Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Why I Still Eat Bread...
0

81 posts in this topic

Sandra, I think the point that everyone is trying to make here, but has not been clearly stated for you yet, is this. If gluten makes you feel sick, you stop eating it, and you feel better, then there is nothing else wrong with you.

As far as I know, and I'm pretty sure everyone else on the board will agree with me, although correct me if I'm wrong guys- if you stop eating gluten and your symptoms go away, you're done! There's no underlying disease that will go dormant when you stop eating gluten and sneak up and attack you ten years down the road. Only gluten intolerance can make you sick when you eat gluten. Epilepsy, COPD, endometriosis- these things do not cause temporary gluten sensitivity. Only gluten sensitivity causes gluten sensitivity.

The most effective way for you to figure this out is this- Go gluten free for six months. You're a dancer, you said, and observing a healthy diet is clearly very important to you for that, so a fruit/veggies/meat/dairy diet is good. In six months, eat some of that vital wheat gluten. Get sick? There's your answer.

By the way, I TOTALLY understand your problem with feeling starving. I went an entire year without being able to sleep through the night because I would have to wake up and eat. The first few months I was gluten free I ate about 6,000 calories a day, and would have eaten more if I had more time in the day. It really will get better, I promise.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Thanks for the link, I have a question about the article, it says:

"The main histology characteristic of [wheat sensitive] patients was eosinophil infiltration of the duodenal and colon mucosa"

My GI said he didn't find any in the endoscopy biopsy he took back in Feb, also my CBC is quite normal (overall WBC was rather low).

Is there a specific test to check for eosinophil infiltration?

Hi Sandra,

They do that my using a microscope and counting the cells of the biopsy samples.

0

Share this post


Link to post
Share on other sites

I think the most significant part of the abstract GeeEff linked to is this:

Our data confirm the existence of non-celiac WS as a distinct clinical condition. We also suggest the existence of two distinct populations of subjects with WS: one with characteristics more similar to celiac disease and the other with characteristics pointing to food allergy.

That is, they suspect there are two subsets of even non-celiac wheat sensitivity, one more akin to celiac disease (with the eosinophil infiltration which you did not appear to have on your biopsy), and one more similar to a food allergy, which may be where you fall.

0

Share this post


Link to post
Share on other sites

Sandra, I think the point that everyone is trying to make here, but has not been clearly stated for you yet, is this. If gluten makes you feel sick, you stop eating it, and you feel better, then there is nothing else wrong with you.

I understand, I'm avoiding it now, I only ate it again for the two tests I had to do (the Carcinoid and redoing the Celiac profile)

What I don't know what to do now is how to handle things like, restaurants/eating out, and things like that. My mom asked me what do I do if I have to go to some social gathering and there is food there, and what if the world's food supply runs out and there is only bread left, then what do I do? (it's silly but she actually asked me that and I didn't know how to answer)

0

Share this post


Link to post
Share on other sites

and what if the world's food supply runs out and there is only bread left, then what do I do?

If, God forbid, this should occur, I think we would have a lot worse problems than eating bread, Sandra. :blink::D

As those before have said....take baby steps. Eat before you go to a social function or bring some snacks with you. And most restaurants can find something that's gluten free for you. Call and talk to the manager, during non-busy hours about what your options are. Salads are always a good choice...and bring your own salad dressing.

You will do just fine, once you get the hang of the diet. ;)

1

Share this post


Link to post
Share on other sites




Hi Sandra,

Try searching for restraunts in your town that serve gluten-free foods. There are usually some around. P.F Chang's, Outback Steakhouse, are a couple chains, there are many more now. Check non-chain restraunts also. There is a certification program called GFRAP that certifies restraunts as gluten-free food providers. Their website lists certified restraunts. But you can find them by searching for gluten-free and your town name also.

If there is only bread left I guess there won't be any butter either.l So we will have to eat toast with mud instead. Yum, sounds great mom! :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,112
    • Total Posts
      919,440
  • Topics

  • Posts

    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,150
    • Most Online
      1,763

    Newest Member
    Ayryil
    Joined