Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Look At My Pics Please
0

20 posts in this topic

So let me start by tellig my story. About a year Ago I started getting very itchy skin. It began to flare up worse and worse.I went to the dermatologist who said I had eczema. I have gone back again during a flareup and they still say the same thing. It's not eczema I actually have hives. I have done my own research and I am convinced I have DH and will be asking for a biopsy. I am 29 year old female. What do you think of these pics? I live off of Benadryl or atarx and have been on steroid creams and protopic that just hurt my skin. Also all my rashes are bilateral . Lately it's my back an ld buttocks

E8E177CF-F58B-4B67-8B07-0698231876AB-5004-0000032A2C13A844.jpg

B4149B5F-777B-4FC4-B1C1-35F10AF54722-5004-0000032A28700018.jpg

6A82C7D8-205C-4B7C-9EFE-E8186E9EA5F3-5004-0000032A2448E2F6.jpg

99DE7239-EEDD-420A-B773-CC0FC6E0FB8E-5004-0000032A2560C763.jpg

5310D3F0-ED17-4215-8FEE-5F1C7386A57C-5004-0000032A23AFCD7E.jpg

I believe this is a true dh lesion

C9669C2E-25D5-43ED-B2D7-58A38C76D797-5004-0000032A228A1988.jpg

95118876-0F97-4A35-AEFB-FA75A90DC7B7-5004-0000032A234C75E1.jpg

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yep, sure looks like DH to me. You said you have been on steroid creams, hopefully not recently if you want to see a derm for a biopsy? Apparently recent steroid use will reduce the likelihood of it being diagnosed. In the meantime, have you found the thread about itch relief on here? As well as info. on the right way for a dermatologist to biopsy? (Next to the lesion, not on it...). You don't want to start eating a gluten-free diet until after any tests, unfortunately.

Hopefully others will agree, but I figured I'd throw in my comments.

And, welcome to the forums, keep us posted on a possible visit to a derm or going gluten-free!

Edited by ciamarie
0

Share this post


Link to post
Share on other sites

Thank you. I have an apt for the 16th and I am going to request the biopsy next to a lesion. Might have to. Be on my butt.... Ouch!

0

Share this post


Link to post
Share on other sites

It may be a combination of DH and hives. I had both. I know you are in agony right now so I would suggest in addition to seeing the derm that you ask either him or your GP for a celiac panel. After all testing for celiac is done then do give the diet a good strict try. Also check your topicals, shampoos, lotions etc for gluten ingredients. I hope you get some relief soon.

0

Share this post


Link to post
Share on other sites

Yours looks a lot like mine. The arm pits and waist and tail bone are the worst, aren't they?

I use Vanicream and ice packs on mine. Vanicream doesn't irritate and ice packs stop the itching.

Good luck with your biopsy. Stay off the steroids of you can til after biopsy. Be prepared, if you're on them and go off it will flare.

0

Share this post


Link to post
Share on other sites




I'm off everything but Benadryl since I am 12 weeks pregnant. I will make and apt for my GP or ask the derm for a celiac panel

0

Share this post


Link to post
Share on other sites

I was just diagnosed with DH and mine looked almost identical to yours. I had what looked like hives all over the place. I didn't have any blisters whatsoever. I went to 2 dermatologists and my GP several times before I finally got the diagnosis, but I started on dapsone two weeks ago and my rash is almost completely gone. The dapsone has given me relief where nothing else did and now I am almost completely gluten free for a week. Hope you have better luck getting diagnosed than I did :(! Good luck! Hope you feel better soon!

Jenn

0

Share this post


Link to post
Share on other sites

Jenn did they do a biopsy??? I har read it has to be done a certain way...

0

Share this post


Link to post
Share on other sites

I had four biopsies done by a doctor that didn't really know where to do the biopsies. I ended up being diagnosed with scabies, atopic dermatitis, and medication allergies. I finally started researching myself and figured out it was DH. I went to a new dermatologist and told him that I thought it was DH, so he started me on a trial of dapsone. In the two weeks I have been on the dapsone the itch and rash are almost completely gone......the itch was almost non-existent in two days or so. I actually went back today and he told me he isn't even going to do a biopsy. He said he feels like the dramatic response to dapsone was diagnostic itself and I had DH. You might look at the thread I started called "Does this look like DH to you?" Squirmingitch posted some links to websites that I printed and took with me to the doctor's office. The links tell exactly where the biopsy should be done as well as gives other information about DH which I found very interesting and informative.

Hope that helps!

Jenn

0

Share this post


Link to post
Share on other sites

This looks exactly like something I had two years ago. I felt it was just a really bad case of hives and it lasted about 10 days. It wasn't until this year that I figured out it was DH in one of its more recognizable, meaning classic, presentations! For the past 5 months I 've been on the low iodine and low salicylate diet and for the past two weeks the rash is calmer than it's been in years.

0

Share this post


Link to post
Share on other sites

Yuppers, looks like you have dh. sad.gif I'm sorry.

