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Last Ditch Rant.... Con't
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10 posts in this topic

Continuation of other "last ditch rant" post

So last week I was in the ER for right flank pain again. I thought it was my liver again since I was having so many problems with it and fats. They took a urine sample and said it looked like I had a UTI but they cultured it to be sure. So Monday the 17th they called and said it was definitely a UTI and called in some antibiotics. So I start Keflex Monday and starting Tuesday all my GI problems die down. No more gas, bloating or D/C. Reflux has even died down. So should I assume this is SIBO?

I ended my antibiotics yesterday and all my problems came back 10 fold. Joint pain, malabsorbtion, food/fat intolerances, liver pain, dry mouth, depression, gas, bloating and D/C. My GI wants me to take an HBT test and wait 2 weeks for the results before treating me with new antibiotics. I can't live like this for 2 more weeks. I can barely eat anything!! When I was on Keflex I was able to eat fats again, it was great! Now I can't. I am still waiting my DNA Stool test results that I took with my nutritionist. They come back today, maybe my GI DR will accept those results and put my back on antibiotics based on them. I am already on Theralac probiotics since April but that doesn't help either.

I hear SIBO just keeps coming back every time you kill it. This is a nightmare. What would happen if I checked myself into a hospital for depression and got put on TPN and antibiotics/probiotics? Would this all go away then? I am suffering terribly from malnutrition, my hair is falling out in huge clumps no matter how much vitamin D and others I take. What can I do??

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Antibiotics kill the bacteria in your gut, both the good and the bad. You can take probiotics every day to re-establish the good bacteria. Avoiding sugars and carbs for a while would be a good idea also. I suggest you load up on probiotics and drop all sugar for a while. Several weeks at least.

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I had problems with urinary tract infections, including hospitalizations since I was a child, probably due to undiagnosed celiac disease. As a teen I started drinking cranberry juice and it helped enormously to control the infections. I only had problems when I stopped drinking the juice, and I could control them again by resuming it. Here is a reference on a study.

http://women.webmd.com/news/20100823/cranberry-juice-fights-urinary-tract-infection-quickly

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I had problems with urinary tract infections, including hospitalizations since I was a child, probably due to undiagnosed celiac disease. As a teen I started drinking cranberry juice and it helped enormously to control the infections. I only had problems when I stopped drinking the juice, and I could control them again by resuming it. Here is a reference on a study.

http://women.webmd.com/news/20100823/cranberry-juice-fights-urinary-tract-infection-quickly

This is good information and one which I try to tell those with UTI problems. You can also purchase cranberry capsules, which have concentrated cranberry powder, in case cranberry juice is too sweet. I have only ever had one UTI in my life and I did not even need to take an antibiotic as the capsules got rid of it. It works really well.

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Ok I saw my Nutritionist today with the DNA stool results. It looks like I have a massive yeast infection in the gut. I asked him why the antibiotics made me feel so much better and he feels the probiotic I was on "theralac" was not the right one I needed and the antibiotics killed it and it made me feel better. I guess it was doing more harm then good. He put me on a regimen that follows the DNA print out. It includes all items from Standard Process vitamin line like, Gastro Fiber, Prosynbiotic, Cranberry Complex, Vitanox and Gut Flora Complex. I took my first doses about 45 minutes ago and I don't seem to be intolerant to any of them yet so I am hoping this works. He told me to expect a large herx response but to keep taking them no matter what. I guess we will see...

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Ok I saw my Nutritionist today with the DNA stool results. It looks like I have a massive yeast infection in the gut. I asked him why the antibiotics made me feel so much better and he feels the probiotic I was on "theralac" was not the right one I needed and the antibiotics killed it and it made me feel better. I guess it was doing more harm then good. He put me on a regimen that follows the DNA print out. It includes all items from Standard Process vitamin line like, Gastro Fiber, Prosynbiotic, Cranberry Complex, Vitanox and Gut Flora Complex. I took my first doses about 45 minutes ago and I don't seem to be intolerant to any of them yet so I am hoping this works. He told me to expect a large herx response but to keep taking them no matter what. I guess we will see...

LittleMel....if you do have a systemic yeast infection, taking these supplements will not get rid of the problem. They may help a bit with gut balance but systemic yeast infections require a strict "no sugar" diet and an anti-fungal medication. These are just the standard supplements people sell to make a lot

of money. Natural supplements do not eradicate a yeast problem.

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I have shown my GI the yeast test results but she still will not give me an Anti Fungal medicine. She wants to run more tests first. Gah~ Can this thing drag out any more!!

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I have shown my GI the yeast test results but she still will not give me an Anti Fungal medicine. She wants to run more tests first. Gah~ Can this thing drag out any more!!

I know, I know....extremely frustrating. They always seem to want to run way too many tests while your suffering goes on. I am sorry and hope you get some results and what you need to feel better soon!

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They need to find the reason for the UTI. Some people have reflux were some of the urine backs up inside of them instead of exiting. This can cause a UTI. In my daughter's case it was not that. It was caffeine! The caffeine was an irritant to her bladder/urethtra. Because it hurt her so much to pee, she wasn't drinking as much liquid as she should be or urinating as often as she should have. The Dr. limited her to one caffeine containing drink per day. Told her to drink a lot of water. And to switch to showers rather than baths.

Other things that can cause UTIs are diabetes and kidney problems. And then there are times when we just don't know. This happened to my friend. She wound up in the hospital with symptoms that didn't seem like a UTI. But they were.

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So sorry to hear about your trouble! :-(

I would definitely look into the yeast overgrowth diet. You may need to stay on that for many years, to be honest. Some with systemic yeast infections do. Although there are even cookbooks to help with this, like 'The Yeast Connection Cookbook.'

Also, I don't know if this will help - it just has a few suggestions in general - but it might: http://www.valley-fever.org/valley_fever_org_natural_therapies.html

Valley fever, the disease mentioned in the link, is a fungal lung infection that can become systemic. There is currently no cure for it; the best hope is to help the body fight it off so that it goes into remission, but it can re-emerge at any time. Western medicine uses some anti-fungal meds for this purpose, but the valley fever community also tries out various nutritional and food based help, as well, which the above link shows a few of. Consuming larger amounts of garlic is one of them. I know that fresh herbs, especially uncooked, have been studied and found to have slightly antibacterial and anti-fungal properties, so that might be worth adding to your food, too. Certainly won't hurt, right?

As both the yeast and the valley fever are all fungus, it might be of some use. :-)

I have shown my GI the yeast test results but she still will not give me an Anti Fungal medicine. She wants to run more tests first. Gah~ Can this thing drag out any more!!

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
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