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Lutein Free Diet
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I've heard that many children with Autistic Spectrum Disorder have IBS.

I've noticed that over the years, I've always felt queasy after eating carrots. From what I've read carrots are high in lutein type substances.

Lutein sensitivity sounds like it's common in ASD. I've only just heard about this issue myself and it seems like it may just fit the bill.

What are your thoughts?

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Before you search for other, less likely causes for your issues, try being gluten free for 6 months-no cheating - no magic "cure" pills. Maybe dairy free, too. Try the more likely things first.

I would ask you for your reputable source for this "I have heard" info but, this isn't an autism site, so most of us don't follow the research.

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I've never heard of that. Gluten, however, has been known to make things worse.

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Carrots bother me too. So I don't eat them anymore. With celiac disease the damage to the gut can lead to food intolerances of many kinds. Carrots are one of them, for some of us.

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Your eyes require lutein to function properly. Go on a lutein free diet and you are shooting yourself in the foot- not to mention you will probably starve since it is in nearly everything from leafy vegetables to animal fats.

There isn't really any actual scientific evidence that *-free diets are useful in reducing the symptoms of autism anyway, and this is certainly the most extreme iteration of that trend I've seen. The evidence is all anecdotal and doesn't bear out when you do actual placebo-controlled research. In most cases, it doesn't hurt, but it certainly is going to hurt if you try to eliminate so essential a nutrient from your diet.

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I've never heard of that before, only the Gluten-free Casein-free diet which we now have because we're vegan and the child is coeliac so we have to be anyway.

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    • Consider using our forum private message feature to protect privacy....just in case you all did not know 😉 !
    • Hi Beachgrl, It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease.  When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks.  I had gut spasms for that time.  And other changes, all for the better.  Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing.  Some people get better much faster of course, because we are all individuals and not identical. Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis.  Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first.  Avoid dairy and processed foods.  I hope it works out for you.  I know some people with Crohns disease eat gluten-free and find it helps them.  Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.  
    • Honestly, I would not trust the school to provide a gluten-free meal except for fruit, salads, veggies, etc. I sub in a school cafeteria and I swear everything is breaded or on bread. Utensils are shared. They're very clean but unless you have a very knowledgeable person in there, I just wouldn't chance it. I found a slim Jim type snack that says gluten-free on it. If you want to give me your email or FB account, I can send you some very valuable info on 504's though. They carry the student right through college. I kept a copy of what a friend wrote about her daughter being in a sorority and just how the 504 helped immensely. But, I would definitely get one and still be prepared to pack a lunch. All our meals are delivered frozen and we just hear them up. If your school actually fixes food, that's different. 
    • Oh, I would suggest providing gluten-free goodies (e.g. Candy) or even a frozen cupcake (kept in the teacher's freezer) in the event of a party.  My daughter's classmate is severely allergic to peanuts.  Her mom did that and Abby was never left out!  😊
    • Hi Nobody, Welcome to the forum!  I noticed you said you have been avoiding wheat products.  That's good, but are you avoiding rye and barley also?  Wheat, rye, and barley are the 3 grains that cause reactions in celiac patients.  About 10% also react to oats. If you haven't had the full celiac antibodies test panel, it might be worthwhile getting that done now.  The ttg is just a basic test and is generally followed up by an endoscopy or the full celiac panel. I wouldn't worry a lot about getting cancer.  That doesn't happen often. It is possible some of the other grains you might be eating are contaminated.  A group did a test on several off the shelf products a few years ago that would not normally be thought of as having gluten and found some actually did have low levels of gluten.  Things like corn meal for example.    
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