Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Cystoscopy
0

5 posts in this topic

Hi just wondered if anyone has had the Cystoscopy test ? If there is anyone who has had the test under local anaesthetic I have a few questions ?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi tennisman, I've had Cystoscopy, with no anaesthetic. (I did not have hydrodistension - if you're getting hydro, from what I've read, you'll need general anaesthetic.) I am a woman, so our experiences might be different, but I'd be happy to answer any questions.

Is this to look for bladder damage related to IC?

0

Share this post


Link to post
Share on other sites

Hi archaeo in FL , Thanks for the reply . Did the Cystoscopy hurt without anaesthetic ? I'm not sure what hydrodistension is ? I had a Cystoscopy last week it caused sharp pain at the start and near the end of the test . I also had a lot of pain and some swelling after and just wanted to know how long it took for you to recover ? I have read online it can take anything from a few hours to a few weeks. I'm sure having celiac disease also slows down recovery times too .

I had to have a Cystoscopy because I have a slow urine flow and blood in the urine . My doctor said the Cystoscopy test results were normal . I need to have urodynamics testing have you had them tests ?

I have been looking online but it's difficult to find an answer about the local anaesthetic injection . Because for the Cystoscopy the local anaesthetic injection was very painful and I did do the start of the urodynamics testing and had the local anaesthetic injection again and it caused sharp pain i'm not really sure if that's normal or not . I tried looking online but can't really find much about the local anaesthetic injection , I only find stories about the Cystoscopy part of the test .

0

Share this post


Link to post
Share on other sites

Hi archaeo in FL , Thanks for the reply . Did the Cystoscopy hurt without anaesthetic ? I'm not sure what hydrodistension is ? I had a Cystoscopy last week it caused sharp pain at the start and near the end of the test . I also had a lot of pain and some swelling after and just wanted to know how long it took for you to recover ? I have read online it can take anything from a few hours to a few weeks. I'm sure having celiac disease also slows down recovery times too .

I had to have a Cystoscopy because I have a slow urine flow and blood in the urine . My doctor said the Cystoscopy test results were normal . I need to have urodynamics testing have you had them tests ?

I have been looking online but it's difficult to find an answer about the local anaesthetic injection . Because for the Cystoscopy the local anaesthetic injection was very painful and I did do the start of the urodynamics testing and had the local anaesthetic injection again and it caused sharp pain i'm not really sure if that's normal or not . I tried looking online but can't really find much about the local anaesthetic injection , I only find stories about the Cystoscopy part of the test .

Hello again Tennisman, I know this is no fun, and I'm so sorry you're having to go through it! Hydrodistension is when they fill your bladder with water to see how much it can hold. It is also easier to see the little "sores" that are typical of IC when the bladder is distended, so it's used as part of the diagnosis for IC. IC bladders tend not to hold as much, too. It sounds like for you, with sharp pain at the start and the end, that placing the catheter and removing it may be what caused the pain.

Having normal Cystoscopy results is good; it sounds like IC might not be the issue for you. I'm sure a lot of things can cause slow urine flow and blood in the urine, and they're just having to try to figure out what. They might be two different things, though, and it'll be important to pursue the cause of both if it's not one cause.

I have not had urodynamics. I did have to keep a voiding journal, on which I recorded all liquid in (amount and time) and all liquid out (amount and time) - so I had to carry around this ridiculous plastic cover for a toilet seat to measure output. If you ever have to do that it'll likely be a lot easier; you could get a Nalgene and only use it for urine and measure output that way!

Being catheterized in any way is exceptionally uncomfortable for me. I understand that some folks have to cath themselves just to void, and that it's not bad for everyone, but even using a pediatric catheter on me causes a lot of pain, especially afterward. It's uncomfortable during, but far worse after my first void after being cathed, and for several days after. If you're in pain I'd call them and ask for a painkiller; you can also buy some decent ones over the counter (urised or uristat or similar, they're sometimes with the "women's care" stuff in drug stores if you can't find them) and that may help. Also, in the future ask them if they can use a pediatric catheter whenever they need to use one, and to use a local anaesthetic (even just a topical can often help).

I really don't know anything about a local anaesthetic injection for those tests, where they'd be or what they might cause. If you continue to have swelling and pain I'd definitely call them, something bad might be going on, including a potential reaction to what was in the injection. They should be happy to see you for a follow up and try to make you as comfortable as possible!

0

Share this post


Link to post
Share on other sites

Hi archaeo in FL , Thanks , I hope all the tests will be over soon and we will figure out what's going on . I'm not sure if I had the Hydrodistension , I know near the end of the test they filled my bladder up with water so they could see more in the bladder i'm not if that is the same thing or similar ? That part caused bad pain , I remember the doctor saying the prostate is not relaxing and that could be causing the slow urine flow . I don't think I had a catheter . The part at the start that hurt was the local anaesthetic injection , it caused sharp pain , I also had to have the local anaesthetic injection at the start of the urodynamics test which caused the same sharp pain .

Yeh normal results is great , but it makes me think I went through the test for nothing . I worried a lot about the test it seems frustrating all the worry etc and no progress made . My doctor hasn't said anything about IC , so it's probably not the problem . I was sent to see the urologist by my Gastro doctor who thinks I have kidney stones . I have been getting non celiac related stomach pains for over 4 years now and my Gastro thinks stomach pain , blood in the urine and a slow urine flow could be caused by kidney stones but my urologist doesn't think kidney stones is the problem . I hope the urologist can figure out what is going on and if it's causing the stomach pains too .

I had to do the voiding journal as part of the urodynamics testing , I only recorded 3 days as that was the time I had between getting the letter and going for the test . That must have been a pain carrying around the plastic cover . I used an old measuring jug it was only 500ml almost overflowed once or twice ! But as I stopped the urodynamic test after I had the painful local anaesthetic injection I probably need to re schedule the urodynamic tests and maybe record everything again , did the doctor find out lots from your voiding journal ?

The catheter sounds very painful . I read online in some people it's causing excruciating pain and some people feel no pain which seems strange as it sounds very painful . I can imagine the pain being bad after , the pain I had passing urine after the Cystoscopy was very bad especially after the local anaesthetic wore off ! Did you find drinking water helped your symptoms after the catheter ? My doctor gave me some strong pain killers for before the Cystoscopy but I don't they helped much . I will look for the tablets you mentioned , and ask for the pediatric catheter.

I'm going to see the urologist later in the week and will ask questions about the local anaesthetic injections and why they were causing pain and it that was normal . I'm hoping the pain and swelling is completely gone by than ! I was going to ring the hospital because since the local anaesthetic injection for the urodynamics I have felt exhausted have a headache etc and didn't know if it was related or not . I remember my last endoscopy I had hallucinations for a few days after and the doctor found it funny :S

Thanks again for the advice and information :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,116
    • Total Posts
      919,451
  • Topics

  • Posts

    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,154
    • Most Online
      1,763

    Newest Member
    calla84
    Joined