Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Defending My Choices


  • Please log in to reply
16 replies to this topic

#1 TheIntern

TheIntern

    New Community Member

  • Members
  • Pip
  • 9 posts

Posted 26 September 2012 - 11:09 AM

Hi all,

I'm relatively new and have been gluten-free for about three weeks now. I plan on getting tested soon (and I guess I'll go back on gluten for that), but I know that I have some form of gluten intolerance, if not celiac. For now, though, I'm content to be gluten free and not feel like absolute crap. My nails are better, even my vision has slightly improved.

Anyway...I hate having to defend my food choices since I don't exactly have a diagnosis yet.

My roommate and I were at an ice cream shop and I excitedly said "Oh! They have gluten-free ice cream!". She laughed and looked at the guy working there and said "She thinks she can't have gluten. But she's self-diagnosed" and started laughing! I was mortified and felt just plain stupid. I was tempted to get the oreo ice cream just to feel a little better. But I KNOW I would have been sick within a half hour.

Do you guys experience this, too? This pressure to just eat normal even though you just can't?
  • 0

Celiac.com Sponsor:

#2 ndw3363

ndw3363

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 178 posts

Posted 26 September 2012 - 11:25 AM

I too am self diagnosed. I've been gluten-free for over 1.5 years and it still annoys me to have to explain sometimes..."oh you can just have one" Um, no I can't. I find that my answer depends on the person I'm with - if I'm with family and they ask, I can be as vulgar and honest as I like which usually shuts it down pretty quickly (go into detail about what will happen if you eat it...people love that) :-) If it's friends or someone new, I typically don't bring it up. On first dates and such, if they offer dessert, I just politely say that I don't eat sugar instead of going into the whole gluten-free thing. Then I go home and indulge on a block of cheese :-) Sometimes when it does come up, someone will ask if I have celiac - I'll explain in as little detail as possible that no I don't have a formal diagnosis, but I feel SO much better when I don't eat so I'd rather just go without. If that doesn't work, I say I just don't like it (which actually isn't a lie - about six months ago I got mad about the whole thing and cheated for a week - things I used to love didn't taste right anymore and it was a total let down - I hurt myself for nothing). I try to use humor whenever I can. Everyone has things they don't eat and it's not necessarily because they can't. I've hated bananas my whole life - I don't react to them, I just hate everything about them so I don't eat it even though most people love them. In my mind, it's the same thing. Good luck to you!
  • 0

#3 cyberprof

cyberprof

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 969 posts

Posted 26 September 2012 - 12:51 PM

Intern, first your roommate sounds like a mean person, not a friend. You don't have to justify your choices and not being diagnosed doesn't matter in this situation.

You have several choices on how to deal with this. Ignore, fight back or change your tactics.

You could talk to her privately and ask that she respect your choices and then ignore her. You could say "I choose to eat this way." instead of "I can't have that." (This was recommended to me as a way to deal with calorie-reduction for weight-loss, to change one's mindset. I find it helpful.) Simply say "I don't eat ice cream cones." or "I am so excited to try the coffee/toffee flavor!"

You could be less effusive when you find a gluten-free product or food and not expect her to be happy for you. Just take it in stride - it will eventually be "normal" for you. This may be easier than being confrontational. You can get validation here when you find a great gluten-free product or have a good restaurant meal. Or you may find other people who are happy for you.

If this happens in the future, you could look at her and say something like "Wow, aren't you in a snippy/weird/argumentative mood today?" Or " Please, have what you want to eat and let me have what I want."

Unfortunately, this won't be the last time that you have to deal with this. Figuring out how to manage it does get easier. Good luck!
  • 0
Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

#4 bartfull

bartfull

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,341 posts

Posted 26 September 2012 - 01:36 PM

I think I mentioned here before how I handle it. Of course it won't work with your roommate because he/she already knows you are self-diagnosed. But in future you might consider how I (also self-diagnosed) deal with it:

I say, "When I was diagnosed with celiac..." That way I'm not really lying because I was diagnosed - by myself. And if people take it to mean a DOCTOR diagnosed me, that's OK because they are more likely to take my disease seriously.
  • 0

gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#5 Gemini

Gemini

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,120 posts

Posted 26 September 2012 - 01:53 PM

Hi all,

I'm relatively new and have been gluten-free for about three weeks now. I plan on getting tested soon (and I guess I'll go back on gluten for that), but I know that I have some form of gluten intolerance, if not celiac. For now, though, I'm content to be gluten free and not feel like absolute crap. My nails are better, even my vision has slightly improved.

Anyway...I hate having to defend my food choices since I don't exactly have a diagnosis yet.

My roommate and I were at an ice cream shop and I excitedly said "Oh! They have gluten-free ice cream!". She laughed and looked at the guy working there and said "She thinks she can't have gluten. But she's self-diagnosed" and started laughing! I was mortified and felt just plain stupid. I was tempted to get the oreo ice cream just to feel a little better. But I KNOW I would have been sick within a half hour.

