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Blood Test Issue
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3 posts in this topic

Spent the last month in and out of the hospital due to blockages and twisted small intestines but after a battery of tests, nothing was found. CT scans and steady X-Ray motoring confirmed these small intestinal blockages and after the Exploratory Laporatomy the surgeon found nothing.

After the Surgery, the blockages continued and the pain increased which brought me to the E.R. and admitted three more times spending the last month in and out of the hospital as they waited for the blockages to solve themselves.

The only other tests included the x-ray which included drinking the barium and PBG test.

And the most confusing part was the fact the the blood test that they performed to confirm my Celiac disease stated that my gluten sensitivity was normal even though when I first was diagnosed after a upper and lower GI biopsy and blood test:

Posted 26 May 2009 - 08:17 PM

Result Flag Reference Range

TTG AB IGA SCR W/RFX EMA IGA

TTG AB IGA 85 H 0-19 Units AR

]INTERPRETIVE DATA: Tissue Transglutaminase Antibody, IgA

IgA antibody against human tTG, if detected at a level greater than 19 units, may suggest the possibility of certain gluten sensitive enteropathies such as celiac disease and dermatitis herpetiformis

RFX ENDOMYSIAL TITR 1:10 H <1:10 AR

TEST INFORMATION: Endomysial Ab, IgA

Endomysial antibodies are screened using an ELISA tissue transgl~taminase (tTG) assay. All samples which are positive are titered on endomysial tissue by IFA. The endomysial antigen has been identified as the protein eross-linking enzyme known as eissue transglutaminase. Presence of IgA antibodies against human tTG suggests the possibility of certain gluten sensitive enteropathies such as celiac disease and dermatitis herpetiformis.

AR - TEST PERFORMED BY ARUP REFERENCE LABORATORIES 500 CHIPETA WAY, SALT LAKE CITY, UT 84108-1221

FLAGS: L=Low, LL=Critical Low, H=High, HH=Critical High, D=Delta, A=Abnormal

Acct# G00709522247 ** END OF REPORT **

Loc: G.LABOP -

----------------------------------------------------------------------

WHY NOW DO THE BLOOD TEST STATE I HAVE NO GLUTEN SENSITIVITY?

That was three years ago and I do follow the diet as close and religiously as I can, is it possible due to that am conscious with what I do digest state a false-negative?

They released me yesterday and told me that I had to go to a facility that can do the PILLCAM endoscopy procedure.

Which seems kind of sketch, especially due to the frequency of my visits, especially after the surgery where there was a 9" incision and nothing was found.

This has deeply effected my life in every way; work, school, and much more monetary commitments that I cannot take care of with out the work. A very big set back.

Any Suggestions???

Any Answers???

Thank You

Josh

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If you have been gluten-free for three years, you should absolutely expect to test negative. The tests look for antibodies which your body produces in response to gluten. No gluten--no antibodies.

The negative results confirm that your diet is, in fact, gluten-free.

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I am sorry you have having all these intestinal blockage issues. It must be very frustrating for you. Perhaps the pill cam will show something that a laparotomy could not.

As Peter says, if you have been religiously following a gluten free diet you should by now test negative for gluten antibodies, because they only appear in the presence of gluten. Your doctor should have explained this to you, or perhaps he didn't know? :unsure: The pill cam also should not see any damage in your small intestine caused by gluten because that should have healed in three years. But it can see what is causing your current problems perhaps?? It seems to me to be logical next step since nothing they have done so far has been able to pinpoint problems.

Let us know how the pill cam turns out. :)

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    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
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    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
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