Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

How Can You Tell The Difference Between


lorka150

Recommended Posts

lorka150 Collaborator

hey everyone,

I understand that soy is hard to digest for most of the world - it's just a fact. But how do I know if I am developing a sensitivity to it, or if it is simply just difficult for my bod to digest it?

I can't get rid of it from my diet because I need it! I don't do dairy, and hate meat, so soy is a huge protein source for me.

I just find I get stomach grumblies after my coffee (with soymilk), and if I have large amounts, sometimes I get a tummy ache. But I know that what I am having is gluten free. I don't want to have to give up soy, but I don't really know how to tell the difference between odd digesting and a reaction anymore.

I feel as though this intolerance has made me paranoid about EVERYTHING that comes outta my belly!

Does anyone have any input? Thanks!

(PS. After my soy yogurt tonight, I got a little dizzy, but that hasn't happened before. Perhaps that was an odd fluke.)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Merika Contributor

Hi Lorka,

Well, I don't know if you have an intolerance or an allergy....it's very likely to have allergies to proteins such as milk and soy after having celiac damage to your body. I ate soy for years with I thought no problem. Then I did an allergy tested and tested way positive for it. I already knew by then my ds was allergic to it, and since he was nursing, I had already been off all soy for many months.

I hear ya on the protein and whatnot. I have been vegetarian for 13 years, and while I wasn't super heavy into soy, I did have soymilk every morning with my cereal. There is lots of research out there that suggests unfermented soy is not so great for people, so don't feel you're missing out if you give it up for a while.

I eat a lot of beans (primary protein source) along with nuts and dairy. Recently I have been adding in tiny amounts of meat - mostly just so that I CAN eat it, and it will give me more hope of ever being able to eat out. Vegetarian and gluten-free will net you a plain lettuce salad in nearly every restaurant - yuck!

If you want to know what your body is up to, I'd suggest an ELISA food allergy/intolerance test. It's a simple blood test.

Hth,

Merika

Link to comment
Share on other sites
lorka150 Collaborator

Thanks for your reply.

I am currently staying dairy free - mostly because I don't want to create an intolerance to it, so I am staying away from things that might that weren't in my system before hand.

I really enjoy all soy products. I think in Canada I cannot get the ELISA test.

Link to comment
Share on other sites
gf4life Enthusiast
I ate soy for years with I thought no problem. Then I did an allergy tested and tested way positive for it.

I could have written that exact sentence. This is the same thing that happened to me. Once I was told that I was allergic to soy, I was able to pin point my allergic reactions to the soy protein.

It was funny when the allergist said I was allergic to soy he says"but it shouldn't be a problem because most people don't eat much soy" (this is not true anymore,5 years ago maybe, but soy is being added to a LOT of foods now!). I laughed and said "I do, everyday". Since I cut it out of my diet I feel better, but my reaction now it much stronger. I had trouble breathing after eating some soy cheese. I was dairy free and wanted cheese. I figured I could just take Benadryl for the "itchies", but the breathing thing sort of freaked me out and I am much more careful with the soy now.

Have you tried Almond milk instead of soy milk? My kids and I love the Almond Breeze by Blue Diamond. The plain is okay for things like coffee, cereal, cooking, etc. but the chocolate is much better for just drinking cold or hot. It is fairly high in calcium, vitamin D, and vitamin E. It is dairy free, gluten free and cholesterol free, also lowfat. We are all back on dairy, but we still drink the chocolate on a regular basis.

I hope you are able to tell if you are allergic or intolerant to soy. A simple blood test would show if you are allergic to soy. An intolerance would have to be based on charting the symptoms and doing an elimination diet. You can get digestive problems with both an allergy or an intolerance, so you might want to just go ahead and get the allergy test done. Then if nothing shows, do the elimination diet.

Do you have problems with anything other than the coffee/soy milk. Have you looked at the coffee as a suspect for causing your digestive trouble? Coffee can irritate the stomach, especially if you are having over production of acid issues.

Did you eat the yogurt on an empty stomach? It could have been too high in sugar and given you a sugar rush. Or it could be the soy...

