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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Dehydration
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8 posts in this topic

hello and good morning all:)

Just wondering if anyone as dealt with this along their journey.

Because I am obviously malabsorbing everything I have started to get dehydrated the last week. I first noticed I was very pasty in my mouth abd white tongue despite how much water I am drinking as well as my bottom eyelids are white rather than red/pink. I'm thinking this could be the reason that my heart rate as been jumping over 100 this week as well. Can anyone suggest any vitamins I could try while I wait to see doctor in a few days. They must also be sugar free as well. Any ideas would be appreciated xo

Have a great morning xo

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I also had dehydration for quite some time, hon but I also have a hubs who pestered me to drink water all day long. When I was very dehydrated pre-DX from (I'll just say it) vomiting and the Big D, he had me drinking 16 oz. glasses of water with a tsp. of salt/a TBLS. of sugar in it to balance my electrolytes. It was that --or go to the ER for a bag of saline again. It helped immensely.

That said, I drink about 68-72 ounces of water a day now and I found that being hydrated helps with muscle and tissue repair as well as a keeping a clear head, smooth -running bowels, and better digestion.

My heart palps stopped, the "funky tongue" cleared up, my kidneys function better (the doc loved my last lab test results) and I push water on everyone now.

I say: Drink up! It may take some time for all these issues to resolve. Hang in there.

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Can you do coconut? I was having dehydration problems with a recent cold. My tongue was cleaving to the roof of my mouth. I believe my red eyes might have been assoicated with the dehydration. Water just seemed to be going straight through. I tried coconut water. In a couple of hours my mouth was moistened again. It seemed to stick better than water.

I look for a brand that has only Coconut water in it. Young coconut water actually tastes good. I read that Coconut water can be a good sport drink and that is what made me think of it. Regular sport drinks aren't hydrating and are too much sugar for me.

It advertised that it has natural potassium in it. My only problem is that I bought out all 4 bottles at the local store and need to go further for more. One store has 4 different brands of coconut water for me to choose from!

Diana

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I think you are actually having symptoms of anemia (low iron).

Please see your doctor. You should start with tests to see what your iron level is and where it needs to be. There is a serious problem of taking too much iron called toxicity.

Symptoms of iron defiency... paleness (can be noticed first in areas known to be pink, like gums of the mouth), heart palpatations, weakness, constipation, and the list goes on.

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I think you are actually having symptoms of anemia (low iron).

Please see your doctor. You should start with tests to see what your iron level is and where it needs to be. There is a serious problem of taking too much iron called toxicity.

Symptoms of iron defiency... paleness (can be noticed first in areas known to be pink, like gums of the mouth), heart palpatations, weakness, constipation, and the list goes on.

Brilliant advice!!!!

I had B-12, iron and folate anemias--and yes, they all can cause those symptoms as well.

And I echo the thought-do not start supplementing until your levels are checked.

Nice catch, mommida :)

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I have dehydration problems as well and would like to second irishheart's suggestion with the salt sugar water. It has helped myself alot. My recipe is a shake of salt and one teaspoon sugar to about 20 ounces of filtered water. Also I'd like to add that I don't consume any other added salt or sugar on my diet. I also no longer have any blood pressure or blood sugar problems to worry about so I'm not worried about adding in more salt or sugar.( I still check my BP daily ) Too me this water reminds me of milk, so it shouldnt taste bad or weird, if it does add more water. I also gave up caffeine recently because coffee was simulating my bowels alot, and it seems that I would have to pee before I even set my cup down. Now I have to get up in the middle of the night to pee, for the first time ever! The salt/sugar makes the water stick. Oh and since I'm taking b12 now I never even think about caffine . I'm almost two years gluten-free now and I think I've almost figured it all out with the help of this board and a few posters. I'm Med free too! ( only vitamins and ptobiotics ) Two years ago I was on a high dose of hypertension meds that barely worked, asthma inhailer that didn't help my lung function, Ppi's that didn't help and I'm only 31!

Also, I am somewhat underweight with very low fat from the years of malabsorbson and the salt sugar water makes my obnoxiously large veins on my arms dissappear.

Gluten free, dairy/casien free, msg free, caffine free, alcohol free, headache free, grumpy free ;)

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I'm almost two years gluten-free now and I think I've almost figured it all out with the help of this board and a few posters. I'm Med free too! ( only vitamins and ptobiotics ) Two years ago I was on a high dose of hypertension meds that barely worked, asthma inhailer that didn't help my lung function, Ppi's that didn't help and I'm only 31!

Also, I am somewhat underweight with very low fat from the years of malabsorbson and the salt sugar water makes my obnoxiously large veins on my arms dissappear.

Gluten free, dairy/casien free, msg free, caffine free, alcohol free, headache free, grumpy free ;)

"Grumpy-free" :D ...Love this.

Congrats on your rebound to good health!

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More vegetables, you need the fiber in them to hold the moisture in your gut. Put the stuff in a blender for a smoothie with a piece of fruit, if you can't stand the thought of just eating it.

Other than that, I agree w/ the above suggestions that you sound like you're also a bit anemic. At one point I was sucking down blackstrap molasses every day like manna as a source of iron, besides gluten free B complex vitamins/mineral supplements. If you can't do the home made electrolyte sugar/salt in water, (normal summer temps here hit a high of 100

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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