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If It's Not Celiac, What Is It?

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KC in KC

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Posted 01 October 2012 - 10:09 AM

Well, my celiac panel came back negative for celiac. I've asked them to mail me the actual lab results, so I don't know yet exactly what was found.

Endoscopy showed "moderate inflammation". I've got no idea just what that means.

Currently undergoing antibiotics for H.pylori, and then I'm due for a repeat endoscopy.

And just for fun, this has pushed me into finally getting my daughter's frequent tummyaches investigated. Her first visit is this afternoon.

I'm really fighting the urge to go ahead an go gluten-free as a trial, but I'm afraid of screwing up the test results. So here I sit. :(
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Posted 01 October 2012 - 10:19 AM

I guess you are stuck until your repeat endoscopy to see if the inflammation has cleared up, or not!!
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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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Posted 01 October 2012 - 12:03 PM

Get a copy of the pathology report, too. This is the report of the biopsy specimens he took during the endoscopy. If he didn't take any biopsies, he can't say you don't have Celiac. Also, if he only took 2, he might have missed the actual damage. It is usually very hard to see with the scope.
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