God bless,

Mariann

Link to comment
Share on other sites
lorka150 Collaborator

I have a question about the blood testing. If I got lots of foods tested, including gluten, would the foods that I stay away from, as well as gluten, show up as "fine" because I don't consume them?

And then would foods I eat more often, despite an allergy or not, show up positive, if I eat them daily? IE soy?

Thanks.

Link to comment
Share on other sites
Merika Contributor

You will only get a positive on the elisa test if you are in fact allergic to it, regardless of how often you eat it. Of course, with celiac, the more often you eat something, the more likely you are to develop a food allergy to it. (Hence, people have come up with rotation diets.)

I had it really bad, and tested positive to nearly everything, but tomatoes - go figure, i eat them everyday. I tested negative to all meats - but then i haven't consumed them in 13 years. My plan is to reintroduce meats on a rotation diet - none of the same meat in seven days.

I tested positive to soy, dairy, beans, cabbage, you name it. Oh, I should mention my results were "in between" pos and neg for chocolate and coffee - also both regulars in my diet. So that was encouraging :D

GF4life - is the vitamin E in the chocolate almond milk not derived from soy??? Most is, but I'd love to find one that's not....

Merika

Link to comment
Share on other sites
lorka150 Collaborator

Did you test positive for gluten? (If you had been gluten free for a long time?)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kactuskandee Apprentice

Merkita,

It is my understanding that Almond Breeze does indeed have soy in it, but Pacific Brands Almond milk does not, however they don't make a chocolate version....I make my own chocolate syrup out of plain cocoa and sugar and a little water, or add an organic syrup to the almond milk that does not have soy in it. I find I'm even sensitive to soy lecithin, even though they say most people shouldn't be. To date I've not found a dairy free dark chocolate bar that doesn't have it in it, so if anyone know of one, please let me know.

Kandee

lorka150 - I get dizzy when I accidentally get some gluten, but haven't had that happen with accidentally getting soy. With soy my muscles, especially in my legs ache as if I'd been running a marathon. Strange reaction I know, but that's what happens. Besides gluten, soy is the next hardest thing to stay away from. Mariann had good advise..get a serum allergy test to start.

Link to comment
Share on other sites
gf4life Enthusiast

Merika,

The vitamin E is derived from soy lecithin. I don't react to it, but if you are extremely sensitive to the soy oils as well, then you should avoid this product. Most people with a soy allergy don't react to the oils, but when you say "most", then that means there are a few people who do react.

Kandee,

There is a website that sells dairy free/soy free chocolates. I haven't ordered from them, since I can have the soy oils, but it might be worth the $$ to have some chocolate! They make them for Passover, so they make a new stock each spring. They say on their website to call to see what they still have in stock. Or you can wait until spring and order from their fresh batch. They also sell a gluten-free cake mix and a gluten-free brownie mix. And if you go to their home page you can view their complete list of Gluten-free Casein-free items. The chocolates there do have soy lecithin though, but they also make other non-chocolate candy items.

Open Original Shared Link

God bless,

Mariann

Link to comment
Share on other sites
Merika Contributor

Lorka,

There was no test for gluten on the elisa allergy test. Celiac would not show up, because it's not an allergy. I tested negative for wheat, which just means I'm not allergic to wheat (different body reaction than celiac). By now, almost 2 yrs gluten-free, if I were to do a celiac blood panel, I should test negative. As for the wheat allergy, I did the tests at a time where I was not consuming wheat, but had been recently enough for allergy antibodies to show up. Does that make sense?

Ds and I both avoid ALL soy, lecithin included.

Kandee, whole foods brand 365 makes a gluten-free, soyfree dark chocolate bar that is pretty good. I'm not sure if it's dairy free, as I eat dairy, but the dark chocolate one I would think would be dairy free. It comes in a red wrapper, and there's also a version with nuts.

Merika

Link to comment
Share on other sites
lorka150 Collaborator

Yes, makes sense! Thanks for all your help!

I'm really excited about something. I had my first gluten-free restaurant experience today, and after having a short prayer to God, entered, ate, and didn't get sick. I feel SO great about it! Just wanted to share my happiness!

