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Hello everyone! My 5 y.o dd was just diagnosed 2 weeks ago, and my 14 m.o. dd just had blood work done today. My 5y.o. presented with very slow weight gain (she weighs in at 37 pounds), very-very dry skin, ADD (dx'ed the same day as the blood resluts came in 2 weeks ago!) frequent mood swings, poor school preformance, and craving carbs. She also has a disorder called Sensory Intergration Dysfunction. (hense mom2SIDkid). We removed gluten at the very time of confirmed blood test. (Dr. did not do a biopsy at this time) It's been a little rough going to say the least. BUT, My dd's eye have been shining much brighter, dark circles are definatly less, and she is talking SO much!!!

Having a few problems finding good things to eat, so much of her past diet was bread type products, and most of what she will eat now is loaded with sugar. (have not found decent gluten-free bread or bread mix). Because of her sensory issues there are things that she completely avoids eating because of how it feels. (in her mouth or hands)

I am glad to meet all of you, and to know that I am not alone in helping my dd (possibly dd's!)

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I don't have alot of experience regarding the ADD or mood behaviors, but I love a gluten-free bread mix I get. It's from Bob's Red Mill Wonderful gluten-free bread mix. It's very easy and tastes great! It freezes well too.

Hope this helps.

There are many recipes on this site...

Welcome!

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I have tried and use daily a bread from "Food For Life"... there are several types (flavors) so find one she'd enjoy. Does she like raisins? They have a cinnimon and raisin one. I particularily like the white rice or brown rice. They are pre-made and take moments to toast and have a nice little snack or with your meal. Its not light and fluffy like normal bread but I have grown to enjoy it very much.

Or here is a recipie for some bread:

Yeast-Free Sandwich Bread

1 cup brown rice flour or garbanzo/fava bean flour

2/3 cup potato starch

1/2 cup tapioca flour

3 tablespoons honey or sugar

2 tsp. xanthan gum

2 tsp. baking powder

1 tsp. salt

1/2 tsp. unflavored gelatin

1/4 tsp. potato flour

2 large eggs, lightly beaten or 1/2 cup soft silken tofu, creamed

1 cup milk (cow, soy, or rice)

1/4 cup melted butter or vegetable oil

Grease two 5x3 inch non-stick pans, or a 9x5 inch non-stick pan.

Preheat oven to 375degrees F.

Copmobine dry ingredients in large mixing bowl. With electric mixer on low, add remaining ingredients and mix until smooth.

Spoon in prepared pans, smooth top with wet spatula (if necessairy), and bake small pans for 45-50 minutes, large pan for 50-55 minutes until top is deeply brown and loaf sounds crisp when tapped. Don't underbake. cool completely on wire rack before slicing eith electric knife. Serves 12.

NOTE: Sugar may be reduced but crust will be rougher and flavor somewhat diminished.

Yeast-Free Dill Onion Bread: Add one teaspoon dillweed, 1 1/2 tsp dillseed, and 1Tbsp dry minced onion.

Enjoy, lemme know how it turns out if anyone tries it. I just got the cookbook and havent tried it yet. Yumm cant wait though!

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
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