Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Any Celiacs Out There Have Their Gallbladders Removed (Cholecystectomy)?
0

16 posts in this topic

Anyone have gallstones, sludge or a non-functioning gallbladder (biliary dyskinesia) as a result of celiacs? Did you still have abdominal pain after your gallbladder was removed/post-recovery?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I think mine was bad beforehand and it made it worse to the point where it was pretty much dead (last scan on it was 5%).

No pain here. On occasion i'll have nerve twinges (kinda like a shock) but other than that its fine.

0

Share this post


Link to post
Share on other sites

I'm having mine removed Oct. 24th. I never had any gallbladder problems that I know of until 2.5 years ago. At that time it was functioning at 48%(35% and below would meet surgical criteria) and symptoms were manageable and only her and there. A couple of weeks ago I had an episode. I thought there was something very wrong because I was lightheaded, nauseated, had a lot of chest pressure and my heart was beating fast. When I started burping and got pain in my RUQ and back I knew it was my gallbladder. It now is functioning at 21% and I have no gallstones. Since I had my recent HIDA scan I've been symptomatic almost everyday.

I think the celiac played a role in it going bad even though it didn't start giving me issues until I was 15 months gluten free. I also had a flare of celiac symptoms around the same time in 2010 for 8 months. I later realized I was being CC'd by gluten free oats, which I am extremely intolerant of. Once I got that figured out and under control, the GB just bothered me once in a while so I didn't worry about it. Now it's time for me to get it out. Obviouslly it isn't going to get better only worse. I don't want to wait until I am completely miserable and sick to get it out.

0

Share this post


Link to post
Share on other sites

Before anyone knew I had Celiac, the great idea was to take out my gall bladder, cause it must be why I kept getting sick. Nope. Gall bladder out... still sick. I think I had an unnecessary surgery, but I'm OK, so why worry about it?

0

Share this post


Link to post
Share on other sites




Before anyone knew I had Celiac, the great idea was to take out my gall bladder, cause it must be why I kept getting sick. Nope. Gall bladder out... still sick. I think I had an unnecessary surgery, but I'm OK, so why worry about it?

This was very nearly me. Several ER visits, consult with my primary-care, exam by GE specialist -- everything pointed to gallbladder problems, so let's just take it out. But since stones never appeared on scans, I kept asking questions, and the GE doc did an output test (PIPTA?) 90% functioning -- gall bladder is just FINE!

So we keep looking for what's truly going on, and now celiac is the top contender.

0

Share this post


Link to post
Share on other sites

Oh trust me, it was removed. The assistance surgeon said it looked dead when they took it out O.o

0

Share this post


Link to post
Share on other sites

Mine was removed before i was diagnosed. It was functioning at 21%. I am not sure it was necessary to do as i am permanently on meds for GERD anyway. But i can not change it now.

0

Share this post


Link to post
Share on other sites

I only know I have celiac because of my stupid defective gallbladder. I had stones and kept having horrid attacks but my insurance told me that having it out was an elective surgery that they wouldn't pay for. Although they were more than happy to pay for 1-2 ER visits per month and to keep me drugged senseless on narcotics. :blink: Eventually a stone got out and blocked a duct which took it from annoying to emergency and I had it out two days before Christmas. The next morning I had to have an endoscopy to get the stone unstuck and that's when the GI doctor kind of freaked out at the state of my intestine and did a biopsy. So, blessing in disguise I suppose. If not for my defective gallbladder I'd still be getting sicker by the day with answers.

I find that life without a gallbladder is fine, it just means I get a little gassy if I eat fatty foods. I'll have my follow up blood work soon to be sure that my liver is back to normal function since it was pretty off the charts before my surgery. My doctor says not to stress about it until it's time but that it's possible I have permanent liver damage. So, I guess that's a warning to any of you who think it's fine to live life with stones and think it'll be okay. I was warned to push my insurance harder because until you get rid of the organ you're at risk of damaging your liver enough to need a transplant. Sure it seems elective but it's playing with fire and there is real risk of being burned.

0

Share this post


Link to post
Share on other sites

WIthout mine, i can get upset stomachs with fatty and greasy foods. :3 BUT no pain!

Mine had a blocked duct in it, but it was never specified what blocked it O.o

0

Share this post


Link to post
Share on other sites

Before anyone knew I had Celiac, the great idea was to take out my gall bladder, cause it must be why I kept getting sick. Nope. Gall bladder out... still sick. I think I had an unnecessary surgery, but I'm OK, so why worry about it?