Do you guys experience this, too? This pressure to just eat normal even though you just can't?


If it makes you feel any better, those of us who have an official diagnosis get the same crap from friends and family. I remember being incensed with my sister, after I was diagnosed and trying to order a meal in a restaurant, when trying to explain how careful I have to be with CC when the waiter was taking our orders. She gave me that smarmy eye roll and I just about decked her. For someone who works in the medical field, she was her stupid best that day. BTW.....my sister has a problem with gluten also but doesn't have the digestive issues that I had so she thinks she is fine. She has 3 other AI diseases,all associated with Celiac, but no, she is fine. :rolleyes:

You have to grow a thick skin and pooh-pooh people who treat you this way. It depends on the situation but I have verbally reamed people for being so stupid but other times I ignore their ignorance and move on. You don't have to justify your eating habits to anyone. I do not feel we eat anything but normal....healthy normal. It's not our problem the rest of society chooses to eat garbage. :P
  • 1

#6 Takala

Takala

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,555 posts

Posted 26 September 2012 - 08:58 PM

What a charming room mate you have there. Imagine how wonderful her other relationships will be. :blink: :ph34r:

I just don't agree with this option:


You could be less effusive when you find a gluten-free product or food and not expect her to be happy for you.


I don't care if other people are "happy for me" or not, but I would be damned if I was going to tip toe around being "less effusive" when I find something I can eat, so as to not provoke a sadistic response from such an idiot. My being able to eat something is not taking away one iota from other people's ability to being able to eat the same thing. Our ability to be able to find something to eat in the first place, partially depends on being able to give positive feedback to those establishments that are providing it.
  • 0

#7 cyberprof

cyberprof

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 969 posts

Posted 26 September 2012 - 09:28 PM

What a charming room mate you have there. Imagine how wonderful her other relationships will be. :blink: :ph34r:

I just don't agree with this option:



I don't care if other people are "happy for me" or not, but I would be damned if I was going to tip toe around being "less effusive" when I find something I can eat, so as to not provoke a sadistic response from such an idiot. My being able to eat something is not taking away one iota from other people's ability to being able to eat the same thing. Our ability to be able to find something to eat in the first place, partially depends on being able to give positive feedback to those establishments that are providing it.


Takala, I'm not going to argue with you but Intern has options and she can make a choice as to how she wants to handle it. An option would be just to order and eat the food without making a big deal out of it being gluten-free. It's what my daughter (who is gluten-free but doesn't need to be) wants me to do when I'm out to dinner with her. Teenagers are like that and Intern's roommate sounds immature like a teenager.


There are some people you can change, some you can't. If she has a lease agreement and is stuck with a roommate, she may have to deal with the roommate, unlike a friend that you could avoid or de-friend.
  • 0
Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

#8 flowerqueen

flowerqueen

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 223 posts

Posted 26 September 2012 - 11:16 PM

It sounds like your room mate has self confidence issues trying to belittle you in front of someone else, and it says more about her/him, than it does about you. I have been diagnosed coeliac but I would always respect someone else's choice if they felt they had coeliac disease - after all it's your life, and your body, and it's you that suffers if you make a mistake with your food choices.

I agree with an earlier comment, and you should have a private word with your room mate but in future just don't explain why you are gluten free to people, you shouldn't have to. I don't drink alcohol because I get severe migraine within half an hour with so much as a teaspoon of alcohol and I wouldn't dream of 'explaining myself' to others, I can't have it and that's that. Perhaps you should adopt a similar approach, at the end of the day, it's nobody else's business but yours.
  • 0
Under active thyroid; diabetic; hiatus hernia; acid reflux; dairy intolerant; arthritis; sciatica due to spine degeneration; diagnosed with coeliac disease November 2011; fibromyalgia; allergic to Thyme & MSG and alcohol. Allergic to TCP antiseptic, and plasters. Taking medication for severe muscle spasms in upper back.
Despite all, remaining positive!

#9 TheIntern

TheIntern

    New Community Member

  • Members
  • Pip
  • 9 posts

Posted 28 September 2012 - 07:21 AM

I guess maybe the problem is that I'm just starting out so when I find something gluten-free at a restaurant, I still get excited. It's been really hard these first few weeks and it's kind of freaking me out. The fact that my roommate (who I've been friends with for years) was basically making fun of me just kind of hurt my already vulnerable feelings.

Maybe I'll just start saying "No thanks. I'm not hungry" or something...I'm just kind of down today. I feel like I have 0 options when it comes to eating out and even when I do find something, I feel like I get a little sick anyway. I accidentally had a sip of beer last night and even that made my stomach angry. Ughhhh I'm just so frustrated.
  • 0

#10 kittty

kittty

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 235 posts

Posted 28 September 2012 - 07:49 AM

I say, "When I was diagnosed with celiac..." That way I'm not really lying because I was diagnosed - by myself. And if people take it to mean a DOCTOR diagnosed me, that's OK because they are more likely to take my disease seriously.


