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If It's Not Celiac, What Is It?


KC in KC

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KC in KC Newbie

Well, my celiac panel came back negative for celiac. I've asked them to mail me the actual lab results, so I don't know yet exactly what was found.

Endoscopy showed "moderate inflammation". I've got no idea just what that means.

Currently undergoing antibiotics for H.pylori, and then I'm due for a repeat endoscopy.

And just for fun, this has pushed me into finally getting my daughter's frequent tummyaches investigated. Her first visit is this afternoon.

I'm really fighting the urge to go ahead an go gluten-free as a trial, but I'm afraid of screwing up the test results. So here I sit. :(

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mushroom Proficient

I guess you are stuck until your repeat endoscopy to see if the inflammation has cleared up, or not!!

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kareng Grand Master

Get a copy of the pathology report, too. This is the report of the biopsy specimens he took during the endoscopy. If he didn't take any biopsies, he can't say you don't have Celiac. Also, if he only took 2, he might have missed the actual damage. It is usually very hard to see with the scope.

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    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      What kind of stool test was done? Can you be more specific? 
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      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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