My doc was sure it was my gallbladder making me ill, but all testing came back showing it was okay. I was so frustrated at that point, I almost wanted them to take the darn thing, in hopes I'd feel better. Thankfully he referred me to the GI doc next, who discovered the celiac.

0

Share this post


Link to post
Share on other sites

I've been having gallbladder problems for a couple of years. An ultrasound showed some sludge when I first started having symptoms, but my PCP said it was fine. Over time it seemed to get worse. If I said anything my PCP scolded me that was "absolutely nothing wrong with my gallbladder."

Eventually I was Dxed with Celiac in July of 2011. My gallbladder like symptoms continued even after going gluten-free. Six months later I went to a GI that ordered a HIDA scan. My function was at 30%. I was told to consult a surgeon for biliary dyskenesia. I didn't want to have a non-resersable surgery without knowing more so looked it up. I found that PPIs help slow down function so I went off mine. My GERD had stopped once gluten-free anyway.

Going gluten-free didn't get me healthy, so with a lot of nagging symptoms I went to the Mayo Clinic. The Dr. I saw there said he would advise I kerep the gallbladder and wait for more healing, along with taking RX digestive enzymes.

A hormone (CCK) is made in the duodenum. This hormone tells the gallbladder to squeeze and the pancreas to release digestive enzymes. If there is damage in the duodenum the hormone may not be made..or not sent. Once healed, this hormone should be produced again, and function returns. That's the theory I'm living with right now.

I got glutened the first week of August and my gallbladder pain, nausea, etc came back full force. It showed me I had improved some since first going gluten-free, but still have a ways to go. I'm hanging in and waiting.

I've talked to Dr,s and read articles about people that have the GB removed, only to continue to have problems. In some cases I wonder if the person might benefit from digestive enzymes due to the CCK issue? Something to consider.

0

Share this post


Link to post
Share on other sites

I'm pretty strict with my gluten free diet and I do know that I am for the most part healed. When I had the HIDA scan last month they give you CCK through an IV to stimulate the gallbladder. I'm hear to say that I had moderate cramping/pain from the test. That's how they find your ejection fraction. Even with CCK stimulation mine was only functioning at 21%. I was in discomfort/pain for three days after that. Basically it's being stimulated to contract but it isn't squeezing properly.

0

Share this post


Link to post
Share on other sites

I'm pretty strict with my gluten free diet and I do know that I am for the most part healed. When I had the HIDA scan last month they give you CCK through an IV to stimulate the gallbladder. I'm hear to say that I had moderate cramping/pain from the test. That's how they find your ejection fraction. Even with CCK stimulation mine was only functioning at 21%. I was in discomfort/pain for three days after that. Basically it's being stimulated to contract but it isn't squeezing properly.

try being 5% and having a massive indigestion attack on the table. I too was in pain for days afterward.

0

Share this post


Link to post
Share on other sites

try being 5% and having a massive indigestion attack on the table. I too was in pain for days afterward.

I feel for you. I'm sure that was miserable. That's why I'm dealing with it now before it gets unbearable. The belching and dyspepsia are my worse symptoms right now. I can deal with the cramping/pain.

0

Share this post


Link to post
Share on other sites

I highly suspect my gallbladder is an issue, however I do not have stones or anything visible and I do not want that sucker out unless absolutely necessary! I do not have severe pain or anything that would lead me to act urgently, in fact the symptoms have been hanging around for years now. It is what got me a celiac diagnosis 7 months ago. I had bloating and gas, those were my basic symptoms. I have been gluten free 7 months now and have improved in several areas (some I never knew were related) but still have occasional gas and pressure under my ribs. My 6 month checkup showed celiac antibodies are normal now, including being neg on endomysial antibody. My pos numbers were very high at diagnosis.

At that appt, my GI suggested giving it more healing time, another 6 months, focusing on digestive enzymes, probiotics, and watching the fat connection- such as do I feel crappy after a heavy dessert, etc. and eating more chicken and fish vs red meat, although I have struggled with low iron so I have to watch my intake of iron containing meats. I think I eat too much cheese, which I need to cut out.

She said she would do a HIDA scan but it would hurt like hell if I indeed have a function issue with the gallbladder. She scared me and I don't want to do it! She also said that function test is not always accurate, there are people that test 80-90% function and need that gallbladder out in time- on the flip side, some have 10-20% function tests and don't have a real problem, some still have issues after removal. Her basic advice is I should have pain before having it removed.

