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How Long To Get Rid Of Gluten From My System?
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In a nutshell, my journey with chronic head pain began at age 13 in 1999. I strongly believe I have been dealing with Gluten Intolerance ever since and only recently discovered that I have Celiac Disease.

I have been told by my Allergist that it can take up to 6-8 weeks to be completely Gluten free. Is this correct? I am thinking it will take much loner than this. And how do I go about knowing that I am 100% Gluten Free?

Thanks.

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I have been told by my Allergist that it can take up to 6-8 weeks to be completely Gluten free. Is this correct? I am thinking it will take much loner than this. And how do I go about knowing that I am 100% Gluten Free?

Thanks.

I have no idea unless your allergist thinks it's going to take 6 to 8 weeks for you to learn the ins and outs of eating gluten-free ??? I started reading labels as soon as I had a positive celiac panel so as to not buy things I knew I would not be able to eat. I cleaned out my pantry the first week after my endoscopy and got rid or or donated foods I could no longer eat. And then I tackled personal care products. While there's definitely a learning curve, I didn't find this to be overwhelming.

You might want to check this list of safe and unsafe foods so you become familiar with what you can eat and ingredients you have to watch for. And if you stick with naturally gluten-free foods, you'll have a whole lot less labels to read.

Living Gluten-Free for Dummies by Danna Korn is a book you might find helpful.

While it may be confusing at first, just hang in there and it'll definitely get a lot easier.

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Thank you for the reply. Personal care products, really? Do you mean toothpaste, etc? Do I have to worry about that too? I haven't ever seen Gluten on toothpaste and would the ingredients also be listed on ingredients/foods to avoid list?

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I have never seen gluten in toothpaste. Most of us prefer to use gluten-free shampoo, lotion ,etc because it can get in your mouth or stick to your hands and then get on food. Check any meds, vitamins, Tylenol, etc for gluten. On meds, the only way to know if it has gluten is if the manufacturer decides to label it gluten-free or you call the company and ask.

Don't kiss people who eat gluten until they have thoroughly brushed thier teeth. Be aware of lipsticks/gloss, too.

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What do they 6 - 8 weeks to be completely gluten free? If you've had the disease a long time it can potentially take a long time for all this stuff to really get out of your system even if you are not consuming it. I may be an extreme example as I think I've had this disease since I was a small child and I'm 38 now. I've been gluten free for almost 15 months now and just went to get my latest celiac blood test and it STILL is showing positive. It has been decreasing since I went gluten free and I'm just 1 point away from testing negative, but still. I'm very cautious about what I eat, etc. so I don't think this is due to me consuming gluten (my GI doc said the same thing).

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And how do I go about knowing that I am 100% Gluten Free?

I like to say I'm 99.99% gluten-free - no matter how careful you are, accidental glutenings are very difficult to completely avoid. You can only do your best to learn all the hidden sources of gluten and how avoid them.

One way to determine you know you are successful in removing gluten is symptom improvement. Another is follow up testing. My celiac doc recommended full celiac panel and nutritional deficiencies at 3 and 6 months gluten-free, then annually thereafter.

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Don't kiss people who eat gluten until they have thoroughly brushed thier teeth.

Really? I would never have thought of that on my own.

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    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
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