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Introducing Myself While I Wait For Test Results
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Hi everyone! :D

I'm SO glad I found this forum! I'm a chronic user of such things -- the support and the knowledge-sharing is so valuable! -- so when I realized we were starting down Celiac Road, I knew I needed to find some people to walk with. I've been lurking for a couple of days now already ;)

We're approaching a celiac diagnosis a little bit backwards -- in chasing down some GI issues, my doc did the biopsy already. It came back with "moderate inflammation", so he's ordered the celiac panel. I'm just waiting not-so-patiently for the results now. I know the biopsy results *could* be from other causes, but based on symptoms from myself and my daughter, celiac sure sounds like a strong likelihood. Kinda feels like waiting for the other shoe to drop now.

We have a couple of friends with confirmed celiac, so I have absorbed a certain amount of knowledge from them already, plus I know I've got some automatic local support, if necessary. But I'm a research junkie, so I'm dealing with the waiting-suspense by researching. :P

Just at the moment my biggest concern is simply logistics. I don't do much cooking at home right now, thanks to time pressures, but I know our budget won't stretch to cover much in the way of gluten-free-convenience foods. I'm going to have to figure out a new set of priorities, I think. :(

Anyway, Hi! :lol:

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Hi :) and welcome to the board. I hope we can provide you with whatever support you need.

Yes, if there is one thing gluten intolerant people discover, it is that they have to do more cooking than they have been used to in the past. I once joked to a friend that if I want to make a pie with a cookie crust, first I have to bake the cookies :lol:

You will find that a crockpot is an indispensable kitchen item, and you will probably end up cooking in bigger batches than you are used to so that you have leftovers, both for lunches and for nights when that's all you're up to.

But don't let it overwhelm you. Millions of us, cooks and non-cooks alike, manage to cope with it very successfully.

Let us know how your blood tests turn out.

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Welcome to the forum KC! :)

There is lots to learn here about celiac disease and gluten intolerance. And eating gluten-free for that matter. Your budget should be fine if you stay away from processed foods and concentrate on whole foods and cooking them yourself. Cooking is going to be important for you so you can know what is in your food rather than guessing what someone else may have put in it that could make you sick. But it doesn't have to be gourmet cooking to taste good and be nutritious too. Simple meals are good for starting out as your gut needs time to heal and it is easier with simple foods. Anyway, welcome again and feel free to ask questions.

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
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