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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Introducing Myself While I Wait For Test Results
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3 posts in this topic

Hi everyone! :D

I'm SO glad I found this forum! I'm a chronic user of such things -- the support and the knowledge-sharing is so valuable! -- so when I realized we were starting down Celiac Road, I knew I needed to find some people to walk with. I've been lurking for a couple of days now already ;)

We're approaching a celiac diagnosis a little bit backwards -- in chasing down some GI issues, my doc did the biopsy already. It came back with "moderate inflammation", so he's ordered the celiac panel. I'm just waiting not-so-patiently for the results now. I know the biopsy results *could* be from other causes, but based on symptoms from myself and my daughter, celiac sure sounds like a strong likelihood. Kinda feels like waiting for the other shoe to drop now.

We have a couple of friends with confirmed celiac, so I have absorbed a certain amount of knowledge from them already, plus I know I've got some automatic local support, if necessary. But I'm a research junkie, so I'm dealing with the waiting-suspense by researching. :P

Just at the moment my biggest concern is simply logistics. I don't do much cooking at home right now, thanks to time pressures, but I know our budget won't stretch to cover much in the way of gluten-free-convenience foods. I'm going to have to figure out a new set of priorities, I think. :(

Anyway, Hi! :lol:

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Hi :) and welcome to the board. I hope we can provide you with whatever support you need.

Yes, if there is one thing gluten intolerant people discover, it is that they have to do more cooking than they have been used to in the past. I once joked to a friend that if I want to make a pie with a cookie crust, first I have to bake the cookies :lol:

You will find that a crockpot is an indispensable kitchen item, and you will probably end up cooking in bigger batches than you are used to so that you have leftovers, both for lunches and for nights when that's all you're up to.

But don't let it overwhelm you. Millions of us, cooks and non-cooks alike, manage to cope with it very successfully.

Let us know how your blood tests turn out.

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Welcome to the forum KC! :)

There is lots to learn here about celiac disease and gluten intolerance. And eating gluten-free for that matter. Your budget should be fine if you stay away from processed foods and concentrate on whole foods and cooking them yourself. Cooking is going to be important for you so you can know what is in your food rather than guessing what someone else may have put in it that could make you sick. But it doesn't have to be gourmet cooking to taste good and be nutritious too. Simple meals are good for starting out as your gut needs time to heal and it is easier with simple foods. Anyway, welcome again and feel free to ask questions.

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    • In Dire Need Of Help
      Alex the good news is you have found a great site with useful information and warm support! You need to work with your doctor to get a diagnosis but there are plenty here who have had similar experiences: http://www.celiac.com/gluten-free/search/?&q=panic%20attack so it sounds like your on the right lines   Take heart that you have probably found the cause now rather than later.  Follow CyclingLady's excellent advice above and go for celiac screening asap. For tests to work you need to be eating gluten for some time. That is a scary prospect when you've finally experienced some relief but it's for a limited time period, you can get support here along the way and if you choose to you can go gluten-free at the end and get relief whatever the results.  Once you're done testing and off the gluten you will be in a much better position to nail the lifestyle. That may mean some pre-planning, maybe taking a backpack with some gluten-free snacks with you, at least until you find the places you can reliably eat at. There are apps and sites that can help and probably local support groups in NYC as well: https://www.google.co.uk/?ion=1&espv=2#q=new%20york%20gluten%20free%20restaurants With research you'll also get to know what fast food options are viable, what readily available candy bars are ok etc. I can eat Mcdonalds fries for instance, which can come in handy if I'm away from my kitchen or supplies. Most starbucks or equivalents will have at least a gluten-free snack bar. So although a pain in the arse, it's doable and the health payoffs MORE than make up for the hassle.  Good luck! 
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      I ordered the cookbook the same day you recommended it.  I am SO excited!  I actually cried looking through the book!  I honestly don't believe I am good at all in the kitchen.  I am lucky enough to have a husband who cooks everything when he's home.  The only thing I felt skilled at in the kitchen was baking.  I made all of my kids' birthday cakes for the last 8 years.  I was sad thinking that we wouldn't have anything good for a birthday cake.  I mean, I've tried gluten free cake from a box, but it was just ok.  It wasn't amazing the way a homemade cake can be.  So now I have hope.  Hope that maybe my non-celiac kids will enjoy a birthday cake still.  My daughter (the most-likely-to-be-celiac one) never really ate birthday cake to begin with.   So this summer is her birthday and we will find out if it's good!  Thank you for the recommendation!!!   Janis
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    • antibiotic for my 6 year old- could it have gluten?
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    • Oat Flour making me sick?
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