Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Cystoscopy
0

5 posts in this topic

Hi just wondered if anyone has had the Cystoscopy test ? If there is anyone who has had the test under local anaesthetic I have a few questions ?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi tennisman, I've had Cystoscopy, with no anaesthetic. (I did not have hydrodistension - if you're getting hydro, from what I've read, you'll need general anaesthetic.) I am a woman, so our experiences might be different, but I'd be happy to answer any questions.

Is this to look for bladder damage related to IC?

0

Share this post


Link to post
Share on other sites

Hi archaeo in FL , Thanks for the reply . Did the Cystoscopy hurt without anaesthetic ? I'm not sure what hydrodistension is ? I had a Cystoscopy last week it caused sharp pain at the start and near the end of the test . I also had a lot of pain and some swelling after and just wanted to know how long it took for you to recover ? I have read online it can take anything from a few hours to a few weeks. I'm sure having celiac disease also slows down recovery times too .

I had to have a Cystoscopy because I have a slow urine flow and blood in the urine . My doctor said the Cystoscopy test results were normal . I need to have urodynamics testing have you had them tests ?

I have been looking online but it's difficult to find an answer about the local anaesthetic injection . Because for the Cystoscopy the local anaesthetic injection was very painful and I did do the start of the urodynamics testing and had the local anaesthetic injection again and it caused sharp pain i'm not really sure if that's normal or not . I tried looking online but can't really find much about the local anaesthetic injection , I only find stories about the Cystoscopy part of the test .

0

Share this post


Link to post
Share on other sites

Hi archaeo in FL , Thanks for the reply . Did the Cystoscopy hurt without anaesthetic ? I'm not sure what hydrodistension is ? I had a Cystoscopy last week it caused sharp pain at the start and near the end of the test . I also had a lot of pain and some swelling after and just wanted to know how long it took for you to recover ? I have read online it can take anything from a few hours to a few weeks. I'm sure having celiac disease also slows down recovery times too .

I had to have a Cystoscopy because I have a slow urine flow and blood in the urine . My doctor said the Cystoscopy test results were normal . I need to have urodynamics testing have you had them tests ?

I have been looking online but it's difficult to find an answer about the local anaesthetic injection . Because for the Cystoscopy the local anaesthetic injection was very painful and I did do the start of the urodynamics testing and had the local anaesthetic injection again and it caused sharp pain i'm not really sure if that's normal or not . I tried looking online but can't really find much about the local anaesthetic injection , I only find stories about the Cystoscopy part of the test .

Hello again Tennisman, I know this is no fun, and I'm so sorry you're having to go through it! Hydrodistension is when they fill your bladder with water to see how much it can hold. It is also easier to see the little "sores" that are typical of IC when the bladder is distended, so it's used as part of the diagnosis for IC. IC bladders tend not to hold as much, too. It sounds like for you, with sharp pain at the start and the end, that placing the catheter and removing it may be what caused the pain.

Having normal Cystoscopy results is good; it sounds like IC might not be the issue for you. I'm sure a lot of things can cause slow urine flow and blood in the urine, and they're just having to try to figure out what. They might be two different things, though, and it'll be important to pursue the cause of both if it's not one cause.

I have not had urodynamics. I did have to keep a voiding journal, on which I recorded all liquid in (amount and time) and all liquid out (amount and time) - so I had to carry around this ridiculous plastic cover for a toilet seat to measure output. If you ever have to do that it'll likely be a lot easier; you could get a Nalgene and only use it for urine and measure output that way!

Being catheterized in any way is exceptionally uncomfortable for me. I understand that some folks have to cath themselves just to void, and that it's not bad for everyone, but even using a pediatric catheter on me causes a lot of pain, especially afterward. It's uncomfortable during, but far worse after my first void after being cathed, and for several days after. If you're in pain I'd call them and ask for a painkiller; you can also buy some decent ones over the counter (urised or uristat or similar, they're sometimes with the "women's care" stuff in drug stores if you can't find them) and that may help. Also, in the future ask them if they can use a pediatric catheter whenever they need to use one, and to use a local anaesthetic (even just a topical can often help).

I really don't know anything about a local anaesthetic injection for those tests, where they'd be or what they might cause. If you continue to have swelling and pain I'd definitely call them, something bad might be going on, including a potential reaction to what was in the injection. They should be happy to see you for a follow up and try to make you as comfortable as possible!

0

Share this post


Link to post
Share on other sites

Hi archaeo in FL , Thanks , I hope all the tests will be over soon and we will figure out what's going on . I'm not sure if I had the Hydrodistension , I know near the end of the test they filled my bladder up with water so they could see more in the bladder i'm not if that is the same thing or similar ? That part caused bad pain , I remember the doctor saying the prostate is not relaxing and that could be causing the slow urine flow . I don't think I had a catheter . The part at the start that hurt was the local anaesthetic injection , it caused sharp pain , I also had to have the local anaesthetic injection at the start of the urodynamics test which caused the same sharp pain .

Yeh normal results is great , but it makes me think I went through the test for nothing . I worried a lot about the test it seems frustrating all the worry etc and no progress made . My doctor hasn't said anything about IC , so it's probably not the problem . I was sent to see the urologist by my Gastro doctor who thinks I have kidney stones . I have been getting non celiac related stomach pains for over 4 years now and my Gastro thinks stomach pain , blood in the urine and a slow urine flow could be caused by kidney stones but my urologist doesn't think kidney stones is the problem . I hope the urologist can figure out what is going on and if it's causing the stomach pains too .

I had to do the voiding journal as part of the urodynamics testing , I only recorded 3 days as that was the time I had between getting the letter and going for the test . That must have been a pain carrying around the plastic cover . I used an old measuring jug it was only 500ml almost overflowed once or twice ! But as I stopped the urodynamic test after I had the painful local anaesthetic injection I probably need to re schedule the urodynamic tests and maybe record everything again , did the doctor find out lots from your voiding journal ?

The catheter sounds very painful . I read online in some people it's causing excruciating pain and some people feel no pain which seems strange as it sounds very painful . I can imagine the pain being bad after , the pain I had passing urine after the Cystoscopy was very bad especially after the local anaesthetic wore off ! Did you find drinking water helped your symptoms after the catheter ? My doctor gave me some strong pain killers for before the Cystoscopy but I don't they helped much . I will look for the tablets you mentioned , and ask for the pediatric catheter.

I'm going to see the urologist later in the week and will ask questions about the local anaesthetic injections and why they were causing pain and it that was normal . I'm hoping the pain and swelling is completely gone by than ! I was going to ring the hospital because since the local anaesthetic injection for the urodynamics I have felt exhausted have a headache etc and didn't know if it was related or not . I remember my last endoscopy I had hallucinations for a few days after and the doctor found it funny :S

Thanks again for the advice and information :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,502
  • Topics

  • Posts

    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined