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Blood Test Issue
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3 posts in this topic

Spent the last month in and out of the hospital due to blockages and twisted small intestines but after a battery of tests, nothing was found. CT scans and steady X-Ray motoring confirmed these small intestinal blockages and after the Exploratory Laporatomy the surgeon found nothing.

After the Surgery, the blockages continued and the pain increased which brought me to the E.R. and admitted three more times spending the last month in and out of the hospital as they waited for the blockages to solve themselves.

The only other tests included the x-ray which included drinking the barium and PBG test.

And the most confusing part was the fact the the blood test that they performed to confirm my Celiac disease stated that my gluten sensitivity was normal even though when I first was diagnosed after a upper and lower GI biopsy and blood test:

Posted 26 May 2009 - 08:17 PM

Result Flag Reference Range

TTG AB IGA SCR W/RFX EMA IGA

TTG AB IGA 85 H 0-19 Units AR

]INTERPRETIVE DATA: Tissue Transglutaminase Antibody, IgA

IgA antibody against human tTG, if detected at a level greater than 19 units, may suggest the possibility of certain gluten sensitive enteropathies such as celiac disease and dermatitis herpetiformis

RFX ENDOMYSIAL TITR 1:10 H <1:10 AR

TEST INFORMATION: Endomysial Ab, IgA

Endomysial antibodies are screened using an ELISA tissue transgl~taminase (tTG) assay. All samples which are positive are titered on endomysial tissue by IFA. The endomysial antigen has been identified as the protein eross-linking enzyme known as eissue transglutaminase. Presence of IgA antibodies against human tTG suggests the possibility of certain gluten sensitive enteropathies such as celiac disease and dermatitis herpetiformis.

AR - TEST PERFORMED BY ARUP REFERENCE LABORATORIES 500 CHIPETA WAY, SALT LAKE CITY, UT 84108-1221

FLAGS: L=Low, LL=Critical Low, H=High, HH=Critical High, D=Delta, A=Abnormal

Acct# G00709522247 ** END OF REPORT **

Loc: G.LABOP -

----------------------------------------------------------------------

WHY NOW DO THE BLOOD TEST STATE I HAVE NO GLUTEN SENSITIVITY?

That was three years ago and I do follow the diet as close and religiously as I can, is it possible due to that am conscious with what I do digest state a false-negative?

They released me yesterday and told me that I had to go to a facility that can do the PILLCAM endoscopy procedure.

Which seems kind of sketch, especially due to the frequency of my visits, especially after the surgery where there was a 9" incision and nothing was found.

This has deeply effected my life in every way; work, school, and much more monetary commitments that I cannot take care of with out the work. A very big set back.

Any Suggestions???

Any Answers???

Thank You

Josh

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If you have been gluten-free for three years, you should absolutely expect to test negative. The tests look for antibodies which your body produces in response to gluten. No gluten--no antibodies.

The negative results confirm that your diet is, in fact, gluten-free.

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I am sorry you have having all these intestinal blockage issues. It must be very frustrating for you. Perhaps the pill cam will show something that a laparotomy could not.

As Peter says, if you have been religiously following a gluten free diet you should by now test negative for gluten antibodies, because they only appear in the presence of gluten. Your doctor should have explained this to you, or perhaps he didn't know? :unsure: The pill cam also should not see any damage in your small intestine caused by gluten because that should have healed in three years. But it can see what is causing your current problems perhaps?? It seems to me to be logical next step since nothing they have done so far has been able to pinpoint problems.

Let us know how the pill cam turns out. :)

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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