Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

New To Board

3 posts in this topic

Hello everyone! My 5 y.o dd was just diagnosed 2 weeks ago, and my 14 m.o. dd just had blood work done today. My 5y.o. presented with very slow weight gain (she weighs in at 37 pounds), very-very dry skin, ADD (dx'ed the same day as the blood resluts came in 2 weeks ago!) frequent mood swings, poor school preformance, and craving carbs. She also has a disorder called Sensory Intergration Dysfunction. (hense mom2SIDkid). We removed gluten at the very time of confirmed blood test. (Dr. did not do a biopsy at this time) It's been a little rough going to say the least. BUT, My dd's eye have been shining much brighter, dark circles are definatly less, and she is talking SO much!!!

Having a few problems finding good things to eat, so much of her past diet was bread type products, and most of what she will eat now is loaded with sugar. (have not found decent gluten-free bread or bread mix). Because of her sensory issues there are things that she completely avoids eating because of how it feels. (in her mouth or hands)

I am glad to meet all of you, and to know that I am not alone in helping my dd (possibly dd's!)


Share this post

Link to post
Share on other sites

I don't have alot of experience regarding the ADD or mood behaviors, but I love a gluten-free bread mix I get. It's from Bob's Red Mill Wonderful gluten-free bread mix. It's very easy and tastes great! It freezes well too.

Hope this helps.

There are many recipes on this site...



Share this post

Link to post
Share on other sites

I have tried and use daily a bread from "Food For Life"... there are several types (flavors) so find one she'd enjoy. Does she like raisins? They have a cinnimon and raisin one. I particularily like the white rice or brown rice. They are pre-made and take moments to toast and have a nice little snack or with your meal. Its not light and fluffy like normal bread but I have grown to enjoy it very much.

Or here is a recipie for some bread:

Yeast-Free Sandwich Bread

1 cup brown rice flour or garbanzo/fava bean flour

2/3 cup potato starch

1/2 cup tapioca flour

3 tablespoons honey or sugar

2 tsp. xanthan gum

2 tsp. baking powder

1 tsp. salt

1/2 tsp. unflavored gelatin

1/4 tsp. potato flour

2 large eggs, lightly beaten or 1/2 cup soft silken tofu, creamed

1 cup milk (cow, soy, or rice)

1/4 cup melted butter or vegetable oil

Grease two 5x3 inch non-stick pans, or a 9x5 inch non-stick pan.

Preheat oven to 375degrees F.

Copmobine dry ingredients in large mixing bowl. With electric mixer on low, add remaining ingredients and mix until smooth.

Spoon in prepared pans, smooth top with wet spatula (if necessairy), and bake small pans for 45-50 minutes, large pan for 50-55 minutes until top is deeply brown and loaf sounds crisp when tapped. Don't underbake. cool completely on wire rack before slicing eith electric knife. Serves 12.

NOTE: Sugar may be reduced but crust will be rougher and flavor somewhat diminished.

Yeast-Free Dill Onion Bread: Add one teaspoon dillweed, 1 1/2 tsp dillseed, and 1Tbsp dry minced onion.

Enjoy, lemme know how it turns out if anyone tries it. I just got the cookbook and havent tried it yet. Yumm cant wait though!


