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Introducing Myself While I Wait For Test Results
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Hi everyone! :D

I'm SO glad I found this forum! I'm a chronic user of such things -- the support and the knowledge-sharing is so valuable! -- so when I realized we were starting down Celiac Road, I knew I needed to find some people to walk with. I've been lurking for a couple of days now already ;)

We're approaching a celiac diagnosis a little bit backwards -- in chasing down some GI issues, my doc did the biopsy already. It came back with "moderate inflammation", so he's ordered the celiac panel. I'm just waiting not-so-patiently for the results now. I know the biopsy results *could* be from other causes, but based on symptoms from myself and my daughter, celiac sure sounds like a strong likelihood. Kinda feels like waiting for the other shoe to drop now.

We have a couple of friends with confirmed celiac, so I have absorbed a certain amount of knowledge from them already, plus I know I've got some automatic local support, if necessary. But I'm a research junkie, so I'm dealing with the waiting-suspense by researching. :P

Just at the moment my biggest concern is simply logistics. I don't do much cooking at home right now, thanks to time pressures, but I know our budget won't stretch to cover much in the way of gluten-free-convenience foods. I'm going to have to figure out a new set of priorities, I think. :(

Anyway, Hi! :lol:

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Hi :) and welcome to the board. I hope we can provide you with whatever support you need.

Yes, if there is one thing gluten intolerant people discover, it is that they have to do more cooking than they have been used to in the past. I once joked to a friend that if I want to make a pie with a cookie crust, first I have to bake the cookies :lol:

You will find that a crockpot is an indispensable kitchen item, and you will probably end up cooking in bigger batches than you are used to so that you have leftovers, both for lunches and for nights when that's all you're up to.

But don't let it overwhelm you. Millions of us, cooks and non-cooks alike, manage to cope with it very successfully.

Let us know how your blood tests turn out.

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Welcome to the forum KC! :)

There is lots to learn here about celiac disease and gluten intolerance. And eating gluten-free for that matter. Your budget should be fine if you stay away from processed foods and concentrate on whole foods and cooking them yourself. Cooking is going to be important for you so you can know what is in your food rather than guessing what someone else may have put in it that could make you sick. But it doesn't have to be gourmet cooking to taste good and be nutritious too. Simple meals are good for starting out as your gut needs time to heal and it is easier with simple foods. Anyway, welcome again and feel free to ask questions.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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