I was hospitalized for 8 days 6 years ago when my appendix ruptured and I was in septic shock- I almost died. My daughter was only 2 and it was a scary time for all of us, and a horrible recovery- I had laparoscopic removal before they knew I was septic, had to then have open abdominal surgery that night. 8 weeks of antibiotics, infected incision, you name it, it happened, and I am certain my celiac stemmed from that. ("Activated")

So, I am so leery of surgery unless I 100% need it. For now, trying to get healthier and focus on healing. Hoping for the best!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,635
    • Total Posts
      918,420
  • Topics

  • Posts

    • Celiac Night Vision
      Scotomas returned for the 7th year on the 24th February despite liver pâté and have varied since with 3 brief gaps. I have always had migraine, latterly occurring more than once a month, usually of basilar or retinal type with aura (but no headache) lasting less than 5 minutes. A recent bout looked like a TIA and led to a CT scan which revealed clear major vessels but old cerebellar infarcts, so maybe migraine accounts for poor memory too. The scotomas are very different from migraine eye symptoms - stationary, irregular in shape and lasting hours. I think food is excluded as the cause but seasonality, gaps, variation with wind direction and rain mean that pollen is still a possibility. Scott Adams did a marvellous thing founding this site so celiacs could enlighten each other. Please post if you have anything like these scotomas!
    • healthy bread recipe?
      Eat what you eat at lunch or dinner.  I am happy with a fried hamburger patty, fish, or chicken (I know it needs to be fresh or frozen for the histamine diet).  Yes, I eat veggies for breakfast!   Wanted to add that I was glutened in July (GI ordered follow-up antibodies testing and it was high)  and it took me 3 months to recover.  Picked up a histamine intolerance and became lactose intolerant again.  Luckily, when I healed, the histamine thing went away (or  Diminished ) and the lactose intolerance resolved.    I was getting hives, rashes and itching (not DH), vomiting, etc.  So, her intolerances may be just temorary!  
    • Could this be celiac or is it really just IBS?
      Are you sure you had the complete celiac panel?  Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)     -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)   Here is more information from a reputable site (and not just info from a crazy cyclist on the Internet!):   http://www.cureceliacdisease.org/screening/   IBS, in my opinion, means "I Be Stumped!"  It is just a cop out!  So is the "stressed" thing.     I also had my GB out too.   It was a non-functioning (0% per HIDA scan), no stones, and rotting.     You seem to have many celiac disease symptoms.  Verify (obtain copies of your lab tests) to see if you got the complete panel. You might just have had the TTG IGA and TTG IGG tests.  Good for screening but it does not catch all celiacs.  My TTG tests are always negative even on follow-up testing.  The DGP test catches a positive for me.  My biopsies revealed moderate to severe damage.  If my celiac-savvy GI did not order the complete panel, my celiac disease diagnosis would never have been caught.   if celiac disease is really ruled out, research mast cell disorders.  The flushing and GI upset sound familiar!  You can have more than one thing going on!  But I would put my money on celiac disease!            
    • tightness in throat after eating gluten?
      I've noticed that if I accidentally eat gluten, for the next few days I have this tightness in my throat. It feels like my throat is closing. It's not constant, but comes and goes throughout the next 1-3 days. My hands have also been itchy. Is this a normal symptom for celiac or gluten intolerance, or could it possibly be an allergy? I haven't been tested or diagnosed with celiac or anything yet, so I'm still not entirely sure. All I know is that gluten makes me very sick.. But especially with the itchiness and tight throat.. I'm allergic to acetaminophen and my reaction is similar, so it just makes me wonder. What do you think?
    • Diagnosis and Test Results
      I am sorry that you are sick!  😔.  I think you need to find out which celiac antibody tests were given.  Often just the TTG Is ordered for initial screening.  This test catches most, but not all celiacs (like me!)   You also need to see if they gave you the igA deficency test too.   Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)   -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)     http://www.cureceliacdisease.org/screening/ You can go gluten free, but knowing if you have an autoimmune disease is helpful.  celiac disease is genetic (you have the genes, but so does 30% of the population and that's why the gene test is used only to exclude celiac disease and not diagnose it).   All family members should be tested even if they are symptom free.   I hope you figure it out and I am sorry that you had such a horrible experience.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,726
    • Most Online
      1,763

    Newest Member
    bitsunderground
    Joined