Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

New To Board

3 posts in this topic

Hello everyone! My 5 y.o dd was just diagnosed 2 weeks ago, and my 14 m.o. dd just had blood work done today. My 5y.o. presented with very slow weight gain (she weighs in at 37 pounds), very-very dry skin, ADD (dx'ed the same day as the blood resluts came in 2 weeks ago!) frequent mood swings, poor school preformance, and craving carbs. She also has a disorder called Sensory Intergration Dysfunction. (hense mom2SIDkid). We removed gluten at the very time of confirmed blood test. (Dr. did not do a biopsy at this time) It's been a little rough going to say the least. BUT, My dd's eye have been shining much brighter, dark circles are definatly less, and she is talking SO much!!!

Having a few problems finding good things to eat, so much of her past diet was bread type products, and most of what she will eat now is loaded with sugar. (have not found decent gluten-free bread or bread mix). Because of her sensory issues there are things that she completely avoids eating because of how it feels. (in her mouth or hands)

I am glad to meet all of you, and to know that I am not alone in helping my dd (possibly dd's!)


Share this post

Link to post
Share on other sites

Ads by Google:

I don't have alot of experience regarding the ADD or mood behaviors, but I love a gluten-free bread mix I get. It's from Bob's Red Mill Wonderful gluten-free bread mix. It's very easy and tastes great! It freezes well too.

Hope this helps.

There are many recipes on this site...



Share this post

Link to post
Share on other sites

I have tried and use daily a bread from "Food For Life"... there are several types (flavors) so find one she'd enjoy. Does she like raisins? They have a cinnimon and raisin one. I particularily like the white rice or brown rice. They are pre-made and take moments to toast and have a nice little snack or with your meal. Its not light and fluffy like normal bread but I have grown to enjoy it very much.

Or here is a recipie for some bread:

Yeast-Free Sandwich Bread

1 cup brown rice flour or garbanzo/fava bean flour

2/3 cup potato starch

1/2 cup tapioca flour

3 tablespoons honey or sugar

2 tsp. xanthan gum

2 tsp. baking powder

1 tsp. salt

1/2 tsp. unflavored gelatin

1/4 tsp. potato flour

2 large eggs, lightly beaten or 1/2 cup soft silken tofu, creamed

1 cup milk (cow, soy, or rice)

1/4 cup melted butter or vegetable oil

Grease two 5x3 inch non-stick pans, or a 9x5 inch non-stick pan.

Preheat oven to 375degrees F.

Copmobine dry ingredients in large mixing bowl. With electric mixer on low, add remaining ingredients and mix until smooth.

Spoon in prepared pans, smooth top with wet spatula (if necessairy), and bake small pans for 45-50 minutes, large pan for 50-55 minutes until top is deeply brown and loaf sounds crisp when tapped. Don't underbake. cool completely on wire rack before slicing eith electric knife. Serves 12.

NOTE: Sugar may be reduced but crust will be rougher and flavor somewhat diminished.

Yeast-Free Dill Onion Bread: Add one teaspoon dillweed, 1 1/2 tsp dillseed, and 1Tbsp dry minced onion.

Enjoy, lemme know how it turns out if anyone tries it. I just got the cookbook and havent tried it yet. Yumm cant wait though!


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Ahh good point! She is 13 and has been miserable for over two years. It started with chronic hives. We have been to a dermatologist, and a allergist and they brushed it off to her seasonal allergies and now she has joint pain,bloating,constipation,fatigue,headaches just all around miserable. I just want answers quick. she is getting depressed and says she hates her life cause she doesn't think anyone believes her. It's heart breaking . I hope we get answer soon. Thanks for the advice I will keep her on gluten. She is just miserable and I figured the sooner she is off gluten the sooner she will feel better. 
    • Welllllllll, in this particular case it would be best to keep her on gluten until the results come back. The reason I say this is b/c this GI seems whacky. There's a chance you may need to go to a different GI & have the endoscopy redone. I was going to say get a new GI but since the endoscopy is on Monday then I would go forth with it rather than waiting the time it would take to get a new GI & schedule an endoscopy. This GI seems set that it's not celiac & when they get that in their brain it's usually pretty darn hard for them to admit they were wrong. My concern is that she won't take enough biopsies from the right places b/c she's either dumb about how many & where or letting her personal (already formed) opinion influence what she will do. The problem is that you can't be there in the OR with them standing on the GI's shoulders making her do the right thing. Not knowing your daughters age, the other concern is that there may not be "enough" damage just yet, it may be patchy, etc..... that with the mindset this doc has, she will poo poo the dx.  Let me say that it would be a travesty & wholly awful IF you had to put your daughter through another endoscopy but we know how very important it is for her to have an official, dyed in the wool dx. So I'm just trying to think down the line & prevent problems before they come up. I mean, this doc may not even take any biopsies. That sounds insane I realize, but really, it happens more often than you would think. I can't tell you the number of times we've had people come on here after having an endoscopy for celiac where the doc didn't take any biopsies b/c the doc is so stupid as to think they can see the damage & doesn't realize there MUST be biopsies! If you take her off gluten & heaven forbid, you have to end up putting her back on it to get further testing then chances are she's going to get much, much sicker when she's put back on gluten. That most often happens with us and I'm talking about radically sick. See, I'm basing all my thinking on the fact that despite ALL the positive celiac blood work, this dimwit doc doesn't think it's celiac & instead it's all related to the constipation. That is just so far out there, it's NUTS! She's flying in the face of hard evidence! Every test you listed was positive. I can't even begin to understand how this GI comes to her insane conclusion. THAT'S why I am so concerned. 
    • Thanks for your reply. That's what my husband and I thought too. She has a ton of symptoms that's fit celiac. Also I was going to start her gluten free diet after her biopsy on Monday cause the dr said the results take two weeks. Is there a reason I should keep her eating gluten until we get the results? Thanks for your help.
    • In reflex testing they look at a result and decide if the next test is needed.  Another example, some labs only do EMA if the Ttg is positive.
    • Her blood panel is POSITIVE!!!! She's celiac! I don't know what in the world the GI is thinking. That's crazy! The GI obviously doesn't really know celiac. The constipation is tripping her up but celiacs can be constipated as much as they can go the other way and more than 50% of dx'd celiacs presented with NO GI issues. Keep her eating gluten until you get the results of the endoscopic biopsies.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member