Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Test Results Help (Image Attached)
0

5 posts in this topic

20120926131050145.jpg

I was told over the phone by the nurse that my celiac panel test was negative. I had been gluten free for 4 weeks before the test, 3 days before being tested I ate 5 slices of pizzahut hoping to have accurate test results. I was shocked that my test was negatitve. Does my test suggest any type of gluten sensitivity if not celiacs? Thanks

0

Share this post


Link to post
Share on other sites


Ads by Google:

Your tests are negative, and you are a normal producer of antibodies. But one would expect the tests to be negative after four weeks gluten free. The antibodies do not enter the bloodstream that quickly (five slices of pizza in the three days before the test :o ) For valid testing it is recommended that you be on a full gluten diet for 6-8 weeks prior to testing.

1

Share this post


Link to post
Share on other sites

What were your symptoms that made you suspect Celiacs and were you symptomatic during your blood draw?

Eating pizza (like what I did) is not enough, you have to be symptomatic (in my case, in pain or passed out) for the test to be reliable.

My IgA was 147 (normal range is 81 - 463 mg/dL), I was having symptoms too, so it's baffling for me as well.

0

Share this post


Link to post
Share on other sites

Eating pizza (like what I did) is not enough, you have to be symptomatic (in my case, in pain or passed out) for the test to be reliable.

Actually, even being symptomatic is not enough. You can be symptomatic big time if you are that sensitive from just a crumb of gluten, but it doesn't mean that you will have a positive test. All the labs give ranges for their negative, equivocal and positive scores, and those ranges do not necessarily indicate the kinds of symptoms you are experiencing. People test positive without being aware of any symptoms, and negative when they feel like they are dying. The tests measure how many antibodies are circulating in the bloodstream, and as far as I know the mechanism for activating sufficient antibodies is not well defined. That is why there are so many varying lengths of time recommended to be eating gluten before the tests. Some doctors say two weeks, some people say three months. And in reality, for everybody it is a different length of time. It is just so disappointing to test negative because you were not consuming enough gluten. :(

0

Share this post


Link to post
Share on other sites

I didnt have any symptoms during the test. I've had most of the symptoms you all do, and symptoms I didn't know I had until I quit gluten. The big thing was the blisters in my crack went away, something I had for 8 years and would not go away from any treatment at all but the diet. I stumbled on a post and someone had the same issue and said it was gluten related. I've been googling this issue once in a while to find out what it could have been but no luck before. No doctor would have ever guessed. I guess it was DH it is still there but at least I can sit down and watch a movie at bite without my hand down my pants at my inlaws. If I didn't see that post I'd still be suffering.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,090
    • Total Posts
      920,307
  • Topics

  • Posts

    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
    • No!  Once you fill the tub, if you sit in it for 3 minutes or you stay for 10... It doesn't change the amount or cost of the water.  That's only relevant if you have 3 kids to cycle thru that same water.  Is your hub bathing in the same water after you? Lol  And even if you add some more hot and stay longer....well...it's much cheaper than perscription meds, vodka or a substance that is legal in a few states.     Of course this only pertains to those of use with running water.... If you make your hub haul water from the creek or well and heat it over a fire....
    • Whether it is bona fide dermatitis herpetiformis, or severe eczema or hives or what have you, we all want to know how to stop the incessant itching.  Through all my research, the solution comes down to one thing: a good long soak in the tub-- with baking soda or Epsom salts or some kind of herbal tea, followed by a rub down in thick expensive lotion.  I don't know about you, but I was brought up to "get in, get done get out."  A long soak in the bath was a frivolous luxury, and a waste of time and hot water.  So now I'm having this awful breakout from forgetting to read a label and got wheated.  And every night I've been soaking in a baking soda bath to relieve the itching and aid my recovery.  And it's been hard! (But it's been very helpful too)  It has been hard to reconcile this "frivolous luxury and waste of time" as medically necessary!  Fortunately I've had no judging, and only support from my husband, who has had a similar upbringing.  Does anyone else struggle with this?
    • His son, Eli, had been misdiagnosed with celiac disease, so the family tried some gluten-free foods. After adding quinoa (KEEN-wah) to their diet, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • HappyMom623

      I have Tangled problem! I want all the things Rapunzel Related....including Flynn Rider 😂 but seriously. I have like 8 shirts I want.
      · 0 replies
    • AprilBeth2013

      RT @MarkDever: “But the work is God’s and we do not fear the final results. ‘The heathen shall be given to His Son for His inheritance,’ .…
      · 0 replies
    • silk

      I have celiac disease and have been gluten-free for almost 10 years.  I am extremely sensitive to gluten, noting that I react within 15 minutes of contact and in fact the doctor suspects that there may also be an actual wheat allergy at play but have never bothered to be tested since I avoid it like the plague!  I am curious to know if anyone else reacts to flax or inulin?  My symptoms with those two are almost identical to gluten so I have to really watch for that in gluten-free breads and baking and recently discovered after the fact that flax was in the juice I was drinking. I know that people with gluten issues can have other problems as well and in fact I also avoid milk products.  Even after 10 years, and although it has become a way of life, it's still frustrating to have to read every ingredient on every label.😞
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,117
    • Most Online
      1,763

    Newest Member
    cdliac3855
    Joined