Exactly! If cutting out gluten from your diet improves your health, then you DO have a diagnosis. The diet reaction was all I needed to tell me it was celiac, and later I found out that it was good enough for my doctor too - even without a blood test or a biopsy. She is totally convinced after seeing the difference a gluten free diet has made.

This may sound weird, but your friend could actually be jealous that you have celiac. You have something that makes you different and interesting, and she may feel overshadowed by that. It's common for children to have that reaction, and sometimes adults too.

I've been gluten free for over five months now, but haven't yet visited my parents while gluten-free. They live very far away, but sooner or later I'll have to visit. When I was little my mom had this habit of trying to "cure" my bad reaction to some ingredients by hiding them in food, and tried to "cure" my motion sickness/vertigo by deliberately going for long drives until I was sick, and tried to "cure" my perfume induced headaches by deliberately wearing strong perfume. My mom is an avid baker too, and I'm already mentally preparing myself for the gluten war that will ensue... Mental preparation for the negative reaction from friends could be your greatest ally.
  • 0

#11 Pegleg84

Pegleg84

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 598 posts

Posted 28 September 2012 - 09:40 AM

I still get excited when I see something gluten-free that I haven't been able to eat in a while. And if someone asks me about why I can't eat something, I try not to go on about it (I do go on about it, but I do try not to). I know my mother (also Celiac) would hardly talk about anything else for a while, which got kind of grating, but she's settled down since then.

I'm self-diagnosed, but my family history (it's on BOTH sides of my family. We're dropping like flies...) and the fact that I started feeling better in what, a week? (oh, and my nails got better too! They used to be all brittle and thin and slow-growing but now they're fine. That's my one bit of physical proof). If you're sure you have Celiac, or at least Gluten Intolerance, then you don't need a doctor to confirm it. (I more or less told my doctor that I had it. No arguments.)
But in the end, a diagnosis doesn't matter. Gluten makes you feel like crap. You want to avoid that at all costs. Cause it's better for you and your friends in the long run. (As I often say, if I get into the gluten, either it'll kill me or I'll kill someone else, whichever comes first).

Maybe you can give your roommate (and your friends and family) some good information on Celiac disease and the gluten free diet so they'll understand why you're doing it, what can hurt you, and that it will make you a healthier, happier person.

But I congratulate you for being tough and not getting that Oreo ice cream. We all have to be careful not to cave in to pressure.

So, keep it up!

Peg
  • 0

~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.


#12 Jestgar

Jestgar

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,755 posts

Posted 28 September 2012 - 09:59 AM

She laughed and looked at the guy working there and said "She thinks she can't have gluten. But she's self-diagnosed" and started laughing!

You look at the ice cream guy with a pained expression and say "Sorry about my friend. She won't believe that she's an @$$h*le until her psychiatrist tells her she is." Then order the gluten-free cone.
  • 8
"But then, in all honesty, if scientists don't play god, who will?"
- James Watson

My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant

Leap, and the net will appear.

#13 catsmeow

catsmeow

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 290 posts

Posted 28 September 2012 - 08:33 PM

You look at the ice cream guy with a pained expression and say "Sorry about my friend. She won't believe that she's an @$$h*le until her psychiatrist tells her she is." Then order the gluten-free cone.



BAHAHAHAHAHA...best answer!!!!!! Keeping it light, yet putting her friend in her place.
  • 0
You've cat to be kitten me right meow

Wheat Allergy-April 2010
Gluten Intolerant-April 2010
Dairy/casien intolerant-Aug 2012
Lactose intolerant- Aug 2012
Soy Intolerant-November 2012
October 2012- I learned that I am 1/2 Irish with a strong family history of Gluten Intolerance/Celiacs. I will never know If I am Celiac because I will never eat gluten again in order to test postive, it's poison and I do not ever want to feel the way I felt before implementing the gluten free diet EVER again!!!

#14 IrishHeart

IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,446 posts

Posted 29 September 2012 - 05:31 AM

. An option would be just to order and eat the food without making a big deal out of it being gluten-free.
There are some people you can change, some you can't.
If she has a lease agreement and is stuck with a roommate, she may have to deal with the roommate, unlike a friend that you could avoid or de-friend.


Good advice, cyberprof.

You do not need to defend your choices to anyone.

You can explain yourself silly or come out with some good, snappy comebacks, (jess offered you a doozy!) but some people will always give you grief over it.

Blow them off and enjoy your good health.... and ice cream . :)
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#15 frieze

frieze

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,081 posts

Posted 29 September 2012 - 05:52 AM

You look at the ice cream guy with a pained expression and say "Sorry about my friend. She won't believe that she's an @$$h*le until her psychiatrist tells her she is." Then order the gluten-free cone.

and i bet you she won't do it again!!! Jus' settin' here, laughin' my butt off.....yeah jet!
  • 0


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: