Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Frustrated With My Diet That's Not Working
0

10 posts in this topic

So far I've eliminated: gluten, xanthan gum, rice, and corn. I take a Lactaid pill when I eat dairy. I need to drink milk to take my meds else I will get ill, I also eat cheese and cottage cheese for protein.

My newest symptom: ingestion of ice cream (well, frozen yogurt) results in a severe depressive state to the point where I'm considering doing myself in and crying uncontrollably. Yes, I tried ice cream, because I found a brand that was gluten free and that was without xanthan gum.

Aside from that, my mood overall is unstable. Sometimes I'm up and sometimes I'm down. Today, I'm up. However, the fatigue is doing me in. I sleep too much, it's difficult to pry myself out of bed. My rash is back. Concentration is really difficult in class, memory problems are abudant. I'm spacey, zoning in and out a lot. I'm constantly nauseated. Periodic lightheadedness. Also, my hair is falling out, it's incredibly thin right now. I'm horrified that I'm losing my hair, not exaggerating on the word horrified either. So, somehow I'm eating something that's not agreeing with me. Can anybody tell me what it could be. These are the ONLY foods I ate for the past 2 weeks.

- prepackaged peach fruit cup (no stated gluten, xanthan gum, etc)

- fat free milk

- raw apples

- extra sharp cheddar cheese

- raw carrots

- orange juice

- fat-free cottage cheese

- omega-3 eggs

- smart balance butter

- pepper

- sun dried raisins

- sun dried cranberries

- fat free yogurt

- vegetable soup (no gluten, etc)

- peppermint tea (from a tea bag with hot water)

- diet snapple/occasional diet soda

- water

- one serving Chex (caused problems)

- one serving ice cream (caused problems)

Obviously, that's not alot to choose from. I have no idea what is causing the symptoms. Maybe someone could point me in the right direction?

0

Share this post


Link to post
Share on other sites


Ads by Google:

So far I've eliminated: gluten, xanthan gum, rice, and corn. I take a Lactaid pill when I eat dairy. I need to drink milk to take my meds else I will get ill, I also eat cheese and cottage cheese for protein.

My newest symptom: ingestion of ice cream (well, frozen yogurt) results in a severe depressive state to the point where I'm considering doing myself in and crying uncontrollably. Yes, I tried ice cream, because I found a brand that was gluten free and that was without xanthan gum.

Aside from that, my mood overall is unstable. Sometimes I'm up and sometimes I'm down. Today, I'm up. However, the fatigue is doing me in. I sleep too much, it's difficult to pry myself out of bed. My rash is back. Concentration is really difficult in class, memory problems are abudant. I'm spacey, zoning in and out a lot. I'm constantly nauseated. Periodic lightheadedness. Also, my hair is falling out, it's incredibly thin right now. I'm horrified that I'm losing my hair, not exaggerating on the word horrified either. So, somehow I'm eating something that's not agreeing with me. Can anybody tell me what it could be. These are the ONLY foods I ate for the past 2 weeks.

- prepackaged peach fruit cup (no stated gluten, xanthan gum, etc)

- fat free milk

- raw apples

- extra sharp cheddar cheese

- raw carrots

- orange juice

- fat-free cottage cheese

- omega-3 eggs

- smart balance butter

- pepper

- sun dried raisins

- sun dried cranberries

- fat free yogurt

- vegetable soup (no gluten, etc)

- peppermint tea (from a tea bag with hot water)

- diet snapple/occasional diet soda

- water

- one serving Chex (caused problems)

- one serving ice cream (caused problems)

Obviously, that's not alot to choose from. I have no idea what is causing the symptoms. Maybe someone could point me in the right direction?

I don't have any advice on what's causing the symptoms and without knowing your history, have you had your thyroid checked? For symptoms as severe as you describe, especially the suicidal thoughts/urges, I'd recommend getting yourself to a doctor ASAP.

0

Share this post


Link to post
Share on other sites

Honestly, I'd find a replacement for the dairy (there are other sources of protein - I saw neither beans nor nuts on your list, for instance) and see if it helps. Dairy is a common culprit, and you've already identified that you've felt bad after eating a dairy item.

0

Share this post


Link to post
Share on other sites

You are right. This is not alot to choose from. There is very little protein or fresh produce here. Over half of this list is dairy or processed foods.

Are you getting enough calories daily - at least 1500?

Have you been tested for specific nutrient deficiencies?

Are you taking any vitamin/mineral supplements?

Have you tried removing dairy before - maybe take meds with almond milk?

Can you eat lean meat or fish?

Diet drinks can cause some of your symptoms - switch to mostly water along with some juice and tea.

How did you end up with this list? Sure hope I'm not coming across harsh - just don't think you can get enough nutrients with this list.

0

Share this post


Link to post
Share on other sites

I'm sorry to hear you are having a bad time of it at the moment. I agree with other comments already on here. I would definitely get your thyroid checked as those symptoms sound familiar, but it could be a nutritional issue, as the symptoms can be similar - although I'm not a doctor I'm just speaking from personal experience. I urge you to see your doctor as soon as possible as it's a complex issue and needs to be investigated thoroughly. Don't lose heart, there are a lot of us that have gone through bad times and there's always someone on here to give you advice or a friendly ear.

Good luck and let us all know how you get on.

0

Share this post


Link to post
Share on other sites




((hugs)). :( I am sorry you are having such a rough go.

I too think you should go back to the doctor and look for other things... Other autoimmune diseases especially. Hypothyroidism is one but there are others that can affect your mood energy and hair... I think the majority of AI's cause those problems.

I hope you feel better soon.

0

Share this post


Link to post
Share on other sites

Great replies from the others, but I wanted to throw in my comment that when looking at your list, the one item that jumped out at me as one I had issues with; and that was smartbalance. I've gone back to real (salted) butter, and that's what I'd suggest for you too.

0

Share this post


Link to post
Share on other sites

Have you considered that it may not be the lactose (milk sugar) that you are having problems with on the dairy issue, but the casein (milk protein)? I had a similar problem when I first started. I was strictly gluten free so couldn't understand why I felt so poorly - for me mostly neural disorders. I stopped ingesting dairy and then even soy and that's when I had the breakthrough amazing results.

If you're past the withdrawal stage (feeling worse before you feel better) after eliminating gluten, then you may want to consider eliminating dairy altogether for now to see if you feel any better. But I want to mention that typical butter, cheese, cottage cheese, ice cream, yogurt, sour cream, etc., contains casein. The other culprit for me turned out to be soy, which was making me just as sick as gluten and dairy. Read those labels and note that some SmartBalance contains soy. I'm no scientist, but because my symptoms were the same for gluten, dairy and soy ingestion, it would appear that my body was interpreting each of those protein molecules in the same way. From what I understand, it's very common. And if it's not found to be dairy or soy, then there are other food group intolerances that may be causing you continued trouble. But it's liberating to finally wheedle down to what it is so you can feel great everyday of your life.

Also, keep in mind that while you'll never be able to tolerate gluten, many who give up dairy (and soy) find they can reincorporate it into their diet after some months.

0

Share this post


Link to post
Share on other sites

So far I've eliminated: gluten, xanthan gum, rice, and corn. I take a Lactaid pill when I eat dairy. I need to drink milk to take my meds else I will get ill, I also eat cheese and cottage cheese for protein.

My newest symptom: ingestion of ice cream (well, frozen yogurt) results in a severe depressive state to the point where I'm considering doing myself in and crying uncontrollably. Yes, I tried ice cream, because I found a brand that was gluten free and that was without xanthan gum.

Aside from that, my mood overall is unstable. Sometimes I'm up and sometimes I'm down. Today, I'm up. However, the fatigue is doing me in. I sleep too much, it's difficult to pry myself out of bed. My rash is back. Concentration is really difficult in class, memory problems are abudant. I'm spacey, zoning in and out a lot. I'm constantly nauseated. Periodic lightheadedness. Also, my hair is falling out, it's incredibly thin right now. I'm horrified that I'm losing my hair, not exaggerating on the word horrified either. So, somehow I'm eating something that's not agreeing with me. Can anybody tell me what it could be. These are the ONLY foods I ate for the past 2 weeks.

