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How Long To Get Rid Of Gluten From My System?
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In a nutshell, my journey with chronic head pain began at age 13 in 1999. I strongly believe I have been dealing with Gluten Intolerance ever since and only recently discovered that I have Celiac Disease.

I have been told by my Allergist that it can take up to 6-8 weeks to be completely Gluten free. Is this correct? I am thinking it will take much loner than this. And how do I go about knowing that I am 100% Gluten Free?

Thanks.

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I have been told by my Allergist that it can take up to 6-8 weeks to be completely Gluten free. Is this correct? I am thinking it will take much loner than this. And how do I go about knowing that I am 100% Gluten Free?

Thanks.

I have no idea unless your allergist thinks it's going to take 6 to 8 weeks for you to learn the ins and outs of eating gluten-free ??? I started reading labels as soon as I had a positive celiac panel so as to not buy things I knew I would not be able to eat. I cleaned out my pantry the first week after my endoscopy and got rid or or donated foods I could no longer eat. And then I tackled personal care products. While there's definitely a learning curve, I didn't find this to be overwhelming.

You might want to check this list of safe and unsafe foods so you become familiar with what you can eat and ingredients you have to watch for. And if you stick with naturally gluten-free foods, you'll have a whole lot less labels to read.

Living Gluten-Free for Dummies by Danna Korn is a book you might find helpful.

While it may be confusing at first, just hang in there and it'll definitely get a lot easier.

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Thank you for the reply. Personal care products, really? Do you mean toothpaste, etc? Do I have to worry about that too? I haven't ever seen Gluten on toothpaste and would the ingredients also be listed on ingredients/foods to avoid list?

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I have never seen gluten in toothpaste. Most of us prefer to use gluten-free shampoo, lotion ,etc because it can get in your mouth or stick to your hands and then get on food. Check any meds, vitamins, Tylenol, etc for gluten. On meds, the only way to know if it has gluten is if the manufacturer decides to label it gluten-free or you call the company and ask.

Don't kiss people who eat gluten until they have thoroughly brushed thier teeth. Be aware of lipsticks/gloss, too.

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What do they 6 - 8 weeks to be completely gluten free? If you've had the disease a long time it can potentially take a long time for all this stuff to really get out of your system even if you are not consuming it. I may be an extreme example as I think I've had this disease since I was a small child and I'm 38 now. I've been gluten free for almost 15 months now and just went to get my latest celiac blood test and it STILL is showing positive. It has been decreasing since I went gluten free and I'm just 1 point away from testing negative, but still. I'm very cautious about what I eat, etc. so I don't think this is due to me consuming gluten (my GI doc said the same thing).

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And how do I go about knowing that I am 100% Gluten Free?

I like to say I'm 99.99% gluten-free - no matter how careful you are, accidental glutenings are very difficult to completely avoid. You can only do your best to learn all the hidden sources of gluten and how avoid them.

One way to determine you know you are successful in removing gluten is symptom improvement. Another is follow up testing. My celiac doc recommended full celiac panel and nutritional deficiencies at 3 and 6 months gluten-free, then annually thereafter.

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Don't kiss people who eat gluten until they have thoroughly brushed thier teeth.

Really? I would never have thought of that on my own.

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    • Thanks, I'll check that out. I may have to apply for my own Medicare card in order to get any kind of coeliac-testing done beyond the screen (see above post.)  No, nobody has even mentioned it. I'm unsure if my doctor knows that I do not need to use my hands to vomit, or if she knows about the involuntary vomiting.  I have a part time job at McDonald's and make around $150 per week, which is how I afford to smoke. Mostly, I spend my money on (generally gluten-containing) binge food and cigarettes. I did attempt to start saving money, but then my shifts were cut at work - which meant I had more time to study, but no money, which was kind of pointless. It's complicated. Here in Australia, cigarettes are $25 per pack. These aren't fancy cigarettes either, just your run-of-the-mill Marlboro 20s. Thanks for caring. I am trying to stop I've had the vomiting thing all my life, way before I started smoking. And no, I'm not sure. I know he had an endoscopy and the flattened villi, but I'm not sure if he got a blood test - I assume he would have done, don;t know if it was the full panel. Supposedly he has this FODMAP thing, which I'll admit that I know next to nothing about. Interestingly, people who have to follow low-FODMAP or no-FODMAP diets can't eat gluten either, so there's that. 
    • Would a coeliac screen be the same as a test for antibodies, then? I have no idea why it was even included in my list of tests. It could be my brother, or my symptoms, or both - regardless, I can't say I know too much about the testing.  It's possible that my brother has coeliac disease, I really do worry about it sometimes. He was told to follow a strict low-FODMAP diet by his doctor, and eventually my parents stopped caring. Occasionally they will remind him not to eat things like pasta, greasy foods, etc. because of his condition, but by and large they don't care. He basically just eats whatever he wants. I'm not sure if it affects him or not. However, he isn't shorter than other family members - my dad is 183cm, and my brother is 178cm at the age of 14. Our mother is 173cm.  I do think I have bad digestion, yes. I get gassy and very bloated often, as well as constipated phases (and then following that, diarrhea phases.)  I have tried to ask my mum to call the doctor to get the tests done, but I'm hesitant to mention anything to do with gluten as I know they won't believe me, solely because a good friend of mine has celiac disease. I know they'll think I'm doing it for attention, or to be trendy, when in actual fact I'm just tired of being sick and having no explanation for it other than diet. I'm positive it's not dairy, as I was vegan for a couple of months at one stage. When I went back to eating animal products, I had no issues whatsoever. 
    • He had the IgG ELISA done as well as other blood panels, fecal and saliva tests. He is on an elimination diet right now where foods that score above 0.2 are eliminated for 2-6 months depending on the score, then added back slowly after the detox period.  I am aware that there is a lot of controversy over the IgG, and I'm not here to go into that issue, but I can say with certainty that eliminating the additional foods he reacted to has seen a huge reduction in the symptoms that persisted after cutting gluten and dairy. We will be attempting to add rice back in around October, and see how he does but until then I still need a solution for a baking mix.  I tried to wing it a bit with pumpkin bread today and my attempt was okay but not great. The loaf sank a bit and was overly chewy.  So, to my original question....recipes?
    • Ask the doctor's office!  But usually you can eat right after if you feel like it.  But ask them!  Some of them will try to give you crackers, so you may want to bring some gluten-free applesauce or Rice Chex
    • I'm wondering if he doesn't have an oat problem. He was only dx'd several months ago and really shouldn't use oats for a year after dx. Just thinking out loud. I too am wondering how the rice was picked out of all those other flours to be determined to be affecting him.
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