Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Last Ditch Rant.... Con't
0

10 posts in this topic

Continuation of other "last ditch rant" post

So last week I was in the ER for right flank pain again. I thought it was my liver again since I was having so many problems with it and fats. They took a urine sample and said it looked like I had a UTI but they cultured it to be sure. So Monday the 17th they called and said it was definitely a UTI and called in some antibiotics. So I start Keflex Monday and starting Tuesday all my GI problems die down. No more gas, bloating or D/C. Reflux has even died down. So should I assume this is SIBO?

I ended my antibiotics yesterday and all my problems came back 10 fold. Joint pain, malabsorbtion, food/fat intolerances, liver pain, dry mouth, depression, gas, bloating and D/C. My GI wants me to take an HBT test and wait 2 weeks for the results before treating me with new antibiotics. I can't live like this for 2 more weeks. I can barely eat anything!! When I was on Keflex I was able to eat fats again, it was great! Now I can't. I am still waiting my DNA Stool test results that I took with my nutritionist. They come back today, maybe my GI DR will accept those results and put my back on antibiotics based on them. I am already on Theralac probiotics since April but that doesn't help either.

I hear SIBO just keeps coming back every time you kill it. This is a nightmare. What would happen if I checked myself into a hospital for depression and got put on TPN and antibiotics/probiotics? Would this all go away then? I am suffering terribly from malnutrition, my hair is falling out in huge clumps no matter how much vitamin D and others I take. What can I do??

0

Share this post


Link to post
Share on other sites


Ads by Google:

Antibiotics kill the bacteria in your gut, both the good and the bad. You can take probiotics every day to re-establish the good bacteria. Avoiding sugars and carbs for a while would be a good idea also. I suggest you load up on probiotics and drop all sugar for a while. Several weeks at least.

0

Share this post


Link to post
Share on other sites

I had problems with urinary tract infections, including hospitalizations since I was a child, probably due to undiagnosed celiac disease. As a teen I started drinking cranberry juice and it helped enormously to control the infections. I only had problems when I stopped drinking the juice, and I could control them again by resuming it. Here is a reference on a study.

http://women.webmd.com/news/20100823/cranberry-juice-fights-urinary-tract-infection-quickly

0

Share this post


Link to post
Share on other sites

I had problems with urinary tract infections, including hospitalizations since I was a child, probably due to undiagnosed celiac disease. As a teen I started drinking cranberry juice and it helped enormously to control the infections. I only had problems when I stopped drinking the juice, and I could control them again by resuming it. Here is a reference on a study.

http://women.webmd.com/news/20100823/cranberry-juice-fights-urinary-tract-infection-quickly

This is good information and one which I try to tell those with UTI problems. You can also purchase cranberry capsules, which have concentrated cranberry powder, in case cranberry juice is too sweet. I have only ever had one UTI in my life and I did not even need to take an antibiotic as the capsules got rid of it. It works really well.

0

Share this post


Link to post
Share on other sites

Ok I saw my Nutritionist today with the DNA stool results. It looks like I have a massive yeast infection in the gut. I asked him why the antibiotics made me feel so much better and he feels the probiotic I was on "theralac" was not the right one I needed and the antibiotics killed it and it made me feel better. I guess it was doing more harm then good. He put me on a regimen that follows the DNA print out. It includes all items from Standard Process vitamin line like, Gastro Fiber, Prosynbiotic, Cranberry Complex, Vitanox and Gut Flora Complex. I took my first doses about 45 minutes ago and I don't seem to be intolerant to any of them yet so I am hoping this works. He told me to expect a large herx response but to keep taking them no matter what. I guess we will see...

0

Share this post


Link to post
Share on other sites




Ok I saw my Nutritionist today with the DNA stool results. It looks like I have a massive yeast infection in the gut. I asked him why the antibiotics made me feel so much better and he feels the probiotic I was on "theralac" was not the right one I needed and the antibiotics killed it and it made me feel better. I guess it was doing more harm then good. He put me on a regimen that follows the DNA print out. It includes all items from Standard Process vitamin line like, Gastro Fiber, Prosynbiotic, Cranberry Complex, Vitanox and Gut Flora Complex. I took my first doses about 45 minutes ago and I don't seem to be intolerant to any of them yet so I am hoping this works. He told me to expect a large herx response but to keep taking them no matter what. I guess we will see...

LittleMel....if you do have a systemic yeast infection, taking these supplements will not get rid of the problem. They may help a bit with gut balance but systemic yeast infections require a strict "no sugar" diet and an anti-fungal medication. These are just the standard supplements people sell to make a lot

of money. Natural supplements do not eradicate a yeast problem.

0

Share this post


Link to post
Share on other sites

I have shown my GI the yeast test results but she still will not give me an Anti Fungal medicine. She wants to run more tests first. Gah~ Can this thing drag out any more!!

