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19 replies to this topic

#16 squirmingitch

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Posted 02 October 2012 - 01:05 PM

Well since my derm apt is in 2 weeks I'm gonna keep on going. I can handle 2 more weeks, I've done a year worth of this!


This is good. Since your child can end up with celiac it would best if you can get a dx.
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

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#17 Cmlgl

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Posted 03 October 2012 - 03:16 AM

Really it's hereditary?? My 7 year old has a lot of stomach pain, we took her to a pediatric gi and since she has no diareah it anything they said its in her head. I wonder if it could be the start of something for her down the road? Just pain to begin and in 10 years things will be worse
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#18 psawyer

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Posted 03 October 2012 - 08:11 AM

There is a genetic factor, but only a minority of those with the genes actually develop celiac disease. It is recommended that all first degree relatives of someone diagnosed with celiac disease be tested.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#19 deb445

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Posted 03 November 2012 - 06:06 PM

I'm a little late to reply, so I don't know if this is useful information or not..........

My son used to get this rash, head to toe, and start bleeding.
We were given a prescription for a very expensive cortisone cream, but what
we found effective (before going gluten-free and df) was a homeopathic ointment called
Arnica ointment. As a baby, he would literally sigh when it was applied, and it
would take the itch/pain away, and take away the inflammation.
Very difficult days and sleepless nights for the whole family,until we got it all
sorted out. I feel for you, and hope your discomfort gets under control.
When he has a flare up, I pull up his pant leg for the tell-tale sign that he has
been glutened. There is one spot on his leg (he was born with it) that welts
and discolours first - our secondary indicator.
Good luck
  • 0

Gluten free for 4 years. Dairy free for while.

Grain free for a little while. Pain free for a little while.




"Life isn't about waiting for the storm to pass, but about learning to dance in the rain..." ~unknown


#20 StephieRN

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Posted 08 November 2012 - 05:56 AM

Aw your rash looks super uncomfortable :( I hope it heals soon
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