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Numbness, Tingling in limbs & Joint Aches
      Hi Ender, Although you didn't get a complete thyroid panel, from what I see you are hypothyroid.  Most Dr's only care about TSH and yes yours is in the range, but when mine is that high I get terrible joint aches.  I feel best with mine around 1.  Your free T4 isn't just a tad low...most people feel best with it around 50% of the range.  I think you could benefit from some thyroid replacement medication.  You should also get a full thyroid addition to what you've had done a free T3, TPOAB and TgAb.   The last 2 are antibody tests.  Hashimotos is found fairly frequently with celiac.   Low vitamin D can also cause aches.  It would be really good to have your levels checked again.  Until you are healed you may not absorb it well enough so it's good to keep supplementing.  It took me a year and a half gluten free to get mine to an acceptable level for my Dr and he's keeping me on 2000 daily for maintenence.  For the numbness and tingling my Dr had me add magnesium as I was having horrible tingling in my feet and my B12 was good.  I have to say it has helped a lot. I hope you are able to get this figured out...I would definitely start with a complete thyroid panel and recheck of Vitamin D.  Here's a bit of reading on thyroid stuff if you have time.  Hugs!
    • Positive & Increasing TTG -- questions re: testing & history
      I'm a 31-year-old high school teacher (currently on disability) who has been dealing with 4 years of major gastrointestinal problems, which resulted in major surgery for a rectal prolapse & redundant colon last August, prior to which I had lost about 20 pounds. The source of all my gas, bloating, distention & diarrhea has remained basically unexplained though ("lets trust the surgery resolves your obstructed defecation and in turn your gas... d'oh it made both  worse"  ) , and my symptoms have only gotten significantly more severe since surgery. I'm facing a permanent ostomy. I've also, for the first time in a lonnng time, been eating a lot of gluten every day... primarily out of depression and (misguided?) attempts to gain weight and keep stool soft. I've been typically slightly underweight for 10+ years. Suffered anorexia for a period 10 years ago, and since recovering have "naturally" maintained a low weight and low-wheat lifestyle (I've always been put off by heavy wheat items like bread, sandwiches & pasta, *shrug*). As a child I had crazy severe & unexplained constipation issues. I've also had strong teeth discoloration & marked enamel defects (& two missing adult teeth(?)) since childhood. Depression & anxiety have been longterm issues. I have osteoperosis, which was perviously explained by me being anorexic from 19-22. Everything changed 4 years ago upon the onset of all my (severe) classic-IBS symptoms (gas/bloat/d+c). On a low-gluten diet, TTG bloodwork came back "low-positive" repeatedly. A biopsy showed no damage, but my gluten intake at the time was limited to 2 cookies a day, or occasionally 2 cookies and a piece of pizza. Would this have been enough tho show damage? I trialled going gluten-free for a few months, and didn't find a ton of relief... so assumed I was just FODMAP intolerant... however I was eating lots of oats and lactose that whole time, which I have subsequently identified as major triggers... not to mention just lots of gluten-free junk food. Wheat was obviously a significant gas trigger since this hit, but that seems typical for gut illness in general. Since my major surgery and the continuation and worsening of symptoms, I've connected with an internist who has again and again pushed me towards eating wheat as a method towards weight gain and healthy non-anxious eating. I also found that a high-wheat diet would provide the proper consistency (i.e. very loose diarrhea every day) to allow colorectal function (the surgery I had went very poorly and caused major obstructed defecation). I have not had success gaining weight, and have found my digestive system feeling assaulted like never before 24/7 by bloating, gas and discomfort, despite a relatively low-residue diet and constant elimination. My appetite has never ever been worse. I just had a fourth TTG test, and after this high-gluten diet I am now testing POSITIVE as opposed to BORDERLINE. Questions: 1) I suspect my first biopsy's gluten challenge wasn't quite heavy enough in terms of gluten content (couple cookies a day). Thoughts? 2) Could being underweight alone cause an elevated TTG? How about simply having colorectal surgery? "IBS" or the supposedly non-pathogenic gut bacteria blastocystis hominis which I've been diagnosed with? 3) I really don't know what to do right now. I'm 20 pounds underweight, in digestive hell, with most of my medical support still suspecting I'm merely acting anorexic. I most assuredly am not. They want to put me on a tube. I would really like to get off the gluten in order to ease my system and gain weight, as I'm clearly reacting to it and have been deluding myself for the past year trying to recover from this surgery, but I'd also *REALLY* like some diagnostic confirmation so my doctors & family all stop looking at me like I'm crazy, and that so I can act with appropriate caution/freedom in my dietary future. 4) Do my childhood experiences line up with any celiac sufferers? I've heard about enamel defects, but missing teeth or crazy constipation? Obviously osteoperosis could connect, and doesn't *really* line up with my anorexia considering I was already fully grown. 5) Is there any way to get EMA/HLA blood tests done in Canada (BC)??? It's really frustrating that my only chance for any confirmation is waiting months and months here for another biopsy, especially considering how dire the need to improve my digestion is ASAP. I imagine if I could get an EMA test & it came back positive I would just take that as my confirmation and be able to move on with confidence here. 6) Is it common for celiac sufferers to find themselves reacting to FODMAPS and/or histamines in foods while they're  still maintaining a gluten-filled diet? Gluten definitely isn't my *only* trigger right now, and that's probably a primary reason I haven't been led to eliminate it at. Sorry for all the talk & questions, but I'm in an incredibly challenging place right now, my head is just swimming and swimming, and any thoughts would be greatly appreciated!   Bloodwork Current, after six months of a heavy-gluten diet = Tissue Transglutaminase Ab IgA ---18.0 ---- <12.0 U/mL = normal
      POSITIVE -Probable celiac disease but this should be confirmed with a small bowel biopsy. [Tested by a multiplex flow immunoassay
      (BioPlex) method.] 

      6 months ago = Tissue Transglutaminase Ab IgA ---13.0 ---- <12.0 U/mL = normal
      BORDERLINE - Borderline anti-tTG. Suggest repeat if clinically indicated.Consider the possibility of celiac disease - a small bowel biopsy may be required. [Tested by a multiplex flow immunoassay
      (BioPlex) method.]

      2012, prior to negative biopsy = Tissue Transglutaminase Ab IgA ---24.0 ---- <20.0 RU/mL = normal
      Weak positive anti-TTG. Consider the possibility of celiac disease - a small bowel biopsy may be required.  
    • Just in time for Christmas  
    • Celiac and Acne
      do you perhaps have acne inversa?  i looked for pictures, didn't find decent ones.  
    • Numbness, Tingling in limbs & Joint Aches
      Hi Ender Yes, a stitch in time saves nine as we say here - maybe you do in the States.   My cousin is a medical rep and says the billions that could be saved if money was spent trying to catch things before they became big problems....  I think I would be more proactive in trying to find the reason for all this myself if it weren't for the fact that the symptoms wax and wane.   At the moment I have no symptoms but a few weeks ago I could feel tingles and buzzing and thought if I held a light bulb it might light up!   I am hoping here that someone else with a bit more knowledge will chime in but if someone has been starved of, say, B12, I am thinking that it may take some time for the nerves to mend.     Can anyone else help here?    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Members