0

Share this post


Link to post
Share on other sites

I have shown my GI the yeast test results but she still will not give me an Anti Fungal medicine. She wants to run more tests first. Gah~ Can this thing drag out any more!!

I know, I know....extremely frustrating. They always seem to want to run way too many tests while your suffering goes on. I am sorry and hope you get some results and what you need to feel better soon!

0

Share this post


Link to post
Share on other sites

They need to find the reason for the UTI. Some people have reflux were some of the urine backs up inside of them instead of exiting. This can cause a UTI. In my daughter's case it was not that. It was caffeine! The caffeine was an irritant to her bladder/urethtra. Because it hurt her so much to pee, she wasn't drinking as much liquid as she should be or urinating as often as she should have. The Dr. limited her to one caffeine containing drink per day. Told her to drink a lot of water. And to switch to showers rather than baths.

Other things that can cause UTIs are diabetes and kidney problems. And then there are times when we just don't know. This happened to my friend. She wound up in the hospital with symptoms that didn't seem like a UTI. But they were.

0

Share this post


Link to post
Share on other sites

So sorry to hear about your trouble! :-(

I would definitely look into the yeast overgrowth diet. You may need to stay on that for many years, to be honest. Some with systemic yeast infections do. Although there are even cookbooks to help with this, like 'The Yeast Connection Cookbook.'

Also, I don't know if this will help - it just has a few suggestions in general - but it might: http://www.valley-fever.org/valley_fever_org_natural_therapies.html

Valley fever, the disease mentioned in the link, is a fungal lung infection that can become systemic. There is currently no cure for it; the best hope is to help the body fight it off so that it goes into remission, but it can re-emerge at any time. Western medicine uses some anti-fungal meds for this purpose, but the valley fever community also tries out various nutritional and food based help, as well, which the above link shows a few of. Consuming larger amounts of garlic is one of them. I know that fresh herbs, especially uncooked, have been studied and found to have slightly antibacterial and anti-fungal properties, so that might be worth adding to your food, too. Certainly won't hurt, right?

As both the yeast and the valley fever are all fungus, it might be of some use. :-)

I have shown my GI the yeast test results but she still will not give me an Anti Fungal medicine. She wants to run more tests first. Gah~ Can this thing drag out any more!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,625
    • Total Posts
      918,382
  • Topics

  • Posts

    • puffiness in face
      The puffiness in my face went down a lot after I went gluten free. Old photos shock me sometimes now! Your doctor should be able to test you for food intolerance? Here in UK I did tests for wheat, nut, mustard etc. You can do a blood test and there's also skin prick tests I think, am sure others here would know more.  Good luck    
    • glutened by lays potato chips?
      Here in the UK I can't eat Lay's owned Walkers crisps as even the ones without gluten ingredients can cause a reaction. I read it was something to do with their production processes. Looks like others have same problems too:  
    • Newly diagnosed and totally overwhelmed
      Don't apologise! Not needed here at least where people know exactly what you're going through. As Cyclinglady says, you're now in a grieving process for the former, carefree attitude to food you've now lost. You may find this helpful in understanding the psychological journey you're on: http://psychcentral.com/lib/the-5-stages-of-loss-and-grief/ It WILL get better. Eating cleanly is very good advice as you heal but you can then find the replacement snacks and treats that are safe to eat.  I now know which chocolate bars are ok, which brands of crisps (chips) are safe etc.  I don't drink now, but I did find there were some fantastic ciders that I could tolerate and you've always got wine! In fact one of the weirder discoveries post gluten was that my past (vicious) hangovers were far more about gluten reactions than the alcohol itself. A cider hangover is a breeze in comparison All the best!  
    • glutened by lays potato chips?
      I ate some baked lays last night and felt very sick all night and haven't been feeling great all day today. Other than that I didn't eat anything different from what I normally eat and there was no risk of cross contamination with anything.. These were the only thing I had that was different. They're labeled gluten free so I figured it would be okay, but I started feeling sick pretty soon after eating them. I'm not sure if it's another ingredient in them or what (and i know it's not the soy).. Has anyone else had a reaction to lays potato chips?
    • Symptoms In Toddlers?
      Welcome Ashley! Here are the current tests.  The DGP versions seem to work a bit better than the TTG in small children.  So, ask for the complete panel (and get it all in one stick....my 15 year still hates to get blood drawn ! http://www.cureceliacdisease.org/screening/ Your doctors are wrong!  They must be reading old medical text books.  Not all kids or people have failure to thrive!  You can even be symptom free!. I was anemic and had no intestinal issues when I was diagnosed.  celiac disease affects everyone differently and that's probably why so many folks are not diagnosed. Your kids (parents, siblings too) should be tested every few years (sooner if symptoms develop) per all the leading celiac researchers/doctors if a first-degree relative has celiac disease (like you!)  celiac disease can develop at any age! Hope this helps!   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,717
    • Most Online
      1,763

    Newest Member
    Acomys
    Joined