Welcome to the board. I hope you don't have as big a problem getting dx'd as most of us but be prepared. You have it bad & IMHO blisters & lots of lesions are just around the corner for you. I hope not but I'm afraid that is likely to happen. You've been given good advice by the others.

You might want to check & see if there is a celiac support group anywhere near you. If there is, you can check with them to possibly find a derm in your area who has experience with recognizing & taking a biopsy of dh.

Don't stop eating gluten until testing is finished. And try your best not to scratch. Scratching easily destroys the markers they will be looking for.

Keep us posted.

0

Share this post


Link to post
Share on other sites

Thank you all. This has been such a battle. I never thought I would wake up one day with allr these skin issues and not have a reason. After my testing I will be going gluten free regardless of the results. I tried going dairy free already and it didn't help. I've had some food allergy testing all that came out neg. I may make an apt at another derm just to have it lined up for a second opinion. The itch consumes my day. I don't go outside because of how my skin looks. My last hive outbreak 2 days ago I soaked in a bath with a cup of apple cider vinegar and it was very soothing but the damage was done from all the itching. I wake up with blood from itching in my sleep. Honestly this has gotten me quite depressed. I really hope by result of the biopsy comes back pos. I just want answers.

0

Share this post


Link to post
Share on other sites

That looks like what I had before I gave up gluten. I never had it as wide spread as you and honestly, I'd forgotten how red it was. Like many people here, I've never had a positive result for gluten testing, but it absolutely is DH. Be prepared that you may never get an absolute answer.

It wasn't until I went gluten-free that I ever got actual blisters. I still get tons of hives. It's like they live just under the surface of my skin and wait for the slightest scratch to come blaring alive.

It's pretty normal to go through some depression about this. Seriously, it's completely crazy-making stuff! I've cried about it many times. It's taken 1.5 years of gluten-free living (strict, too), to get to a point where I see a wee bit of light at the end of the tunnel. Compared to what it was, my skin looks good, though it still itches like a mother.

I feel for you, I really do. Unless you can get into see a derm quickly, I wouldn't wait to go gluten-free.

0

Share this post


Link to post
Share on other sites

kmag's last line is another reason so many with dh don't have official dx's. The moment I figured out what it was --- that was it! --- I went gluten-free with the next thing I put in my mouth. No way I was waiting around for an appt. When you realize it can take up to 2 years & sometimes even longer for the antibodies to get out of your skin; you don't want to waste one single day of getting started.

Cmigi, since you're pregnant I know you're going to be on pregnancy vitamins. You need to talk to your doc about this. You may need to find a suitable vitamin that DOES NOT contain iodine. Iodine is medically known to an effect on dh. It can really make it flare! That is what most of us have experienced also. A few have not had iodine make any difference but that seems to be the minority.

I have a vitamin which is gluten-free as well as iodine free. it is Solgar brand "Vitamins Only" but I don't think they qualify as a pregnancy vitamin. Pricklypear has a iodine free vitamin also. You could ask your doc to prescribe (even if they have to compound it) some LIQUID pregnancy vitamins which are gluten-free & iodine free.

0

Share this post


Link to post
Share on other sites

Well since my derm apt is in 2 weeks I'm gonna keep on going. I can handle 2 more weeks, I've done a year worth of this!

0

Share this post


Link to post
Share on other sites

Well since my derm apt is in 2 weeks I'm gonna keep on going. I can handle 2 more weeks, I've done a year worth of this!

This is good. Since your child can end up with celiac it would best if you can get a dx.

0

Share this post


Link to post
Share on other sites

Really it's hereditary?? My 7 year old has a lot of stomach pain, we took her to a pediatric gi and since she has no diareah it anything they said its in her head. I wonder if it could be the start of something for her down the road? Just pain to begin and in 10 years things will be worse

0

Share this post


Link to post
Share on other sites

There is a genetic factor, but only a minority of those with the genes actually develop celiac disease. It is recommended that all first degree relatives of someone diagnosed with celiac disease be tested.

0

Share this post


Link to post
Share on other sites

I'm a little late to reply, so I don't know if this is useful information or not..........

My son used to get this rash, head to toe, and start bleeding.

We were given a prescription for a very expensive cortisone cream, but what

we found effective (before going gluten-free and df) was a homeopathic ointment called

Arnica ointment. As a baby, he would literally sigh when it was applied, and it

would take the itch/pain away, and take away the inflammation.

Very difficult days and sleepless nights for the whole family,until we got it all

sorted out. I feel for you, and hope your discomfort gets under control.

When he has a flare up, I pull up his pant leg for the tell-tale sign that he has

been glutened. There is one spot on his leg (he was born with it) that welts

and discolours first - our secondary indicator.

Good luck

0

Share this post


Link to post
Share on other sites

Aw your rash looks super uncomfortable :( I hope it heals soon

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,757
  • Topics

  • Posts

    • Do you mean something like a protein powder you could mix up?  A lot of them in the US seem to be gluten free.  Maybe just go to your local store and read all the labels?
    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,692
    • Most Online
      3,093

    Newest Member
    EllianaEthan
    Joined