Link to comment
Share on other sites
bluefin Newbie

if yopu have sensiutivity by eating those foods stop eating them

or eat them in moderation

try different kinds of substitutes then

then you will be able to adjust top those foods

Link to comment
Share on other sites
Nevadan Contributor

Food sensitivities vs allergies - VERY confusing, even to the medical profession. It is somewhat a matter of sematics. From my research the most consistent definitions are based one whether an IgE or IgG based reaction occurs. IgE reactions are typically immediate reactions and can be tested by the skin scratch test; IgG based reactions are typically delayed reactions and are tested by blood tests. The York Nutritional Labs website has a pretty good explanation at Open Original Shared Link

After finding that I was gluten sensitive a few months ago, I recently submitted blood samples to York for their ELISA sensitivity (IgG) testing and am awaiting results due any day now. York's claim to fame is that their blood sample is done at home by a simple pin prick in the finger tip instead of a regular blood draw at a lab. York claims their testing has been validated by multiple independent studies. I'm sure you can use York via mail from Canada.

Hope this helps.

George

Link to comment
Share on other sites
skbird Contributor

I feel I have a pretty good handle on food allergies versus sensitivities at this point but still feel confused by some of the reactions I have. For example I started craving corn all the time, then after a while I started having hangover reactions when I ate corn. Then I dropped it from my diet, and now the last two times I have had corn (corn chips) I have within the hour had strong itching on my neck/collar bone area, sides, and inner thighs. No rash. The itching and the quickness of it makes me think it could be a mild allergy but the other symptoms previously aren't typical of an allergy. Then I read on the web that a corn allergy is extremely rare. So I don't know what to think.

I'm beginning to think that rather than having a bunch of sensitivities I have a digestive problem, like leaky gut or something, because it seems too weird to still be finding more and more problem food groups. At some point, this should end, right?

Stephanie

Link to comment
Share on other sites
Kathy E. Newbie

Actually, that is exactly what I would expect with corn allergy. I've had food allergies for years, decades in fact...and if you have celiac you almost certainly have a leaky gut. Corn allergy is not uncommon. It is often, very commonly true that we crave those things we are allergic to. And after the body is cleared from an allergen that you used to eat every day, the more acute reactions come out...before that the body is stressed but adapting or semi-tolerating the antigen.

My own daughter has corn allergy and it gives her lupus flares.

Peace,

Kathy E.

Link to comment
Share on other sites
Kathy E. Newbie

I should add that I have a primary (genetic) immune deficiency including an almost total lack of IgA, the primary mucosal defense of the intestinal lining and other mucosa. My intestinal permeability (leaky gut) test clears up when I avoid wheat and other food allergens. Fortunately I'm not allergic to corn, but I do have mild allergies to rice and soy, which makes this whole celiac thing rather difficult.

I avoided gluten for a year in the 90s and my intestinal permeability test normalized. Recently I was having a lot of problems with diarrhea, so I had serological testing (resisting the biopsy thing), and in spite of having low IgG as part of my immune deficiency, I tested positive for anti-gliadin antibodies. Since I am already at risk of lymphoma because of the PID, no sense taking any more risk by eating gluten! I started a gluten-free diet again this past week.

I don't know where you read that corn allergy was rare, but don't believe it!

Peace,

Kathy E.

Actually, that is exactly what I would expect with corn allergy.  I've had food allergies for years, decades in fact...and if you have celiac you almost certainly have a leaky gut.  Corn allergy is not uncommon.  It is often, very commonly true that we crave those things we are allergic to.  And after the body is cleared from an allergen that you used to eat every day, the more acute reactions come out...before that the body is stressed but adapting or semi-tolerating the antigen.

My own daughter has corn allergy and it gives her lupus flares.

Peace,

Kathy E.

<{POST_SNAPBACK}>

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - BluegrassCeliac replied to lasthope2024's topic in Food Intolerance & Leaky Gut
      7

      This forum might be the last hope I have in my life. Please I beg you

    2. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    3. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    4. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    5. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,067
    • Most Online (within 30 mins)
      7,748

    myneckmybackmyceliac
    Newest Member
    myneckmybackmyceliac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
×
×
  • Create New...