Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Over-Helpful Friends?
0

8 posts in this topic

"I made you some gluten free cookies. Come and get some!" was the last thing I heard from a coworker before getting glutened big time on Monday. It was so sweet of her to go out of her way and make me special cookies, but to her "gluten free" and "wheat free" are the same thing, and they definitely weren't gluten free.

Then there was the Subway incident, where Subway sandwiches were served at a gathering and I was told to take the fillings out of as many sandwiches as I wanted since the bread was off limits. When I politely turned down the offer there were some very disappointed faces. In their minds they had "solved" my dilemma by offering fillings, and didn't understand why I would refuse their efforts.

What do you do/say when people go out of their way to try and be helpful, but really miss the mark? I'd much rather they didn't bother to try and accommodate me, and just let me find options on my own that I know are safe. But at the same time I don't want to offend them.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Some times you gotta risk offending. I just make it clear that because we are extremely sensitive we had to have all new cookware or otherwise my OWN cooking was making me sick. They get the idea. Thank them profusely for their efforts, say how delicious the cookies look and that you wish you could eat them, but you just can't take the chance. You need to portray that it is deadly serious that you not be contaminated, not just that you are afraid of a "bellyache". If you show you are that serious, they will get it.

0

Share this post


Link to post
Share on other sites

Gluten isn't my issue but I do have food intolerances and also diabetes. So I just tell people I will take care of my own food. When my daughter was eating gluten-free I only ever once let anyone bake for her. And I didn't really want to do that. My SIL and her sister baked a pie for her. I figured that would be safe since my SIL doesn't generally do any baking or cooking of any kind although I suppose there could have been oast crumbs or something in her kitchen. The crust was really awful. Gritty. But she didn't get sick.

0

Share this post


Link to post
Share on other sites

I've been dealing with this too.

I'm trying to pre-empt any such efforts in advance by telling my friends please, please don't try to make me something "special," although it's very sweet of you to think of me.

I've just had to be up front and explain that I get violently ill if there's any contamination at all along the way, even pretty much microscopic amounts.

It sounds cold, but it's not as bad as saying all this AFTER they've made something.

It's hard. I'm newly diagnosed and trying to get used to this. I'm going to a wedding this weekend and the groom was going to ask his friend the baker to make me some gluten-free cupcakes. I had to say please don't do that, it's complicated but I will get sick.

Mitzi, that's a good idea about saying my own cooking can do it too...

0

Share this post


Link to post
Share on other sites

I've had to explain to people what I've gone through in my own kitchen to make it safe. I've explained to people that after 10 months, my husband going gluten free, and the fact that I trust him with the life and death decision about whether or not to unplug me after a horrific accident, I still read a label on any food my husband hands me. If it isn't packaged there's an inquisition. This still isn't enough sometimes to convince people that they just can't safely make me food.

I've had people try to force me to eat fruit salad. They've told me it's ridiculous that I won't eat fruit. Well it's ridiculous that I have someone telling me what is and isn't safe for someone with a disease they don't have, don't understand and know next to nothing about. It's ridiculous for someone to make what is essentially a medical decision about my health for me. It's ridiculous for someone to get offended about the fact that I don't want to spend 6 weeks in gluten hell so they aren't offended over the fact that I won't eat a bowl of fruit. And I told them all that too.

I don't do tiptoeing. I don't like the simple "no thank you" or "I'm not hungry" approach because it doesn't deter repeat offenders. I will explain simply that I'm sorry but it simply isn't safe for me to eat food prepared in other people's homes. When they get offended though, frankly that offends me. What right do they have to be offended that I don't want to be sick and miserable or that I want to protect my health? Maybe it isn't the best approach but I tell them then exactly what I think of their reaction and how absurd it is. My disease isn't about them. I didn't ask them to make me food, I never asked to be accommodated. I'm more than happy to eat the snacks I carry in my purse. After 10 months this is more or less a non-issue for me. I'll be damned if I let someone else own my illness and health problems and turn it into how I offended them by daring to be born genetically flawed.

0

Share this post


Link to post
Share on other sites




I just went to a wedding reception Saturday evening. The bride offered to get something gluten-free for me and I told her I'd rather bring my own food. I thanked her for thinking of me but told her how easy it is to cross contaminate, and she was fine with that.

This reception was outdoors and there was a picnic-style buffet. I brought a chicken sandwich on Udi's and no one questioned it. If they had, so what? I'd tell them I had food allergies (because that's easier for them to understand) and leave it at that.

0

Share this post


Link to post
Share on other sites

I always try to head people off when they tell me they'll make something gluten-free for me. I politely tell them that if I don't make it, I can't eat it. Cross contamination is hard to understand to the degree we have to.

0

Share this post


Link to post
Share on other sites

I agree - it's best to nip it in the bud at the risk of offending someone. I have heard "it's gluten free, I used whole wheat flour"....huh. Also, even if they use gluten-free ingredients they are no doubt baking/making it in gluteny pans or cutting boards or colanders, whatever....you are going to get zinged.

One of my kids' friends mom made gluten-free peanut butter cookies - I was in a hurry and took a bite and drove off and my stomach was already cramping...tossed it. Thank goodness I only took a bite.

Someone brought gluten-free muffins to work - I declined & had to politely tell them their muffin tin would be all gluteny, and added don't worry about me, I am very particular and look after myself (ie. please don't try to make anything else!).

My neighbor made gluten-free squares and gave me one while we were sitting together. She's quite old & I didnt' want to offend her so I took a small bite off the top and told her they were good (she then gave me the recipe). While she was distracted I, uh, got rid of it - didn't want to eat the bottom part that was touching the pans. Funny huh ???

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,704
    • Total Posts
      921,803
  • Topics

  • Posts

    • Maybe its trapped water in your ear?  Or maybe an ear infection or allergic reaction to something.  Hopefully you aren't a fan of the Braindead TV show... :)
    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Celiac disease--the inability to tolerate food containing gluten--has long ... Lactobacillus were able to detoxify the gluten and remain symptom-free. View the full article
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,705
    • Most Online
      3,093

    Newest Member
    imissdonuts
    Joined