could control them again by resuming it. Here is a reference on a study.

http://women.webmd.com/news/20100823/cranberry-juice-fights-urinary-tract-infection-quickly

This is good information and one which I try to tell those with UTI problems. You can also purchase cranberry capsules, which have concentrated cranberry powder, in case cranberry juice is too sweet. I have only ever had one UTI in my life and I did not even need to take an antibiotic as the capsules got rid of it. It works really well.

0

Share this post


Link to post
Share on other sites

Ok I saw my Nutritionist today with the DNA stool results. It looks like I have a massive yeast infection in the gut. I asked him why the antibiotics made me feel so much better and he feels the probiotic I was on "theralac" was not the right one I needed and the antibiotics killed it and it made me feel better. I guess it was doing more harm then good. He put me on a regimen that follows the DNA print out. It includes all items from Standard Process vitamin line like, Gastro Fiber, Prosynbiotic, Cranberry Complex, Vitanox and Gut Flora Complex. I took my first doses about 45 minutes ago and I don't seem to be intolerant to any of them yet so I am hoping this works. He told me to expect a large herx response but to keep taking them no matter what. I guess we will see...

0

Share this post


Link to post
Share on other sites




Ok I saw my Nutritionist today with the DNA stool results. It looks like I have a massive yeast infection in the gut. I asked him why the antibiotics made me feel so much better and he feels the probiotic I was on "theralac" was not the right one I needed and the antibiotics killed it and it made me feel better. I guess it was doing more harm then good. He put me on a regimen that follows the DNA print out. It includes all items from Standard Process vitamin line like, Gastro Fiber, Prosynbiotic, Cranberry Complex, Vitanox and Gut Flora Complex. I took my first doses about 45 minutes ago and I don't seem to be intolerant to any of them yet so I am hoping this works. He told me to expect a large herx response but to keep taking them no matter what. I guess we will see...

LittleMel....if you do have a systemic yeast infection, taking these supplements will not get rid of the problem. They may help a bit with gut balance but systemic yeast infections require a strict "no sugar" diet and an anti-fungal medication. These are just the standard supplements people sell to make a lot

of money. Natural supplements do not eradicate a yeast problem.

0

Share this post


Link to post
Share on other sites

I have shown my GI the yeast test results but she still will not give me an Anti Fungal medicine. She wants to run more tests first. Gah~ Can this thing drag out any more!!

0

Share this post


Link to post
Share on other sites

I have shown my GI the yeast test results but she still will not give me an Anti Fungal medicine. She wants to run more tests first. Gah~ Can this thing drag out any more!!

I know, I know....extremely frustrating. They always seem to want to run way too many tests while your suffering goes on. I am sorry and hope you get some results and what you need to feel better soon!

0

Share this post


Link to post
Share on other sites

They need to find the reason for the UTI. Some people have reflux were some of the urine backs up inside of them instead of exiting. This can cause a UTI. In my daughter's case it was not that. It was caffeine! The caffeine was an irritant to her bladder/urethtra. Because it hurt her so much to pee, she wasn't drinking as much liquid as she should be or urinating as often as she should have. The Dr. limited her to one caffeine containing drink per day. Told her to drink a lot of water. And to switch to showers rather than baths.

Other things that can cause UTIs are diabetes and kidney problems. And then there are times when we just don't know. This happened to my friend. She wound up in the hospital with symptoms that didn't seem like a UTI. But they were.

0

Share this post


Link to post
Share on other sites

So sorry to hear about your trouble! :-(

I would definitely look into the yeast overgrowth diet. You may need to stay on that for many years, to be honest. Some with systemic yeast infections do. Although there are even cookbooks to help with this, like 'The Yeast Connection Cookbook.'

Also, I don't know if this will help - it just has a few suggestions in general - but it might: http://www.valley-fever.org/valley_fever_org_natural_therapies.html

Valley fever, the disease mentioned in the link, is a fungal lung infection that can become systemic. There is currently no cure for it; the best hope is to help the body fight it off so that it goes into remission, but it can re-emerge at any time. Western medicine uses some anti-fungal meds for this purpose, but the valley fever community also tries out various nutritional and food based help, as well, which the above link shows a few of. Consuming larger amounts of garlic is one of them. I know that fresh herbs, especially uncooked, have been studied and found to have slightly antibacterial and anti-fungal properties, so that might be worth adding to your food, too. Certainly won't hurt, right?

As both the yeast and the valley fever are all fungus, it might be of some use. :-)

I have shown my GI the yeast test results but she still will not give me an Anti Fungal medicine. She wants to run more tests first. Gah~ Can this thing drag out any more!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,116
    • Total Posts
      919,451
  • Topics

  • Posts

    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,155
    • Most Online
      1,763

    Newest Member
    AndiR
    Joined