- prepackaged peach fruit cup (no stated gluten, xanthan gum, etc)

- fat free milk

- raw apples

- extra sharp cheddar cheese

- raw carrots

- orange juice

- fat-free cottage cheese

- omega-3 eggs

- smart balance butter

- pepper

- sun dried raisins

- sun dried cranberries

- fat free yogurt

- vegetable soup (no gluten, etc)

- peppermint tea (from a tea bag with hot water)

- diet snapple/occasional diet soda

- water

- one serving Chex (caused problems)

- one serving ice cream (caused problems)

Obviously, that's not alot to choose from. I have no idea what is causing the symptoms. Maybe someone could point me in the right direction?

what additives are in the fat free cottage cheese and yogurt to give them the proper "mouth feel", and PLEASE can the diet soft drinks, ASAP.

1

Share this post


Link to post
Share on other sites

Agreed be rid of the diet stuff. They often add sugar alternatives to them that aren't so good for your body.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,679
    • Total Posts
      921,707
  • Topics

  • Posts

    • egs1707. Are you in Canada?  It's NOT a good idea to go gluten free between now & the GI appt. and here's why.... MOST of us have MUCH stronger reactions to gluten when we go back on it for the endoscopy. A lot of people have had such strong reactions that they have been entirely unable to complete the challenge and have to call it quits. This means they never get an official dx. It's your call, you make the choice. However, I will say that you don't have to eat a lot of gluten, a couple saltines or a slice of bread per day. 
    • You mentioned the tight head. Yes, both my celiac sibling and I had head pressure. Mine was horrible last glutening with eye pain as well. Like someone put a vice around my temples. I swore it felt like a parasite infected my gut, thyroid and brain. It is going away mostly, still have it on and off a bit.  My brother said his naturopath informed him some celiacs get a bit of inflammation in the brain.   
    • Hi All this is my blood test result 1.immunogloblulin serum 203 ( 87-350) 2.Deamidated Gliadin IGA  4 ( 0-19 negative) 3.Deamidated Gliadin IGG 3(0-19 negative) 4.Transglutainase IGA <2 ( 0-3 negative) 5.Transglutainase IGG <2 ( 0-3 negative) does it mean most likely no celiac ? thanks.  
    • At the moment it's microwave rice packets as it needs to be something easy for lunch at work. What do you choose for breakfast? At the moment I have gluten-free porridge oats with fruits but also seeing oats are a bit of a gamble in the early days. Trying to figure out how long a reaction takes to show up i.e. if I feel ropey later in the day is it really lunch as I'm blaming at present or actually is it something from the morning or even night before? The food is the toughest bit for me right now; wasn't that great with it before so will need plenty ideas from you good people... seems I'm in the right place though   
    • I know what you're going through - it's that grieving process and it's tough.  I was diagnosed in 2013, and aside from an occasional pity party, I don't look back. I have my restaurants where I feel safe, I have the food I know I can eat, and I get on with my life.  I'm lucky that I live in a big city with lots of options, but you can make this work, and you will feel better and once you do, you'll stop grieving.  The people on this site helped enormously. It is tough in the beginning to know if you've been 'glutened' vs. just going through withdrawal.  For that reason alone, it's best to avoid restaurants for a little while and be careful at home - just to be sure what's happening.  Eventually you'll be able to get back to your version of 'normal'.  Oh, I also have hypothyroid/hashimoto's.  No big deal, I take synthroid. Quinoa, eggs, nuts and beans for protein.  You don't have to go crazy on the cooking.  Just eat a lot of whole foods.  There are a lot of complicated recipes out there, but now may not be the time.  Rice noodles in veggie bouillon - easy and cheap.  gluten-free pasta with olive oil, parmesan and garlic - easy.  I eat a lot of rice and have never had a problem - you're not getting it out of one of those bulk bins, are you?  That could be contaminated.  Go with packaged.  Do you have access to the Macro Vegetarian brand of prepared rice dishes (in the refrigerated section).  They have several that are gluten free, they're delicious heated and with a little gluten-free soy sauce.  They're my go to on days I don't want to cook. Good luck!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,677
    • Most Online
      3,093

    Newest Member
    Jessica123
    Joined